Another new member

[Guest guest]

that should be a SHORT TIME!!!!!! HAHAAAAA hugs ddanne wrote: TIM NEW IS FOR A SHOT TIME ONLY!!!! You know this. NOW GET BACK TO THE CURB!!!!!hahaaa hugs d Hillbilly Tim <knoxweb1> wrote: hi im tim im 43 and have hcv.im your typical

male.and im new here.well not really but new hAS its privaledges.and after the new is gone thats it.so enjoy the new feel while its here.it wont last.they just put ya on a back shelf and forget about you.like they did me.its sad but true.they just used me for my brains.once the tx started they thru me 2 the curb.so please can i be new again? just one more time. . Moody friends. Drama queens. Your life? Nope! - their life, your

story.Play Sims Stories at Yahoo! Games.

Choose the right car based on your needs. Check out Yahoo! Autos new Car Finder tool.

[Guest guest]

that should be a SHORT TIME!!!!!! HAHAAAAA hugs ddanne wrote: TIM NEW IS FOR A SHOT TIME ONLY!!!! You know this. NOW GET BACK TO THE CURB!!!!!hahaaa hugs d Hillbilly Tim <knoxweb1> wrote: hi im tim im 43 and have hcv.im your typical

male.and im new here.well not really but new hAS its privaledges.and after the new is gone thats it.so enjoy the new feel while its here.it wont last.they just put ya on a back shelf and forget about you.like they did me.its sad but true.they just used me for my brains.once the tx started they thru me 2 the curb.so please can i be new again? just one more time. . Moody friends. Drama queens. Your life? Nope! - their life, your

story.Play Sims Stories at Yahoo! Games.

Choose the right car based on your needs. Check out Yahoo! Autos new Car Finder tool.

[Guest guest]

a, generally fevers are high 104 105, My doc ruled out the sinus

cavities before our diagnosis. She said sometimes infections can hide for

years in the sinuses causing repeated fevers, getting slightly better than worse

and the body fights them off with fevers when it starts to lose,hence the cycle.

Your child is old enough to hold still for a cat scan of the sinus cavities. Ask

your doc about that procedure.(just a thought.)

Steve. Good luck.

[Guest guest]

a, generally fevers are high 104 105, My doc ruled out the sinus

cavities before our diagnosis. She said sometimes infections can hide for

years in the sinuses causing repeated fevers, getting slightly better than worse

and the body fights them off with fevers when it starts to lose,hence the cycle.

Your child is old enough to hold still for a cat scan of the sinus cavities. Ask

your doc about that procedure.(just a thought.)

Steve. Good luck.

[Guest guest]

a, generally fevers are high 104 105, My doc ruled out the sinus

cavities before our diagnosis. She said sometimes infections can hide for

years in the sinuses causing repeated fevers, getting slightly better than worse

and the body fights them off with fevers when it starts to lose,hence the cycle.

Your child is old enough to hold still for a cat scan of the sinus cavities. Ask

your doc about that procedure.(just a thought.)

Steve. Good luck.

[Guest guest]

Steve,

Thank you for your response. I realize my son does not fit what seems

to be some of the common characteristics of the syndrome (younger and

higher fevers). I appreciate any input that may help me direct my

pediatrician toward a diagnosis. My son had some more extensisve blood

work done yesterday. While we're discussing those results, I'll

mention the possibility of a lingering sinus infection.

Thanks again.

a

[Guest guest]

Steve,

Thank you for your response. I realize my son does not fit what seems

to be some of the common characteristics of the syndrome (younger and

higher fevers). I appreciate any input that may help me direct my

pediatrician toward a diagnosis. My son had some more extensisve blood

work done yesterday. While we're discussing those results, I'll

mention the possibility of a lingering sinus infection.

Thanks again.

a

[Guest guest]

Steve,

Thank you for your response. I realize my son does not fit what seems

to be some of the common characteristics of the syndrome (younger and

higher fevers). I appreciate any input that may help me direct my

pediatrician toward a diagnosis. My son had some more extensisve blood

work done yesterday. While we're discussing those results, I'll

mention the possibility of a lingering sinus infection.

Thanks again.

a

[Guest guest]

I'm so happy for you. (o: It is fantastic to know that you feel so

well.

