Re: encephalitis-vertigo & headaches-fibromyalgia

[Guest guest]

Greetings from Charlotte, NC!

You folks all helped me so much in June when I was so sick and

misdiagnosed with Rocky Mountain Spotted Fever which left me severely

undertreated. The Lyme hit me with a vengence! I've been meaning to

write back in and update everyone but I'm moving slow on that.

However, today is one of the few days since this happened to me that

I've checked the web site. I saw your question and had to respond

with something that has helped me. My neck starts bothering me too

much to stay the computer too long. Fibromyalgia I believe is the

problem. If anyone has any good suggestions about how to relieve

this I'm very willing to listen!

On reading some of your comments about dealing with ongoing

encephalitis I had to let you guys know something my wonderful doctor

prescribed to help me cope with it. Apparently, I have repeated

spells of brain swelling which were causing me a lot of trouble with

vertigo. I also discovered I had fluid in my ears as well. I still

have to wait another week to go to my ear doctor so who knows what he

will do for that problem. Possibly ear tubes? Not sure but I would

like to be able to hold my nose and feel like some air was at least

moving through my ears!

For the vertigo which I believe is primarily caused by this repeated

swelling of our cherish brains, I was prescribed Acetazolamide 250mg

(Brand name is Diamox). This drug is a diuretic which makes your

body shed water which gradually reduces swelling on your brain so

make certain to drink plenty of water when taking it. According to

The Pill Book, it also helps with some forms of seizures as well.

Cautions are not to take it if you have low blood sodium (how do you

know that?!), low potassium or serious kidney, liver, or 's

disease.

Make sure to eat potassium rich foods such as bananas, citrus fruits,

melons and tomatoes and possibly even take potassium supplements

while taking this drug. Excessive potassium loss in your body can

lead to extreme confusion to the point of not even knowing who you

are! However, if you make certain to get plenty of potassium in your

diet this should not be a problem. My doctor advised me to take one

or two tablets every other day. I've modified and found it works

best for me to take one tablet for two days and then take a day off

and start back. It will make you feel very confused and off when you

first start taking it but stick with it because that will go away

with a little time. I take mine at night so if this happens I don't

have to be too concerned. I can just go to bed! Of course, you do

have to keep getting up to go to the bathroom. Plus side, keeps the

old kidneys flushed! It took a few days for me to start feeling

any effects from this drug but once I did, wow! What an improvement

on my vertigo problems! It seems to also be slowly reducing the

pressure from fluid in my ears which is helping a lot with my

headaches as well.

One thing I've also realized is that I don't have a left frontal

headache like I thought I did. I've come to realize I have

fibromyalgia in some of the muscles in my forehead. The worst is the

one above my right eyebrow. When it flares up it hurts to even touch

the site. I've been putting a flax seed and herb heat pack on it for

about 10 minutes a day and have noticed the pain and tension there

was greatly reduced after a few days. Don't use heat much longer

than 10 minutes because you get no more benefit from it after that

time. I can now touch the spot without pain. One doctor describe

fibromyalgia as Knot's Disease meaning your muscles are knotted up.

It's a name of his own creation but it really seems to fit because if

I press down and run my finger over this muscle going from just above

the inside of my forehead out to the end of my eyebrow I can feel

several little knots in there. I do the same thing above the other

eyebrow as a comparison and there are no knots just smooth muscle.

So, it's not a real headache but actually a muscle ache! I'm seeing

a good reason for botox in my future!!!

The fatigue I'm still having some problems with so I don't know if it

will help there but it was great for the vertigo! It seems like I

have relapses of it every week and my leg muscles get weak and

tired. The past few days, even though I'm on 1000mg of Biaxin daily,

my left arm and leg have been feeling all numb and tingly. Very

annoying and I wish it would stop! It could be a side effect of the

diuretic but even if it is I refuse to stop taking the diuretic.

Honestly, I think it is the Lyme because the same thing happened to

my right arm and leg in the beginning but that seemed to have gone

away leaving me with some arthris and some burning and light swelling

on occasion. I reallllllly hate Lyme!

Anyway, I hope some of what I have said helps at least one person out

there with some of these problems!

Take care,

Angie

[Guest guest]

i was told to stay away from bannanas ans citrus

frutis? i also have server pain throught my body in

my skull my headaches are so bad. where do you get

these herb packs? is there a test that shows that are

brains ar swelling>

--- toangiem@... wrote:

> Greetings from Charlotte, NC!

>

> You folks all helped me so much in June when I was

> so sick and

> misdiagnosed with Rocky Mountain Spotted Fever which

> left me severely

> undertreated. The Lyme hit me with a vengence!

> I've been meaning to

> write back in and update everyone but I'm moving

> slow on that.

> However, today is one of the few days since this

> happened to me that

> I've checked the web site. I saw your question and

> had to respond

> with something that has helped me. My neck starts

> bothering me too

> much to stay the computer too long. Fibromyalgia I

> believe is the

> problem. If anyone has any good suggestions about

> how to relieve

> this I'm very willing to listen!

>

> On reading some of your comments about dealing with

> ongoing

> encephalitis I had to let you guys know something my

> wonderful doctor

> prescribed to help me cope with it. Apparently, I

> have repeated

> spells of brain swelling which were causing me a lot

> of trouble with

> vertigo. I also discovered I had fluid in my ears

> as well. I still

> have to wait another week to go to my ear doctor so

> who knows what he

> will do for that problem. Possibly ear tubes? Not

> sure but I would

> like to be able to hold my nose and feel like some

> air was at least

> moving through my ears!

>

> For the vertigo which I believe is primarily caused

> by this repeated

> swelling of our cherish brains, I was prescribed

> Acetazolamide 250mg

> (Brand name is Diamox). This drug is a diuretic

> which makes your

> body shed water which gradually reduces swelling on

> your brain so

> make certain to drink plenty of water when taking

> it. According to

> The Pill Book, it also helps with some forms of

> seizures as well.

> Cautions are not to take it if you have low blood

> sodium (how do you

> know that?!), low potassium or serious kidney,

> liver, or 's

> disease.

