Re: Western Blot-more to u

[Guest guest]

How did they diagnose you with the HHV6? what test was done/what was

weird on your b/w for them to suspect that? just wondering since I

haven't read much on it nor have I really heard of it specifically.

-

[Guest guest]

I am sure lyme can re-activate the viruses, or vice versa, since they

both 'hide' and lay dormant. So sorry to hear all that you are going

through with this. So they just tested you and that was it, and then

they are treating it, or only when you flare up? The IGM is supposed

to show 'current' infection, and the IGG showing past infection

or 'exposure', (some dr's believe that, some dr's don't) figures the

ones I need to deal with DONT!! the 41kd band depending on where you

read is specific for all type of 'flagellan' bacteria, but then I

read something else that it's specific and the 1st to react for lyme

disease. ALOT of symptoms overlap everything, its amazing. since I

don't have any inflammation, I am unsure if that still puts me

definitly IN lyme, or out of it, I am guessing out of the 'chronic

lyme' as thats' the arthritis etc, and I would have the inflammation.

WHO knows, I have learned you just about diagnose yourself with this.

My one set of dr's said, 'well what do you think?' I was like I DONT

KNOW DAMMIT WHY DO U THINK I CAME??? lol. so it's a hit or miss!

[Guest guest]

so when you got sick with the URIs etc that was from lyme? or do you

get symptoms of that from the ebv and hhv6 (all these initials I am

bound to screw someting up sooner or later lol) they just 'found'

those on you or were specifically looking for them>? I am thinking

back on all my b/w to see what they did and didnt' do, they did do an

IGG subclass, the c3 and c4, about 30 tests, bone scan, c reactive

protien, esr, blood culture, thyroid tests, hard to remember, they

covered every end of me, (except for lyme testing thru the w/bs and

pcr) I think they did look for a heightened someting that would show

a bacteria prob but found nothing. I am just a very very sore, tired

and itchy 27 year old.

So you really don't know anyone with alot of IGG/s?????

(now you really make me feel like crap) :-)~

I will be disease hunting all night again now !!!

[Guest guest]

HHV6 is found in mostly CFS, MS, and HIV patients. It is pretty destructive. I got tested last year when I started having loss of time, then came the horrible insomnia. It wasn't until a few months ago that it came back real positive. I have had it for 1yr but it likes to hide so sometimes you can't detect it. You can read about it at www.hhv6.com. I was diagnosed with CFS but alot of people are wondering if it isn't chronic lyme disease. The symptoms are so similar and I know Lyme disease can reactivate all herpes viruses like EBV, CMv, Herpes zoster- I have all viruses. I came back positive on band 41 on The western blot IGG.

[ ] Re: Western Blot-more to u

How did they diagnose you with the HHV6? what test was done/what was weird on your b/w for them to suspect that? just wondering since I haven't read much on it nor have I really heard of it specifically.-Welcome to Easy Reference:Send a blank email message to: -Unsubscribe - Unsubscribe from the list -Digest - Switch your subscription to a digest format -Normal - Switch your subscription to normalPlease send messages not related to Lyme disease (this includes humor and information about other diseases) to -Offtopic The archives can be accessed at The chat room is always open! /chat

[Guest guest]

It is all so confusing. I had the arthritis that stayed for 5yrs and got better.. Then 2yrs later I got real sick with sore throat, fatigue, infections. Mostly I had URI's. It got progressively worse after a couple of years. I also had shingles then Epstein Barr. I just keep adding on symptoms and my natural killer cell count has gone down. There is a doctor know who is looking at alot of CFS patients and testing them for Lyme. He said It can't be passed genetically, passed through saliva. I guess this is why alot of people haven't been tested, because not everyone has to be bitten by a tick.

