Guest guest Posted April 23, 2001 Report Share Posted April 23, 2001 Hi tony i am from connecticut how about yourself? what kind of doc tested you for this hhv6 virus can they treat it? and what is peripheral neuropathy? do you feel like your in a fog all the time i feel like i have brain damage or something this thing is crazy. well talk with you soon take care --- Toni Gray <tgray@...> wrote: > Hi, I am in the same situation. I was diagnosed > with CFIDS 6yrs ago. I only come up with band 41 on > the western blot. My doctor thinks I do have lyme. > My test came back negative on the luat. I have > peripheral neuropathy. Little nerve damage on the > left side of my body. I get shooting nerve pain > sometimes. I also have had severe neurological > problems in the last year. I have the HHV6 virus > which does cause alot of neurological problems. > Where are you located? > [ ] how is lyme treated and what > are syptoms > > > i have been diagnosed with cfs but this doc is > trying to treat me > with antibitics but my test came up negative for > lyme help please > thank my syptoms are numbness and tingling in my > left foot and > hand. memory is very bad im confused all the time > and all the timee > its like im walking arounf in a fog it never goes > away pain in my > joints at times my vision changes dialy my speech > comes out wrong > alot do any these fit lyme?m michelle > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2001 Report Share Posted April 23, 2001 Hi tony i am from connecticut how about yourself? what kind of doc tested you for this hhv6 virus can they treat it? and what is peripheral neuropathy? do you feel like your in a fog all the time i feel like i have brain damage or something this thing is crazy. well talk with you soon take care --- Toni Gray <tgray@...> wrote: > Hi, I am in the same situation. I was diagnosed > with CFIDS 6yrs ago. I only come up with band 41 on > the western blot. My doctor thinks I do have lyme. > My test came back negative on the luat. I have > peripheral neuropathy. Little nerve damage on the > left side of my body. I get shooting nerve pain > sometimes. I also have had severe neurological > problems in the last year. I have the HHV6 virus > which does cause alot of neurological problems. > Where are you located? > [ ] how is lyme treated and what > are syptoms > > > i have been diagnosed with cfs but this doc is > trying to treat me > with antibitics but my test came up negative for > lyme help please > thank my syptoms are numbness and tingling in my > left foot and > hand. memory is very bad im confused all the time > and all the timee > its like im walking arounf in a fog it never goes > away pain in my > joints at times my vision changes dialy my speech > comes out wrong > alot do any these fit lyme?m michelle > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2001 Report Share Posted April 23, 2001 Hi, I am in the same situation. I was diagnosed with CFIDS 6yrs ago. I only come up with band 41 on the western blot. My doctor thinks I do have lyme. My test came back negative on the luat. I have peripheral neuropathy. Little nerve damage on the left side of my body. I get shooting nerve pain sometimes. I also have had severe neurological problems in the last year. I have the HHV6 virus which does cause alot of neurological problems. Where are you located? [ ] how is lyme treated and what are syptoms i have been diagnosed with cfs but this doc is trying to treat me with antibitics but my test came up negative for lyme help please thank my syptoms are numbness and tingling in my left foot and hand. memory is very bad im confused all the time and all the timee its like im walking arounf in a fog it never goes away pain in my joints at times my vision changes dialy my speech comes out wrong alot do any these fit lyme?m michelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2001 Report Share Posted April 23, 2001 Hi, I live in TX. I had my doc that treats me for CFIDS test for the HHV6 virus. Most people say it is a consequence of the immune system being low. There is no true treatment. I went through anti-viral IV last year and 4 months later the virus came out worse. I think they thought my condition was all viral, but some things didn't add up. I was diagnosed with hashimotos thryoiditis this year. I have gained 10pounds in less than 1 month. I don't know what is going on. I am pretty sure I had a small seizure on friday. I am just pretty fed up with the medical profession. It just seems like no one can help. I just seem to be getting sicker. I was discouraged when my luat came back negative. [ ] how is lyme treated and what > are syptoms > > > i have been diagnosed with cfs but this doc is > trying to treat me > with antibitics but my test came up negative for > lyme help please > thank my syptoms are numbness and tingling in my > left foot and > hand. memory is very bad im confused all the time > and all the timee > its like im walking arounf in a fog it never goes > away pain in my > joints at times my vision changes dialy my speech > comes out wrong > alot do any these fit lyme?m michelle > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 toni how long have you been sick/ and what docs have you been to? did they rule out other illness? has anything helped at all? this illness is very scary and fustrationg. --- Toni Gray <tgray@...