pregnancy and lyme

[Guest guest]

In a message dated 10/19/2000 9:37:28 PM Eastern Daylight Time,

dnl1231@... writes:

<< I know miscarriage's can be common with Lyme, but has anyone who has been

on antibiotics ever gotten pregnant after treatment.......is there any hope?

>>

What have you heard/read about conception after abx? My LLMD doesn't think

there would be any problem, but I'd like to hear others' opinions.

I delivered my baby in March of 99, while I had chronic Lyme, but didn't know

I had it. He was fine (I haven't been healthy since), but I had a very early

miscarriage a year before I conceived him. I realize they are common

normally...but I wonder. My doc at the time said it was because my body

overheated while playing hockey (umm...ok) but in retrospect, I remember

having excruciating joint swelling and numbness in my face at that time.

Which happened every so often- my LLMD thinks I've had Lyme for about 20

years- but always worsened in synch with my menstrual cycle.

I'd like to have another child after a few years, but for now I have 18+

months of abx to deal with.

-Jules

[Guest guest]

In a message dated 10/20/2000 11:54:39 AM Eastern Daylight Time,

emci@... writes:

<< Not trying to scare you, but my daughter, born with gestational LD,

didn't have

symptoms until she was 2 1/2 - 3. And they were very mild---mild enough for

me to

ignore. >>

Eileen-

I'm so sorry your little girl has LD! That is one of our biggest concerns.

Since our baby's 19 months now, he's getting to the age where he can tell me

if something hurts. My LLMD wants to test him when he's a bit older, I don't

know why we have to wait...Thanks for the info about symptoms that may go

unnoticed- he had a fever of 103.5 a few weeks back, but just for an evening!

It was so weird, but I thought it was from a vaccine he got 7 days earlier.

Other than that fever, he has never been sick- not even a runny nose, so I'll

keep my fingers crossed.

<<Nothing slowed her down much; her fevers would keep her down for a day or

two and then she'd be back to normal. She was diagnosed with a congenital

cataract and optic nerve atrophy at age 3 1/2.>>

That is just awful- is she on abx? {{{HUGS}}} to you both!

-Jules

[Guest guest]

In a message dated 10/20/2000 11:55:44 AM Eastern Daylight Time,

emci@... writes:

<< a friend of mine with LD was put on amoxicillin throughout her

pregnancies. >>

That's interesting! All is well with her children, I hope?

-Jules

[Guest guest]

Thanks Eileen for the reply.

Love,

[Guest guest]

Dear Jules,

Not trying to scare you, but my daughter, born with gestational LD, didn't

have

symptoms until she was 2 1/2 - 3. And they were very mild---mild enough for me

to

ignore.

She was diagnosed by me at 4 1/2, after I started reading a lot (I had been

diagnosed 2

months earlier). Belly aches, headaches, fevers that didn't last long and

weren't

followed by a runny nose or ear infection, and complaints of hip pain were her

history.

Nothing slowed her down much; her fevers would keep her down for a day or two

and then

she'd be back to normal. She was diagnosed with a congenital cataract and optic

nerve

atrophy at age 3 1/2.

Eileen, NJ

[Guest guest]

Dear Jules,

I forgot something---a friend of mine with LD was put on amoxicillin

throughout her

pregnancies.

Eileen

[Guest guest]

Dear ,

My girlfriend took amoxicillin after a miscarriage (finally believed that

she had LD

and followed me to my doctors) and during her 2 pregnancies and has 2 children

~18 mos &

8 mos that were healthy the last time I spoke to her.

Eileen

[Guest guest]

In a message dated 10/20/2000 11:49:29 PM Eastern Daylight Time,

emci@... writes:

<< comparing the results of their children if not taking AB's during

pregnancy & taking AB's during pregnancy, and it led me to believe that

infection can occur even if on antibiotics. But this is just supposition on

my case. I haven't seen anything about their results. They were looking for

case studies. >>

I've been trying to find case studies, abstracts...anything! Mostly what I

find are abstracts about cardiac complications in children born to Lyme

mothers.

-Jules

[Guest guest]

In a message dated 10/20/2000 11:54:06 PM Eastern Daylight Time,

emci@... writes:

<< could have been much worse so I consider myself blessed. She has

been on 2 antibiotics for over 2 years and is mostly symptom free. >>

That is hopeful news!

