Re: stopping abx - what to expect?

[Guest guest]

With the constant headaches, I would have to ask if she has been treated

for babesiosis.

I have taken my daughter, now 11, off antibiotics twice. Had to go back

to treatment. She has been treated now since she was 4 1/2.

Hopefully, you have entered the " cured " category!!!

In a message dated 5/7/2010 2:06:14 P.M. Central Daylight Time,

amanno@... writes:

Hi.

I have been on the Buhner protocol for 11 months (36-48 pills a day).

I started feeling better about 6 months after I started. I still test

positive for Lyme but am mostly symptom free. I am tired

occasionally, but it could be because I was largely sedentary through

the worst of the illness. I am now taking conventional antibiotics

along with the herbs, since I want to make sure to knock it out of my

system and read that they work well together.

I hope this helps. Everyone is different, but it was truly surprising

when I passed the 6 month marker and felt so much better.

Good luck.

On May 7, 2010, at 11:02 AM, avivag@... wrote:

> My 11 year old daughter has been on Buhner herbs for 2 months now

> along with 3 antibiotics (15 months). There has been no change in

> her symptoms (constant low-grade headache and general myalgia) for

> many months and I am finally STOPPING her abx (last dose 5/9).

>

> What should I expect so I don't panic and feel compelled to restart

> abx? She's on the core protocol (combined capsules) at 9 caps 3x/day.

>

> Any advice/input would be very helpful. I am a member of a lyme

> parent group also. They are very supportive but can offer no

> guidance regarding Buhner (or other) herbs. All their children are

> on abx and so I look to this group for help in that area.

>

> Thank you,

> Aviva

>

>

>

[Non-text portions of this message have been removed]

------------------------------------

Buy Healing Lyme: Natural Healing And Prevention of Lyme Borreliosis And

Its Coinfections by Buhner at one of these locations:

http://tinyurl.com/3bgm5d

Links

[Guest guest]

Hi.

I have been on the Buhner protocol for 11 months (36-48 pills a day).

I started feeling better about 6 months after I started. I still test

positive for Lyme but am mostly symptom free. I am tired

occasionally, but it could be because I was largely sedentary through

the worst of the illness. I am now taking conventional antibiotics

along with the herbs, since I want to make sure to knock it out of my

system and read that they work well together.

I hope this helps. Everyone is different, but it was truly surprising

when I passed the 6 month marker and felt so much better.

Good luck.

On May 7, 2010, at 11:02 AM, avivag@... wrote:

> My 11 year old daughter has been on Buhner herbs for 2 months now

> along with 3 antibiotics (15 months). There has been no change in

> her symptoms (constant low-grade headache and general myalgia) for

> many months and I am finally STOPPING her abx (last dose 5/9).

>

> What should I expect so I don't panic and feel compelled to restart

> abx? She's on the core protocol (combined capsules) at 9 caps 3x/day.

>

> Any advice/input would be very helpful. I am a member of a lyme

> parent group also. They are very supportive but can offer no

> guidance regarding Buhner (or other) herbs. All their children are

> on abx and so I look to this group for help in that area.

>

> Thank you,

> Aviva

>

>

>

[Guest guest]

If you want to stop antibiotics, you might consider replacing them with

colloidal silver (CS) as a natural antimicrobial. Many people herx from so it

does kill if it can reach the bugs in the blood system. The problem with abx

that they don't get deep into the tissues when the bugs reside. They have to be

flushed out - rife machines do this.

The other consideration with abx is whether the bugs encyst and then come out

after the abx are stopped. Some people start CS two weeks before stopping abx

so that there is something else in place when the cysts return to active form.

deb

>

> > My 11 year old daughter has been on Buhner herbs for 2 months now

> > along with 3 antibiotics (15 months). There has been no change in

> > her symptoms (constant low-grade headache and general myalgia) for

> > many months and I am finally STOPPING her abx (last dose 5/9).

> >

> > What should I expect so I don't panic and feel compelled to restart

> > abx? She's on the core protocol (combined capsules) at 9 caps 3x/day.