> Make sure to eat potassium rich foods such as

> bananas, citrus fruits,

> melons and tomatoes and possibly even take potassium

> supplements

> while taking this drug. Excessive potassium loss in

> your body can

> lead to extreme confusion to the point of not even

> knowing who you

> are! However, if you make certain to get plenty of

> potassium in your

> diet this should not be a problem. My doctor

> advised me to take one

> or two tablets every other day. I've modified and

> found it works

> best for me to take one tablet for two days and then

> take a day off

> and start back. It will make you feel very confused

> and off when you

> first start taking it but stick with it because that

> will go away

> with a little time. I take mine at night so if this

> happens I don't

> have to be too concerned. I can just go to bed! Of

> course, you do

> have to keep getting up to go to the bathroom. Plus

> side, keeps the

> old kidneys flushed! It took a few days for me

> to start feeling

> any effects from this drug but once I did, wow!

> What an improvement

> on my vertigo problems! It seems to also be slowly

> reducing the

> pressure from fluid in my ears which is helping a

> lot with my

> headaches as well.

>

> One thing I've also realized is that I don't have a

> left frontal

> headache like I thought I did. I've come to realize

> I have

> fibromyalgia in some of the muscles in my forehead.

> The worst is the

> one above my right eyebrow. When it flares up it

> hurts to even touch

> the site. I've been putting a flax seed and herb

> heat pack on it for

> about 10 minutes a day and have noticed the pain and

> tension there

> was greatly reduced after a few days. Don't use

> heat much longer

> than 10 minutes because you get no more benefit from

> it after that

> time. I can now touch the spot without pain. One

> doctor describe

> fibromyalgia as Knot's Disease meaning your muscles

> are knotted up.

> It's a name of his own creation but it really seems

> to fit because if

> I press down and run my finger over this muscle

> going from just above

> the inside of my forehead out to the end of my

> eyebrow I can feel

> several little knots in there. I do the same thing

> above the other

> eyebrow as a comparison and there are no knots just

> smooth muscle.

> So, it's not a real headache but actually a muscle

> ache! I'm seeing

> a good reason for botox in my future!!!

>

> The fatigue I'm still having some problems with so I

> don't know if it

> will help there but it was great for the vertigo!

> It seems like I

> have relapses of it every week and my leg muscles

> get weak and

> tired. The past few days, even though I'm on 1000mg

> of Biaxin daily,

> my left arm and leg have been feeling all numb and

> tingly. Very

> annoying and I wish it would stop! It could be a

> side effect of the

> diuretic but even if it is I refuse to stop taking

> the diuretic.

> Honestly, I think it is the Lyme because the same

> thing happened to

> my right arm and leg in the beginning but that

> seemed to have gone

> away leaving me with some arthris and some burning

> and light swelling

> on occasion. I reallllllly hate Lyme!

>

> Anyway, I hope some of what I have said helps at

> least one person out

> there with some of these problems!

>

> Take care,

>

> Angie

>

>

>

[Guest guest]

i was told to stay away from bannanas ans citrus

frutis? i also have server pain throught my body in

my skull my headaches are so bad. where do you get

these herb packs? is there a test that shows that are

brains ar swelling>

--- toangiem@... wrote:

> Greetings from Charlotte, NC!

>

> You folks all helped me so much in June when I was

> so sick and

> misdiagnosed with Rocky Mountain Spotted Fever which

> left me severely

> undertreated. The Lyme hit me with a vengence!

> I've been meaning to

> write back in and update everyone but I'm moving

> slow on that.

> However, today is one of the few days since this

> happened to me that

> I've checked the web site. I saw your question and

> had to respond

> with something that has helped me. My neck starts

> bothering me too

> much to stay the computer too long. Fibromyalgia I

> believe is the

> problem. If anyone has any good suggestions about

> how to relieve

> this I'm very willing to listen!

>

> On reading some of your comments about dealing with

> ongoing

> encephalitis I had to let you guys know something my

> wonderful doctor

> prescribed to help me cope with it. Apparently, I

> have repeated

> spells of brain swelling which were causing me a lot

> of trouble with

> vertigo. I also discovered I had fluid in my ears

> as well. I still

> have to wait another week to go to my ear doctor so

> who knows what he

> will do for that problem. Possibly ear tubes? Not

> sure but I would

> like to be able to hold my nose and feel like some

> air was at least

> moving through my ears!

>

> For the vertigo which I believe is primarily caused

> by this repeated

> swelling of our cherish brains, I was prescribed

> Acetazolamide 250mg

> (Brand name is Diamox). This drug is a diuretic

> which makes your

> body shed water which gradually reduces swelling on

> your brain so

> make certain to drink plenty of water when taking

> it. According to

> The Pill Book, it also helps with some forms of

> seizures as well.

> Cautions are not to take it if you have low blood

> sodium (how do you

> know that?!), low potassium or serious kidney,

> liver, or 's

> disease.

> Make sure to eat potassium rich foods such as

> bananas, citrus fruits,

> melons and tomatoes and possibly even take potassium

> supplements

> while taking this drug. Excessive potassium loss in

> your body can

> lead to extreme confusion to the point of not even

> knowing who you

> are! However, if you make certain to get plenty of

> potassium in your

> diet this should not be a problem. My doctor

> advised me to take one

> or two tablets every other day. I've modified and

> found it works

> best for me to take one tablet for two days and then

> take a day off

> and start back. It will make you feel very confused

> and off when you

> first start taking it but stick with it because that

> will go away

> with a little time. I take mine at night so if this

> happens I don't

> have to be too concerned. I can just go to bed! Of

> course, you do

> have to keep getting up to go to the bathroom. Plus

> side, keeps the

> old kidneys flushed! It took a few days for me

> to start feeling

> any effects from this drug but once I did, wow!

> What an improvement

> on my vertigo problems! It seems to also be slowly

> reducing the

> pressure from fluid in my ears which is helping a

> lot with my

> headaches as well.

>

> One thing I've also realized is that I don't have a

> left frontal

> headache like I thought I did. I've come to realize

> I have

> fibromyalgia in some of the muscles in my forehead.

> The worst is the

> one above my right eyebrow. When it flares up it

> hurts to even touch

> the site. I've been putting a flax seed and herb

> heat pack on it for

> about 10 minutes a day and have noticed the pain and

> tension there

> was greatly reduced after a few days. Don't use

> heat much longer

> than 10 minutes because you get no more benefit from

> it after that

> time. I can now touch the spot without pain. One

> doctor describe

> fibromyalgia as Knot's Disease meaning your muscles

> are knotted up.

> It's a name of his own creation but it really seems

> to fit because if

> I press down and run my finger over this muscle

> going from just above

> the inside of my forehead out to the end of my

> eyebrow I can feel

> several little knots in there. I do the same thing

> above the other

> eyebrow as a comparison and there are no knots just

> smooth muscle.