P

>

>> Well I have got some Armour, building up slowly and gradually

> decreasing my thyroxine, I'm currently taking 2.5grain Armour and

> 50mcg thyroxine. I feel like I'm a normal healthy person. I can't

> believe the difference. My skin is no longer dry, but soft and

> smooth. I've got energy to go to the gym. I feel fitter. I can think

> more clearly. And the best one... I actually feel happy.

[Guest guest]

Hi catcne,

Welcome to the list! Armour can really be a magic pill.

Subject: Another new member

Well I have got some Armour, building up slowly and gradually

decreasing my thyroxine, I'm currently taking 2.5grain Armour and

50mcg thyroxine. I feel like I'm a normal healthy person. I can't

believe the difference. My skin is no longer dry, but soft and

smooth. I've got energy to go to the gym. I feel fitter. I can think

more clearly. And the best one... I actually feel happy.

So, I've introduced myself. I'm sure I'll have questions for you all.

------------------------------------

Messages are not a substitute for professional medical advice. Always

consult with a suitably qualified practitioner before changing

medication.

[Guest guest]

IIRC the low TSH doesn't mean much when you're taking T3. Do you have

any hyper symptoms?

Luck,

PS: There is only one moderator {Ira} and one a assistant moderator

here {me}. Sometimes things get a little back logged, as Ira alone must

do all the heavy lifting.

..

..

>

> Posted by: " noonanjg " jgnoonan@...

> <mailto:jgnoonan@...?Subject=%20Re%3AAnother%20New%20Member>

> noonanjg <noonanjg>

>

>

> Sun Aug 2, 2009 9:27 am (PDT)

>

>

>

> I just joined this group after being on the hypogonadism group for

> about 4 months. I am a 48 year old male. I started feeling exhausted

> all the time and gained 40 pounds about 2 years ago. After over a year

> and a half struggle with my PCP, he finally did a blood test that

> showed low T. I went to an endo, who re-ran a lot of the test and it

> showed low T and hypothyroidism. An MRI with contrast showed a

> pituitary microadenoma and a thyroid scan showed a 8mm nodule. I am on

> testosterone shots every week and she started my on synthroid and I am

> up to 75mcg a day. I was still feeling AWFUL after all that so she

> added 5mcg of cytomel. After about a week, I start to feel GREAT! I am

> back at the gym and exercising. After 4 weeks I did labs and they came

> back with the following:

>

> T3, Total 204 97-219ng/dL NORMAL

> T4, Free 1.2 0.8-1.8 ng/dL NORMAL

> TSH, 3rd Gen 0.12 0.40-4.50 mIU/L LOW

>

> I got a letter from my doctor saying my TSH is too low and to cut the

> 5mcg of cytomel in half. I am doing this, but I am finally starting to

> feel like my old self and am concerned about reducing it. What do you

> all think of these readings?

[Guest guest]

Definitely no hyper symptoms. I am still carrying the 40 pounds I gained when

this started and despite going to the gym regularly, I haven't lost an ounce.

I've been on the half pill now for a week and am starting to feel less energy

then when I was on the full 5 mcg. Thanks for the reply.

Joe

>

> IIRC the low TSH doesn't mean much when you're taking T3. Do you have

> any hyper symptoms?

>

> Luck,

>

>

> PS: There is only one moderator {Ira} and one a assistant moderator

> here {me}. Sometimes things get a little back logged, as Ira alone must

> do all the heavy lifting.

> .

> .

>

> >

> > Posted by: " noonanjg " jgnoonan@...

> > <mailto:jgnoonan@...?Subject=%20Re%3AAnother%20New%20Member>

> > noonanjg <noonanjg>

> >

> >

> > Sun Aug 2, 2009 9:27 am (PDT)

> >

> >

> >

> > I just joined this group after being on the hypogonadism group for

> > about 4 months. I am a 48 year old male. I started feeling exhausted

> > all the time and gained 40 pounds about 2 years ago. After over a year

> > and a half struggle with my PCP, he finally did a blood test that

> > showed low T. I went to an endo, who re-ran a lot of the test and it

> > showed low T and hypothyroidism. An MRI with contrast showed a

> > pituitary microadenoma and a thyroid scan showed a 8mm nodule. I am on

> > testosterone shots every week and she started my on synthroid and I am

> > up to 75mcg a day. I was still feeling AWFUL after all that so she

> > added 5mcg of cytomel. After about a week, I start to feel GREAT! I am

> > back at the gym and exercising. After 4 weeks I did labs and they came

> > back with the following:

