Guest guest Posted March 6, 2010 Report Share Posted March 6, 2010 This is not for my child with autism, but for my 2 year old who needs surgery, which is scheduled for April 5th. I can't change the date unless I want him to have 3 more injects each day for 3 days. He has 2 hernias and his testicles are kind of twisted up around them. That is why they haven't decended. Not because he has a syndrome like the urologist that retired (thank goodness) said and put him through tons of genetic testing. It may take more than one surgery to fix everything. But, what I am worried about, and I can't even spell enough of the word to find it in the dictionary, is a caudle (pain blocker). They are really trying to sell me on this, but I keep saying NO. My biggest reason is that the urologist at first called it an epidural, which I had when having , and did not have when I had Josh. It was totally unneccessary and I wish I had not had it with . Plus, I later learned the dangers of epidurals. Then he already (last week) had me talk to the pre-op nurse and anestesiologist. In that clinic they kept asking at the desk, " His surgery is tommorow? " Seems most parents talk to pre-op the day before a scheduled surgery. Not a month before. I wonder if the urologist made me go because I was saying NO to the epidural (they told me he meant caudle (spelled wrong)? But, when the urologist said there is a chance the anestesiologist (spelled that wrong too) could stick it in a artery and make his heart stop, that was it for me. I said no way. We all have physical pain in our life at some point. I had double hernia surgery at age 5. My mom didn't think I had a caudle. I don't know if I can get med records from St. Hospital from 33 years ago or not. Probably if I can they can't get them this quickly. Another thing is I said NO to Tylenol, because he started breathing weird the one time he took it. All pediatricians in his clinic agree that he should just avoid it. This doctor wants me to consider it (prescription form) as a pain med to take home and he said he can try it out in the hospital and be monitored there for a reaction. Do I want to do that, or do I stand my ground on this too? I had one high blood pressure medicine that I didn't have a negative reaction to until 3 weeks later, and the nurse I had told me that was impossible. That I would have the reaction taking it the first time. Really makes me not trust the mainstream medical world. All he has ever had is infant motrin, some antibiotics, and hydroxyz hcl for cough and congestion. He has had a little zantac and previcid for reflux. It bothered me to give it. I can't stand drugs. I knew we weren't getting to the root cause of the problem with using meds. Now I wonder if the hernias were part of the reflux. I read that on the internet somewhere, but it didn't say a lot about it. If he has reflux now you can't tell it. I also wonder if when I did a myofascial release technique on him to try to make the testicles want to slowly move down that he noticed pain from that because they did want to move, but couldn't because they were tangled up in the hernias. You can see one hernia, but an ultrasound revealed one on the other side too. That is how I was too. One was visible and the other one they found during surgery. Did they have ultrasounds 33 years ago? How did they find one on the other side if you can see until you cut into the person if there were not ultrasounds available? I had big scars. He will have 4 little ones. It is out patient. That bothers me too. What if something comes undone? Will it cause internal bleeding? How will I know? My friend is a myofascial release therapist and I can learn some techniques from her for pain control or take him to her. She might even go to the hospital with us. She was there for his birth and did the unwinding of his birth a few hours after he was born. I remember some if my surgery at age 5. Mostly the toys I was brought it the hospital. I got so much I was thinking I must have stayed a week, but my mom said it was outpatient for me too. They must have really felt guilty. I remember my aunt and uncle coming. I remember my dad changing the bandages in the bathroom. I don't remember any pain and I have big scars. I remember being at the hospital and not being fearful. My mom said she made me a nice soft, cozy bed for me a home and I only stayed in it 10 or 15 minutes and I was up playing, not being bothered by a thing. So, I am leaning toward the whole caudle drug thing as being unneccessary. It is a research hospital and I already feel like my child has been guinea pigged enough. Now, I see that after the usual time limit for the testicles to descend on their own after birth, they should have suggested an ultrasound to see what was going on. I didn't know. Wish I did. Also, what about this? I think they have ruled this out now, but just incase, they said if one or both testicles were not functioning they would cut them out? Is that neccessary? They keep talking about the risk of cancer if they are left in and not functioning. Would that not be the same equivalent of a woman going through menopause and automatically making her get a hysterectomy? I am tired of hospitals, drugs, mainstream medicine, and scare tactics. I know this is off topic, but the best people I know with NON mainstream knowledge are on these message boards, and I am running out of time. If it is best to email me directly since it is off topic my email is aprilveronica@... aprilveronica at hotmail dot com Thank you, April _________________________________________________________________ Hotmail: Trusted email with Microsoft’s powerful SPAM protection. http://clk.atdmt.com/GBL/go/201469226/direct/01/ Quote Link to comment Share on other sites More sharing options...
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