> So, it's not a real headache but actually a muscle

> ache! I'm seeing

> a good reason for botox in my future!!!

>

> The fatigue I'm still having some problems with so I

> don't know if it

> will help there but it was great for the vertigo!

> It seems like I

> have relapses of it every week and my leg muscles

> get weak and

> tired. The past few days, even though I'm on 1000mg

> of Biaxin daily,

> my left arm and leg have been feeling all numb and

> tingly. Very

> annoying and I wish it would stop! It could be a

> side effect of the

> diuretic but even if it is I refuse to stop taking

> the diuretic.

> Honestly, I think it is the Lyme because the same

> thing happened to

> my right arm and leg in the beginning but that

> seemed to have gone

> away leaving me with some arthris and some burning

> and light swelling

> on occasion. I reallllllly hate Lyme!

>

> Anyway, I hope some of what I have said helps at

> least one person out

> there with some of these problems!

>

> Take care,

>

> Angie

>

>

>

[Guest guest]

i was told to stay away from bannanas ans citrus

frutis? i also have server pain throught my body in

my skull my headaches are so bad. where do you get

these herb packs? is there a test that shows that are

brains ar swelling>

--- toangiem@... wrote:

> Greetings from Charlotte, NC!

>

> You folks all helped me so much in June when I was

> so sick and

> misdiagnosed with Rocky Mountain Spotted Fever which

> left me severely

> undertreated. The Lyme hit me with a vengence!

> I've been meaning to

> write back in and update everyone but I'm moving

> slow on that.

> However, today is one of the few days since this

> happened to me that

> I've checked the web site. I saw your question and

> had to respond

> with something that has helped me. My neck starts

> bothering me too

> much to stay the computer too long. Fibromyalgia I

> believe is the

> problem. If anyone has any good suggestions about

> how to relieve

> this I'm very willing to listen!

>

> On reading some of your comments about dealing with

> ongoing

> encephalitis I had to let you guys know something my

> wonderful doctor

> prescribed to help me cope with it. Apparently, I

> have repeated

> spells of brain swelling which were causing me a lot

> of trouble with

> vertigo. I also discovered I had fluid in my ears

> as well. I still

> have to wait another week to go to my ear doctor so

> who knows what he

> will do for that problem. Possibly ear tubes? Not

> sure but I would

> like to be able to hold my nose and feel like some

> air was at least

> moving through my ears!

>

> For the vertigo which I believe is primarily caused

> by this repeated

> swelling of our cherish brains, I was prescribed

> Acetazolamide 250mg

> (Brand name is Diamox). This drug is a diuretic

> which makes your

> body shed water which gradually reduces swelling on

> your brain so

> make certain to drink plenty of water when taking

> it. According to

> The Pill Book, it also helps with some forms of

> seizures as well.

> Cautions are not to take it if you have low blood

> sodium (how do you

> know that?!), low potassium or serious kidney,

> liver, or 's

> disease.

> Make sure to eat potassium rich foods such as

> bananas, citrus fruits,

> melons and tomatoes and possibly even take potassium

> supplements

> while taking this drug. Excessive potassium loss in

> your body can

> lead to extreme confusion to the point of not even

> knowing who you

> are! However, if you make certain to get plenty of

> potassium in your

> diet this should not be a problem. My doctor

> advised me to take one

> or two tablets every other day. I've modified and

> found it works

> best for me to take one tablet for two days and then

> take a day off

> and start back. It will make you feel very confused

> and off when you

> first start taking it but stick with it because that

> will go away

> with a little time. I take mine at night so if this

> happens I don't

> have to be too concerned. I can just go to bed! Of

> course, you do

> have to keep getting up to go to the bathroom. Plus

> side, keeps the

> old kidneys flushed! It took a few days for me

> to start feeling

> any effects from this drug but once I did, wow!

> What an improvement

> on my vertigo problems! It seems to also be slowly

> reducing the

> pressure from fluid in my ears which is helping a

> lot with my

> headaches as well.

>

> One thing I've also realized is that I don't have a

> left frontal

> headache like I thought I did. I've come to realize

> I have

> fibromyalgia in some of the muscles in my forehead.

> The worst is the

> one above my right eyebrow. When it flares up it

> hurts to even touch

> the site. I've been putting a flax seed and herb

> heat pack on it for

> about 10 minutes a day and have noticed the pain and

> tension there

> was greatly reduced after a few days. Don't use

> heat much longer

> than 10 minutes because you get no more benefit from

> it after that

> time. I can now touch the spot without pain. One

> doctor describe

> fibromyalgia as Knot's Disease meaning your muscles

> are knotted up.

> It's a name of his own creation but it really seems

> to fit because if

> I press down and run my finger over this muscle

> going from just above

> the inside of my forehead out to the end of my

> eyebrow I can feel

> several little knots in there. I do the same thing

> above the other

> eyebrow as a comparison and there are no knots just

> smooth muscle.

> So, it's not a real headache but actually a muscle

> ache! I'm seeing

> a good reason for botox in my future!!!

>

> The fatigue I'm still having some problems with so I

> don't know if it

> will help there but it was great for the vertigo!

> It seems like I

> have relapses of it every week and my leg muscles

> get weak and

> tired. The past few days, even though I'm on 1000mg

> of Biaxin daily,

> my left arm and leg have been feeling all numb and

> tingly. Very

> annoying and I wish it would stop! It could be a

> side effect of the

> diuretic but even if it is I refuse to stop taking

> the diuretic.

> Honestly, I think it is the Lyme because the same

> thing happened to

> my right arm and leg in the beginning but that

> seemed to have gone

> away leaving me with some arthris and some burning

> and light swelling

> on occasion. I reallllllly hate Lyme!

>

> Anyway, I hope some of what I have said helps at

> least one person out

> there with some of these problems!

>

> Take care,

>

> Angie

>

>

>

[Guest guest]

> > Greetings from Charlotte, NC!

, I just wrote you a big reply and the freaking computer

totally trashed it for me before I could send it so I'm tired but I " m

going to give you the quick facts if I can.

Watermelon is very high in potassium. Tomatoes are also supposed to

be good but if I find out what other fruits and veggies are good I

will write back and let you know. Supplements are only 3% of daily

requirement for 99mg. I'm not certain exactly how much potassium

we're supposed to take when on this stuff. I eat two bananas a day.

