Guest guest Posted June 17, 2010 Report Share Posted June 17, 2010 > > I just spoke with Tim from Green Dragon Botanicals. He said he has been working with B and developed a pill that contains the following herbs; 500mg of Jap Knotweed ( the root ), 500mg of Cats Claw, 430mg of Andrograph, 150mg or Sarasparilla(sp?) and 150mg of Dandelion. You need to take 3 pills a day to get the total amount, working up to 12 pills a day The cost is $55 for a bottle of 300 plus pills. Im wondering if anyone out there has tried his protocol? I was discussed just a week ago or so. The info suggests that the pills are nearly 2 grams each, that is huge!! My guess is that it is about as effective as separate pills, and certainly more convenient - but at a cost. It is 5-10x more expensive than using bulk herbs that you encapsulated yourself. Compared to the standard ready-made pills is seems an attractive option. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 I am feeling 100% better since the day I started them 1 year ago. I am planning to come off them in the next week or so and have been slowly decreasing my dosage. I am completely satisfied with the results. I was getting the pills from Tim in Vermont. Good luck to everyone! On Jun 18, 2010, at 6:44 AM, Anita Pelligra wrote: > Can you tell me if you symptoms have diminished and if you actually > feel > better on it rather than just being able to tolerate it? I would > like to > hear that someone has had some significant improvement while taking > this > supplement. > > Anita Pelligra > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 Wow , that is so wonderful. I don't think I've heard of anyone who has felt 100% better after battling chronic lyme. How long did you have it? Was the Buhner protocol the only treatment you followed? Thanks, Judy On Jun 18, 2010, at 5:27 PM, Manno wrote: > I am feeling 100% better since the day I started them 1 year ago. I > am planning to come off them > in the next week or so and have been slowly decreasing my dosage. I > am completely satisfied with the results. > I was getting the pills from Tim in Vermont. Good luck to > everyone! > > On Jun 18, 2010, at 6:44 AM, Anita Pelligra wrote: > >> Can you tell me if you symptoms have diminished and if you actually >> feel >> better on it rather than just being able to tolerate it? I would >> like to >> hear that someone has had some significant improvement while taking >> this >> supplement. >> >> Anita Pelligra >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 I had it for 3 years. I tried antibiotics 2 x without success. I am on doxycycline for the last 2 months of my Buhner protocol, but I started feeling better after 6 months on the Buhner protocol. I did not have neurological Lyme, however, so it varies from case to case. On Jun 18, 2010, at 5:55 PM, Judy Blake wrote: > Wow , that is so wonderful. I don't think I've heard of > anyone who has felt 100% better after battling chronic lyme. How > long did you have it? Was the Buhner protocol the only treatment > you followed? > > Thanks, > Judy > > On Jun 18, 2010, at 5:27 PM, Manno wrote: > > > I am feeling 100% better since the day I started them 1 year ago. I > > am planning to come off them > > in the next week or so and have been slowly decreasing my dosage. I > > am completely satisfied with the results. > > I was getting the pills from Tim in Vermont. Good luck to > > everyone! > > > > On Jun 18, 2010, at 6:44 AM, Anita Pelligra wrote: > > > >> Can you tell me if you symptoms have diminished and if you actually > >> feel > >> better on it rather than just being able to tolerate it? I would > >> like to > >> hear that someone has had some significant improvement while taking > >> this > >> supplement. > >> > >> Anita Pelligra > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 I don't have neurological lyme either. I have a range of constantly shifting symptoms but the one that has been constant and severe is fatigue (I spent most of 3 years in bed and am still quite limited). I've heard that fatigue is the last to go. Did you have that? It took 2 years to diagnose the lyme, then I took just cat's claw which helped at first but then I slid all the way back after a few months so I went on antibiotics for 2.5 years. Now I am rifing and starting the Buhner protocol. I am hopeful but this is such a hard road to travel as everyone on this site knows. judy On Jun 18, 2010, at 7:40 PM, Manno wrote: > I had it for 3 years. I tried antibiotics 2 x without success. I am > on doxycycline for the last 2 months of my Buhner protocol, but I > started feeling better after 6 months on the Buhner protocol. I did > not have neurological Lyme, however, so it varies from case to case. > > > On Jun 18, 2010, at 5:55 PM, Judy Blake wrote: > >> Wow , that is so wonderful. I don't think I've heard of >> anyone who has felt 100% better after battling chronic lyme. How >> long did you have it? Was the Buhner protocol the only treatment >> you followed? >> >> Thanks, >> Judy >> >> On Jun 18, 2010, at 5:27 PM, Manno wrote: >> >>> I am feeling 100% better since the day I started them 1 year ago. I >>> am planning to come off them >>> in the next week or so and have been slowly decreasing my dosage. I >>> am completely