Re: Digest Number 1780

April 26, 2001

Janet, I am interested to read that article on lyme (bb) found in semen,

found in urine, seems to make sense, as both come out urethra. pat

nj

April 26, 2001

In a message dated 4/26/2001 12:29:34 AM Pacific Daylight Time,

writes:

>

> Just my two cents on this subject but I've had Lyme for 11 yrs. and my

hubby

> shows NO sign of Lyme whatsoever. We don't use any birth control ...

> vasectomy and hysterectomy ... so it seems like if he was going to get it,

he

> would have by now.

>

While I am glad your husband has no symptoms, there is an entire body of

literature on individuals who are infected by carry the spirochete

asymptomatically or in a subclinical state. As I recall, many of these

studies were done by European researchers and when you look at who's in the

studies -- although it doesn't break down the findings by gender -- you get

the feeling that a lot of the people who are asymptomatic but infected are

males.

Many doctors have noticed that women seem to have more problems in terms of

the severity of symptoms and their difficulty clearing the organism. there is

very little you can find on the medical literature on this, however.

Lynn

April 27, 2001

Lynn,

> While I am glad your husband has no symptoms, there is an entire body of

> literature on individuals who are infected by carry the spirochete

> asymptomatically or in a subclinical state. As I recall, many of these

> studies were done by European researchers and when you look at who's in

the

> studies -- although it doesn't break down the findings by gender -- you

get

> the feeling that a lot of the people who are asymptomatic but infected are

> males.

I am not saying we know whether Lyme is or is not sexually transmissible but

I think I have an explanation as to why the " healthy " carriers in European

studies (I know of several French ones) were largely males, the studies were

done on ....foresters and hunters because they were interested in people who

had obvious exposure to ticks! Hence the high numbers of males. I wonder

what they would find if they look at the general population and if they had

reliable tests, and if they were truly looking at the problem.

> Many doctors have noticed that women seem to have more problems in terms

of

> the severity of symptoms and their difficulty clearing the organism.

This may very well be the case. I am certainly a lot sicker than my husband,

but in my situation, I think it's a question of one tickbite too many! I was

bitten many, many times whereas my husband was only in contact with ticks

once (several ticks, though over a period of a few days).

Nelly (in France)

May 2, 2001

In a message dated 4/27/2001 10:58:53 AM Eastern Daylight Time,

janel@... writes:

> I am certainly a lot sicker than my husband,

> but in my situation, I think it's a question of one tickbite too many! I was

> bitten many, many times whereas my husband was only in contact with ticks

> once (several ticks, though over a period of a few days).

>

> Nelly (in France)

>

Good point, Nelly.

I've had Lyme for at least 13 years now, wasn't diagnosed until 1999.

My symptoms kept worsening, but kinda gradually, over the years.

Then, when I did very active hiking in the woods, getting probably hundreds

of tick bites (unknown to me at the time), I suppose that, like you, I just

got one ( or a hundred!!!) bite too many & it pushed me over the edge, making

my symptoms 1000% worse & it happened literally overnite. I just don't

believe that only one tick bite caused this, and I know I've had years of

exposure hiking in the beautiful woods " for my health. "

Hugs, a

November 12, 2004

from MO - I'd be happy to discuss w/ you my personal experience with the

Pearland ISD school district (suburb of Houston). We have had positive

experience's here. You can email me directly at wendywellen@... Our church

has

also just started a Special Needs ministry that isn't fully up and running but

will be with in the next few weeks. If anyone wants info on that as well

email me personally.

Dana - regarding bike camp - I thought my kid was the only one who would not

ride without training wheels. He's 8 and it's the crashing he fears. I am very

interested and would be willing to volunteer if I'm able. What do we need to

do?

November 12, 2004

from MO - I'd be happy to discuss w/ you my personal experience with the

Pearland ISD school district (suburb of Houston). We have had positive

experience's here. You can email me directly at wendywellen@... Our church

has

also just started a Special Needs ministry that isn't fully up and running but

will be with in the next few weeks. If anyone wants info on that as well

email me personally.

Dana - regarding bike camp - I thought my kid was the only one who would not

ride without training wheels. He's 8 and it's the crashing he fears. I am very

interested and would be willing to volunteer if I'm able. What do we need to

do?

November 12, 2004

I must confess that I don't always scroll through every day and read every

single article, but wanted to take the time to send a message today about

the series Channel 2 Houston is doing on Autism. If you watched the 4pm

news Thursday, you saw my family on the " recovering with DAN " spot. What is

important to note is that they did an incredible job of editing that piece

to show what is really happening for our family with the DAN protocol, but

it doesn't show the dedication, time, patience, and cost involved. That

would simply be too much.

The reason I feel we have had such good results with the DAN protocol are

that we have read EVERYTHING we could get our hands on, we've traveled to

meet the doctors and hear the researchers give their case studies (I did a

lot of that before I put on methyl b-12 and DMSA chelation), we've

been gf/cf for almost 3 years, our entire household is gf/cf, not just our

son, and we work together as a team in therapies, homework, communication,

household running, etc.

It is a tremendous process, but if you saw the piece and saw my son hug me

and say, " mommy I love you, " and you want that, too, AND you are willing to

do whatever it takes, then do the DAN protocol. Not just pieces of it.

ALL of it, and get a GOOD DAN! doctor that believes in the protocol and have

patience to allow things time to work. Most importantly, have faith, and

put it all in the hands that are big enough to carry the load.

My prayer is that other families will have recovery like we have with our

son. He was never " severe, " but he just wasn't here with us. His speech

was 2.5 year level at age 5, and he had SID's, stimming, etc. He's with us

now!

We are planning an autism conference with Dr. Volpe to be held at our

church, League City United Methodist Church, on April 10th from 1:30-6.

There will be no cost for this event, but in January, I'll send out notices

so you can call and reserve tickets to hear our family's story, and hear the

newest up to date DAN! data from Dr. Volpe. We are also looking for one

more person that would be willing to speak.

My husband will be doing an overview of the rise of autism with stats,

studies, charts, videos and all. I'll be sharing our recovery story of

, and Dr. Volpe will be there to answer questions. I'd like to have

one more speaker to possibly talk about getting insurance help, different

therapies, or something along those lines. If you read this and have a

suggestion, please email me at lsantos@...

Oh, p.s. If you were one of the people I referred to as " a bunch of kooks

and nut eating weirdoes, " before I believed the theories on vaccine damage,

thank you for paving the way for us to remove the thimerosol from my son's

system. It's parents who began this that we owe the recovery of our son.

Thank you from the bottom of a very grateful heart.

With love and belief,

Fellow kook and nut eating weirdo,

P. Santos

281 332 1339

www.marykay.com/lsantos

Cadillac Unit December 2004

www.laurasantos.com

November 12, 2004