One with morning meds and the other with my night meds. I think they

help to keep your stomach from going through so much wear. Why can

you not eat them? Allergies? I don't know of any meds they cause

problems with. Some citrus fruits do interact so I can see your

doctor may have some concerns with those.

Herbal packs: If you can find a heat pack with flax seeds in it I

think those are better than electric heat and gels. Don't worry so

much about it being an herbal pack. I think that's just a better

seller because it smells good. If you can not find a flax seed pack

you can either make one yourself or have someone make on for you.

Just make certain you have another fairly thick cloth to go over the

actual pack to protect your skin from getting too hot. You can take

some nice smelling tea and cut the bags open and mix it with the

seeds if you want it to smell good. If you can't find one and don't

have the energy to make one I would suggest finding a tightly woven

sock (because the seeds are very small) which you can fill about 3/4

full of the flax seeds and tea.

Flax seeds are found at some grocery stores if they sell nuts in

bins. A lot of health food stores also carry them and they run about

$1 a pound. Tie a knot in the end of the sock and microwave it for

approx 2 minutes. Don't get it too hot. Take another sock, now a

thick one, and cover up the first sock that you've warmed up. For

moist heat you can lightly mist the outer sock with water. If your

forehead bothers you or your cheeks or whatever spot is giving you

problems you can place it there for about 10 minutes.

Don't go very much over the 10 minutes. My chiropractor says this is

the max amount of time you need to obtain any benefits and more than

this is not good. He says the same thing about cold packs-10 minutes

is all you need. He says once you go over these times your body

actually starts trying to do the opposite of what you are trying to

accomplish. Too much heat, it trys to cool you back down. Too much

cold, it starts increasing circulation to the area to try to warm it

up. What a mess, huh?!

My doc thinks I may be having chronic brain swelling and that is what

is causing a lot of the confusion, vertigo and general feeling of

being off balance. It can also contribute to chronic fatigue and

those sweats we all so totally enjoy-not! The diuretic has so

totally helped with the first three symptoms. I do feel a lot

clearer now and my headaches have also decreased. I believe fluid in

your ears can also contribute to vertigo and balance problems so for

those who have not had this checked by a specialist in this area I

strongly suggest you do. 4 more days and I see mine to find out what

is going on in there. I think MRIs can also pick up on brain

swellings as well but we didn't do that test. I was told it most

likely would not show up this early. CT scans are used much later

after severe damage to show changes.

By the way, if anyone does get a prescription for this drug, make

certain to not take aspirin since it can interact with it plus some

other drugs. I hope everyone has good drug guide books. It's nice

to know what interacts. However, I've decided to basically ignore

side effects. Heck, it's almost impossible to determine whether it's

an actual side effect or the Lyme so I just blame it all on Lyme.

Freaking blood sucking ticks. Supposedly everything has a place in

this chain called life but the only purpose I can think of for these

disease carrying buggers is that if we were in the wild it would

weaken us long enough for predators to get a meal. Oh wait, that's

not just in the wild! My God, it's corporate America! I just

realized my boss must have put the thing on me so I would weaken and

he could finally have his opportunity to find a way to discharge me.

I can't wait to try to go back to work in a few weeks.

Last time I tried I was put on formal warning for being out in the

mornings because my medications make me a mess at that time and

sometimes, I can't even wake to the alarm. However, I told them the

first day I went back about all my problems (I even gave them copies

of the drugs side effects!) and they offered no advice or

accomodations to try to help me. They acted like everything would be

normal and fine but first chance they got they pulled me into a

meeting and had me in tears for doing everything but breathing! I

believe they would have written me up for that if they could have

figured out how to do it.

My boss even had the nerve to tell me that my expenses for Lyme could

not have been that bad since I have insurance. Hah! I can't even

count the number of prescription drugs I have taken plus the

supplements I have had to buy. Acidophilus/Bifidus alone can run

about $70 a month. Anyone have insurance pick up that tab? Didn't

think so! Yup, it had to have been my boss who planted the darn

thing! Hey, I have to blame someone. You think I want to take the

blame for forgetting to do a tick check after hiking and messing

around with my horses in a field with grass up to my waist? Geesh,

if I had been a wild animal with Lyme a wolf would have picked me off

in a heartbeat! Sigh, corporations or wolves? One and the same but

a wolf definitely ends the suffering much quicker! Cheers!

Angie

[Guest guest]

well i guess thecitrus fruits cause i was told i had

cfs and reactive hypoglacemia. Now one docs thinks i

have lyme and now today i saw a 2nd neurologists and

he wants to to a spinal scan and a spinal tap and a

neurophyc test have you had any of these tests? boy

im confused cause hes telling me long term antibitics

are so bad fo me and my natural doc siad he wont work

with m anymore if i keep taking them. this sock thing

sounds good is there something in the flax seed that

helps? also which diretic where you taking? boy ill

tell you im reaaly confused with these docs im not

even sure what i have anymore lol.

--- toangiem@... wrote:

>

> > > Greetings from Charlotte, NC!

>

> , I just wrote you a big reply and the

> freaking computer

> totally trashed it for me before I could send it so

> I'm tired but I " m

> going to give you the quick facts if I can.

>

> Watermelon is very high in potassium. Tomatoes are

> also supposed to

> be good but if I find out what other fruits and

> veggies are good I

> will write back and let you know. Supplements are

> only 3% of daily

> requirement for 99mg. I'm not certain exactly how

> much potassium

> we're supposed to take when on this stuff. I eat

> two bananas a day.

> One with morning meds and the other with my night

> meds. I think they

> help to keep your stomach from going through so much

> wear. Why can

> you not eat them? Allergies? I don't know of any

> meds they cause

> problems with. Some citrus fruits do interact so I

> can see your

> doctor may have some concerns with those.

>

> Herbal packs: If you can find a heat pack with flax

> seeds in it I

> think those are better than electric heat and gels.

> Don't worry so

> much about it being an herbal pack. I think that's

> just a better

> seller because it smells good. If you can not find

> a flax seed pack

> you can either make one yourself or have someone

> make on for you.

> Just make certain you have another fairly thick

> cloth to go over the

> actual pack to protect your skin from getting too

> hot. You can take

> some nice smelling tea and cut the bags open and mix

> it with the

> seeds if you want it to smell good. If you can't

> find one and don't

> have the energy to make one I would suggest finding

> a tightly woven

> sock (because the seeds are very small) which you

> can fill about 3/4

> full of the flax seeds and tea.