[ ] Re: Western Blot-more to u

I am sure lyme can re-activate the viruses, or vice versa, since they both 'hide' and lay dormant. So sorry to hear all that you are going through with this. So they just tested you and that was it, and then they are treating it, or only when you flare up? The IGM is supposed to show 'current' infection, and the IGG showing past infection or 'exposure', (some dr's believe that, some dr's don't) figures the ones I need to deal with DONT!! the 41kd band depending on where you read is specific for all type of 'flagellan' bacteria, but then I read something else that it's specific and the 1st to react for lyme disease. ALOT of symptoms overlap everything, its amazing. since I don't have any inflammation, I am unsure if that still puts me definitly IN lyme, or out of it, I am guessing out of the 'chronic lyme' as thats' the arthritis etc, and I would have the inflammation.WHO knows, I have learned you just about diagnose yourself with this. My one set of dr's said, 'well what do you think?' I was like I DONT KNOW DAMMIT WHY DO U THINK I CAME??? lol. so it's a hit or miss!Welcome to Easy Reference:Send a blank email message to: -Unsubscribe - Unsubscribe from the list -Digest - Switch your subscription to a digest format -Normal - Switch your subscription to normalPlease send messages not related to Lyme disease (this includes humor and information about other diseases) to -Offtopic The archives can be accessed at The chat room is always open! /chat

[Guest guest]

Hi,

I may be misinformed about alot of IGGS, that is what a friend told me. So don't worry about it. She doesn't know alot about Lyme she was just diagnosed a couple of months ago. I have no idea if what I have been experiencing for the last 6yrs is related to lymes, that is why I am now doing the Luat. I also have Hashimotos thyroiditis. I have also been through the ringer with tests. I had a brain MRI last year, a brain spect scan a few weeks ago. A tonsil biopsy last year. They were specifically looking for the EBV and HHV6. I also have positive titer to mycoplasma pneumonia.

[ ] Re: Western Blot-more to u

so when you got sick with the URIs etc that was from lyme? or do you get symptoms of that from the ebv and hhv6 (all these initials I am bound to screw someting up sooner or later lol) they just 'found' those on you or were specifically looking for them>? I am thinking back on all my b/w to see what they did and didnt' do, they did do an IGG subclass, the c3 and c4, about 30 tests, bone scan, c reactive protien, esr, blood culture, thyroid tests, hard to remember, they covered every end of me, (except for lyme testing thru the w/bs and pcr) I think they did look for a heightened someting that would show a bacteria prob but found nothing. I am just a very very sore, tired and itchy 27 year old. So you really don't know anyone with alot of IGG/s????? (now you really make me feel like crap) :-)~I will be disease hunting all night again now !!!Welcome to Easy Reference:Send a blank email message to: -Unsubscribe - Unsubscribe from the list -Digest - Switch your subscription to a digest format -Normal - Switch your subscription to normalPlease send messages not related to Lyme disease (this includes humor and information about other diseases) to -Offtopic The archives can be accessed at The chat room is always open! /chat

[Guest guest]

,

I think the doc did the chronic fatigue panel as part of 'investigational studies', not because of anything specific on any of my tests. At the time, I think that doc was just learning about lyme and was more familiar with 'chronic fatigue' dx. Since I came to him with a definite lyme diagnosis, I think he was trying to learn more about what was going on.. Also, I remember now that I asked him if he could test my NK cells and function.

Many tests were run as part of this 'panel'..the ones that were most significant (i think) were: HHV-6 IgG ABS Quant; EBV-IgM; EBV- EA-IgG; EBV VCA -IgG; then different lymphocyte tests (CD4 8 etcf, ratios..etc,etc) then the Natural Killer Cells..% NK; Absolute NK..but I think I had the NK function tests done elsewhere..

Out of all of that, I learned that I had a reactivation of HHV-6 (not sure A or ; and a particular positive Epstein Barr profile .. No one has suggested anti-virals. I am currently taking transfer factor plus which I think might help with viral infections. I've been thinking of adding natural supplements to fight viral infections but don't want to take anything that might interfere with abx.

One thing about HHV6 is that it is very neurotropic (sp) and destructive, as previously stated. But, most of my neuro symptoms have improved with long-term antibiotic treatment.. Perhaps, I'd be that much better, if there were something specific for the HHV6.. unknown at this time.

FWIW to anyone...

Lainie

[ ] Re: Western Blot-more to u

How did they diagnose you with the HHV6? what test was done/what was weird on your b/w for them to suspect that? just wondering since I haven't read much on it nor have I really heard of it specifically.-

[Guest guest]

My endo told me I am at the beginning of possibly hashimoto's because

I have thyroid antibodies, but she doubts my pains etc are from it

since my TSH is fine so far. I have read many times that there is a

link between lyme and the thyroid, you should do a search on it

because it is mentioned frequently.