<<Her vision in the " bad " eye is between 20/40 and 20/50 with her glasses and

we started at 20/400 prior to the surgery. So, as I said, we have been

blessed.>>

Yes, she is very fortunate to have a mom who went searching for the answer to

her symptoms! That's great that she is happy, active & doing well in school.

Give her a hug from me I feel so awful for the children who have LD- I

can't imagine a small child having to deal with our symptoms- I know they

have brought me to my knees.

My husband read your e-mail with me & wants to get Ian tested right away. I

don't know why my LLMD wanted to wait; is it because they have to take a lot

of blood or something? I think there is a new test he wanted to do- BIBA I

think?

-Jules

[Guest guest]

Dear Jules,

So far, all is well with her children. A while ago I saw that the Lyme

Alliance was

conducting a survey of mothers with LD comparing the results of their children

if not

taking AB's during pregnancy & taking AB's during pregnancy, and it led me to

believe

that infection can occur even if on antibiotics. But this is just supposition on

my

case. I haven't seen anything about their results. They were looking for case

studies.

Eileen

[Guest guest]

Dear Jules,

I thank God every day that we are as well as we are, even though I'm

considered

totally disabled. could have been much worse so I consider myself blessed.

She has

been on 2 antibiotics for over 2 years and is mostly symptom free. Her LLMD

stopped the

AB's twice and both times she relapsed within 3 weeks. She's active and doing

well in

school and happy. She just hates wearing the patch on her glasses 2 hours/day to

treat

the amblyopia (lazy eye) that she developed because of the cataract occluding

vision in

the one eye.

Her vision in the " bad " eye is between 20/40 and 20/50 with her glasses and we

started

at 20/400 prior to the surgery. So, as I said, we have been blessed.

eileen

[Guest guest]

Eileen, I'm sorry about your daughter having lymes disease. I am worried about 2 of my children of witch I had when I had Lymes, but I did'nt know I had it. One of my son's is having speach problems, and they say he has poor muscle tone, and also fine mottor skills. I am worried that he could have contracted it from me. He is allmost 4 years old. I have had them both tested and the results were neg., but that does'nt mean much. I tested neg. for a long time to. I am gonna take him to a neurologist soon. Take care, Kim S. in N.Y.

pokecheck8@... wrote:

In a message dated 10/20/2000 11:54:39 AM Eastern Daylight Time, emci@... writes:<< Not trying to scare you, but my daughter, born with gestational LD, didn't havesymptoms until she was 2 1/2 - 3. And they were very mild---mild enough for me toignore. >>Eileen-I'm so sorry your little girl has LD! That is one of our biggest concerns. Since our baby's 19 months now, he's getting to the age where he can tell me if something hurts. My LLMD wants to test him when he's a bit older, I don't know why we have to wait...Thanks for the info about symptoms that may go unnoticed- he had a fever of 103.5 a few weeks back, but just for an evening! It was so weird, but I thought it was from a vaccine he got 7 days earlier. Other than that fever, he has never been sick- not even a runny nose, so I'll keep my fingers crossed.<<Nothing slowed her down much; her fevers would keep her down for a day or two and then she'd be back to normal. She was diagnosed with a congenital cataract and optic nerve atrophy at age 3 1/2.>>That is just awful- is she on abx? {{{HUGS}}} to you both!-JulesMany thanks to our founder and friend, Marta McCoy, for making the support group it is today.Easy Reference:Send a blank email message to: -Subscribeegroups - Subscribe to the list through email -Unsubscribeegroups - Unsubscribe from the list -Digestegroups - Switch your subscription to a digest format -Normalegroups - Switch your subscription to normalPlease send messages not related to Lyme disease to -OfftopicegroupsArchives can be accessed at lyme-aidPlease visit the sister site athttp://clubs./clubs/lymeaidThis is the primary chat site for .HAVE A GREAT DAY,kimsak2000@...

[Guest guest]

There is a great book called " Everything you Need to Know about LD " by

Vanderhoof-Forschner and it explains it all.