>

> Flax seeds are found at some grocery stores if they

> sell nuts in

> bins. A lot of health food stores also carry them

> and they run about

> $1 a pound. Tie a knot in the end of the sock and

> microwave it for

> approx 2 minutes. Don't get it too hot. Take

> another sock, now a

> thick one, and cover up the first sock that you've

> warmed up. For

> moist heat you can lightly mist the outer sock with

> water. If your

> forehead bothers you or your cheeks or whatever spot

> is giving you

> problems you can place it there for about 10

> minutes.

>

> Don't go very much over the 10 minutes. My

> chiropractor says this is

> the max amount of time you need to obtain any

> benefits and more than

> this is not good. He says the same thing about cold

> packs-10 minutes

> is all you need. He says once you go over these

> times your body

> actually starts trying to do the opposite of what

> you are trying to

> accomplish. Too much heat, it trys to cool you back

> down. Too much

> cold, it starts increasing circulation to the area

> to try to warm it

> up. What a mess, huh?!

>

> My doc thinks I may be having chronic brain swelling

> and that is what

> is causing a lot of the confusion, vertigo and

> general feeling of

> being off balance. It can also contribute to

> chronic fatigue and

> those sweats we all so totally enjoy-not! The

> diuretic has so

> totally helped with the first three symptoms. I do

> feel a lot

> clearer now and my headaches have also decreased. I

> believe fluid in

> your ears can also contribute to vertigo and balance

> problems so for

> those who have not had this checked by a specialist

> in this area I

> strongly suggest you do. 4 more days and I see mine

> to find out what

> is going on in there. I think MRIs can also pick up

> on brain

> swellings as well but we didn't do that test. I was

> told it most

> likely would not show up this early. CT scans are

> used much later

> after severe damage to show changes.

>

> By the way, if anyone does get a prescription for

> this drug, make

> certain to not take aspirin since it can interact

> with it plus some

> other drugs. I hope everyone has good drug guide

> books. It's nice

> to know what interacts. However, I've decided to

> basically ignore

> side effects. Heck, it's almost impossible to

> determine whether it's

> an actual side effect or the Lyme so I just blame it

> all on Lyme.

>

> Freaking blood sucking ticks. Supposedly everything

> has a place in

> this chain called life but the only purpose I can

> think of for these

> disease carrying buggers is that if we were in the

> wild it would

> weaken us long enough for predators to get a meal.

> Oh wait, that's

> not just in the wild! My God, it's corporate

> America! I just

> realized my boss must have put the thing on me so I

> would weaken and

> he could finally have his opportunity to find a way

> to discharge me.

> I can't wait to try to go back to work in a few

> weeks.

>

> Last time I tried I was put on formal warning for

> being out in the

> mornings because my medications make me a mess at

> that time and

> sometimes, I can't even wake to the alarm. However,

> I told them the

> first day I went back about all my problems (I even

> gave them copies

> of the drugs side effects!) and they offered no

> advice or

> accomodations to try to help me. They acted like

> everything would be

> normal and fine but first chance they got they

> pulled me into a

> meeting and had me in tears for doing everything but

> breathing! I

> believe they would have written me up for that if

> they could have

> figured out how to do it.

>

> My boss even had the nerve to tell me that my

> expenses for Lyme could

> not have been that bad since I have insurance. Hah!

> I can't even

> count the number of prescription drugs I have taken

> plus the

> supplements I have had to buy. Acidophilus/Bifidus

> alone can run

> about $70 a month. Anyone have insurance pick up

> that tab? Didn't

> think so! Yup, it had to have been my boss who

> planted the darn

> thing! Hey, I have to blame someone. You think I

> want to take the

> blame for forgetting to do a tick check after hiking

> and messing

> around with my horses in a field with grass up to my

> waist? Geesh,

> if I had been a wild animal with Lyme a wolf would

> have picked me off

> in a heartbeat! Sigh, corporations or wolves? One

> and the same but

> a wolf definitely ends the suffering much quicker!

> Cheers!

> Angie

>

>

>

>

[Guest guest]

well i guess thecitrus fruits cause i was told i had

cfs and reactive hypoglacemia. Now one docs thinks i

have lyme and now today i saw a 2nd neurologists and

he wants to to a spinal scan and a spinal tap and a

neurophyc test have you had any of these tests? boy

im confused cause hes telling me long term antibitics

are so bad fo me and my natural doc siad he wont work

with m anymore if i keep taking them. this sock thing

sounds good is there something in the flax seed that

helps? also which diretic where you taking? boy ill

tell you im reaaly confused with these docs im not

even sure what i have anymore lol.

--- toangiem@... wrote:

>

> > > Greetings from Charlotte, NC!

>

> , I just wrote you a big reply and the

> freaking computer

> totally trashed it for me before I could send it so

> I'm tired but I " m

> going to give you the quick facts if I can.

>

> Watermelon is very high in potassium. Tomatoes are

> also supposed to

> be good but if I find out what other fruits and

> veggies are good I

> will write back and let you know. Supplements are

> only 3% of daily

> requirement for 99mg. I'm not certain exactly how

> much potassium

> we're supposed to take when on this stuff. I eat

> two bananas a day.

> One with morning meds and the other with my night

> meds. I think they

> help to keep your stomach from going through so much

> wear. Why can

> you not eat them? Allergies? I don't know of any

> meds they cause

> problems with. Some citrus fruits do interact so I

> can see your

> doctor may have some concerns with those.

>

> Herbal packs: If you can find a heat pack with flax

> seeds in it I

> think those are better than electric heat and gels.

> Don't worry so

> much about it being an herbal pack. I think that's

> just a better

> seller because it smells good. If you can not find

> a flax seed pack

> you can either make one yourself or have someone

> make on for you.

> Just make certain you have another fairly thick

> cloth to go over the

> actual pack to protect your skin from getting too

> hot. You can take

> some nice smelling tea and cut the bags open and mix

> it with the

> seeds if you want it to smell good. If you can't

> find one and don't

> have the energy to make one I would suggest finding

> a tightly woven

> sock (because the seeds are very small) which you

> can fill about 3/4

> full of the flax seeds and tea.

>

> Flax seeds are found at some grocery stores if they

> sell nuts in

> bins. A lot of health food stores also carry them

> and they run about

> $1 a pound. Tie a knot in the end of the sock and

> microwave it for

> approx 2 minutes. Don't get it too hot. Take

> another sock, now a

> thick one, and cover up the first sock that you've

> warmed up. For

> moist heat you can lightly mist the outer sock with

> water. If your

> forehead bothers you or your cheeks or whatever spot

> is giving you

> problems you can place it there for about 10

> minutes.

