Re: hello from frightened.

[Guest guest]

Cyntha, GO TO THE ER Young Lady, dont make me come over there! *-)

With HR and BP that low you have to get it checked out, have possibly some

blood drawn for cardiac enzymes and of course an EKG. Dont put this off. Go

right now.

Zith crosses well into muscle tissue, could be that you are having a

" Cardio-Herx " . Go, be safe. GO

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[Guest guest]

,

I used to get this very low BP a lot, sometimes the machine just wouldn't

measure it (I had one of those automatic cuffs). When I could measure it, it

was 85/50 or 80/60 quite a lot then I'd be really pleased when it would hit

95/60 and delirious when it went over the 100/70 mark.

When I was that bad, I could not get up at all, I spent 3 months totally

flat on my back, only getting up for bathroom activities (showers sitting on

a plastic stool, great fun). I was very upset most of the time, I felt as if

there was not enough blood in my head unless I put my legs right up against

the wall near my bed. I had very bad ectopic beats (every 3 or 4 beats) and

during the night my pulse often dropped to 40 (I had it recorded several

times by holter monitor). I also had very bad pauses in my heart or

breathing during the night.

Anyway, 2 years 1/2 down the track and buckets of abx (of all kinds) later I

can say all of the above described sx are gone (for the time being anyway!)

The BP was the first to improve and the ectopic heart beats the last (only

stopped suddenly 6 weeks ago).

The problem with going to an ER room is that they won't understand any of

it, unless you are lucky. I wasn't and I was laughed at by several

cardiologists and stared at by a few disbelieving others. I am planning to

return to them with my latest Holter monitor results and see they jaws drop

when I tell them I did it all my way with abx and nothing else!

Still, if BP keeps on dropping go to ER, nevertheless. Have you tried taking

lots of salt? I found it helped me a bit, temporarily anyway.

Nelly

[ ] hello from frightened.

>

> I am probably going to end up in the emergency room today...I have been

> putting it off because I hate hospitals and I just got my daughter out of

> one. But doctor doesn't seem to be taken my blood pressure problem

> seriuosly. I took my blood pressure this morning and about died. It is

> falling to 81/40 Pulse was 30. How am I even functioning with this

problem.

> I at first thought it was my altace..but it doesn't seem to matter anymore

> whether I take it or not. I keep going numb on the top of my head. This

> has me frightened beyond belief. If any one has had this problem I sure

> could use some reassuring.

>

> I am tired of my doctor I have now. I am going to switch. I feel with all

> my neurological problems he should be following me up with a neurologist

> and with my tachycardia and skipping beats that he should follow me up

with

> a cardiologist. I am getting really tired of the let us wait and see.

>

> I notice when it goes low I go into a stare. I am not as shaky as I

thought

> I would be. I know my blood pressure cuff is working right because my

> husbands reads normal and so does my moms. I am very concerned. I don't

> even dare let my husband go to work for fear that I might pass out or not

> function for my children. I am on antibiotics -Zithromax...the five day

> treatment....this is the fourth time I am on it in a month and a half for

> sinus and bronchitus infections. Could half of my getting worse be

because

> of herx. I am also finding I am short of breath and at times I catch

myself

> hyperventilating.

>

> Any advice, tricks that my help please let me know asap. I really don't

> want to go to the ER. It would surely be appreciated. Right now my blood

> pressure is 98/58 this seems to be the blood pressure I get a lot. It

does

> nose dive every once and a while and at times if I'm lucky read normal.

>

> Love,

> Cyntha Landon Idaho

>

>

>

> Welcome to

>

> Easy Reference:

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>

> -Unsubscribe - Unsubscribe from the list

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format

> -Normal - Switch your subscription to normal

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> Please send messages not related to Lyme disease (this includes humor and

information about other diseases) to -Offtopic

>

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>

> The chat room is always open!

> /chat

>

>

[Guest guest]

Dear Cyntha,

I hope Pepi scared you into going to the ER. If not, here's something else

to get

you going...with a low B/P and pulse you could have a stroke. You wouldn't be

much use

to your kids if you ended up a vegetable. Please get help.

Eileen, NJ

[Guest guest]

as a former RN I would definitely get this evaluated. my concern is the low

puse more so than the BP. go ASAP.

patty

[Guest guest]

I did go ...they kept me in for the night and watched. But like many times

nothing reallys showed. Same story in other words. I have been feeling

somewhat better. Still feel dizzy and nauseated. The doctor seemed more

concerned with the fever than anything. and of course as always my heart

rate wasn't doing anything out of the ordinary while I was there. From what

they could tell by taking my pulse. Just found out my mother in law went in

the same time I did. Boy talk about bad luck.

I am still shaky and can't stay up for long periods of time ...just wanted

to let you know what is up. Oh yes I also while at the hospital developed a

rash. I didn't notice it but the doctor did. The worst part of my rash was

by my left elbow. It really got red and stung like the dickens. You can

still lightly see it. Doctor doesn't seem to have concern over my blood

pressure. He told me many woman have blood pressures like that. And that I

really didn't need to be to concerned about it. I kind of got the

impression that he wasn't to happy with me coming in...Now this is my doctor

not the ER doctor. The ER doctor was a lot more concerned. But my doctor

basically told me it was due to the Fibromyalgia. I had temperatures

between 100-102. They just gave me antibiotics by iv even though they

couldn't find anything wrong. and today suprise I feel better than I have

in a week but I know that won't last very long. I still feel flushed today

but have no fever.