> >

> > T3, Total 204 97-219ng/dL NORMAL

> > T4, Free 1.2 0.8-1.8 ng/dL NORMAL

> > TSH, 3rd Gen 0.12 0.40-4.50 mIU/L LOW

> >

> > I got a letter from my doctor saying my TSH is too low and to cut the

> > 5mcg of cytomel in half. I am doing this, but I am finally starting to

> > feel like my old self and am concerned about reducing it. What do you

> > all think of these readings?

>

[Guest guest]

Hi Josie:

My name is Melody and I'd like to welcome you. I have been sprouting (with

lovely results) for almost two years now. I have many videos up on youtube)

Here's a link to the one I made so people can see what I buy and how I sprout.

You can link to my other sprouting videos up on youtube. That's how I learned to

sprout. By going on youtube, and by listening to others on this message board.

If you click on my name on this message board, and click on my photos, you'll

see how my sprouting shelves look in my kitchen.

I have built my own sprouting trays (which I show on my youtube videos), and I

presently use mason jars to soak over night, and then I transfer them to both my

green trays and colanders. I have also learned a great deal from EW on these

message boards.

You will learn a lot of fun stuff here. You might even start sprouting in some

simple bowls that you have in your home.

I myself have lost weight, got my diabtes under control and I feed me and my

husband. I sprout every single day and there's ALWAYS some fun stuff growing on

my shelves.

So good luck to you, and HAPPY SPROUTING!!!

Take care,

Melody

>

> I just joined the group.  I am homebound and primarily bedridden because of

illness.  I am also alone.....no family or friends still alive. 

>  

> In order to try to improve my nutrition and then my health, I am going to try

to sprout.  So far my attempts have failed   Mold seems to be my biggest problem

no matter how careful I am.  My climate may play a part.  It is very hot and

humid here.  

>  

> I read an article in Sunday's paper about alfalfa sprouts being recalled after

dozens of people were sickened, some hospitalized.  I think DIY is best, if I

can get a system going. 

> I've given everything away and am going to start over based on the

recommendations I find here.  You all are experts with years of experience, I am

sure.   Because I am alone, I don't need a large scale operation!   

>  

> Josie

>

>

>

>

>

[Guest guest]

Hi All!

I just joined the list and am very happy to have found all of you. I have

chronic Lyme (probably acquired 5-6 years ago but only diagnosed 11 months ago),

have been following the core protocol for seven months, and recently added the

supplements for arthritis and soft tissue pain. My primary care doctor is very

supportive of alternative therapies but not knowledgeable about Lyme. There

isn't a Lyme-literate physician close by.

The question that is been on my mind lately is: How do you know when you're

" cured " ? The tests for Lyme are based on antibodies, and those don't go away

when the spirochetes die. So a re-test would not help.

The next logical answer would seem to be when the symptoms go away. However, at

my age, arthritis symptoms are considered " normal. " So they might decrease, but

not go away entirely. And as for brain fog, for some of us that, too, is

" normal. " :-)

So do I just take the core protocol for a year, then go on the prevention

protocol and hope for the best? The long-term effects of Lyme are scary. So I

don't want to take any chances by stopping too soon.

I know that this group does not give medical advice, but was just wondering what

others' experiences are or what you have learned from Lyme-literate

practitioners.

Madeleine

[Guest guest]

>but if you still have constantly changing problems that suddenly started

with a tick byte (especially if those are mostly neuro problems), you

probably still have Lyme.

Like most Lyme sufferers I did not see any tic bite or rash. Neither have I

experienced neuro problems. The symptoms depend on where the spirochetes are

lodged. Mine are in the joints.

>I don´t think lingering problems with the joints etc. are an indication for

lyme disease. For general problems that slowly developed over many years I

think it is very difficult to prove that they are related to Lyme. For those

who have had chronic Lyme for years I think it is relatively easy to

recognize the Lyme symptoms, compared to the ´general pains of daily

living´.

Sorry, but this is not true for everyone. It all depends on one’s age at the

time of the onset of Lyme. When a teenager suddenly gets joint pains, that

is unusual. If his mother or grandmother does, they may be related to

hormonal changes.

