A little more specific information on my condition!

[Guest guest]

Sue, Thank you, thank you, thank you! I will be anxious to hear from

you! Yes, I am on 2 Biaxin XL 2/day which is only 1/4 of the normal dose and

I have been taken off it for 5 full days after only being on the antibiotic

for 10 days because of the extreme Herxheimer reaction, then I was put back

on the same dose for 10 days, then taken off for 5 days again, then put back

on for 10 days, then lowered to only 1 pill for 10 days, finally I was put

on a total body cleansing (that is a nutritional supplement and holistic)

for 5 days that really helped get rid of the dying spirochetes from all of

my body. Now I am back on the 2 pills with the total body cleansing

treatment once a day. I have been able to be on this protocol for 3 weeks

now and was doing fine, until my doctor wanted me to cut back on my non

addictive sleep meds. I was getting 8-10 hours of sleep until I started the

antibiotics, then I found I had to sleep 12-15 hours due to the dying

spirochetes, now I ma only getting 3-4 hours of sleep a night and can not

function during the day. I feel like a zombie, I am charting my responses to

the change in sleep, gave him my FMS protocol from my FMS specialist that

prescribed the sleep meds, (but he lives in land), and sent my doctor

the FMS doctor's book explaining scientifically why he does the protocol he

does for all of his treatments and for sleep, so hopefully he will

reconsider what is NOT working for me at all! The lyme has really affected

this part of my hypothameuis (sp?) in my brain! Give me all information and

connections that you are able to, because I can not continue feeling this

horrible night and day! Do you know anyone who can help with the FMS and /or

sleep, too!

Thanks, again! Crockett rcrockett@...

Re: [ ] a thought..............

> -

> What you describe are all lyme symptoms and IF you do have lyme, these

> symptoms will SLOWLY disappear with long-term antibiotic therapy. I will

> e-mail you privately with a lyme literate dr. I am with the Lyme Alliance.

> www.lymealliance.org

> sue in nj

> sue massie

>

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