Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 Hi All, Apparently there has been some confusion about the cause " Paint Lyme Green " . It is a sad state of affairs that the IDSA has created an atmosphere of mistrust and cynicism in our close-knit community...grrr... and of course that fits right into their agenda. After viewing a couple posts on this forum in regard to the above cause I contacted the group to see what their story is and these are the 2 replies I received: _______________________________________________________ No one from CALDA has ever contacted me with regards to the Paint May Lyme Green project. It would seem that you are mistaking this project with another that is unrelated. I had in fact contacted CALDA regarding this project early on when I was looking for a non-profit to sponsor it.The project was well received, but it seemed that CALDA was unable to take us on as an affiliate project at that time. Parts of the Paint May Lyme Green campaign have been posted and referenced on CALDA's blog " Touched by Lyme " over the past few months. * Project Lyme Art Quilt- http://www.lymedisease.org/news/touchedbylyme/305.html * Writing to Newspapers- http://www.lymedisease.org/news/touchedbylyme/383.html I fail to see how creating awareness through social media avenues and the production of a public service announcement to inform the general public about Lyme disease risks, would be endangering patients with chronic Lyme disease. CALDA asked Ben Stiller and Letterman to make a PSA for this May about Lyme disease after they discussed it on The Late Night Show. * CALDA's call to Ben and Dave- http://www.lymedisease.org/news/touchedbylyme/387.html * The LDA has also created PSAs in the past- http://www.lymediseaseassociation.org/PSA.wav It is very clear where every penny for this project is going. I personally keep track of every donation that is made to Paint May Lyme Green. I also keep track of every penny that is spent on the project. Both of these pages are available to the public along with the estimated budget that we originally put together for the PSA/viral campaign on my website. PANDORA is the non-profit sponsor of the viral and PSA campaign allowing us to receive tax-deductible donations specifically for this campaign. No money is going to research or anyone's " research agenda " . It is all going to the Lymenaide's Paint May Lyme Green awareness project. * Donations Received- http://lymenaide.wordpress.com/paint-may-lyme-green/psa-donations/ * Money Spent- http://lymenaide.wordpress.com/paint-may-lyme-green/psa-expenses/ * Original Estimated Budget- http://lymenaide.wordpress.com/paint-may-lyme-green/paint-may-lyme-green-psa-est\ imated-budget/ I don't know of any other project or organization that shares this information so openly with the public and their supporters. _________________________________________________ What Paint May Lyme Green IS- Paint May Lyme Green is a grassroots project organized, implemented and funded by the Lyme disease community. Paint May Lyme Green was started by van Tol of Lymenaide. The intention of the project is spreading Lyme disease awareness to the general public. Paint May Lyme Green is, simply put, another way of saying Lyme Disease Awareness month. Under the title " Paint May Lyme Green " and others from within the Lyme community have been promoting all awareness campaigns they know about for May 2010. Our intention is to get more people involved with the various projects. The goal is to create more awareness for Lyme Disease Awareness month. Lymenaide and And What Productions ( and her brother Z.S.) additionally embarked on an awareness project to create a viral campaign and a television Lyme disease public service announcement. and Z.S. are donating their time and skills to these two projects. Production of a project such as this still costs money. Not being non-profits themselves, contacted existing Lyme organizations with 501©(3) status to take her project on as an affiliate project. This would essentially make it possible for Paint May Lyme Green and Lymenaide to raise tax-deductible donations. P.A.N.D.O.R.A. believed in the proposed project and in the people behind it. P.A.N.D.O.R.A. is the main non-profit sponsor of the Paint May Lyme Green viral and PSA campaign. All of the donations donated through P.A.N.D.O.R.A. for Paint May Lyme Green, go to the Paint May Lyme Green awareness campaign. Should there be any monies left over after the production costs of the viral and PSA campaign have been covered, they will be held by P.A.N.D.O.R.A. for use by Lymenaide for future Lyme related projects. Lymenaide fully intends to continue with awareness projects in the future. Including, making Paint May Lyme Green a yearly campaign to promote Lyme disease awareness month campaigns. What Paint May Lyme Green IS Not- Paint May Lyme Green is not raising money for P.A.N.D.O.R.A.'s general fund or any of P.A.N.D.O.R.A.'s other projects or affiliate projects aside from Paint May Lyme Green. Paint May Lyme Green is not raising money for research. Paint May Lyme Green is not P.A.N.D.O.R.A.'s project. P.A.N.D.O.R.A. is Paint May Lyme Green's viral and PSA campaign sponsor. Lymenaide is in control of the Paint May Lyme Green Project. P.A.N.D.O.R.A. is the main sponsor of Lymenaide's project making it possible for us to receive tax-deductible donations from others who support our awareness cause. - van Tol Project Director of Paint May Lyme Green ___________________________________________________________ Quote Link to comment Share on other sites More sharing options...
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