satisfied with the results. >>> I was getting the pills from Tim in Vermont. Good luck to >>> everyone! >>> >>> On Jun 18, 2010, at 6:44 AM, Anita Pelligra wrote: >>> >>>> Can you tell me if you symptoms have diminished and if you actually >>>> feel >>>> better on it rather than just being able to tolerate it? I would >>>> like to >>>> hear that someone has had some significant improvement while taking >>>> this >>>> supplement. >>>> >>>> Anita Pelligra >>>> >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 Judy, There are plenty of folks who have done Buhner for months with no results at all....The ALS type of Lyme is tricky.......... Re: [ ] Herbs that contain all of Buhners Protocol in One pill Wow , that is so wonderful. I don't think I've heard of anyone who has felt 100% better after battling chronic lyme. How long did you have it? Was the Buhner protocol the only treatment you followed? Thanks, Judy On Jun 18, 2010, at 5:27 PM, Manno wrote: > I am feeling 100% better since the day I started them 1 year ago. I > am planning to come off them > in the next week or so and have been slowly decreasing my dosage. I > am completely satisfied with the results. > I was getting the pills from Tim in Vermont. Good luck to > everyone! > > On Jun 18, 2010, at 6:44 AM, Anita Pelligra wrote: > >> Can you tell me if you symptoms have diminished and if you actually >> feel >> better on it rather than just being able to tolerate it? I would >> like to >> hear that someone has had some significant improvement while taking >> this >> supplement. >> >> Anita Pelligra >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2010 Report Share Posted June 19, 2010 > > Judy, > > There are plenty of folks who have done Buhner for months with no results at all.... agree, but I think this is similar to results with antibiotics treatment. And judging from the latest research (e.g. from the group of Ben Luft) it is more or less what one would expect. First of all, everyone is different, e.g. many Lymies probably have compromised immune systems and other problems. But the Borrelia's are 'different' too. Apparently the course and severity of Lyme disease depends on the Borrelia strain that you get infected with, and the presence of multiple strains or coinfections. Most of the Bb strains don't cause fullblown disseminated Lyme disease, they are self-limiting: maybe they cause an EM (sme do, some don't), but after that the problems with disappear whatever the treatment. Just a small subgroup (which you can't identify with current serologic testing, but possibly with advanced PCR technology) cause severe disease, and maybe those are impossible to eradicate - for our immune system, and maybe also using antibiotics or herbs. Maybe it is not just the Bb strain, but the combination of the genetic makeup of the Bb and your own body (the match in genetic markers is important for immune evasion etc.). This issue makes statistical research on large groups of Lyme patients useless, and it is totally ignored by the IDSA papers and guidelines. I think this is why there is no solid proof that antibiotics work: for most of the early Lyme cases, the disease will stop whatever the treatment (so ABX have no value, you might as well take a daily glass of orange juice). For a small percentage the disease will progress, and probably just a percentage of those will respond strongly to antibiotics or herbs. this is even more of an issue with treatments that take several years, because there is no way to judge what caused improvement (if there is any). Most diseases will gradually change over the years, whatever you do. Some ABX (e.g. doxy) have an obvious but temporary effect on the patient by suppressing symptoms (e.g. because most ABX have anti-inflammatory properties, or alter brain chemistry), but they don't eradicate the Borrelia. The same may apply to herbs: they change the environment in the body to make it less hospitable to Bb, but if you have an aggressive strain that has already established itself in the tissues/cells that probably is not sufficient to get rid of it. With the current lack of knowledge (or suppression of knowledge ...) there is no other option than trying several approaches and hope that one of them will work. I think that in this sad situation, it makes sense to concentrate on limiting the damage of the disease and helping the body heal, as Buhner tries with his protocol; even if you can't eradicate the bugs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2010 Report Share Posted June 19, 2010 Coiling seems to make scientific sense........ [ ] Re: Herbs that contain all of Buhners Protocol in One pill > > Judy, > > There are plenty of folks who have done Buhner for months with no results at all.... agree, but I think this is similar to results with antibiotics treatment. And judging from the latest research (e.g. from the group of Ben Luft) it is more or less what one would expect. First of all, everyone is different, e.g. many Lymies probably have compromised immune systems and other problems. But the Borrelia's are 'different' too. Apparently the course and severity of Lyme disease depends on the Borrelia strain that you get infected with, and the presence of multiple strains or coinfections. Most of the Bb strains don't cause fullblown disseminated Lyme disease, they are self-limiting: maybe they cause an EM (sme do, some don't), but after that the problems with disappear whatever the treatment. Just a small subgroup (which you can't identify with current serologic testing, but possibly with advanced PCR technology) cause severe disease, and maybe those are impossible to eradicate - for our immune system, and maybe also using antibiotics or herbs. Maybe it is not just the Bb strain, but the combination of the genetic makeup of the Bb and your own body (the match in genetic markers is important for immune evasion etc.). This issue makes statistical research on large groups of Lyme patients useless, and it is totally ignored by the IDSA papers and guidelines. I think this is why there is no solid proof that antibiotics work: for most of the early Lyme cases, the disease will stop whatever the treatment (so ABX have no value, you might as well take a daily glass of orange juice). For a small percentage the disease will progress, and probably just a percentage of those will respond strongly to antibiotics or herbs. this is even more of an issue with treatments that take several years, because there is no way to judge what caused improvement (if there is any). Most diseases will gradually change over the years, whatever you do. Some ABX (e.g. doxy) have an obvious but temporary effect on the patient by suppressing symptoms (e.g. because most ABX have anti-inflammatory properties, or alter brain chemistry), but they don't eradicate the Borrelia. The same may apply to herbs: they change the environment in the body to make it less hospitable to Bb, but if you have an aggressive strain that has already established itself in the tissues/cells that probably is not sufficient to get rid of it. With the current lack of knowledge (or suppression of knowledge ...) there is no other option than trying several approaches and hope that one of them will work. I think that in this sad situation, it makes sense to concentrate on limiting the damage of the disease and helping the body heal, as Buhner tries with his protocol; even if you can't eradicate the bugs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2010 Report Share Posted June 19, 2010 Knotweed, Have you heard of any benefits from glyconutrients like Ambrotose? USANA vitamins/supplements, Dr. 's Collagen? Jay [ ] Re: Herbs that contain all of Buhners Protocol in One pill > > I just spoke with Tim from Green Dragon Botanicals. He said he has been working with B and developed a pill that contains the following herbs; 500mg of Jap Knotweed ( the root ), 500mg of Cats Claw, 430mg of Andrograph, 150mg or Sarasparilla(sp?) and 150mg of Dandelion. You need to take 3 pills a day to get the total amount, working up to 12 pills a day The cost is $55 for a bottle of 300 plus pills. Im wondering if anyone out there has tried his protocol? I was discussed just a week ago or so. The info suggests that the pills are nearly 2 grams each, that is huge!! My guess is that it is about as effective as separate pills, and certainly more convenient - but at a cost. It is 5-10x more expensive than using bulk herbs that you encapsulated yourself. Compared to the standard ready-made pills is seems an attractive option. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2010 Report Share Posted June 19, 2010 Yes, fatigue was the last to go. I am having to rehabilitate myself with constant and increased exercise which at first feels like hell, but then has improved. I was lucky to find out about the Buhner protocol immediately after I tested positive for Lyme (I went for a year undiagnosed, having tested negative the first time and despite having taken antibiotics at the first suspicion of Lyme and then again when I tested positive -- both doses failed). Just stay with it. I was going to go off them after 8 months but I wasn't symptom free so kept going for a whole year. Thanks, ANgela On Jun 18, 2010, at 8:39 PM, Judy Blake wrote: > I don't have neurological lyme either. I have a range of constantly > shifting symptoms but the one that has been constant and severe is > fatigue (I spent most of 3 years in bed and am still quite > limited). I've heard that fatigue is the last to go. Did you have > that? It took 2 years to diagnose the lyme, then I took just cat's > claw which helped at first but then I slid all the way back after a > few months so I went on antibiotics for 2.5 years. Now I am rifing > and starting the Buhner protocol. I am hopeful but this is such a > hard road to travel as everyone on this site knows. > judy > > On Jun 18, 2010, at 7:40 PM, Manno wrote: > > > I had it for 3 years. I tried antibiotics 2 x without success. I am > > on doxycycline for the last 2 months of my Buhner protocol, but I > > started feeling better after 6 months on the Buhner protocol. I did > > not have neurological Lyme, however, so it varies from case to case. > > > > > > On Jun 18, 2010, at 5:55 PM, Judy Blake wrote: > > > >> Wow , that is so wonderful. I don't think I've heard of > >> anyone who has felt 100% better after battling chronic lyme. How > >> long did you have it? Was the Buhner protocol the only treatment > >> you followed? > >> > >> Thanks, > >> Judy > >> > >> On Jun 18, 2010, at 5:27 PM, Manno wrote: > >> > >>> I am feeling 100% better since the day I started them 1 year > ago. I > >>> am planning to come off them > >>> in the next week or so and have been slowly decreasing my > dosage. I > >>> am completely satisfied with the results. > >>> I was getting the pills from Tim in Vermont. Good luck to > >>> everyone! > >>> > >>> On Jun 18, 2010, at 6:44 AM, Anita Pelligra wrote: > >>> > >>>> Can you tell me if you symptoms have diminished and if you > actually > >>>> feel > >>>> better on it rather than just being able to tolerate it? I would > >>>> like to > >>>> hear that someone has had some significant improvement while > taking > >>>> this > >>>> supplement. > >>>> > >>>> Anita Pelligra > >>>> > >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2010 Report Share Posted June 19, 2010 > > Knotweed, > > Have you heard of any benefits from glyconutrients like Ambrotose? USANA vitamins/supplements, Dr. 's Collagen? no, but I don't believe in supporting connective tissue / collagen by eating collagen or similar stuff. It just doesn't work that way (same goes for almost all of the cosmetic products with such claims). I think vitamins in general may help if something is really wrong, like people with some kind of absorption disease. But usually the body should be able to handle things even if you have a pretty bad diet. People in third world countries survive for years on dirty water and some rice; if you believe the vitamin producers they should have been dead within days... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2010 Report Share Posted June 19, 2010 My daughter also took 2 years to diagnose and has neuro lyme and also had a lost of other symptoms including pain and fatigue. She started the Buhner protocol (although not the one pill version) in mid-March and is doing much better, with some days better than others, but far better, independent and happy that she was!. She is also taking supplements for liver, adrenals and thyroid support in addition to enzymes and probiotics. Detoxing, including 10 glasses of good water with trace minerals a day and epsom bath salts, is a must for her to tolerate the protocol. She eliminated refined sugar from her diet, including and is basically on a plant-based diet, using more and more a raw diet (juicing and blending fruits, veggies and legumes). It is amazing the difference that the diet is making on her progress, and more and more she craves for raw veggies and nuts. Changing the diet It is a tough choice, but it is worth it to rebuilt a strong immunological system critical to take care of the remaining bacterial load and healing. I find the book " Insights into Lyme Disease Treatments " by connie Strasheim very useful and informative (includes views of 13 LLMDs, some of them using abx some not, with several references to the herbs used in the Buhner protocol, and even those using mostly abx most stress the importance of detoxing with herbal treatments and dieting). Sending positive healing energies to all. Dida On Sat, Jun 19, 2010 at 2:39 AM, Judy Blake <judyb77@...> wrote: > > > I don't have neurological lyme either. I have a range of constantly > shifting symptoms but the one that has been constant and severe is fatigue > (I spent most of 3 years in bed and am still quite limited). I've heard that > fatigue is the last to go. Did you have that? It took 2 years to diagnose > the lyme, then I took just cat's claw which helped at first but then I slid > all the way back after a few months so I went on antibiotics for 2.5 years. > Now I am rifing and starting the Buhner protocol. I am hopeful but this is > such a hard road to travel as everyone on this site knows. > judy > > > On Jun 18, 2010, at 7:40 PM, Manno wrote: > > > I had it for 3 years. I tried antibiotics 2 x without success. I am > > on doxycycline for the last 2 months of my Buhner protocol, but I > > started feeling better after 6 months on the Buhner protocol. I did > > not have neurological Lyme, however, so it varies from case to case. > > > > > > On Jun 18, 2010, at 5:55 PM, Judy Blake wrote: > > > >> Wow , that is so wonderful. I don't think I've heard of > >> anyone who has felt 100% better after battling chronic lyme. How > >> long did you have it? Was the Buhner protocol the only treatment > >> you followed? > >> > >> Thanks, > >> Judy > >> > >> On Jun 18, 2010, at 5:27 PM, Manno wrote: > >> > >>> I am feeling 100% better since the day I started them 1 year ago. I > >>> am planning to come off them > >>> in the next week or so and have been slowly decreasing my dosage. I > >>> am completely satisfied with the results. > >>> I was getting the pills from Tim in Vermont. Good luck to > >>> everyone! > >>> > >>> On Jun 18, 2010, at 6:44 AM, Anita Pelligra wrote: > >>> > >>>> Can you tell me if you symptoms have diminished and if you actually > >>>> feel > >>>> better on it rather than just being able to tolerate it? I would > >>>> like to > >>>> hear that someone has had some significant improvement while taking > >>>> this > >>>> supplement. > >>>> > >>>> Anita Pelligra > >>>> > >>>> Quote Link to comment Share on other sites More sharing options...
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