>if you are not really sure if you problems are Lyme related, I would start

the protocol and see if you start ´herxing´, or if you notice clear

improvement in some of your symptoms. If there is no herxing or clear

improvements, it is less likely that you still have lyme and in that case

staying on the protocol probably doesn´t make sense IMHO.

I am sure that my problems are Lyme related because a physician spotted the

symptoms and ordered the Western Blot test. And I did have a severe

herxheimer reaction when first beginning the protocol. There is some

decrease in the joint pains. But arthritis that is aggravated by Lyme when

one is past age 50 will not necessarily go away entirely with healing from

Lyme. The joint damage is already there.

The protocol is recommended up to one year, and I have been on it for seven

months. I will continue for five more because that is a lot better than two

years of antibiotics. I just wanted to know if others had experiences

similar to mine.

[Guest guest]

Thank you, .

My postings may not be appearing as fast as everyone else's because I'm

still on moderated status.

Anyway, I have had some improvement recently, but it is hard to know what it

results from because I've also gotten rid of most of the mercury, which,

unfortunately, not only " serves " the spirochetes, but also produces the same

symptoms. Anyway, there is no way I'm going to stop the protocol before the

full twelve months. I want to emphasize again that the long-term effects of

Lyme are really scary. The first doctor I consulted tried to use them to

scare me into going on antibiotics. When she saw that I was totally

resistant to that idea she finally told me about Buhner's book.

What caused me to ask, about three years ago, whether something was going on

with me that was not all explained by aging was that I started noticing

joint, tendon, and muscle pain in several different parts of the body. I

went from one physical therapist to another, with no relief. I had several

orthopedic surgeries, including joint fusions in both feet and a total knee

replacement. There was some relief, but none of the freedom from pain that

these procedures were supposed to produce. There was also a peculiar pain

along the inner side of the tibia in both lower legs for which my

orthopedist had no explanation. (I have recently read that pain in that

region is a frequent symptom of Lyme.) The other thing I was noticing was

that any minor injury seemed to result in permanent pain.

A wholistic nurse practitioner ordered a large number of tests for me --

everything but Lyme! -- and came up with mercury toxicity. After more than a

year of chelation for that but no decrease in pain, a physician that I had

only brief contact with raised the question of Lyme. I will be grateful to

her for the rest of my life.

Re: [ ] Re: Another new member

>One thing I would add to this conversation is that if you are on the

>protocol that includes sasarparilla, which addresses the herx

>symptoms, you will not be able to tell if you're herxing. I have been

>on the Buhner protocol for a year and do not feel any of those

>symptoms, in fact never have except once before I started when I was

>on regular antibiotics. So I would not totally agree with:

>> if you are not really sure if you problems are Lyme related, I

>> would start the protocol and see if you start ´herxing´, or if you

>> notice clear improvement in some of your symptoms. If there is no

>> herxing or clear improvements, it is less likely that you still

>> have lyme and in that case staying on the protocol probably doesn´t

>> make sense IMHO.

>On the other hand I did start feeling improvement in the other

>symptoms after 6 months.

[Guest guest]

I hate to be pessimistic, but I don't think Buhner meant that a year is

what it took to be cured. I think he meant that a year is what it took

to be feel close to normal. Relapse rates are high no matter what you

do. Be thankful if your health is restored, but unfortunately, some

form of maintenance seems to be needed to prevent relapse. The forums

are full of us who have to be on treatments probably forever. But those

who get well leave, so I can't really judge how many get well in which

years time. But, a famous antibiotic doc told me that it takes 7 months

to 7 years for his pediatric patients. I hear similar things from docs

who treat adults, and they also say that some stay on treatments forever

or switch to other treatments due to not being able to stay on

antibiotics forever. Some never get better. Sorry to be glum. I think

that all can get better, but the amount of work it takes for some to get

well may be more than what some are willing to do.

Love and prayers,

Heidi N

The protocol is recommended up to one year, and I have been on it for seven

months. I will continue for five more because that is a lot better than two

years of antibiotics. I just wanted to know if others had experiences

similar to mine.

[Guest guest]

wHAT is so bad about taking BUHNER, RIFING FOREVER??? If u get functional?

