Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 As another Lyme friend told me, her response to the " but you don't look sick " was " turn me inside out and you'll see just how sick I am " . deb > > > > I am also pretty sure that I have Bartonella. I tried to sell > > that to an infectious disease doctor but she actually laughed. " Ticks > > do not carry Bartonella! " she cried. When I got home I googled; Ticks > > - Bartonella - CDC and sure enough they said that ticks DO CARRY > > Bartonella. > > Ticks carry Bartonella, but some scientists/medics doubt that you can get > Bart from a tick byte. Apparently that has never been proven, although > there is lots of indirect evidence that it happens (e.g. from lymies with > coinfections). In my country (Netherlands) many docs also claim that you > can't get Bart from a tick byte. > > Any U.S. tax advice contained in the body of this e-mail was not intended or > written to be used, and cannot be used, by the recipient for the purpose of > avoiding penalties that may be imposed under the Internal Revenue Code or > applicable state or local tax law provisions. > __________________________________________________________ > The information contained in this message may be privileged and confidential > and protected from disclosure. If the reader of this message is not the > intended recipient, or an employee or agent responsible for delivering this > message to the intended recipient, you are hereby notified that any > dissemination, distribution or copying of this communication is strictly > prohibited. If you have received this communication in error, please notify > us immediately by replying to the message and deleting it from your > computer. > > Notice required by law: This e-mail may constitute an advertisement or > solicitation under U.S. law, if its primary purpose is to advertise or > promote a commercial product or service. You may choose not to receive > advertising and promotional messages from Ernst & Young LLP (except for > Ernst & Young Online and the ey.com website, which track e-mail preferences > through a separate process) at this e-mail address by forwarding this > message to no-more-mail@... <mailto:no-more-mail%40ey.com> . If you do > so, the sender of this message will be notified promptly. Our principal > postal address is 5 Times Square, New York, NY 10036. Thank you. Ernst & > Young LLP > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 With regard to what to say when people say " how are you, " I always respond with " status quo. " This usually gets a strange face in response, but at least it is accurate. AFter so many years of lying and say " fine, " I knew I had to make a change. In a message dated 8/20/2010 11:08:33 A.M. Central Daylight Time, maudsteinberg@... writes: Jeannie and Deb, Yes you are both right about people's responses that you don't look sick and when they ask how you are it is hard to say: " Fine " , because it is not true. If I am out and about then it is a good day, so the answer is always: " Today is a good day " , but nobody understands what you mean. I take one day at a time and hope every day that may-be today I can " do " something worthwhile. If I do have the energy and feel like doing something I have nobody to do it with and often end up at home anyway. Maud On Aug 19, 2010, at 10:49 PM, Jeannie wrote: > Deb > > I have not been able to work. I'm glad that you are able to. I totally understand going to bed when you need to. I was bedridden for seven years. Then slowly I started to take care of myself and not everybody else. That is when I was able to finally leave an abusive relationship. Now I'm on a journey to heal.... > > Jeannie > Have a good day! > > [ ] Re: personal support > > As another Lyme friend told me, her response to the " but you don't look sick " was " turn me inside out and you'll see just how sick I am " . > > deb > > > > > > > > I am also pretty sure that I have Bartonella. I tried to sell > > > that to an infectious disease doctor but she actually laughed. " Ticks > > > do not carry Bartonella! " she cried. When I got home I googled; Ticks > > > - Bartonella - CDC and sure enough they said that ticks DO CARRY > > > Bartonella. > > > > Ticks carry Bartonella, but some scientists/medics doubt that you can get > > Bart from a tick byte. Apparently that has never been proven, although > > there is lots of indirect evidence that it happens (e.g. from lymies with > > coinfections). In my country (Netherlands) many docs also claim that you > > can't get Bart from a tick byte. > > > > Any U.S. tax advice contained in the body of this e-mail was not intended or > > written to be used, and cannot be used, by the recipient for the purpose of > > avoiding penalties that may be imposed under the Internal Revenue Code or > > applicable state or local tax law provisions. > >__________________________________________________________ > > The information contained in this message may be privileged and confidential > > and protected from disclosure. If the reader of this message is not the > > intended recipient, or an employee or agent responsible for delivering this > > message to the intended recipient, you are hereby notified that any > > dissemination, distribution or copying of this communication is strictly > > prohibited. If you have received this communication in error, please notify > > us immediately by replying to the message and deleting it from your > > computer. > > > > Notice required by law: This e-mail may constitute an advertisement or > > solicitation under U.S. law, if its primary purpose is to advertise or > > promote a commercial product or service. You may choose not to receive > > advertising and promotional messages from Ernst & Young LLP (except for > > Ernst & Young Online and the ey.com website, which track e-mail preferences > > through a separate process) at this e-mail address by forwarding this > > message to no-more-mail@... <mailto:no-more-mail%40ey.com> . If you do > > so, the sender of this message will be notified promptly. Our principal > > postal address is 5 Times Square, New York, NY 10036. Thank you. Ernst & > > Young LLP > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 