Re: OT: Jeannie

August 19, 2010

Jeannie,

Your story sounds so similar to mine, I got bit in the 90's had the bull's

eye, did the abx's for a few weeks, felt fine for 12 years, got a dental

infection from a routine visit. The infection got so bad and I was on so

many abx's to treat it, the dormant Lyme came out and so did the

Bartonella!

I've been told it's all in my head, I've been told I have CFS and Fibro.

My friends and family say; you look great! How can you be sick.

I lost a lot of friends and relationships too, I don't even want to get

into the financial aspect of all of this, makes me cry!

My hearing is compromised too, part of the Lyme damage, they can get into

our eyes, ears, nose, jaw/teeth areas because they can feed there.

Hang in there, and stay positive, being on the different Lyme groups will

give you lots of tips to heal.

From:

" Jeannie " <gemstar727@...>

To:

Date:

08/19/2010 01:43 PM

Subject:

Re: [ ]OT: Ticks carrying bart

Sent by:

Good morning everyone. I got bit in 1992 (had bull's eye rash) cleaning

out a trailer that the family used when we went camping in Northern

California. I was treated for SIX months of abx. Had an emergency

hysterectomy (1994) and it reawakened and activated my Lyme. From 1994 to

5/2010 all the doctors I saw said it was Chronic Fatigue and Fibromyalgia

always even when I mentioned being bit.

Last month I found out I had Late stage Lyme. I'm angry at what I have

lost in my life, my career, my marriage, my home. I lived alone for a few

years until I felt like I was slowly dying. I have been through first abx

treatment and nothing. Now doing a CD57 to see the numbers there. What I

wanted to say is I got bit not by an adult tick but a Nymph and that tick

was not on a deer, because he was too small for a deer or the deer to big,

but that tick and others in that trailer were on Deer Mice!!! You just

never know.

As for being alone, I have three grown kids in their late 20's and

parents, what little friends remain - but none believe me that I'm sick.

" You are too pretty to be sick " WHAT!?? " You don't look sick at all " . You

can have people around you and still feel all alone and lonely. I'm taking

it one day at a time.

Just my two cents worth... Gotta get ready, another doctor appt. the Lyme

or co-infections is trying to take my hearing away... So I'm fighting that

too.

Sorry for going off and venting. I hope that if any of you need someone to

talk to... Let me know and I'll give you my number and support. I know how

lonely this illness really is.

((Hugs))

Jeannie

Have a good day!

[ ] Re: Being Alone

Sent by:

>

> I am also pretty sure that I have Bartonella. I tried to sell

> that to an infectious disease doctor but she actually laughed. " Ticks

> do not carry Bartonella! " she cried. When I got home I googled; Ticks

> - Bartonella - CDC and sure enough they said that ticks DO CARRY

> Bartonella.

Ticks carry Bartonella, but some scientists/medics doubt that you can get

Bart from a tick byte. Apparently that has never been proven, although

there is lots of indirect evidence that it happens (e.g. from lymies with

coinfections). In my country (Netherlands) many docs also claim that you

can't get Bart from a tick byte.

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August 19, 2010

Hi ,

Tomorrow I'm going to that new facility for CFS and Prostate Cancer and other

infectious diseases in Reno Nevada. It's the new XMRV retrovirus facility -

grand opening on Saturday. Since I have Fibro/CFS and Lyme I'm attacking it any

way I can.

I can't even play with my grandkids ages 3 and 2. I'm hoping to offer myself as

a lab rat for any clinical trials. They (people infected with CFS) call XMRV

the second HIV epidemic. Whittmore Institute will have antivirals next

year! That will help a lot of us who have both.

Hugs,

Jeannie

We have such similar stories.