Guest guest Posted June 8, 2002 Report Share Posted June 8, 2002 The Lyme Disease Center in Marlton, NJ is also very wonderful..the same groups are affiliated with The Tick Borne Disease Center in burg, NJ. We were very happy with them. and I will have Picc Lines in soon. We will be treated with Rocephin and Zithromax. Rocephin given through the picc lines and Zithromax orally. We will also be taken multi vitamins and Acidophilus (not sure if I spelled that right.) We haven't actually set a date yet because I have been trying to find ways for the insurance to pay for some of it. No dice. Notta gonna happen. The Family doctor has actually been pretty good about it...they have been calling the insurance left and right but Gateway just refuses..mainly because it is out of state treatment. I have tried many LLMD's with in the state but have not found a good one. They are either not taking patients or they just don't do IV. The one I had Dr. F would only do orals and I was refused to be seen by Dr. P even though he was taking all the other Lyme patients of Dr F. because dr. f is sick. He refused to see both and I. I did take in but because of certain doctors whom she had seen, which he feels is the best, he would not even touch her..Then all of a sudden he told me that he doesn't see children under five...which is a very poor excuse, especially since the secratary at the desk when I called to make an appointment for said he sees many young children...and refused to see me although I had been clinically diagnosed with Lyme Disease. I am sending him both 's and my positive pcr Lyme tests. I know he saw all of Dr. F's patients because the nurse from Dr. F said he was. She could not understand why he would refuse me treatment. I know it was because of the incident with . He is from what I understand fairly new to the LLMD world. Why claim to be an LLMD if you can't stand on your own to feet instead of relying on all the other LLMD's to make a diagnosis. Anyway....If anyone lives near to Marlton, NJ please let me know. I need to know real cheap hotels, or even a ronald mcdonald house would be very nice. We are very poor right now and have only $20.00 in the bank. my husband gets a very small check comming up. and he is pretty much out of work tell September...we don't know what we are going to do. I hate to rely on people so much but I have no choice. Please if anyone can help with helping us to find the cheapest rate to go for temporary housing..because we have to stay down there for a week for lessons infusings and so forth..they keep a very watchful eye on you for the first week. I am blessed in the fact that they will not refuse us treatment right now even though we can't pay right now...Darren does have a full time position set up for September and will be give full benefits...but I have a feeling even that insurance they go through will probably refuse to pay for anything. We just barely have enough food to eat. This is very discouragning. We are living on pasta. This disease has brought us so far down. Darren's transcript is on hold probably due to the fact he had to quit in the middle of a semester last year because of us moving up here. He wants to finish schooling and get a degree for Special ed. But even that is put on hold or impossible now. But we are blessed beyond belief with friendships and such a heart warming center. We feel we are at least heading a little bit closer to wellness (or at least a much better quality of life). The feeling of peace has been with us. We know we are doing the right thing and trust that God will fill in where we can't even if it is through other people. It has been a very humbling experience and have gained so much from this disease. Good has come from it. But I sure am ready to put it at rest. We would all love to provide for ourselves but I feel we must learn humility and help everyone through this crazy world of ours. I feel this is the biggest reason for our existence. I also believe we are all worth so much. At times we feel that others put so little value on us...been there are others who are so kind and so good. We can't loose faith in humanity. Okay I didn't really mean to make this sound so preachy. But I have felt such a great swelling of thankfullness for life and for friendships, love and etc. God has been good to us. How can we not be thankful? We have perseverance and we have a chance to make a great contribution to humanity. Thanks everyone for being my friend and helping me through this. Love, Cyntha Landon Lititz, PA Quote Link to comment Share on other sites More sharing options...
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