> >

> > Any advice/input would be very helpful. I am a member of a lyme

> > parent group also. They are very supportive but can offer no

> > guidance regarding Buhner (or other) herbs. All their children are

> > on abx and so I look to this group for help in that area.

> >

> > Thank you,

> > Aviva

> >

> >

> >

>

>

>

>

[Guest guest]

>

> My 11 year old daughter has been on Buhner herbs for 2 months now along with 3

antibiotics (15 months). There has been no change in her symptoms (constant

low-grade headache and general myalgia) for many months and I am finally

STOPPING her abx (last dose 5/9).

are you sure that Borrelia is the problem, and not a coinfection or something

else? These symptoms are not typical of Lyme IMHO (could be Lyme but also many

other things, including non-infectuous causes).

[Guest guest]

You might want to give Quintessence by BioPure US a try. It is a concentrated

herbal tincture of all the Buhner herbs in drop form. I've been through the

swallowing tons of pills via Buhner protocol and the drops are not only stronger

but a welcome relief from pills.

http://stores.homestead.com/BiopureHealingProducts/Detail.bok?no=43

Sea salt/c is another option. Also Allicin (extract from garlic) people have

good results from, there is a liquid kind my mom uses thats suppose to be extra

potent.

Mangosteen pericarp is the rind from mangosteen fruit, sugarless and very

potent natural antibiotic. I get it from Faro:

http://www.farocompany.com/mangosteen-capsule-pills.html

Dr Cowden's drops, especially Burbur, Cumanda, Huttuynia, and Banderol.

> >

> > > My 11 year old daughter has been on Buhner herbs for 2 months now

> > > along with 3 antibiotics (15 months). There has been no change in

> > > her symptoms (constant low-grade headache and general myalgia) for

> > > many months and I am finally STOPPING her abx (last dose 5/9).

> > >

> > > What should I expect so I don't panic and feel compelled to restart

> > > abx? She's on the core protocol (combined capsules) at 9 caps 3x/day.

> > >

> > > Any advice/input would be very helpful. I am a member of a lyme

> > > parent group also. They are very supportive but can offer no

> > > guidance regarding Buhner (or other) herbs. All their children are

> > > on abx and so I look to this group for help in that area.

> > >

> > > Thank you,

> > > Aviva

> > >

> > >

> > >

> >

> >

> >

> >

[Guest guest]

Has your daughter's doctor has a metabolic comprehensive panel done to make

sure her electrolytes are ok? Potassium, calcium, magnesium, sodium? Low

mag/cal/pot can add to headaches and cause myalgia.

Although, I had severe migraines and myalgia for some time from lyme/bart even

while treating it sometimes. I do not have babs.

Also had myalgia can be from low pot or mag.

Another thing to check: mercury can cause headaches. Has her doctor checked

metal levels? Since she is young, I would not recommend doing a " heavy metal

challenge " if your doc says to.. if her metals are significant it can stir it

all up and make her feel horrible (someone I know with an autistic child did

this with their doc and had that happen).

Testing without a challenge seems safer in the beginning. Then after chelating

a while a challenge works better without side effects.

r+lipoic acid taken every 4 hours (except while sleeping) is a gentle beginning

chelator along with chlorella and not harmful.. if she tries the chlorella and

r+lipoic acid for a while and her headaches diminish.. bingo: mercury/metals.

Then people work up to using lipsome EDTA and DMSA which are stronger

chelators.

Athena

> >

> > My 11 year old daughter has been on Buhner herbs for 2 months now along with

3 antibiotics (15 months). There has been no change in her symptoms (constant

low-grade headache and general myalgia) for many months and I am finally

STOPPING her abx (last dose 5/9).

>

> are you sure that Borrelia is the problem, and not a coinfection or something

else? These symptoms are not typical of Lyme IMHO (could be Lyme but also many

other things, including non-infectuous causes).

>

[Guest guest]

Headache could be Babesia or Bartonella... Fatigue common with Babesia. Any

night sweats?

deb

> >

> > My 11 year old daughter has been on Buhner herbs for 2 months now along with

3 antibiotics (15 months). There has been no change in her symptoms (constant

low-grade headache and general myalgia) for many months and I am finally

STOPPING her abx (last dose 5/9).

