Guest guest Posted November 2, 2000 Report Share Posted November 2, 2000 In a message dated 11/2/00 5:56:41 PM Central Standard Time, rod@... writes: Can a Lyme infected person have a poss EBV test? Sure.... I have been positive on many occasions. Of course, my first diagnois was CFIDS (Chronic Fatigue Immune Dysfunction Syndrome) and my immune system is totally out of whack and allows various viruses to activate. Technically, I have CFIDS as well as Lyme as I meet all the diagnostic criteria. Speaking of, has anyone else had their immune system tested (B cells, Natural Killer cells) and found any dysfunction? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2000 Report Share Posted November 2, 2000 Yes. In fact this is very common. See Art's page: http://www.geocities.com/HotSprings/Oasis/6455/misdiag-links.html#diseaseEBV Lyme Disease and Epstein-Barr Virus (EBV) MEDLINE - Epstein-Barr Virus AND Lyme disease - 30 on 14 Oct 99 ---------------------------------------------------------------------------- ---- Medscape Clinical Full-Text: Lyme Disease and Epstein-Barr Virus (EBV) - 0 on 12 Feb 00 Medscape News: Lyme Disease and Epstein-Barr Virus (EBV) - 0 on 12 Feb 00 Robynn [ ] Lyme vs EBV Can a Lyme infected person have a poss EBV test? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2000 Report Share Posted November 2, 2000 > Can a Lyme infected person have a poss EBV test? > Yes. In fact this is very common. Thanks Robynn for the link, I had already gone there, but I have not found anything saying " this is Lyme not EBV, though the EBV tests were poss and Lyme neg " know what I mean? ty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2000 Report Share Posted November 2, 2000 I do understand what you mean. I had a positive EBV for years before I was finally diagnosed with Lyme. My LLMD said that the positive EBV was probably Lyme. Unfortunately I don't remember if he meant that the EBV was caused by Lyme or if the + EBV was a false positive. I don't know where else to look for confirmation of this either. This may be one of those things that the clinicians know about, but the research hasn't been done on yet. Robynn Re: [ ] Lyme vs EBV > Can a Lyme infected person have a poss EBV test? > Yes. In fact this is very common. Thanks Robynn for the link, I had already gone there, but I have not found anything saying " this is Lyme not EBV, though the EBV tests were poss and Lyme neg " know what I mean? ty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2000 Report Share Posted November 2, 2000 >rod@... wrote: >Can a Lyme infected person have a poss EBV test? >>Golfdawg wrote: >Sure.... I have been positive on many occasions. Of course, my first >immune system is totally out of whack and allows various viruses to activate. > Technically, I have CFIDS as well as Lyme as I meet all the diagnostic >criteria. >Speaking of, has anyone else had their immune system tested (B cells, Natural >Killer cells) and found any dysfunction? I also have very high EBV titers which I assume is a reactivation of the virus? Also, meet diagnostic criteria for CFIDS which most of us do, I'm sure. It was an 'enlightening' moment when an infectious disease doc said, "If I didn't know you had lyme, I would SWEAR you had chronic fatigue syndrome. So, there's really nothing I can do for you." huh? (Oh good, that solves it then?) I have also had the B cells and Natural Killer cells tested. It was quite a few years ago, and I'm not at home to check the results exactly, but I do remember the NK cell count was VERY low..not good. I can't remember the other but will look it up next week. Also, I seem to remember that both the number of NK cells and their ability to function is important and should be tested.. it was a long time ago tho.. I've been thinking about trying the immunocal (sp) which is supposed to boost NK cells function..i think. But lately, pains on right side of abdomen have led to my being concerned about liver..so trying to ease up on supplements. For what it's worth... Lainie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2000 Report Share Posted November 2, 2000 Thank you everyone for your input!! It is greatly appreciated. I have an online person that has all the lyme symptoms, but tested neg, yet high poss on EBV. This guys problem is he is a med student, so he knows everything about everything and is convinced that since he never saw the tick or had the rash, it can't possibly be lyme. Oh well , his loss. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 In a message dated 11/3/00 2:01:21 AM Central Standard Time, rod@... writes: Thank you everyone for your input!! It is greatly appreciated. I have an online person that has all the lyme symptoms, but tested neg, yet high poss on EBV. This guys problem is he is a med student, so he knows everything about everything and is convinced that since he never saw the tick or had the rash, it can't possibly be lyme. Oh well , his loss. Well, it may not be lyme but something has his immune system down that is allowing it to be active. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 This guys problem is he is a med student>> That IS a problem, he is going to be one of the drs. who thinks the way 90% of them do NOW. The human spirit is stronger than anything that canhappen to it. C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 In a message dated 11/3/00 1:45:09 AM Central Standard Time, lainiell@... writes: I have also had the B cells and Natural Killer cells tested. It was quite a few years ago, and I'm not at home to check the results exactly, but I do remember the NK cell count was VERY low..not good. I can't remember the other but will look it up next week. Also, I seem to remember that both the number of NK cells and their ability to function is important and should be tested.. it was a long time ago tho.. The doctor I just started seeing in addition to my CFIDS doctor treats Lyme and goes to practically all the conferences on Lyme. He told me at the most recent one they discussed a weakened immune system and low NK cell function. Apparently, the concensus was that once the Lyme was brought under control the immune system would recover and viruses would no longer reactivate. He said that most thought the NK cell count was very erratic and not worth taking. He also said anti-virals were not necessary as any viruses would deactivate and would go away as soon as the Lyme was brought under control. Is this everyone's else's understanding from their physician? Anyone have personal experience of this? I guess it comes down to that BIG question that divides the doctors....is it still Lyme Disease or is it (immune system dysfunction / CFIDS) just the aftermath of having Lyme Disease? I don't know I just don't see the immune system spontaneously recovering without any help. Just my thought from being on the CFIDS newsgroups with long-suffering CFIDS patients whose immune system just won't come back. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2000 Report Share Posted November 5, 2000 YES,i did....cherlyme In a message dated 11/2/00 4:56:36 PM, rod@... writes: <<Can a Lyme infected person have a poss EBV test? >> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.