>

> Don't go very much over the 10 minutes. My

> chiropractor says this is

> the max amount of time you need to obtain any

> benefits and more than

> this is not good. He says the same thing about cold

> packs-10 minutes

> is all you need. He says once you go over these

> times your body

> actually starts trying to do the opposite of what

> you are trying to

> accomplish. Too much heat, it trys to cool you back

> down. Too much

> cold, it starts increasing circulation to the area

> to try to warm it

> up. What a mess, huh?!

>

> My doc thinks I may be having chronic brain swelling

> and that is what

> is causing a lot of the confusion, vertigo and

> general feeling of

> being off balance. It can also contribute to

> chronic fatigue and

> those sweats we all so totally enjoy-not! The

> diuretic has so

> totally helped with the first three symptoms. I do

> feel a lot

> clearer now and my headaches have also decreased. I

> believe fluid in

> your ears can also contribute to vertigo and balance

> problems so for

> those who have not had this checked by a specialist

> in this area I

> strongly suggest you do. 4 more days and I see mine

> to find out what

> is going on in there. I think MRIs can also pick up

> on brain

> swellings as well but we didn't do that test. I was

> told it most

> likely would not show up this early. CT scans are

> used much later

> after severe damage to show changes.

>

> By the way, if anyone does get a prescription for

> this drug, make

> certain to not take aspirin since it can interact

> with it plus some

> other drugs. I hope everyone has good drug guide

> books. It's nice

> to know what interacts. However, I've decided to

> basically ignore

> side effects. Heck, it's almost impossible to

> determine whether it's

> an actual side effect or the Lyme so I just blame it

> all on Lyme.

>

> Freaking blood sucking ticks. Supposedly everything

> has a place in

> this chain called life but the only purpose I can

> think of for these

> disease carrying buggers is that if we were in the

> wild it would

> weaken us long enough for predators to get a meal.

> Oh wait, that's

> not just in the wild! My God, it's corporate

> America! I just

> realized my boss must have put the thing on me so I

> would weaken and

> he could finally have his opportunity to find a way

> to discharge me.

> I can't wait to try to go back to work in a few

> weeks.

>

> Last time I tried I was put on formal warning for

> being out in the

> mornings because my medications make me a mess at

> that time and

> sometimes, I can't even wake to the alarm. However,

> I told them the

> first day I went back about all my problems (I even

> gave them copies

> of the drugs side effects!) and they offered no

> advice or

> accomodations to try to help me. They acted like

> everything would be

> normal and fine but first chance they got they

> pulled me into a

> meeting and had me in tears for doing everything but

> breathing! I

> believe they would have written me up for that if

> they could have

> figured out how to do it.

>

> My boss even had the nerve to tell me that my

> expenses for Lyme could

> not have been that bad since I have insurance. Hah!

> I can't even

> count the number of prescription drugs I have taken

> plus the

> supplements I have had to buy. Acidophilus/Bifidus

> alone can run

> about $70 a month. Anyone have insurance pick up

> that tab? Didn't

> think so! Yup, it had to have been my boss who

> planted the darn

> thing! Hey, I have to blame someone. You think I

> want to take the

> blame for forgetting to do a tick check after hiking

> and messing

> around with my horses in a field with grass up to my

> waist? Geesh,

> if I had been a wild animal with Lyme a wolf would

> have picked me off

> in a heartbeat! Sigh, corporations or wolves? One

> and the same but

> a wolf definitely ends the suffering much quicker!

> Cheers!

> Angie

>

>

>

>

[Guest guest]

You sound alot like me. I am under pain managment for fibro , but pusued lyme

on my own. I tested postive for borrelia , negative for western blot. I do to

llmd . She drew blood and now I have 2 bands within the westenr blot, Also

ask for a pcr dna test.. You take doxycycline for 3 days then collect first

am urine for 3 days ,, the bacteria shows up in the urine ,, the doxy has

helped kill them enough to show up . I also had a brain spect a few weeks ago

and it shows postive signs for lyme. Please search out a llmd. I imagine you

could have lyme . I am starting iv antibodics hopefully this week ,, I know

it is so hard but you must be your own advocate in this nightmare. I

understand you barely feel like moving as well ,If you have a freind or

family let them know and assist you ,, good luck

[Guest guest]

Hi , I too am a newbie as you state. I have tested positive for

borrellia , also 2 bands on the western blot , postive on the pcc,, and a

postive brain spect. The doc I am going to seems lyme literate , but very

laid back re treatment, She put me on doxy 100 ms 2 times a day ,, i had to

chase her down to get the postive pcp results,, had to actually make an apt,,

the brain spect I had released to myself ,, she had it for over a week ,,

once again ihad to call her,, please if u know someone in ct who is

aggressive in the treatment of lyme please let me know ,, I have memory

issues, no stamia, on and on ,, I have stopped working in a professional

capacity ,, ended up on pain manamgnet with dx of fibro ,, thank god for the

pain management doc who will back my disability ,, this lyme doc wants

nothing to do with it ,, too much re paper work ,, if u can help me I would

greatly appreciate it ,, thanks ,, Also how long is a good protocal for iv

antibodics ,, given the cns involvement ,, thanks

[Guest guest]

, Get on the websites and find a local LLMD right away. Tell us

where you live or where the nearest large towns and cities that you might be

willing to travel to for a doctor who knows about Lyme disease! Do not

listen to the people who do not know anything about Lyme disease. It can not

be gotten rid of in your body without massive antibiotics! It is related to

syphilis which has only been able to be gotten rid of through strong,

prolonged antibiotics. There is a great controversy over oral,

intermuscular, or intravenous antibiotics, BUT the answers is antibiotics

with tremendous nutritional support because our bodies do assimilate

nutrition because of the bacteria that is in lyme- spirochetes.

