Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 Well, Hello All! I just returned from NYC with Patty on our relentless pursuit for compassion, treatment and what will hopefully suffice our HMO in Buffalo, NY. Our primary doc said he would not believe that Patty has late neurologic lyme disease unless we were evaluated at a " major medical center " ...we picked Columbia and guess what...3 docs all diagnosed lyme despite only showing an indeterminate Western Blot (bands 41, 34, 18, 93 and one I cannot remember). This is in addition to a SPECT scan with significant 'white matter' and a flunkin' grade on a neuro-psych exam (Patty has 2 degrees in nursing and was pursuing a practitioner degree and now she cannot balance a check book). Hats off to Drs. L, B , H and F. Dr. L for giving me the kick in the @$$ to get nasty. Any way, I got our primary's word that he would fully support and prescribe any treatment should Patty get more diagnosis's...well, he's gonna get a pad full starting with bicyllian (spelling) in the rump. Patty was wondering if any one has had any luck, adverse herx's or if she should go straight to the IV therapy as she has only been on orals (omxy up to 10,000 mg/day) until her stomach revolted. If anyone is in the WNY area or knows of someone with lyme, I really want to start a support group and possible a lobbying arm towards local government representatives...I have had enough of the strong arm HMO as they have denied Patty with proper treatment for over 2 years (original diagnosis was in 1999 from a doctor in PA). Now to date I have a total of 5 medical opinions stating she has lyme and I really want to go to the paper with this mistreatment as a public interest story. I was thinking that this may go great with the recent news of New York doctors suing the HMO's for withholding treatment and medical test. Just venting, Darren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 Darren, I am in the NYC area, Brooklyn to be exact. Bicillin shots are HELL ON EARTH!!! (well they are for me anyway...I am on week 15 and I havent been to work in 2 months). If you need any info on Bicillin, feel free to e-mail me at CAJAPUT@.... HUGS, Debbie Brooklyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2001 Report Share Posted August 18, 2001 hello, i read your letter and yes i'm very interested .would love to find a doctor in buffalo for lyme all the ones i find are out of my range ,been sick with lyme for long time only gettin worse because no one to treat the lyme ..doctor says i'm cured but i was bite in 1986 , i guess i'm getting farther in the stages. haven't been able to work in over a year they treat me for fibermilgia.so yes very interested in all you know please feel free to e-mail me if you have any information could help please .live in small town about 60-mile away. thank-you victoria god bless [ ] 3 more diagnosis!! Well, Hello All! I just returned from NYC with Patty on our relentless pursuit for compassion, treatment and what will hopefully suffice our HMO in Buffalo, NY. Our primary doc said he would not believe that Patty has late neurologic lyme disease unless we were evaluated at a " major medical center " ...we picked Columbia and guess what...3 docs all diagnosed lyme despite only showing an indeterminate Western Blot (bands 41, 34, 18, 93 and one I cannot remember). This is in addition to a SPECT scan with significant 'white matter' and a flunkin' grade on a neuro-psych exam (Patty has 2 degrees in nursing and was pursuing a practitioner degree and now she cannot balance a check book). Hats off to Drs. L, B , H and F. Dr. L for giving me the kick in the @$$ to get nasty. Any way, I got our primary's word that he would fully support and prescribe any treatment should Patty get more diagnosis's...well, he's gonna get a pad full starting with bicyllian (spelling) in the rump. Patty was wondering if any one has had any luck, adverse herx's or if she should go straight to the IV therapy as she has only been on orals (omxy up to 10,000 mg/day) until her stomach revolted. If anyone is in the WNY area or knows of someone with lyme, I really want to start a support group and possible a lobbying arm towards local government representatives...I have had enough of the strong arm HMO as they have denied Patty with proper treatment for over 2 years (original diagnosis was in 1999 from a doctor in PA). Now to date I have a total of 5 medical opinions stating she has lyme and I really want to go to the paper with this mistreatment as a public interest story. I was thinking that this may go great with the recent news of New York doctors suing the HMO's for withholding treatment and medical test. Just venting, Darren Quote Link to comment Share on other sites More sharing options...
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