Guest guest Posted May 10, 2010 Report Share Posted May 10, 2010 Athena, She has had none of those evaluations. She does have Bart.. You've just given me sooo much information in 2 posts! Someone at this weekend's conference mentioned topical Mg oil, Mg patch and epsom salt baths as different methods of Mg intake. One of the doctors also stressed the importance of minerals in liquid form. I will look into your suggestions and try to absorb! Thank you! Aviva On May 9, 2010, at 7:42 PM, Athy wrote: > > Has your daughter's doctor has a metabolic comprehensive panel done > to make sure her electrolytes are ok? Potassium, calcium, > magnesium, sodium? Low mag/cal/pot can add to headaches and cause > myalgia. > > Although, I had severe migraines and myalgia for some time from > lyme/bart even while treating it sometimes. I do not have babs. > > Also had myalgia can be from low pot or mag. > > Another thing to check: mercury can cause headaches. Has her doctor > checked metal levels? Since she is young, I would not recommend > doing a " heavy metal challenge " if your doc says to.. if her metals > are significant it can stir it all up and make her feel horrible > (someone I know with an autistic child did this with their doc and > had that happen). > > Testing without a challenge seems safer in the beginning. Then > after chelating a while a challenge works better without side effects. > > r+lipoic acid taken every 4 hours (except while sleeping) is a > gentle beginning chelator along with chlorella and not harmful.. if > she tries the chlorella and r+lipoic acid for a while and her > headaches diminish.. bingo: mercury/metals. > > Then people work up to using lipsome EDTA and DMSA which are > stronger chelators. > > Athena > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2010 Report Share Posted May 10, 2010 Athena, did they recommend specific liquid minerals? -Sonya Sent from my BlackBerry® smartphone with SprintSpeed Re: [ ] Re: stopping abx - Athena Athena, She has had none of those evaluations. She does have Bart.. You've just given me sooo much information in 2 posts! Someone at this weekend's conference mentioned topical Mg oil, Mg patch and epsom salt baths as different methods of Mg intake. One of the doctors also stressed the importance of minerals in liquid form. I will look into your suggestions and try to absorb! Thank you! Aviva On May 9, 2010, at 7:42 PM, Athy wrote: > > Has your daughter's doctor has a metabolic comprehensive panel done > to make sure her electrolytes are ok? Potassium, calcium, > magnesium, sodium? Low mag/cal/pot can add to headaches and cause > myalgia. > > Although, I had severe migraines and myalgia for some time from > lyme/bart even while treating it sometimes. I do not have babs. > > Also had myalgia can be from low pot or mag. > > Another thing to check: mercury can cause headaches. Has her doctor > checked metal levels? Since she is young, I would not recommend > doing a " heavy metal challenge " if your doc says to.. if her metals > are significant it can stir it all up and make her feel horrible > (someone I know with an autistic child did this with their doc and > had that happen). > > Testing without a challenge seems safer in the beginning. Then > after chelating a while a challenge works better without side effects. > > r+lipoic acid taken every 4 hours (except while sleeping) is a > gentle beginning chelator along with chlorella and not harmful.. if > she tries the chlorella and r+lipoic acid for a while and her > headaches diminish.. bingo: mercury/metals. > > Then people work up to using lipsome EDTA and DMSA which are > stronger chelators. > > Athena > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 Aviva, Glad it was helpful . Lots more where that came from, lol (fortunately or unfortunately). In case mercury/lead/metals are an issue, I'm throwing this info in too for future reference. Prescription DMSA and IVs can be very expensive, I tried going that route for a short time. I learned through $$ and trial/error and Cutler that the IV chelation I was paying $150 a week for were just as good as using pill form non-prescription DMSA ($20/bottle) and liposomal form EDTA ($30/bottle). So instead I followed the Cutler's protocol in his book " amalgam illness " and purchased my DMSA/EDTA online for a fraction of the cost. This site was the most help to me in chelating metals and what to do (without buying a $70 book). http://home.earthlink.net/~moriam/HOW_TO_buy_DMSA.html Lipoflow EDTA: http://organicpharmacy.org/products/EDTA/SKU:LF-EDTA2 I forgot to also mention another popular gentle chelator is zeolite powder or drops. The powder is a lot more affordable than the drops. Best Athena > > > > > Has your daughter's doctor has a metabolic comprehensive panel done > > to make sure her electrolytes are ok? Potassium, calcium, > > magnesium, sodium? Low mag/cal/pot can add to headaches and cause > > myalgia. > > > > Although, I had severe migraines and myalgia for some time from > > lyme/bart even while treating it sometimes. I do not have babs. > > > > Also had myalgia can be from low pot or mag. > > > > Another thing to check: mercury can cause headaches. Has her doctor > > checked metal levels? Since she is young, I would not recommend > > doing a " heavy metal challenge " if your doc says to.. if her metals > > are significant it can stir it all up and make her feel horrible > > (someone I know with an autistic child did this with their doc and > > had that happen). > > > > Testing without a challenge seems safer in the beginning. Then > > after chelating a while a challenge works better without side effects. > > > > r+lipoic acid taken every 4 hours (except while sleeping) is a > > gentle beginning chelator along with chlorella and not harmful.. if > > she tries the chlorella and r+lipoic acid for a while and her > > headaches diminish.. bingo: mercury/metals. > > > > Then people work up to using lipsome EDTA and DMSA which are > > stronger chelators. > > > > Athena > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Do you mean specific minerals for balancing electrolytes? There are a couple of options. Most electrolytes are harmless to replenish and it's difficult