It is believed that if one is pregnant, not being treated w/ antibiotics,

that the spirochetes can be passed by blood. The results of the child will

not show to be obvious at first. This has happened to many that I know. My

best friend was bit when she was 12 (she now remembers). She was bit again in

1990 after having health problems all her life. Not major but mono as a teen,

bad sore throats, aches and pains, etc. All 3 of her children are positive

for lyme now. It seems to be w/ babies the fussiness, breathing problems...as

they get older, asthma, ADD, ADHD, headaches, stomach aches.

***THIS IS FROM MY PERSONAL EXPERIENCE and from many, many others over the

last 2 yrs. on the internet that have written me.***

When they are teens, it turns more to mood swings (above and beyond

'normal'), anger outbursts, argumentative, headaches, low grade temps.,

fatigue and there grades go down in school. ( I have 2 kids like this). They

have difficulty learning, can't concentrate and are labeled as " they just

don't like school " .

sue in nj

[Guest guest]

Eileen.

Have you had the LUAT done on your children.Both of my girls came up

neg on three blood test according to the cdc here in ga.When I took them to

a LLMD in ala. both had specific bands which ga does not report(they only

say pos or neg basically) and both were pos on the LUAT.We are all receiving

treatment and doing much better.Docs here said neg was neg-don't accept it

if you believe otherwise.Janet

>From: Kim Sakowicz <kimsak2000@...>

>Reply- egroups

> egroups

>Subject: Re: [ ] Pregnancy and Lyme

>Date: Sat, 21 Oct 2000 09:20:21 -0700 (PDT)

>

>

> Eileen, I'm sorry about your daughter having lymes disease. I am worried

>about 2 of my children of witch I had when I had Lymes, but I did'nt know I

>had it. One of my son's is having speach problems, and they say he has poor

>muscle tone, and also fine mottor skills. I am worried that he could have

>contracted it from me. He is allmost 4 years old. I have had them both

>tested and the results were neg., but that does'nt mean much. I tested neg.

>for a long time to. I am gonna take him to a neurologist soon. Take care,

>Kim S. in N.Y.

>

> pokecheck8@... wrote:

>In a message dated 10/20/2000 11:54:39 AM Eastern Daylight Time,

>emci@... writes:

>

><< Not trying to scare you, but my daughter, born with gestational LD,

>didn't have

>symptoms until she was 2 1/2 - 3. And they were very mild---mild enough for

>me to

>ignore. >>

>

>Eileen-

>

>I'm so sorry your little girl has LD! That is one of our biggest concerns.

>

>Since our baby's 19 months now, he's getting to the age where he can tell

>me

>if something hurts. My LLMD wants to test him when he's a bit older, I

>don't

>know why we have to wait...Thanks for the info about symptoms that may go

>unnoticed- he had a fever of 103.5 a few weeks back, but just for an

>evening!

>It was so weird, but I thought it was from a vaccine he got 7 days earlier.

>Other than that fever, he has never been sick- not even a runny nose, so

>I'll

>keep my fingers crossed.

>

><<Nothing slowed her down much; her fevers would keep her down for a day or

>two and then she'd be back to normal. She was diagnosed with a congenital

>cataract and optic nerve atrophy at age 3 1/2.>>

>

>That is just awful- is she on abx? {{{HUGS}}} to you both!

>

>-Jules

>

>

>

>

>

>

>

>

>

>

>

>

>eGroups Sponsor

>

>

>

>

>Many thanks to our founder and friend, Marta McCoy, for making the

>support group it is today.

>

>

>Easy Reference:

>Send a blank email message to:

>

> -Subscribeegroups - Subscribe to the list through email

> -Unsubscribeegroups - Unsubscribe from the list

> -Digestegroups - Switch your subscription to a digest format

> -Normalegroups - Switch your subscription to normal

>

>Please send messages not related to Lyme disease to

> -Offtopicegroups

>

>Archives can be accessed at lyme-aid

>

>Please visit the sister site at

>http://clubs./clubs/lymeaid

>This is the primary chat site for .

>

>

>

>HAVE A GREAT DAY,kimsak2000@...

>

>

>---------------------------------

>

[Guest guest]

Dear Janet,

I only have one child, and she didn't need a LUAT since she had 6 out of the

10 CDC

significant bands on the Western Blot and had symptoms. No one ever said that

she didn't

have LD once she was tested. She has been on orals for over 2 years and is doing

very

well. Thanks.

