Guest guest Posted April 22, 2000 Report Share Posted April 22, 2000 Dear Connie, Yes!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Savor every second. I am so happy to hear good news. Love, Helen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2000 Report Share Posted April 22, 2000 Hi Everyone, I'm in my ninth week of IV Rocephin.................and believe it or not.............I am symptom free.......yes you heard me SYMPTOM FREE......it feels wonderful to be myself again. ....I am getting back on track with my sleep cycle, but I think that has been out of wack for so long, my body doesn't know what normal sleep is.....I have been taking an over the counter medication that has " Doxylamine Succinate " in it. I take two before bedtime and don't wake until 7:00am......How wonderful....to wake refreshed.......... I hope this lasts.......forever. My LLMD wants me to continue the IV until I am symptom free for two more cycles of the spirochete. So that means until the middle of June.........I have one more week of recuperation and then back to work, May 1st..............I think my Dr. would have preferred that I didn't return to work, since I am doing so well........but I think I can handle another six weeks of work, than I have the summer to rest.............hopefully my liver enzymes continue to remain normal, and the yeast stays under control..............I guess the acidophilus and the milk thistle have been helping in that area............unfortunately many people start to have liver toxicity after so many months of abx, and have to stop treatment......lets hope that doesn't happen to me....Well, I'm off to a wedding and then to visit Family for Easter............it will be nice to actually enjoy a Holiday............. for the first time in about five years.......... Happy Easter Everyone, Connie nwnj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2000 Report Share Posted April 24, 2000 In a message dated 4/23/00 11:20:20 PM Eastern Daylight Time, InformationJunki@... writes: << Additionally, I have the moral/ethical decision to make about giving my 15-year-old Rocephin or not. She started Biaxin/Flagyl on 4/4 and has been digestively tolerating quite well. >> not sure I understand your post...I myself am having the big questions whether my 17 year old should go on Flagyl due to it's severe side effects potentially....but it is a no brainer as far as Rocephin goes...is it because it is IV??? <trying to understand> Bernadette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2000 Report Share Posted April 24, 2000 Dear Bernadette: I thought, " Oh, what a bizarre world and all the wonderful decisions we get to make. " I didn't think twice about using the Flagyl. I knew up front that compliance is tough because of the horrific taste and aftertaste. Cutting the pill into quarters and getting a solid coating of peanut butter makes it more tolerable. Now we just laugh at the contorted faces she makes. I need to look into this matter further, but I believe that there are More than one type of Flagyl. The preferred one that goes deeper into the cell (Can you tell I have a business background and not medical, LOL). I thought it was named something klike Flagyl -T, I hear people get it specially compounded. I figure as long as she is doing Flagyl, we might as well go for a homerun! COULD SOMEONE PLEASE EXPAND ON THIS. Correct, my primary reservation with Rocephin is that it is an IV. I am actually experienced at doing IVs, I'm concerned about the psychological implications on a little girl. I've had a lot of practice in my CFIDS days of the infamous Vitamin C drips and IgG. Currently, I'm giving my sweetheart a daily Rocephin. I'm concerned about how pathological this all seems. If you walked into my home, I have boxes of supplies everywhere, my refrigerator has less and less space for food, I.V. pole in the way all the time -- it is so surreal as it is. I suppose that I should be grateful to finally know what we have, appreciate access to medication and find more ways to add humor to this nightmare. I'm worried how my daughter's innocent brain will process the craziness of this surreal nightmare. Thank goodness that she essentially " Gets it. " After hearing about the incredible results children get from Rocephin at the conference, I think holding off until school ends. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2000 Report Share Posted April 24, 2000 Dear Bernadette: Oops, I sent before I signed off and Spell Checked. Oh, well... My understanding about Flagyl is that it cannot be used longer than 4 months consecutively. Also, blood work has to be done to check on toxicity levels. Is there anything else I am missing? With Rocephin the main concern is Gallbladder stones and sludge, right? Someone please respond, thanks. You should be my daughter's Mom and I should be your child's Mom and we wouldn't even have to be posting on this issue. If only life could be so simple! Take care, Annie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2000 Report Share Posted April 24, 2000 In a message dated 4/24/00 11:09:16 AM Eastern Daylight Time, InformationJunki@... writes: << You should be my daughter's Mom and I should be your child's Mom and we wouldn't even have to be posting on this issue. If only life could be so simple! Take care, Annie >> Annie Life is not simple..I have THREE kids positive for lyme... gotta laugh or I would cry...b Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2000 Report Share Posted April 24, 2000 In a message dated 4/24/00 11:09:16 AM Eastern Daylight Time, InformationJunki@... writes: << My understanding about Flagyl is that it cannot be used longer than 4 months consecutively. Also, blood work has to be done to check on toxicity levels. Is there anything else I am missing? >> cancer risks increase....Flagyl is used for 6 months...b Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2000 Report Share Posted April 24, 2000 In a message dated 4/24/00 10:07:17 AM Central Daylight Time, InformationJunki@... writes: << With Rocephin the main concern is Gallbladder stones and sludge, right? Someone please respond, thanks. >>Yep I had six weeks and had gallbladder sludging and EXTREME pain...emergency room pain. Quote Link to comment Share on other sites More sharing options...
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