[ ] Re: Another new member

I hate to be pessimistic, but I don't think Buhner meant that a year is

what it took to be cured. I think he meant that a year is what it took

to be feel close to normal. Relapse rates are high no matter what you

do. Be thankful if your health is restored, but unfortunately, some

form of maintenance seems to be needed to prevent relapse. The forums

are full of us who have to be on treatments probably forever. But those

who get well leave, so I can't really judge how many get well in which

years time. But, a famous antibiotic doc told me that it takes 7 months

to 7 years for his pediatric patients. I hear similar things from docs

who treat adults, and they also say that some stay on treatments forever

or switch to other treatments due to not being able to stay on

antibiotics forever. Some never get better. Sorry to be glum. I think

that all can get better, but the amount of work it takes for some to get

well may be more than what some are willing to do.

Love and prayers,

Heidi N

The protocol is recommended up to one year, and I have been on it for seven

months. I will continue for five more because that is a lot better than two

years of antibiotics. I just wanted to know if others had experiences

similar to mine.

[Guest guest]

Nothing, for those of us willing to keep putting forth the effort. I

think it's good to be open-minded that some will need to be on

treatments forever, some may not, and some may be able to be on a

maintenance plan. Only time will tell. I have small children, so I

have no choice but to bust my butt to keep myself healthy. I used to

think I would get better in a month. Then I thought I would get better

in a year. Then I thought two, then three. Now it's four, and I am

still very dependent upon treatments. But, I do appear normal. I could

not go back to work full-time with also the additional duties of taking

care of my children though. I think it would be too much stress on my

health. So, right now, I am in the healing stage, but not healed. I

never did detox enough, so for me that is what is holding me back. I am

very sensitive to electrosmog, so I am sure my metals are off. I am

working on that now.

Love and prayers,

Heidi N

wHAT is so bad about taking BUHNER, RIFING FOREVER??? If u get functional?

[Guest guest]

Thank you.....My point is if maintenance is 30-45 minutes of daily

therapy...whether it be supplements or rifing/sauna/exercise & I could regain

85%...I would be thrilled & consider a great bargain!!

Many folks Coil, feel better ...then stop & then cyst stuff returns......

What do you feel is best way to deal with Mercury & toxins?

I use bentonite clay, gallon of water daily, kelp, & sauna, bathes.....

Jay

[ ] Re: Another new member

Nothing, for those of us willing to keep putting forth the effort. I

think it's good to be open-minded that some will need to be on

treatments forever, some may not, and some may be able to be on a

maintenance plan. Only time will tell. I have small children, so I

have no choice but to bust my butt to keep myself healthy. I used to

think I would get better in a month. Then I thought I would get better

in a year. Then I thought two, then three. Now it's four, and I am

still very dependent upon treatments. But, I do appear normal. I could

not go back to work full-time with also the additional duties of taking

care of my children though. I think it would be too much stress on my

health. So, right now, I am in the healing stage, but not healed. I

never did detox enough, so for me that is what is holding me back. I am

very sensitive to electrosmog, so I am sure my metals are off. I am

working on that now.

Love and prayers,

Heidi N

wHAT is so bad about taking BUHNER, RIFING FOREVER??? If u get functional?

[Guest guest]

Dear Heidi... you spoke it so well.... I am at the 4 and 1/2 year mark in my

struggle against Lyme.... I too thought I would lick this illness in a few

months, then when I got the IV ABX - I was sure the 3 week period would just

hammer it... then it was like you said... a year and now 4.

Yes I am more functional. I am wondering if this fight will be the rest of my

life too.... How is rife working for you?

[Guest guest]

I currently am taking Mitochondrial Restore from www.neurobiologix.com

It's expensive to buy, but a bottle lasts a long time. After a while I

am planning on using a homeopathic formula.

Love and prayers,

Heidi N

Thank you.....My point is if maintenance is 30-45 minutes of daily

therapy...whether it be supplements or rifing/sauna/

exercise & I could regain 85%...I would be thrilled & consider a great

bargain!!

Many folks Coil, feel better ...then stop & then cyst stuff returns......

What do you feel is best way to deal with Mercury & toxins?

I use bentonite clay, gallon of water daily, kelp, & sauna, bathes.....

