Guest guest Posted March 10, 2002 Report Share Posted March 10, 2002 In a message dated 3/10/02 4:33:18 PM, conniek@... writes: << How is your husband Sue? Connie Leave no stone unturned.......and ask questions! >> Connie- Thank you for asking.....Ken is so-so....I have 'let go', don't help him at all with meds., drs., info, etc. He didn't take his meds. (again) for 3 days...today he is back on track. His 14-yr old son called earlier today and told us that he is not coming home anymore; he is staying with his mother (she walked out on the 2 boys 9 yrs. ago, now she is back). He was supposedly doing his 'every other weekend' visit with her....she lives 2 towns over. He is very sick with lyme, his mother never gives him his meds. when he is visiting her...here is ANOTHER person that is not going to receive the proper care that I was helping.....oh well. Open-heart, keep an open mind, Sue. OK, I am better..... Ken has a drs. visit with the cardiologist on the 21 March so we shall see what he decides to do. I, in the meantime, have some VERY exciting news!!!!! Tomorrow morning I am seeing a WONDERFUL Dr. of Naturopathy and we are going to discuss what to do at this point with me I " think " that they do ozone/oxygen for CHEAP!!! Please see www.abundalife.com . This place is about 25 minutes from my house. READ it, it is exciting!!!! Will let you know. I have something else 'in the works' but will share when something becomes more concrete. sue in nj sue massie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2002 Report Share Posted March 10, 2002 In a message dated 3/10/02 4:46:19 PM Eastern Standard Time, Ssadlermas@... writes: > Leave no stone unturned.......and ask questions! > I like this statement....but what kida questions should I be asking my DR? I was given the good news last year that I have Lyme....I had never heard of it before. Not that many people in NC have it I guess. I have found a LLMD he must be good cause he said people from Fla., VA, Tenn. and other states come to see him. I am on antibox for now. He says that I have a long road ahead. What exactly does that mean? Will I ever have a pain free day? What does the future hold for Lyme people? I also have Bipolar disorder and take enough pills so taking more makes me depressed...I just hate pills. I'm sorry that so many of you have had a bad time with DR's and insurance companies. I hope things get better for you. Thanks for letting me post. Smarra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2002 Report Share Posted March 10, 2002 In the last month both my daughter and myself have had problems with our hearts racing in front of the computer. Her heartbeat went up to 125 bps. I have an idea that this is some type of seizure phenomena tied to the refresh rate of the computer. A computer actually flickers around 60-70 times a second. This may be similar to the disorientation people experience with florescent lights. I turned the brightness down on the screen and this problem passed. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2002 Report Share Posted March 10, 2002 In a message dated 3/10/02 6:36:30 PM, LymeMe@... writes: << In a message dated 3/10/02 4:46:19 PM Eastern Standard Time, Ssadlermas@... writes: > Leave no stone unturned.......and ask questions! > >> Smarra- I wish I did say the above....but I didn't. It comes from Connie from NJ...it is the ending of her signature. ANYWAY.... to answer your ?s, lyme disease is a LONG-TERM TREATMENT disease because it is not like strep throat....10 days of abx and you are cured!!! unfortunately. I will write you off list cuz I am curious if your LLMD is the name I have here... You said " but what kida questions should I be asking my DR? " My reply would be " can you please test me for the co-infections of babesia and ehrlichia thru Igenex labs (www.igenex.com) and while you are drawing blood, test me for bartonella, mycoplasma fermentan and HHV-6 thru MD Labs in Mt. Laurel N J?? (www.mdlab.com). " THAT is where I would start. You wrote " Not that many people in NC have it I guess. " Unfortunately, this is NOT true...I have quite a # of people writing me from NC, my mom and dad (live separately) BOTH have chronic lyme, so does my step-mom...ALL live in NC. You wrote " Will I ever have a pain free day? What does the future hold for Lyme people? " YES to #1 and A CURE. I DO believe it will happen and it is going to be ALOT sooner than you all think. " I also have Bipolar disorder and take enough pills so taking more makes me depressed...I just hate pills. " Bipolar is just a part of lyme disease......Please write me privately and tell me what you are taking....what co-infections, if any.... sue in nj sue massie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2002 Report Share Posted March 10, 2002 How is your husband Sue? Connie Leave no stone unturned.......and ask questions! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2002 Report Share Posted March 10, 2002 You can change the rate of your monitor's refreshing by: going to: control panel Display settings advanced monitor change the refresh rate I think the default is 60 mz click ok click apply. This may help some of you. Darcie --- Ssadlermas@... wrote: > > In a message dated 3/10/02 3:14:07 PM, > jessered57@... writes: > > << n the last month both my daughter and myself have > had problems with > our hearts racing in front of the computer. Her > heartbeat went up to > 125 bps. I have an idea that this is some type of > seizure phenomena > tied to the refresh rate of the computer. A computer > actually > flickers around 60-70 times a second. This may be > similar to the > disorientation people experience with florescent > lights. I turned the > brightness down on the screen and this problem > passed. > >> > > As you know, my husband has this!!!! > I really, really believe that the racing heart is > not only lyme, spirochetes > invading the sinus cavity of the heart, but it is > connected to babesia. Have > you all been tested/treated for babesia? > sue in nj > sue massie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2002 Report Share Posted March 10, 2002 Thank you Darcie. I forgot to mention that. Unfortunately i have an OLD computer and it wouldn't refresh past 72. It would probably work if you could go up to around 80. In case anyone can't then darkening it will probably help like I did. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 Dear Friends, I found that I had to adjust the contrast on all my screen features (borders, window backgrounds, windows applications, scrollbars, etc) to keep from being severely affected. No one else could use my screens at work. I used a dark purple and deep rose, which absorbed a lot of the light flicker. Other good colors might be greens, deep blues, etc., depending on your eyes. You can save this setup so that each family member can have their own unique setting. This is also done in the Control Panel. I forget just where, but check it out. It really does help save your eyes, and reduce the flicker sensation, eyestrain, and propensity to seizure (or preseizure) activity. I worked long, long hours as a tech writer, using TWO computer screens...staring at both nonstop all day long. One was for my documentation and online Help system that I was writing, and the other was for the application I was testing and writing about. Very intense work, and the programmers were changing the programs daily...even after I'd already completed documentation on that portion. It was the heavy use of the computer that I thought had caused my eye problems (having to use prisms in my lenses to keep my eyes centered vertically and horizontally) and initially causing the seizure activity...before my Lyme diagnosis. I literally had to get out of my office for about five minutes each hour, get some bright sunshine, and look far out into the distance before I could look at the computer again. Love ya, Rose From: " jessered57 " <jessered57@...> Thank you Darcie. I forgot to mention that. Unfortunately i have an OLD computer and it wouldn't refresh past 72. It would probably work if you could go up to around 80. In case anyone can't then darkening it will probably help like I did. T.O.I.L. for Lyme! T=Teach tolerance; O=Overcome ignorance; I=Initiate insurance reform; L=Labor for Lyme literacy *Websites* http://www.angelfire.com/tx3/RoseWriter or http://www.angelfire.com/biz/romarkaraoke/james.html --------------------------------- Quote Link to comment Share on other sites More sharing options...
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