Jeannie and Deb, Yes you are both right about people's responses that you don't look sick and when they ask how you are it is hard to say: " Fine " , because it is not true. If I am out and about then it is a good day, so the answer is always: " Today is a good day " , but nobody understands what you mean. I take one day at a time and hope every day that may-be today I can " do " something worthwhile. If I do have the energy and feel like doing something I have nobody to do it with and often end up at home anyway. Maud On Aug 19, 2010, at 10:49 PM, Jeannie wrote: > Deb > > I have not been able to work. I'm glad that you are able to. I totally understand going to bed when you need to. I was bedridden for seven years. Then slowly I started to take care of myself and not everybody else. That is when I was able to finally leave an abusive relationship. Now I'm on a journey to heal.... > > Jeannie > Have a good day! > > [ ] Re: personal support > > As another Lyme friend told me, her response to the " but you don't look sick " was " turn me inside out and you'll see just how sick I am " . > > deb > > > > > > > > I am also pretty sure that I have Bartonella. I tried to sell > > > that to an infectious disease doctor but she actually laughed. " Ticks > > > do not carry Bartonella! " she cried. When I got home I googled; Ticks > > > - Bartonella - CDC and sure enough they said that ticks DO CARRY > > > Bartonella. > > > > Ticks carry Bartonella, but some scientists/medics doubt that you can get > > Bart from a tick byte. Apparently that has never been proven, although > > there is lots of indirect evidence that it happens (e.g. from lymies with > > coinfections). In my country (Netherlands) many docs also claim that you > > can't get Bart from a tick byte. > > > > Any U.S. tax advice contained in the body of this e-mail was not intended or > > written to be used, and cannot be used, by the recipient for the purpose of > > avoiding penalties that may be imposed under the Internal Revenue Code or > > applicable state or local tax law provisions. > >__________________________________________________________ > > The information contained in this message may be privileged and confidential > > and protected from disclosure. If the reader of this message is not the > > intended recipient, or an employee or agent responsible for delivering this > > message to the intended recipient, you are hereby notified that any > > dissemination, distribution or copying of this communication is strictly > > prohibited. If you have received this communication in error, please notify > > us immediately by replying to the message and deleting it from your > > computer. > > > > Notice required by law: This e-mail may constitute an advertisement or > > solicitation under U.S. law, if its primary purpose is to advertise or > > promote a commercial product or service. You may choose not to receive > > advertising and promotional messages from Ernst & Young LLP (except for > > Ernst & Young Online and the ey.com website, which track e-mail preferences > > through a separate process) at this e-mail address by forwarding this > > message to no-more-mail@... <mailto:no-more-mail%40ey.com> . If you do > > so, the sender of this message will be notified promptly. Our principal > > postal address is 5 Times Square, New York, NY 10036. Thank you. Ernst & > > Young LLP > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 KM, only 3 months in? Hang in there, it does get better - just remember to detox, detox, detox - helps the flu-ey feeling go away. _____ From: [mailto: ] On Behalf Of K M Sent: Thursday, August 19, 2010 8:47 PM Lyme Treatment Subject: RE: [ ] Re: personal support You know this is so true....you are forced to ask sometimes the near strangers..and most often there will be someone there...but you got to put yourself out...i have been ill over 6 yrs...and now i have a 3 yr oldwith autism..and i am very much alone..i am also getting him tested for lyme..golly you know...it really helps to have this group and know your not alone...some days in the past ..wondered how to get through it..but i kept going and today i am closer to my goal of wellness because of it....I am only 3 month into my treatemnt for chronic lyme.. One day at a time..moment by moment..Leanne > <mailto: %40> > From: judyb77@... <mailto:judyb77%40comcast.net> > Date: Thu, 19 Aug 2010 18:23:07 -0400 > Subject: Re: [ ] Re: personal support > > Wow, > Having a chronic illness is definitely very isolating. Just like many of you I've been through so much, and felt so very alone. I had a really tough year, 6 years ago where I was having pain and insomnia and kept feeling lousy and anxious. I had been through a recent divorce so everyone told me it was depression which I knew was wrong. Well, finally I got hit with a ton of who knows what and was so sick I could barely stand (now, in retrospect, I think the lyme just wiped out my adrenals and exhausted my immune system so that I was open to all sorts of things). Everyone told me that I looked great and doctors said it must be depression or CFS. Well, finally over a year later, I found out I had lyme. > > I was so sick that I spent most of 3 years in bed and felt so completely alone. I'm a single mom so the fact that my kids needed me helped me not give up. I have one brother who lives too far away to be of help and my closest friend moved 3 states away, 2 months after I got sick. What I discovered is that there are really angels everywhere. And also, I think it is easier sometimes for people who are not emotionally attached to you to be of help. It seemed like people I knew, where afraid I would need too much or something so they slowly withdrew from my life. I felt friendless. BUT, over time I became very close to a couple of the women who stepped in to help out. Also, I learned to ask for help which is not an easy thing. Where I live, and I'm sure in most places, there is an organization that sends out volunteers to help or just visit with people who can't get out much. Of course, usually they are helping elderly people but they are happy to help people with lyme dise! ase too! I found some nice connections that