>

> are you sure that Borrelia is the problem, and not a coinfection or something

else? These symptoms are not typical of Lyme IMHO (could be Lyme but also many

other things, including non-infectuous causes).

>

[Guest guest]

Chlorella is not for everyone - I've read that a good portion of the population

cannot tolerate it (causes nausea and vomiting) and I know of two people on

these groups who mentioned this happening to them. I personally like it and

have no trouble with it.

deb

> > >

> > > My 11 year old daughter has been on Buhner herbs for 2 months now along

with 3 antibiotics (15 months). There has been no change in her symptoms

(constant low-grade headache and general myalgia) for many months and I am

finally STOPPING her abx (last dose 5/9).

> >

> > are you sure that Borrelia is the problem, and not a coinfection or

something else? These symptoms are not typical of Lyme IMHO (could be Lyme but

also many other things, including non-infectuous causes).

> >

>

[Guest guest]

>

my major question was if you are sure that it is Borrelia infection: was that

proven by an EM appearing after tick byte, or with a positive outcome from a

reliable test (like a Western Blot from a good lab, or PCR test; I consider all

tests unreliable, including the positive ones).

You cannot diagnose Lyme just based on some general symptoms, not even if there

is a tick byte history. There is too much symptom overlap with many other

infections and other medical issues. Only a few symptoms (EM, certain neuro

symptoms, Bannwarth syndrome/radiculitis, classical ACA presentation) are pretty

specific for Lyme.

> I am a bit concerned about any biofilms, if she has them.

I think everyone with untreated Borrelia infection older than a few months has

biofilms and similar protective structures, e.g. in de collagen tissues, in the

arteries, in the joints.

[Guest guest]

Chlorella is very high in oxygen which can kill candida, are you sure they

weren't feeling nauseous/headache from yeast die off?

New to me! I take it a never had a problem.

Another worthwhile natural abx is lauricidin. Very strong, but very helpful.

There's scientific studies showing it has action against some of both gram

negative and gram positive bacteria. Bartonella is gram negative.

> > > >

> > > > My 11 year old daughter has been on Buhner herbs for 2 months now along

with 3 antibiotics (15 months). There has been no change in her symptoms

(constant low-grade headache and general myalgia) for many months and I am

finally STOPPING her abx (last dose 5/9).

> > >

> > > are you sure that Borrelia is the problem, and not a coinfection or

something else? These symptoms are not typical of Lyme IMHO (could be Lyme but

also many other things, including non-infectuous causes).

> > >

> >

>

[Guest guest]

>

>

>

> Chlorella is very high in oxygen which can kill candida, are you sure they

weren't feeling nauseous/headache from yeast die off?

really? never heard that and it sounds unlikely to me. Where/how does it store

oxygen in relevant quantity??

I think the nausea is more likely to be result of toxins (or pyrogens, causing

feverish reactions) in the chlorella. Some people are sensitive to these, and

the content can vary strongly depending on brand, harvesting etc. But most

people can get used to this, if you start slowly and gradually build up there

should be no problem.

> Another worthwhile natural abx is lauricidin. Very strong, but very helpful.

There's scientific studies showing it has action against some of both gram

negative and gram positive bacteria. Bartonella is gram negative.

yes, this is an interesting option (although I don't know any studies that prove

that it really helps). Virgin coconut oil has a high lauricidin content (for

those who prefer natural products over processed stuff).

[Guest guest]

I checked and found this web site about the chlorella intolerance although there

are probably others. This page has other good info.

http://www.vitaminguineapig.com/page29.php

Also some discussion about the nausea and vomiting some people experience:

http://community.naturalnews.com/forums/p/354/937.aspx

deb

>

>

>

> Chlorella is very high in oxygen which can kill candida, are you sure they

weren't feeling nauseous/headache from yeast die off?

>

[Guest guest]

I thought lauricidin was an antiviral rather than an antibiotic???? If memory

serves, my doc has recommended it for epstein barr. jo

>

> I have some Lauricidin. Not expensive & I herx from it. I haven't herxed from

my antibiotics since December but I herx from Lauricidin.