Guest guest Posted July 6, 2001 Report Share Posted July 6, 2001 Thanks Robynn! Here is my letter to Nightline Below: Dear Nightline Producers, Although you have bought up a well needed controversy, that of Lyme Disease your short story needs some follow-up. I waited for your Lyme special to air for many weeks, and was disappointed that the beginning of the story was not followed up with someone representing the Lyme literate. Instead the opposition was someone who treats cancer. This seemed pretty extreme. The extreme you should have emphasized more is the people whom are misdiagnosed with MS, ALS, Lupus, Chronic Fatigue and Rheumatoid Arthritis. Our own celebrities here in LA like J. Fox, and Montel have been diagnosed with diseases such as MS, and Parkinsons; should have inquired further for Lyme Disease Diagnosis. But, how can they? Especially without ABC showing some folks with these illness's that have fully recovered, through long term antibiotic use. I did appreciate the beginning of the program you aired by stating one patient was out of her wheelchair. I just expect several follow-ups from a broadcasting company as thorough as ABC. I hope you can spread some Lyme Awareness despite all the bad press as of late. Their are so many Lyme patients that have died because they have not driven on to obtain antibiotics from their physicians. They have gotten off of therapy only to relapse and need IV or IM antibiotics, when oral antibiotics would have been sufficient had they continued treatment. Even a pimply faced teen can get long term antibiotics for acne! I feel sorry for our physicians being mandated so harshly. The AMA has one arm tied up, and the Medical Board the other. They fear for their jobs! I was recently diagnosed with long standing lyme disease and if I must, I will go to the FEED STORE and aquire antibiotics to treat myself. I feel like a new person, after many years of pain, and reduced cognitive ability. May you stress in your next report that Lyme Disease is a spirochete mediated illness. Just as syphyllis (another spirochetel illness). Niether of these illness's are cured by a few days or months of antibiotics. Sincerely, Eve alldat@... Quote Link to comment Share on other sites More sharing options...
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