Re: Re: stopping abx - what to expect?

[Guest guest]

Knotweed,

I agree that its not typical lyme, but children with lyme do present

with long-term headaches. That's why I'm hoping that she doesn't

worsen off the abx. Who knows, maybe the abx have been causing her

pain(???-wishful thinking!) Today is her first day completely off...

I am a bit concerned about any biofilms, if she has them. I saw them

at the conference. Shocking and depressing.

Thank you so much for your response,

Aviva

On May 9, 2010, at 2:31 PM, knot_weed wrote:

>

>

>

> >

> > My 11 year old daughter has been on Buhner herbs for 2 months now

> along with 3 antibiotics (15 months). There has been no change in

> her symptoms (constant low-grade headache and general myalgia) for

> many months and I am finally STOPPING her abx (last dose 5/9).

>

> are you sure that Borrelia is the problem, and not a coinfection or

> something else? These symptoms are not typical of Lyme IMHO (could

> be Lyme but also many other things, including non-infectuous causes).

>

>

[Guest guest]

Hasn't had fatigue since last spring (2009). No night sweats.

Aviva

On May 10, 2010, at 8:33 AM, Deb57 wrote:

> Headache could be Babesia or Bartonella... Fatigue common with

> Babesia. Any night sweats?

>

> deb

>

>

> > >

> > > My 11 year old daughter has been on Buhner herbs for 2 months

> now along with 3 antibiotics (15 months). There has been no change

> in her symptoms (constant low-grade headache and general myalgia)

> for many months and I am finally STOPPING her abx (last dose 5/9).

> >

> > are you sure that Borrelia is the problem, and not a coinfection

> or something else? These symptoms are not typical of Lyme IMHO

> (could be Lyme but also many other things, including non-infectuous

> causes)..

>

>

>

[Guest guest]

Knot Weed,

Years before, she had a typical EM rash and was treated for 2 weeks

with amoxi. One month before her symptoms, she had a strange purplish

4 cm diam. " rash " (looked more like a bruise, but not quite) on her

knee that I wrote off as a spider bite. When her symptoms appeared,

she was tested and her lyme IgG was very positive and IgM equivial

per CDC (her pediatrician tested her to appease me). She was treated

with 1 month of Doxy and improved, but not totally. She then slowly

worsened (missed alot of school, tears, couldn't concentrate, pain

everywhere, headache) after abx therapy and no one would accept she

needed further tx. She was tested up and down for everything, saw

many specialists, had an MRI. About 6 months later, we saw a LLMD and

she tested very positive for IgM (Igenex lab), even by CDC standards

and also positive for Bartonella.

I forgot to mention in my symposium notes that Plaquenil was biggest

culprit in cyst formation, alone or in combination with other abx. My

daughter was on it for 11 months (stopped last January).

There may be something else at play here. I hope the herbs will help

address the general health of her immune system and clear whatever is

lingering.

Thank you,

Aviva

On May 11, 2010, at 4:56 AM, knot_weed wrote:

>

>

>

> >

>

> my major question was if you are sure that it is Borrelia

> infection: was that proven by an EM appearing after tick byte, or

> with a positive outcome from a reliable test (like a Western Blot

> from a good lab, or PCR test; I consider all tests

> unreliable, including the positive ones).

>

> You cannot diagnose Lyme just based on some general symptoms, not

> even if there is a tick byte history. There is too much symptom

> overlap with many other infections and other medical issues. Only a

> few symptoms (EM, certain neuro symptoms, Bannwarth syndrome/

> radiculitis, classical ACA presentation) are pretty specific for Lyme.

>

> > I am a bit concerned about any biofilms, if she has them.

>

> I think everyone with untreated Borrelia infection older than a few

> months has biofilms and similar protective structures, e.g. in de

> collagen tissues, in the arteries, in the joints.

>

>

[Guest guest]

I have some Lauricidin. Not expensive & I herx from it. I haven't herxed from my

antibiotics since December but I herx from Lauricidin.

How did you take it? I started really slow. Like 3 pellets a day & then kind of

forgot about it. And then I took a full scoop 2 days in a row, 3rd day, felt a

little crappy, so that day I only took half a scoop. That night or the next day

I was in a herx for 3 days. Nothing too terrible. But I laid in bed the whole

time. I stopped taking it after that because I was going to shoot a segment for

the Lyme PSA & since I had to drive to LA & function all day I stopped taking

it. I need to start it up again & stick with it.

-Sonya

Sent from my BlackBerry® smartphone with SprintSpeed

[ ] Re: stopping abx - what to expect?

Chlorella is very high in oxygen which can kill candida, are you sure they

weren't feeling nauseous/headache from yeast die off?

New to me! I take it a never had a problem.

Another worthwhile natural abx is lauricidin. Very strong, but very helpful.

There's scientific studies showing it has action against some of both gram

negative and gram positive bacteria. Bartonella is gram negative.

> > > >

> > > > My 11 year old daughter has been on Buhner herbs for 2 months now along

with 3 antibiotics (15 months). There has been no change in her symptoms

(constant low-grade headache and general myalgia) for many months and I am

finally STOPPING her abx (last dose 5/9).

> > >

> > > are you sure that Borrelia is the problem, and not a coinfection or

something else? These symptoms are not typical of Lyme IMHO (could be Lyme but

also many other things, including non-infectuous causes).

> > >

> >

>

[Guest guest]

Check out the website. It has a list of things it supposedly kills.

www.lauricidin.com I think that's it.

Sent from my BlackBerry® smartphone with SprintSpeed

[ ] Re: stopping abx - what to expect?

I thought lauricidin was an antiviral rather than an antibiotic???? If memory

serves, my doc has recommended it for epstein barr. jo

>

> I have some Lauricidin. Not expensive & I herx from it. I haven't herxed from

my antibiotics since December but I herx from Lauricidin.

[Guest guest]

I tried chlorella but it gave me throbbing pains throughout my abdomen. I

stopped, pain went away, I started, pain returned. Darnnit! I wanted to be able

to take that stuff!

-Sonya

Sent from my BlackBerry® smartphone with SprintSpeed

[ ] Re: stopping abx - what to expect?

I checked and found this web site about the chlorella intolerance although there

are probably others. This page has other good info.

http://www.vitaminguineapig.com/page29.php

Also some discussion about the nausea and vomiting some people experience:

http://community.naturalnews.com/forums/p/354/937.aspx

deb

>

>

>

> Chlorella is very high in oxygen which can kill candida, are you sure they

weren't feeling nauseous/headache from yeast die off?

>