Eileen, NJ

[Guest guest]

Dear Jules,

That's what kills me about this silent epidemic--what it is doing to

children. I was

interviewed at the Hotel Pierre rally in June and that was how I ended my

interview. I

don't know what actually made it to national TV as I never saw it, but I did

voice my

concern about the children of this country.

Does Ian have symptoms? I've forgotten how old he is. I think 's LLMD

waits for

symptoms, but if you insist, yours should do the test. Let me know what happens.

I don't

know what BIBA is. I know there's a new test at BBI labs, but I don't know what

it is

called. I'm going to the LDA conference in Princeton on Nov. 4 as the focus is

on Lyme

in children and adolescents. I watch my daughter like a hawk and I want to know

what

else to look for.

Eileen, NJ

[Guest guest]

Dear Jules,

A pediatric LLMD is compiling case reports of gestational Lyme. I don't know

when it

will be available, but he's doing it. I did a search 3 years ago and came across

the

article that mentioned optic nerve atrophy as a complication. That's what helped

clue me

in to my daughter being infected. I don't know what I did with the article--I

believe I

saw it referenced in another article in the hospital library. There wasn't much

to it,

as I recall. Just 2 pages.

Eileen

[Guest guest]

In a message dated 10/21/00 7:05:07 PM, emci@... writes:

<< I know there's a new test at BBI labs, but I don't know what it is

called. >>

It is called the C6-LPE, website www.bbii.com. My son just had it done, was

previously dxd w/ lyme, positive. This test just came back neg. I am

skeptical and my opinion at this time is to stick w/ Igenex and the PCR blood

test for lyme and the co-infections.

sue in nj

[Guest guest]

pregnancy and lymes disease the mother pass the lymes to her children witch

is what i have done to my oldest son never knew i had the disease 24 years

undiagnosed been treated for 2 still sick as chit my oldest son was treat

and so far is ok but it DOES TRANSFER FROM MOM TO FETUS!!!!

cindy in mich

>From: dnl1231@...

>Reply- egroups

> egroups

>Subject: Re: [ ] Pregnancy and Lyme

>Date: Fri, 20 Oct 2000 14:19:09 EDT

>

>Thanks Eileen for the reply.

>

>Love,

>

>

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[Guest guest]

In a message dated 10/21/2000 10:05:06 PM Eastern Daylight Time,

emci@... writes:

<< Does Ian have symptoms? I've forgotten how old he is. I think 's LLMD

waits for symptoms, but if you insist, yours should do the test. >>

No, no symptoms that I can see. He's 19 months. Then again, if all he knows

is joint pain, how would he know that it isn't " normal, " KWIM? Yes, I think

I will insist my LLMD test him.

<<I know there's a new test at BBI labs, but I don't know what it is

called.>>

Yes, that's the one!

-Jules

[Guest guest]

I contracted Lyme disease within the first month of my pregnancy. My

daughter

passed away during the 6th month of my pregnancy. My Lyme caused her to have

too many 'complications' to survive.

My Lyme was diagnosed after my daughters death...in testing to determine why

she had passed.

judi (DE)

[Guest guest]

In a message dated 10/22/2000 7:40:18 PM Eastern Daylight Time,

UDbelle@... writes:

<< My

daughter

passed away during the 6th month of my pregnancy. My Lyme caused her to have

too many 'complications' to survive. >>

Judi, I am so sorry Are you being treated now?

-Jules

[Guest guest]

In a message dated 10/22/2000 7:41:34 PM Eastern Daylight Time,

emci@... writes:

<< What does KWIM mean? >>

It means " know what I mean? "

-Jules

[Guest guest]

In a message dated 10/22/2000 7:41:35 PM Eastern Daylight Time,

emci@... writes:

<< I did a search 3 years ago and came across the

article that mentioned optic nerve atrophy as a complication. That's what

helped clue me in to my daughter being infected. >>

Thanks- I'll use that symptom to search for info.

-Jules

[Guest guest]

Dear Jules,

How dumb of me! Of course he wouldn't know it's not normal. My daughter knew

that

she couldn't see out of her left eye but she never told us because she thought

that was

normal! We found out after her diagnosis of a congenital cataract. What does

KWIM mean?

Eileen