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is there hope out there?

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Hello All-

I have been subscribing for a while now, but I do not always have time to

read the posts, but when I do, I always learn something.

I have been dx'd and treated by a Boston LLMD for 2.5 years now (think the

disease has been present for 15 years)--I have my second central line, this

time for Vancomycin. Yet I continue to " decay " --I am very discouraged and am

hoping to hear some encouraging stories or other treatments that may be more

successful with a very stubborn case--I have tried Tetracycline(3 different

cycles), Biaxin/Plaq(two different cycles), IV Rocephin(1 cycle--8 weeks),

and now the Vanco (in Feb will be 3 months)--Has anyone tried Physical

therapy to rebuild their strength--I am so weak and sore I often if my

inablity to function is making it worse.

I do have 3 children under 10 and very supportive husband and familiy--but I

am beginning to wonder if this really is treatable--MD says his is not

willing to give up yet--any feedback would be greatly appreciated!

K

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