way. (church's also provide this sort of thing) I also called the red cross for rides to doctor appointments when I couldn't find anyone to help and had some lovely experiences there too. I called on neighbors I barely knew and straight out asked for some help a couple of times and they were so thrilled that I had thought to contact them. After that, they would call to say hello or bring me bread or see if I needed something at the store. All these things, all these people, helped me to feel a little more connected to the flow of humanity. What a difference that made! > > This group and others are wonderful too. It could be that some of us live near one another. I am also happy to talk to anyone who wants to connect with someone who really understands. So email me if you want! > > Wishing you all peace, love and healing, > Judy in New Hampshire > > > > On Aug 19, 2010, at 5:14 PM, Deb57 wrote: > > > As another Lyme friend told me, her response to the " but you don't look sick " was " turn me inside out and you'll see just how sick I am " . > > > > deb > > > > > > > > > > > > I am also pretty sure that I have Bartonella. I tried to sell > > > > that to an infectious disease doctor but she actually laughed. " Ticks > > > > do not carry Bartonella! " she cried. When I got home I googled; Ticks > > > > - Bartonella - CDC and sure enough they said that ticks DO CARRY > > > > Bartonella. > > > > > > Ticks carry Bartonella, but some scientists/medics doubt that you can get > > > Bart from a tick byte. Apparently that has never been proven, although > > > there is lots of indirect evidence that it happens (e.g. from lymies with > > > coinfections). In my country (Netherlands) many docs also claim that you > > > can't get Bart from a tick byte. > > > > > > Any U.S. tax advice contained in the body of this e-mail was not intended or > > > written to be used, and cannot be used, by the recipient for the purpose of > > > avoiding penalties that may be imposed under the Internal Revenue Code or > > > applicable state or local tax law provisions. > > > __________________________________________________________ > > > The information contained in this message may be privileged and confidential > > > and protected from disclosure. If the reader of this message is not the > > > intended recipient, or an employee or agent responsible for delivering this > > > message to the intended recipient, you are hereby notified that any > > > dissemination, distribution or copying of this communication is strictly > > > prohibited. If you have received this communication in error, please notify > > > us immediately by replying to the message and deleting it from your > > > computer. > > > > > > Notice required by law: This e-mail may constitute an advertisement or > > > solicitation under U.S. law, if its primary purpose is to advertise or > > > promote a commercial product or service. You may choose not to receive > > > advertising and promotional messages from Ernst & Young LLP (except for > > > Ernst & Young Online and the ey.com website, which track e-mail preferences > > > through a separate process) at this e-mail address by forwarding this > > > message to no-more-mail@... <mailto:no-more-mail%40ey.com> . If you do > > > so, the sender of this message will be notified promptly. Our principal > > > postal address is 5 Times Square, New York, NY 10036. Thank you. Ernst & > > > Young LLP > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 I often have the same response - " today is a good day " - and I think people do understand. I wish I understood why one day you can feel lousy and then day (or hour or minute) you can feel fine. It's cruel. I am doing better than I was so at least I am thankful for that. deb > > > > > > > > I am also pretty sure that I have Bartonella. I tried to sell > > > > that to an infectious disease doctor but she actually laughed. " Ticks > > > > do not carry Bartonella! " she cried. When I got home I googled; Ticks > > > > - Bartonella - CDC and sure enough they said that ticks DO CARRY > > > > Bartonella. > > > > > > Ticks carry Bartonella, but some scientists/medics doubt that you can get > > > Bart from a tick byte. Apparently that has never been proven, although > > > there is lots of indirect evidence that it happens (e.g. from lymies with > > > coinfections). In my country (Netherlands) many docs also claim that you > > > can't get Bart from a tick byte. > > > > > > Any U.S. tax advice contained in the body of this e-mail was not intended or > > > written to be used, and cannot be used, by the recipient for the purpose of > > > avoiding penalties that may be imposed under the Internal Revenue Code or > > > applicable state or local tax law provisions. > > >__________________________________________________________ > > > The information contained in this message may be privileged and confidential > > > and protected from disclosure. If the reader of this message is not the > > > intended recipient, or an employee or agent responsible for delivering this > > > message to the intended recipient, you are hereby notified that any > > > dissemination, distribution or copying of this communication is strictly > > > prohibited. If you have received this communication in error, please notify > > > us immediately by replying to the message and deleting it from your > > > computer. > > > > > > Notice required by law: This e-mail may constitute an advertisement or > > > solicitation under U.S. law, if its primary purpose is to advertise or > > > promote a commercial product or service. You may choose not to receive > > > advertising and promotional messages from Ernst & Young LLP (except for > > > Ernst & Young Online and the ey.com website, which track e-mail preferences > > > through a separate process) at this e-mail address by forwarding this > > > message to no-more-mail@ <mailto:no-more-mail%40ey.com> . If you do > > > so, the sender of this message will be notified promptly. Our principal > > > postal address is 5 Times Square, New York, NY 10036. Thank you. Ernst & > > > Young LLP > > > > > > Quote Link to comment Share on other sites More sharing options...
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