Keep reading this list and read everything you can get your hands on so

that you will know that latest information. This is an excellent place to

LEARN from news, personal accounts and to make connections to support

groups. THE KEY IS POSTING WHERE YOU LIVE AND HAVING PEOPLE WRITE TO YOU OFF

LINE AS TO LYME LITERATE MEDICAL DOCTORS (LLMD) NEAR WHERE YOU LIVE. I have

found that LLMD can run the gamut of specialists, neurologist, infectious

disease, internists, ophthalmologists, etc.; so do not be surprised as to

where you get help, but when you do start getting treated, it gets worse

(Herxheimer Reaction - where the spirochetes are dying off in your body due

to the antibiotics killing them), but you do need to get to see a LLMD who

will do the appropriate testing for you ASAP! There are only 2-3 really

reliable labs in the US, I know that one very reliable lab is I-Gene-X in

California. Lyme disease is a clinical diagnosis which means there are NO

cut and dried tests, it takes a LLMD doctor who knows how to test, diagnose

and treat Lyme disease and it can only be ascertained by appropriate tests

sent to the right labs and by knowing the multitude of symptoms that come

with the disease! It is a very difficult disease to pinpoint!

Ask here any questions, there will be many people who will give you the

best information and websites that will help you LEARN what is best for you!

Just know that you are not alone and you are a " newbie " or a baby in this,

but you will find that this is a great way to find what you need, we are

here for you whenever you need us! If you need anything, contact me or the

multitude of people here on this list and other Lyme lists! My own doctor is

awesome and he is a neurologist, because it attacks your brain and then

reproduces in your body and attacks your organs and tissues. It is

devastating, but winnable with perseverance, knowledge and great doctors!

Crockett (and I sign off as KC in TX)!

Re: [ ] Re: encephalitis-vertigo & headaches-fibromyalgia

> well i guess thecitrus fruits cause i was told i had

> cfs and reactive hypoglacemia. Now one docs thinks i

> have lyme and now today i saw a 2nd neurologists and

> he wants to to a spinal scan and a spinal tap and a

> neurophyc test have you had any of these tests? boy

> im confused cause hes telling me long term antibitics

> are so bad fo me and my natural doc siad he wont work

> with m anymore if i keep taking them. this sock thing

> sounds good is there something in the flax seed that

> helps? also which diretic where you taking? boy ill

> tell you im reaaly confused with these docs im not

> even sure what i have anymore lol.

> --- toangiem@... wrote:

> >

> > > > Greetings from Charlotte, NC!

> >

> > , I just wrote you a big reply and the

> > freaking computer

> > totally trashed it for me before I could send it so

> > I'm tired but I " m

> > going to give you the quick facts if I can.

> >

> > Watermelon is very high in potassium. Tomatoes are

> > also supposed to

> > be good but if I find out what other fruits and

> > veggies are good I

> > will write back and let you know. Supplements are

> > only 3% of daily

> > requirement for 99mg. I'm not certain exactly how

> > much potassium

> > we're supposed to take when on this stuff. I eat

> > two bananas a day.

> > One with morning meds and the other with my night

> > meds. I think they

> > help to keep your stomach from going through so much

> > wear. Why can

> > you not eat them? Allergies? I don't know of any

> > meds they cause

> > problems with. Some citrus fruits do interact so I

> > can see your

> > doctor may have some concerns with those.

> >

> > Herbal packs: If you can find a heat pack with flax

> > seeds in it I

> > think those are better than electric heat and gels.

> > Don't worry so

> > much about it being an herbal pack. I think that's

> > just a better

> > seller because it smells good. If you can not find

> > a flax seed pack

> > you can either make one yourself or have someone

> > make on for you.

> > Just make certain you have another fairly thick

> > cloth to go over the

> > actual pack to protect your skin from getting too

> > hot. You can take

> > some nice smelling tea and cut the bags open and mix

> > it with the

> > seeds if you want it to smell good. If you can't

> > find one and don't

> > have the energy to make one I would suggest finding

> > a tightly woven

> > sock (because the seeds are very small) which you

> > can fill about 3/4

> > full of the flax seeds and tea.

> >

> > Flax seeds are found at some grocery stores if they

> > sell nuts in

> > bins. A lot of health food stores also carry them

> > and they run about

> > $1 a pound. Tie a knot in the end of the sock and

> > microwave it for

> > approx 2 minutes. Don't get it too hot. Take

> > another sock, now a

> > thick one, and cover up the first sock that you've

> > warmed up. For

> > moist heat you can lightly mist the outer sock with

> > water. If your

> > forehead bothers you or your cheeks or whatever spot

> > is giving you

> > problems you can place it there for about 10

> > minutes.

> >

> > Don't go very much over the 10 minutes. My

> > chiropractor says this is

> > the max amount of time you need to obtain any

> > benefits and more than

> > this is not good. He says the same thing about cold

> > packs-10 minutes

> > is all you need. He says once you go over these

> > times your body

> > actually starts trying to do the opposite of what

> > you are trying to

> > accomplish. Too much heat, it trys to cool you back

> > down. Too much

> > cold, it starts increasing circulation to the area

> > to try to warm it

> > up. What a mess, huh?!

> >

> > My doc thinks I may be having chronic brain swelling

> > and that is what

> > is causing a lot of the confusion, vertigo and

> > general feeling of

> > being off balance. It can also contribute to

> > chronic fatigue and

> > those sweats we all so totally enjoy-not! The

> > diuretic has so

> > totally helped with the first three symptoms. I do

> > feel a lot

> > clearer now and my headaches have also decreased. I

> > believe fluid in

> > your ears can also contribute to vertigo and balance

> > problems so for

> > those who have not had this checked by a specialist

> > in this area I

> > strongly suggest you do. 4 more days and I see mine

> > to find out what

> > is going on in there. I think MRIs can also pick up

> > on brain

> > swellings as well but we didn't do that test. I was

> > told it most

> > likely would not show up this early. CT scans are

> > used much later

> > after severe damage to show changes.

> >

> > By the way, if anyone does get a prescription for

> > this drug, make

> > certain to not take aspirin since it can interact

> > with it plus some

> > other drugs. I hope everyone has good drug guide

> > books. It's nice

> > to know what interacts. However, I've decided to

> > basically ignore

> > side effects. Heck, it's almost impossible to

> > determine whether it's

> > an actual side effect or the Lyme so I just blame it

> > all on Lyme.

> >

> > Freaking blood sucking ticks. Supposedly everything

> > has a place in

> > this chain called life but the only purpose I can

> > think of for these

> > disease carrying buggers is that if we were in the

> > wild it would

> > weaken us long enough for predators to get a meal.

> > Oh wait, that's

> > not just in the wild! My God, it's corporate

> > America! I just

> > realized my boss must have put the thing on me so I

> > would weaken and

> > he could finally have his opportunity to find a way

> > to discharge me.

> > I can't wait to try to go back to work in a few

> > weeks.

