Re: (FE)MALES AND FIBROMYALGIA-FROM ABOUT HEALTHY LIVING

[Guest guest]

Some facts that people, including Drs often forget about.

1) You can't easily see all ticks, some are so small that several can fit on

the period at the end of this sentence.

2) A great number of Lyme infected people **never** saw the tick, and only

25% have the rash.

3) A negative test does not mean you dont have Lyme.

4) Ticks are not the only carriers of Lyme, greenhead flies + fleas are

other known carriers.

5) you do not need to be a hiker to be in contact with ticks. They did a

tick-pull from a ladies yard on Long Island, they found many many more ticks

in her walk from the drive to the house, than in her back yard. And they

have found Bb-carrying ticks in Central Park NYC.

Its good to have my mind back!!! Dr told me starting neurontin would be

rough, but I sure didnt expect it to take the toll it did. I can hardly

remember several days. Yuck!!!!! *-)

[Guest guest]

Eileen,

I'm sure you know that you do not always see the tick. they are so small and

can hide cause the harm and fall off. I have not seen all of mine because i

cannot see my back etc.

i'm sorry you have lyme..It is not a pleasant thing to have from what i can

gather from this group.

I wish you good luck..It was just one way as was stated by someone else in

the group to maybe tell the difference between Fibro and Lyme..

Thank you for your response.

Jo-Am

[Guest guest]

Dear Jo-Ann,

Just another way of looking at things--I have Lyme disease and I never saw a

tick. I

was told I had Lyme disease by a Lyme-illiterate doctor--it was too obvious and

my lab

test was positive. Where was my tick?

Eileen, NJ

[Guest guest]

I know for sure when I was taking Zithromax, not only did I start feeling

better, but that the symptoms of fibro are much pronounced. If fibro is

indeed a separate illness, then the Zithromax wouldnt have made a dent.

Too bad I had to go off Zithromax last week because of severe side effects. I

was feeling better than I have felt in the last six years.

elizabeth

[Guest guest]

Hi, Joanne and others, In answer to your question (have I ever considered

that I have both [fibro and lyme]?}, ironically, when my dr. told me I had

lyme, I ASSUMED I had both. At our next appointment he explained that his

diagnosis is that it has been Lyme all along (for 6 years). The good news

for me is that he is optimistic that I can get back as much as 85 -90% of my

health after the required years-long abx treatment. So, I actually felt

relieved about the Lyme dx -- at least there is some hope out there that the

little nasties can be killed off. I too have often shaken my head in wonder

that I have (or thought I had) the two most " fashionable " and controversial

diagnoses going. I long for some straightforward, easily diagnosed and

treated (and accepted by insurance co.'s and SSDI) ailment, if one we have to

have an ailment at all! So, you are right -- we are all in the same boat,

just perhaps using different oars. Best to all, Charlotte

[Guest guest]

Thanks Charlotte.

Hope things go better for you.

Jo-Ann

[Guest guest]

Hey Y'all, I dont agree with someone 'telling' Jo-Ann to quit this list,

she has every right to be here as we do. As to who 'owns' this list, poor

girl is in a catch 22, darned if she does and darned if she doesnt. And as

for me, I cant grasp why I am the one being ignored by you Jo-ann, what

about the many other people who said the exact same thing as I did? That

does not make sense, but oh well. At least I can be happy in the fact that I

know I am right, many people here and many Drs have all said the same thing.

Pepi