Jay

[Guest guest]

I never did rife. I guess the rifers were talking about it taking years

to get well, so I thought it was only about the same as all the other

treatments. Probably rifing is one of the cheapest methods, though.

Love and prayers,

Heidi N

Dear Heidi... you spoke it so well.... I am at the 4 and 1/2 year mark

in my struggle against Lyme.... I too thought I would lick this illness

in a few months, then when I got the IV ABX - I was sure the 3 week

period would just hammer it... then it was like you said... a year and

now 4.

Yes I am more functional. I am wondering if this fight will be the rest

of my life too.... How is rife working for you?

[Guest guest]

Madeleine,

I had those same problems and avoiding additives in food and meds made a huge

difference for me and my kids. I was very sick when I decided to try cooking

only with whole foods and pure ingredients and it made a huge difference in our

lives. We still have Lyme and are about to start this protocol, but it improved

our lives in so many other ways that I believe those additives must suppress our

immune systems. Also, in the beginning, I just used whole foods but didn't know

about hidden additives in things like enriched flour or fortified milk or

iodized salt. I gradually learned to avoid certain produce unless I get it local

(peppers and cucumbers are waxed with corn derivative wax) and buy my meat from

a local farmer and have it custom processed. Each thing I learned improved our

health. Now, we make everything from scratch and even use homemade or pure

household and personal products (deodorant, toothpaste, soap) and use soap nuts

for laundry. It was just horrifying to me when I learned how many of these

chemicals are going into our bodies ever day and at every meal.

Even now, we can tell instantly when we get something that contains a hidden

additive. Tight neck and joint pain are two of my first indicators. My theory is

that these additives cause the lyme to act up wherever they are located in your

body, but I may be wrong. I just know that everyone on the avoiding corn forum

has different reactions to corn, but all of them can stop the reactions by

avoiding it. Changing our diets stopped almost every symptom that we have except

it hasn't touched the fatigue. This is a constant problem for all three of us

and I am hoping this protocol will help.

Kristy

>

>

>

> Thank you, .

>

> My postings may not be appearing as fast as everyone else's because I'm

> still on moderated status.

>

> Anyway, I have had some improvement recently, but it is hard to know what it

> results from because I've also gotten rid of most of the mercury, which,

> unfortunately, not only " serves " the spirochetes, but also produces the same

> symptoms. Anyway, there is no way I'm going to stop the protocol before the

> full twelve months. I want to emphasize again that the long-term effects of

> Lyme are really scary. The first doctor I consulted tried to use them to

> scare me into going on antibiotics. When she saw that I was totally

> resistant to that idea she finally told me about Buhner's book.

>

> What caused me to ask, about three years ago, whether something was going on

> with me that was not all explained by aging was that I started noticing

> joint, tendon, and muscle pain in several different parts of the body. I

> went from one physical therapist to another, with no relief. I had several

> orthopedic surgeries, including joint fusions in both feet and a total knee

> replacement. There was some relief, but none of the freedom from pain that

> these procedures were supposed to produce. There was also a peculiar pain

> along the inner side of the tibia in both lower legs for which my

> orthopedist had no explanation. (I have recently read that pain in that

> region is a frequent symptom of Lyme.) The other thing I was noticing was

> that any minor injury seemed to result in permanent pain.

>

> A wholistic nurse practitioner ordered a large number of tests for me --

> everything but Lyme! -- and came up with mercury toxicity. After more than a

> year of chelation for that but no decrease in pain, a physician that I had

> only brief contact with raised the question of Lyme. I will be grateful to

> her for the rest of my life.

[Guest guest]

Oddly enough I take all of incredients in this product with exception of NAC

which I will begin soon...but gut issues.....

Jay

[ ] Re: Another new member

I currently am taking Mitochondrial Restore from www.neurobiologix.com

It's expensive to buy, but a bottle lasts a long time. After a while I

am planning on using a homeopathic formula.

Love and prayers,

Heidi N

Thank you.....My point is if maintenance is 30-45 minutes of daily

therapy...whether it be supplements or rifing/sauna/

exercise & I could regain 85%...I would be thrilled & consider a great

bargain!!

Many folks Coil, feel better ...then stop & then cyst stuff returns......

What do you feel is best way to deal with Mercury & toxins?

I use bentonite clay, gallon of water daily, kelp, & sauna, bathes.....

Jay