> wrote: > Hi, I live in TX. I had my doc that treats me for > CFIDS test for the HHV6 virus. Most people say it > is a consequence of the immune system being low. > There is no true treatment. I went through > anti-viral IV last year and 4 months later the virus > came out worse. I think they thought my condition > was all viral, but some things didn't add up. I was > diagnosed with hashimotos thryoiditis this year. I > have gained 10pounds in less than 1 month. I don't > know what is going on. I am pretty sure I had a > small seizure on friday. I am just pretty fed up > with the medical profession. It just seems like no > one can help. I just seem to be getting sicker. I > was discouraged when my luat came back negative. > [ ] how is lyme treated and > what > > are syptoms > > > > > > i have been diagnosed with cfs but this doc is > > trying to treat me > > with antibitics but my test came up negative > for > > lyme help please > > thank my syptoms are numbness and tingling in > my > > left foot and > > hand. memory is very bad im confused all the > time > > and all the timee > > its like im walking arounf in a fog it never > goes > > away pain in my > > joints at times my vision changes dialy my > speech > > comes out wrong > > alot do any these fit lyme?m michelle > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 toni how long have you been sick/ and what docs have you been to? did they rule out other illness? has anything helped at all? this illness is very scary and fustrationg. --- Toni Gray <tgray@...> wrote: > Hi, I live in TX. I had my doc that treats me for > CFIDS test for the HHV6 virus. Most people say it > is a consequence of the immune system being low. > There is no true treatment. I went through > anti-viral IV last year and 4 months later the virus > came out worse. I think they thought my condition > was all viral, but some things didn't add up. I was > diagnosed with hashimotos thryoiditis this year. I > have gained 10pounds in less than 1 month. I don't > know what is going on. I am pretty sure I had a > small seizure on friday. I am just pretty fed up > with the medical profession. It just seems like no > one can help. I just seem to be getting sicker. I > was discouraged when my luat came back negative. > [ ] how is lyme treated and > what > > are syptoms > > > > > > i have been diagnosed with cfs but this doc is > > trying to treat me > > with antibitics but my test came up negative > for > > lyme help please > > thank my syptoms are numbness and tingling in > my > > left foot and > > hand. memory is very bad im confused all the > time > > and all the timee > > its like im walking arounf in a fog it never > goes > > away pain in my > > joints at times my vision changes dialy my > speech > > comes out wrong > > alot do any these fit lyme?m michelle > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 toni how long have you been sick/ and what docs have you been to? did they rule out other illness? has anything helped at all? this illness is very scary and fustrationg. --- Toni Gray <tgray@...> wrote: > Hi, I live in TX. I had my doc that treats me for > CFIDS test for the HHV6 virus. Most people say it > is a consequence of the immune system being low. > There is no true treatment. I went through > anti-viral IV last year and 4 months later the virus > came out worse. I think they thought my condition > was all viral, but some things didn't add up. I was > diagnosed with hashimotos thryoiditis this year. I > have gained 10pounds in less than 1 month. I don't > know what is going on. I am pretty sure I had a > small seizure on friday. I am just pretty fed up > with the medical profession. It just seems like no > one can help. I just seem to be getting sicker. I > was discouraged when my luat came back negative. > [ ] how is lyme treated and > what > > are syptoms > > > > > > i have been diagnosed with cfs but this doc is > > trying to treat me > > with antibitics but my test came up negative > for > > lyme help please > > thank my syptoms are numbness and tingling in > my > > left foot and > > hand. memory is very bad im confused all the > time > > and all the timee > > its like im walking arounf in a fog it never > goes > > away pain in my > > joints at times my vision changes dialy my > speech > > comes out wrong > > alot do any these fit lyme?m michelle > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 this info might help! http://www.ldam.50megs.com/custom.html kay Visit my web pages: http://lymedisease.50megs.com/index.html Join the Lyme-information list: lyme-information Quote Link to comment Share on other sites More sharing options...
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