nine weeks of Rocephin

[Guest guest]

Dear Connie,

Yes!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Savor every second. I

am so happy to hear good news.

Love,

Helen

[Guest guest]

Hi Everyone,

I'm in my ninth week of IV Rocephin.................and believe it or

not.............I am symptom free.......yes you heard me SYMPTOM

FREE......it feels wonderful to be myself again. ....I am getting back on

track with my sleep cycle, but I think that has been out of wack for so

long, my body doesn't know what normal sleep is.....I have been taking an

over the counter medication that has " Doxylamine Succinate " in it. I take

two before bedtime and don't wake until 7:00am......How wonderful....to wake

refreshed.......... I hope this lasts.......forever.

My LLMD wants me to continue the IV until I am symptom free for two more

cycles of the spirochete. So that means until the middle of June.........I

have one more week of recuperation and then back to work, May

1st..............I think my Dr. would have preferred that I didn't return to

work, since I am doing so well........but I think I can handle another six

weeks of work, than I have the summer to rest.............hopefully my liver

enzymes continue to remain normal, and the yeast stays under

control..............I guess the acidophilus and the milk thistle have been

helping in that area............unfortunately many people start to have

liver toxicity after so many months of abx, and have to stop

treatment......lets hope that doesn't happen to me....Well, I'm off to a

wedding and then to visit Family for Easter............it will be nice to

actually enjoy a Holiday............. for the first time in about five

years.......... Happy Easter Everyone, Connie nwnj

[Guest guest]

In a message dated 4/23/00 11:20:20 PM Eastern Daylight Time,

InformationJunki@... writes:

<< Additionally, I have the moral/ethical decision to

make about giving my 15-year-old Rocephin or not. She started Biaxin/Flagyl

on 4/4 and has been digestively tolerating quite well. >>

not sure I understand your post...I myself am having the big questions

whether my 17 year old should go on Flagyl due to it's severe side effects

potentially....but it is a no brainer as far as Rocephin goes...is it because

it is IV??? <trying to understand> Bernadette

[Guest guest]

Dear Bernadette:

I thought, " Oh, what a bizarre world and all the wonderful decisions we get

to make. "

I didn't think twice about using the Flagyl. I knew up front that compliance

is tough because of the horrific taste and aftertaste. Cutting the pill into

quarters and getting a solid coating of peanut butter makes it more

tolerable. Now we just laugh at the contorted faces she makes. I need to

look into this matter further, but I believe that there are More than one

type of Flagyl. The preferred one that goes deeper into the cell (Can you

tell I have a business background and not medical, LOL). I thought it was

named something klike Flagyl -T, I hear people get it specially compounded.

I figure as long as she is doing Flagyl, we might as well go for a homerun!

COULD SOMEONE PLEASE EXPAND ON THIS.

Correct, my primary reservation with Rocephin is that it is an IV. I am

actually experienced at doing IVs, I'm concerned about the psychological

implications on a little girl. I've had a lot of practice in my CFIDS days

of the infamous Vitamin C drips and IgG. Currently, I'm giving my sweetheart

a daily Rocephin. I'm concerned about how pathological this all seems. If

you walked into my home, I have boxes of supplies everywhere, my refrigerator

has less and less space for food, I.V. pole in the way all the time -- it is

so surreal as it is. I suppose that I should be grateful to finally know

what we have, appreciate access to medication and find more ways to add humor

to this nightmare. I'm worried how my daughter's innocent brain will process

the craziness of this surreal nightmare. Thank goodness that she essentially

" Gets it. " After hearing about the incredible results children get from

Rocephin at the conference, I think holding off until school ends.

[Guest guest]

Dear Bernadette:

Oops, I sent before I signed off and Spell Checked. Oh, well...

My understanding about Flagyl is that it cannot be used longer than 4 months

consecutively. Also, blood work has to be done to check on toxicity levels.

Is there anything else I am missing? With Rocephin the main concern is

Gallbladder stones and sludge, right? Someone please respond, thanks.

You should be my daughter's Mom and I should be your child's Mom and we

wouldn't even have to be posting on this issue. If only life could be so

simple!

Take care,

Annie

[Guest guest]

In a message dated 4/24/00 11:09:16 AM Eastern Daylight Time,

InformationJunki@... writes:

<< You should be my daughter's Mom and I should be your child's Mom and we

wouldn't even have to be posting on this issue. If only life could be so

simple!

Take care,

Annie >>

Annie Life is not simple..I have THREE kids positive for lyme... gotta

laugh or I would cry...b

[Guest guest]

In a message dated 4/24/00 11:09:16 AM Eastern Daylight Time,

InformationJunki@... writes:

<< My understanding about Flagyl is that it cannot be used longer than 4

months

consecutively. Also, blood work has to be done to check on toxicity levels.

Is there anything else I am missing? >>

cancer risks increase....Flagyl is used for 6 months...b

[Guest guest]

In a message dated 4/24/00 10:07:17 AM Central Daylight Time,

InformationJunki@... writes:

<< With Rocephin the main concern is

Gallbladder stones and sludge, right? Someone please respond, thanks. >>Yep

I had six weeks and had gallbladder sludging and EXTREME pain...emergency

room pain.