to take too much (using common sense of course) because our kidneys flush excess magnesium, salt (sea salt is best), and calcium. Potassium is the only one best monitored by a doctor if you're found to have low blood potassium. Supplementing high levels of potassium (like 500mg+ every couple hours a day) to restore low-potassium needs to be watched to make sure it doesn't get too high (high potassium is not good and can be harmful). Electrolyte mixes and multi-vitamins keep this amount safe. I was once briefly put on cipro by a stupid doctor who didn't warn me about it (and I stupidly trusted him since he was the 2nd best llmd in seattle and lymies I knew loved him). Some prescription abx or stool softeners can really lower potassium levels. So I had super low potassium and it caused lots of muscle weakness/myalgia until I got it to normal levels. The blood tests my doctor used for checking imbalances/electrolytes was a CBC and metabolic panel. Personally, I take a balanced calcium combo that has added vitamin d for absorption about 1000mg calcium 1-3 times a day. You want to try and keep the magnesium and calcium amounts balanced, magnesium intake is essential for lyme but can make you low in calcium if you don't replenish calcium. The method my doc has me use for mag supplementation is to increase my intake of mag malate until I reach " bowel tolerance " meaning it makes you go . Then decrease the dose a bit until this normalizes and stay at that dose. I put natural sea salt on my food and potassium is in a lot of foods so a multi-vitamin/multi-mineral and electrolyte drink mixes should normally supply adequate amounts of potassium along with a healthy diet. There are some sugar-free electrolyte mixtures out there. Emer-Gen-C makes a sugarless powder packet that contains all the electrolytes with 1000mg vitamin c + MSM which is helpful for joint support with lyme. Here it is on amazon.com: http://www.amazon.com/gp/product/B000IXKM6G/ref=pd_lpo_k2_dp_sr_2?pf_rd_p=486539\ 851 & pf_rd_s=lpo-top-stripe-1 & pf_rd_t=201 & pf_rd_i=B00068OJQC & pf_rd_m=ATVPDKIKX0DE\ R & pf_rd_r=0Q5NCFWER4PS2D8WK2A6 I sweeten things with Smartsweet birch xylitol or Truvia since I cannot do sugar or fruit thanks to the lyme + co's. Xlitol has the bonus of tasting like sugar, being healthy, and killing candida. The other Emer-Gen-C flavors contain fructose unfortunately. It also doesn't hurt to take liquid trace minerals if your multi-vitamin/mineral doesn't have these. http://www.amazon.com/Liqumins-ConcenTrace-Trace-Mineral-8-Ounce/dp/B000AMUWLK They taste gross so don't put too many drops in your water or you'll regret it! lol A favorite multi-min/multi-vit is the daily packet by usana.com.. they pack so much good stuff in there, I can cut down taking some supplements separately and it saves money. athena > > > > > Has your daughter's doctor has a metabolic comprehensive panel done > > to make sure her electrolytes are ok? Potassium, calcium, > > magnesium, sodium? Low mag/cal/pot can add to headaches and cause > > myalgia. > > > > Although, I had severe migraines and myalgia for some time from > > lyme/bart even while treating it sometimes. I do not have babs. > > > > Also had myalgia can be from low pot or mag. > > > > Another thing to check: mercury can cause headaches. Has her doctor > > checked metal levels? Since she is young, I would not recommend > > doing a " heavy metal challenge " if your doc says to.. if her metals > > are significant it can stir it all up and make her feel horrible > > (someone I know with an autistic child did this with their doc and > > had that happen). > > > > Testing without a challenge seems safer in the beginning. Then > > after chelating a while a challenge works better without side effects. > > > > r+lipoic acid taken every 4 hours (except while sleeping) is a > > gentle beginning chelator along with chlorella and not harmful.. if > > she tries the chlorella and r+lipoic acid for a while and her > > headaches diminish.. bingo: mercury/metals. > > > > Then people work up to using lipsome EDTA and DMSA which are > > stronger chelators. > > > > Athena > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 I'm pretty big on either liquid supplements (if I can find no sugar ones) or capsules because I don't really have the patience for mag oil every day.. managing the lyme treatments and protocols is enough overload . I have to be extremely careful to avoid any/all sugar. My favorite liquid multi-min/multi-vit is the only one I've found thats organic and uses only xylitol and stevia (no sugar) tastes pretty decent. But it doesn't have as much as usana multi, like coq10, ala, resveratrol, and other goodies. http://www.vitacost.com/Vital-Earth-Minerals-Super-Multi lasts me 2 months for $24/bottle > > > > > Has your daughter's doctor has a metabolic comprehensive panel done > > to make sure her electrolytes are ok? Potassium, calcium, > > magnesium, sodium? Low mag/cal/pot can add to headaches and cause > > myalgia. > > > > Although, I had severe migraines and myalgia for some time from > > lyme/bart even while treating it sometimes. I do not have babs. > > > > Also had myalgia can be from low pot or mag. > > > > Another thing to check: mercury can cause headaches. Has her doctor > > checked metal levels? Since she is young, I would not recommend > > doing a " heavy metal challenge " if your doc says to.. if her metals > > are significant it can stir it all up and make her feel horrible > > (someone I know with an autistic child did this with their doc and > > had that happen). > > > > Testing without a challenge seems safer in the beginning. Then > > after chelating a while a challenge works better without side effects. > > > > r+lipoic acid taken every 4 hours (except while sleeping) is a > > gentle beginning chelator along with chlorella and not harmful.. if > > she tries the chlorella and r+lipoic acid for a while and her > > headaches diminish.. bingo: mercury/metals. > > > > Then people work up to using lipsome EDTA and DMSA which are > > stronger chelators. > > > > Athena > > > > > > > Quote Link to comment Share on other sites More sharing options...
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