Re: OT: atrophy of the fingertips

[Guest guest]

I have the same problem as you, can't feel things, can't feel my

fingertips, I bruise easy, don't heal well, indentations left from

everything for hours, used to be very ticklish, now I don't even feel that

sensation (don't feel hot/cold very well, end up getting burnt sometimes

when I take a bath). When my feet hit the floor in the morning, I hobble

around, if I rest for awhile and put my feet up and step on the floor

again, I get pain, and hobble. Bad muscle spasms, I used to get the

burning, stinging sensation, but that went away, now I get a creepy crawly

sensation in my body, it moves around.

I haven't found anything to date that has made this go away. Exercise

seems to help, but I don't do it everyday, I've been skin brushing, taking

epsom salt baths, trying to eat better, thinking of starting buhner herbs,

haven't saved enough to buy a coil machine yet.

Neurologist didn't even want to hear about Lyme, said I had fibromy. and

some carpal tunnel damage in my hands, confirmed thru the nerve conduction

tests.

Does anyone know what is causing this? Is it the Lyme doing nerve damage?

Could it be inflammation? I tested negative for MS.

From:

Sue McKeen <susanmckeen@...>

To:

Date:

07/29/2010 12:53 PM

Subject:

Re: [ ] atrophy of the fingertips

Sent by:

I have similar issues - diagnosed MS.

My Neurologist recommended Samento and it seems to control this for me -

15 drops twice a day.

I also take the other core Buhner at a sort of maintenance level 3

pills, 3x day level plus Siberian Eleuthero and Devil's Claw.

McKeen

Software Developer

Preventing Chronic Disease Journal

Northrop Grumman Information Technology

Centers for Disease Control and prevention

Phone: 978-223-1616 email: ena1@...

On 7/29/2010 12:02 PM, knot_weed wrote:

>

> I have a new problem, the touch sensation in my fingertips is starting

> to disappear.

>

> Over the last years I have had problems related to skin and connective

> tissue, where the skin (or actually the tissue below it) is very

> vulnerable to light pressure. e.g. my feet deform and become painful

> when standing on a hard floor, and I have to be very careful when

> handling tools or even a pen as they leave deep cuts in my hands (not

> in the skin). Normal clothing leaves stretch marks everywhere that

> remain visible for hours. Lightly bumping against something will

> produce big scars that remain visible for weeks or months, the healing

> seems very very slow if at all.

>

> Over the last months my fingertips started to 'wrinkle' on the inside

> and now the sense of touch (not sure about the english word for it

> ...) is gradually disappearing. My MD says this is neuropathy, and it

> seems similar to problems described by diabetics or some people with

> lupus, scleroderma and other 'auto-immune' diseases. Both the

> wrinkling and the loss of sense seems related to problems with the

> autonomic nervous system.

>

> I don't have the 'tingling' sensations or shooting pains that are

> common in earlier lyme stages. It's more like the fingertips are dead

> which is scary, and a problem for my daily activities like handling

> small technical gadgets or playing the piano. The sense of touch is

> not completely gone, but is progressing very quickly in the wrong

> direction.

>

> My MD has recommended that I consult a neurologist, however the

> neurologists in my country are allergic to the word 'lyme' and I will

> have a hard time getting an appointment because of my lyme history.

> And I doubt there is a good treatment for this, I haven't come across

> it when searching.

>

> Does anyone else have experience with this issue? Any treatment that

> you can recommend, especially something alternative like herbs? I'm

> guessing that maybe it is related to bad circulation, and some herbs

> like eleuthero should be able to improve that.

>

> I haven't used Buhner herbs over the last months as my condition is

> relatively stable, except for the skin/connective tissue problems.

>

>

[Guest guest]

>

>

> I haven't found anything to date that has made this go away. Exercise

> seems to help, but I don't do it everyday, I've been skin brushing, taking

> epsom salt baths, trying to eat better, thinking of starting buhner herbs,

your case sounds very similar indeed, including that nothing really helps. I

guess excercise could help, but I'm afraid of pushing my body because it is so

easily damaged (lifting weight or the usual fitness gear).

> Neurologist didn't even want to hear about Lyme, said I had fibromy. and

> some carpal tunnel damage in my hands, confirmed thru the nerve conduction

> tests.

yes, I found on internet that this is often described as a result of carpal

tunnel syndrome; especially for those working with computers etc. But this seems

to be a wrong diagnosis, surgery for carpal tunnel syndrome usually doesn't help

at all.

> Does anyone know what is causing this? Is it the Lyme doing nerve damage?

> Could it be inflammation? I tested negative for MS.

Could be both, plus circulation problems. they can all be result of Lyme. But

depending on what really is the cause you need other treatment ...

for nerve damage and inflammation I guess knotweed would be the first choice.

[Guest guest]

My experience is that my neck and back are very out of alignment. I

have no pain from this most of the time. The chiropractor told me that

only 10 percent of the nerves conduct pain, and that one could have 90%

nerve damage with no pain. I tend to have numbness and loss of

function, so I get numbness instead of pain. I do have nerve damage in

my wrists, but the chiro says that it is mostly due to my neck being out

of alignment. I lose all kinds of health symptoms when I go to the

chiropractor. Lyme, and probably other pathogens, eat up the cartilage

that holds the vertebrae in place. Then the out-of-alignment causes all

kinds of symptoms, even organ failures. So, really, lots of people on

these health forums, especially the ones taking too long to get better,

could probably benefit highly from getting their backs realigned through

chiropractic care. My symptoms get worse when I first start getting

adjusted if I haven't been in a while. Then they get gobs better in

ways I never expected. In my past, I didn't know I had all these

tick-borne pathogens, I just went to the chiro. Now, I am treating the

pathogens and going back to the chiro. So, hopefully, I can be restored

correctly. If I rid those pathogens, my cartilage can grow back and

keep my back straight, but only if I get it aligned first. In my town,

there are all kinds of great deals on chiros. Call around and tell them

you are paying cash if your insurance doesn't pay, and then they may

give you a good deal. Keep in mind that the neck is very implicated

nowadays in all kinds of chronic diagnoses - something about impeding

blood flow, causing toxins to back up and subsequent pathogen over-growth.

Love and prayers,

Heidi N

[Guest guest]

>

> So, really, lots of people on

> these health forums, especially the ones taking too long to get better,

> could probably benefit highly from getting their backs realigned through

> chiropractic care.

I have had chronic problems in my shoulders for a long time, for which I could

not find effective treatment. After trying the standard solutions (cortisone

shots etc.) I went to a chiropractor who cured me of the problem in about 5

sessions; really spectacular after having pain and movement limitations for

years. In my case there also were neck/back alignment problems.

P.S.: I think the procedure is a bit scary, and it is not entirely without risk.

You need to be sure you have an experienced practitioner for this.

However, when I got lyme many years later, the chiropractor strongly advised me

to treat the Lyme with antibiotics, as there was not much he could do for me -

so he thinks my symptoms are not really related to 'alignment problems'. I don't

know too much about the theory behind this, sometimes it sounds a bit like the

ideas about the flow of Chi in Eastern medicine.