So all in all it seemed like another wasted trip to the hospital. I had

some tests done and they were going to make me wait for the results before

they let me come home but they were taking so long that I just asked to

leave and they call me if any of the tests showed some concern. Right now I

am waiting to hear from him about my ultrasounds that were taken. I am very

frustrated and I have decided to change to a blackfoot doctor to see if he

can help me better. I am getting nowhere now. It is like I have been put

into the background. I need to see a neurologist because of some seizures

and memory problems. I also want some one to take more agression on my

health care. I am hoping I can find that in Blackfoot which is South from

me.

I hope things are going well for everyone else. I need to go lay down and

rest I am getting sleepy. Thanks to all ofyou for your concern. Just

another one of those things the doctors did not catch, wrong time wrong

place.

Love,

Cyntha Landon Idaho

Re: [ ] hello from frightened.

as a former RN I would definitely get this evaluated. my concern is the low

puse more so than the BP. go ASAP.

patty

[Guest guest]

Dear Cyntha,

I'm sorry that you're having such a tough time fighting to be taken

seriously when

you're so sick. I hope you do find a better doctor.

Eileen, NJ

[Guest guest]

Thank you Eileen. It is appreciated. I hope so too. I called my

rheumotologist doctor about my problems yesterday. He seems to take me just

a little more seriously than the other doctors. Anyway I talked to the

nurse not to him actually. She seemed a bit concerned. I was told the

doctor would call but I have not yet received a call from him. My other

doctor may be mad. Perhaps his wife does have bp 85/42 most of the

time...but yet he is also forgetting that my bp regularly is around the neat

and clean 120/70. I also don't like the way I feel with it being lower.

Anyway today so far all my bp's have been normal since yesterday except for

one 97/66. Which isn't too bad. I don't know what was going on. I take it

probably at least four times a day. My doc thinks I am paranoid-and yes

maybe perhaps but I think with good cause.

This morning I am running a temp of 100.0 F which perhaps could be from

Lyme. Doctor says it is called a fibro fever. I feel very week and tired

and having some of my usual abdominal pain, haven't eaten anything yet but

usually is worse when I eat. I haven't eaten much the last two days for

that reason.

anyway. I plan on writing to Oprah though too. Even though I haven't

gotten the Lyme diagnosis. Other than the one the doctor gave me and

pronounced me cured after 30 days. He did this to humor me I think to get

me to shut up. He had also gave me the impression that if I wasn't doing

better that he would give me some more. I was also thinking and wondering

could the problems I am having now a herx. Since I have been on Zithromax

almost constantly for about two months now with my sinus infections?

Anyway I pray that all of you can find a way to be better. I think about

you guys every day. and even though I don't reply to many of the emails I

still read on about everyone. I some how keep holding on to a ray of

sunshine. And if wasn't for you my friends and Our savior I don't think I

could have made it this far. Well and for my wonderful husband and children

too. I hope things are well with all of you and sorry about the long

letter. And Eileen thanks again it is nice to hear from you.

Love,

Cyntha Landon Idaho

Re: [ ] hello from frightened.

Dear Cyntha,

I'm sorry that you're having such a tough time fighting to be taken

seriously when

you're so sick. I hope you do find a better doctor.

Eileen, NJ

Welcome to

Easy Reference:

Send a blank email message to:

-Unsubscribe - Unsubscribe from the list

-Digest - Switch your subscription to a digest

format

-Normal - Switch your subscription to normal

Please send messages not related to Lyme disease (this includes humor and

information about other diseases) to -Offtopic

The archives can be accessed at

The chat room is always open!

/chat

[Guest guest]

Hi, Glad to hear your doing better, but sorry your no closer to an

answer. How are your kids doing? My daughter has lyme, she's 11.

We are also members of your church. We live in PA, and you would

think the doctors around here would be good with diagnosing/treating

lyme but they aren't. Our doctor is a pediatric LLMD and we go to CT

to see him, the local doctors are useless. The doctor we see also is

familiar with treating gestational lyme (he's the only one I know of

that does). Did you know there is an organization called AngelFlight

that arranges free flights for folks to get medical treatment? Also,

when we had our last visit recently, I over heard his nurse saying

that a wealthy parent of one of his patients is starting an

organization to fly kids to see him for free. As far as

accomodations goes, there is a Mc house near the doctors

office, and the charge is only $10 a night. Let me know if you are

interested, you might not be up to all this right now. I don't know

what his fee's are for a family or if your insurance would cover

treatment though. I do know that he uses combination oral abx when

possible, and it seems easier to get insurance approval for oral's.

Believe it or not, I felt very inspired in church this week to tell

you this. My e-mail at home is lkey@... if you want to write.

Take care. Lynn