> >

> > Last time I tried I was put on formal warning for

> > being out in the

> > mornings because my medications make me a mess at

> > that time and

> > sometimes, I can't even wake to the alarm. However,

> > I told them the

> > first day I went back about all my problems (I even

> > gave them copies

> > of the drugs side effects!) and they offered no

> > advice or

> > accomodations to try to help me. They acted like

> > everything would be

> > normal and fine but first chance they got they

> > pulled me into a

> > meeting and had me in tears for doing everything but

> > breathing! I

> > believe they would have written me up for that if

> > they could have

> > figured out how to do it.

> >

> > My boss even had the nerve to tell me that my

> > expenses for Lyme could

> > not have been that bad since I have insurance. Hah!

> > I can't even

> > count the number of prescription drugs I have taken

> > plus the

> > supplements I have had to buy. Acidophilus/Bifidus

> > alone can run

> > about $70 a month. Anyone have insurance pick up

> > that tab? Didn't

> > think so! Yup, it had to have been my boss who

> > planted the darn

> > thing! Hey, I have to blame someone. You think I

> > want to take the

> > blame for forgetting to do a tick check after hiking

> > and messing

> > around with my horses in a field with grass up to my

> > waist? Geesh,

> > if I had been a wild animal with Lyme a wolf would

> > have picked me off

> > in a heartbeat! Sigh, corporations or wolves? One

> > and the same but

> > a wolf definitely ends the suffering much quicker!

> > Cheers!

> > Angie

> >

> >

> >

> >

[Guest guest]

> , Get on the websites and find a local LLMD right away.

Tell us

> where you live or where the nearest large towns and cities that you

might be

> willing to travel to for a doctor who knows about Lyme disease! Do

not

> listen to the people who do not know anything about Lyme disease.

It can not

> be gotten rid of in your body without massive antibiotics! It is

related to

> syphilis which has only been able to be gotten rid of through

strong,

> prolonged antibiotics. There is a great controversy over oral,

> intermuscular, or intravenous antibiotics, BUT the answers is

antibiotics

> with tremendous nutritional support because our bodies do assimilate

> nutrition because of the bacteria that is in lyme- spirochetes.

,

is soooooo right about getting the right doctor! I was so sick

I think I almost died from the stuff this summer. I had horrible

encephalitis, headaches, neck pain, you name it- and if Lyme didn't

take me out, I was starting to plan how to do it myself! However,

the days that were the worst and I so wanted to check out were the

ones I was too confused and tired to even be a threat to myself!

LOL! God, it's a hard road to getting well and I can honestly tell

you that even on the antibiotics I still felt horrible for a good

while. However, no matter how bad I felt the last thing I was going

to do was stop taking them! Doxycycline was very hard for me and I

had to eat all the time to keep from getting nausea. Biaxin has been

much easier on me and I lost the Doxy weight gain. I didn't care if

I gained 100 pounds, I was going to take those antibiotics!

I am so fortunate to have found a good doctor from an email sent to

me from a member of this site or one of the other Lyme sites. I

can't remember where she came from but she was absolutely the single

most important email I have ever recieved! If it hadn't been for her

I would have wandered from doctor to doctor down here without ever

getting help since " there's next to no chance of getting Lyme " in

North Carolina. IDIOTS! I have yet to see that big bubble that's

supposedly protecting Charlotte from birds carrying ticks from up

north. Guess they don't have a permit to drop off and spread disease

in this state or VA where I actually think I picked up the disease.

Good of them to obey the laws.

Funny how VA and GA report more Lyme cases than NC and SC. Also

funny how NC is the leader in RMSF cases. Strange, don't you think

if we have so much of that here it would be equally spread to the

states surrounding us? Oh, the bubble that keeps Lyme out keeps RMSF

in. Gee, and I was thinking the doctors were incorrectly diagnosing

RMSF and sending Lyme disease patients off without enough care...now

wouldn't that be something?!

No, you definitely need to get to a good Lyme Literate Doctor who

understands the many effects this disease can have on your body. Let

that person then direct you to some of your support doctors because

they should send you to other doctors who have a better awareness of

Lyme than you can find on your own. Don't wait!!!

Are you near Charlotte, NC? If so you can email me at

toangiem@... and I can help you but I don't know of any other

doctors located in any other states. However, I'm certain one of us

on the board will know someone who can help. Just send a message to

the board giving your city and state with the word HELP! and I am

certain someone will direct you. By the way, if anyone out there is

reading this and thinking I'm referring to an ID doctor actually IN

Charlotte, I'm not. I went to that doctor and he was an arrogant sob

and only talked to me about 5-10 minutes. I never changed clothes

and there wasn't even an attempt to run a blood test even though I

flat out told him I had Lyme. He SUCKS!!! My doctor is in a town

near the city but not in Charlotte. I love him, I totally credit him

with saving my life!

By the way, , I don't know of any specific properties flax

seeds have that other seeds do not. I think they are just good

because they are so small they cover the area better and don't feel

lumpy. Someone told me I could make one using corn but can you

imagine? I'm certain I would do a ton of work sewing the thing

together only to put it in the microwave and have it explode into

popcorn!!!

I've found a chiropractor to be great help with the pain. When you

lay in bed for long periods of time your muscles start shortening and

lose their normal range of motion. It's a total catch 22 where

you're too tired and sick to move but you so need to be up and moving

in order to prevent your muscles from totally stiffening up. It

definitely hurts when they start stretching those muscles back out

and it takes a few sessions to start feeling the benefits but I can't

even begin to tell you how much helps.

Also, try to do some stretches on your own. A word of caution about

stretching your neck, don't stretch it backward. Apparently that

puts pressure on the vertebrae. Also, don't roll your neck. That's

bad as well. Any direct movements forward, diagonally and to the

side are fine. I paid attention to how my chiropractor stretched my

muscles and when he did, he very lightly would also push my head down

a little more in the direction of the muscle we were trying to

stretch out. My best stretches are the ones where I incline my head

straight down but then tilt it so that I can feel it pulling on the

sore muscles in my neck. I then take my hand on the same side I've

tilted my head toward and lightly push my head over to the side just

a little more. It really pulls those muscles which is what you need

if you have a sore neck!

The diuretic I'm taking is Acetazolamide (Diamox) but you really need

antibiotics first!!!

, I so hope you find a good doctor. I totally understand how

you feel. I've been there too. Hang on, let us know where you are

and someone here will definitely try to help you.

Take care,

Angie