Re: Elevated thyroid antibodies/lyme association?

[Guest guest]

, you have brought up a good point and now you have me wondering. I

was diagnosed with Lyme back in 1998 and they said that it was gone,

although I still had one band turn up positive. I still can't explain why

my legs,

and my joints ache and swell. Then I was diagnosed with a Hypothyroid last

year. My level was like 8.25 and now they say its normal, but sometimes I

still feel tired.

[Guest guest]

Sorry, this was from Anne

> ------

>

> , you have brought up a good point and now you have me wondering.

> I was diagnosed with Lyme back in 1998 and they said that it was gone,

> although I still had one band turn up positive. I still can't explain why

> my legs,

> and my joints ache and swell. Then I was diagnosed with a Hypothyroid

> last year. My level was like 8.25 and now they say its normal, but

> sometimes I still feel tired.

>

>

>

[Guest guest]

Dear ,

Seeems to me that in old lyme-aid posts (perhaps up to 1 yr ago - you

can search by topic at , then mygroups, then lyme-aid -

a search box should appear on the right...) on some thyroid value

that is not usually tested for, which could be or has been linked to

lyme involvement... Sorry I can't be more helpful - we haven't

suffered the thyroid route yet... Just barely remember skimming

info...

Hope this is helpful!

Blessings,

Chris

> Hi. I had test results saying I have elevated thyroid antibodies,

and

> the beginning of elevated TSH. I thought I saw somewhere that lyme

> can cause this elevation, and that after treatment it returned to

> normal. Anyone have info on this? I am supposed to goto an

> endochrinologist today to check my thyroid out.

> Thanks for any info/pages etc.

> -

[Guest guest]

--

,

Yes, my endocrinologist said that it was imperative to get rid of the

Lyme or it would continue to attack the thyroid. My antibodies were

markedly high (in the seven hundreds) yet the thyroid function tests

were normal for several years even when I subsequently developed a

goiter! Maybe it was because I was too tired to have the blood work

done when I was at my low points and the thyroid was still

fluctuating. Anyway, in retrospect, when people are offered

replacement therapy because of high antibodies I would strongly

recommend accepting. Also I think that it is essential to replace

both thyroid hormones not just the usual one. This is now more

generally understood since an article was published in The NEW

ENGLAND JOURNAL OF MEDICINE to the effect that patients do better

cognitively, and in terms of energy and mod. I do well taking

separate pills (cytomel and levoxyl) but the combination of the two

hormones is also available together. Good luck. cws

- In @y..., pttllc@a... wrote:

> Hi. I had test results saying I have elevated thyroid antibodies,

and

> the beginning of elevated TSH. I thought I saw somewhere that lyme

> can cause this elevation, and that after treatment it returned to

> normal. Anyone have info on this? I am supposed to goto an

> endochrinologist today to check my thyroid out.

> Thanks for any info/pages etc.

> -

[Guest guest]

They usually associate hypothyroidism with lyme Iknow alot of people are on Armour a natural form of thyroid.

FrancineNJ

[Guest guest]

CWS, or anyone, what's the name of the article & how can I get a hold

of it? Dave's thyroid tests (had several kinds done) are always

normal but it's always suspected as being off, so I wonder if there's

something new I can show his doc to consider... TIA, Merry :-)

This is now more

> generally understood since an article was published in The NEW

> ENGLAND JOURNAL OF MEDICINE to the effect that patients do better

> cognitively, and in terms of energy and mod

[Guest guest]

Merry, I will try to get the reference for you from the NEJM by

tomorrow. My other recommendation is to observe how Dave tolerates

soy products. Thyroid patients are generally supposed to be able to

handle one serving a day without interference with thyroid function,

but I find that I am extremely sensitive to small amounts. I become

profoundly fatigued and my thyroid swells sometimes from eating it. I

understand that I am not alone in having this reaction. Sometimes

patients are put on thyroid replacement even when their tests fall

into normal range. If thyroid antibodies are found, the supposition

is that the thyroid is being destroyed and eventually replacement

hormones will have to be used. The question is when to begin. I

delayed because I had palpitations even with small amounts so I

assumed that I didn't need to replace at that time. I was also

concerned about osteoporosis if I became hyperthyroid as a result.

But I suffered a lot from not beginning the meds until I did. When I

did finally start, the palpitations seemed to be just something I had

to tolerate until my body adjusted to the med. They lasted at most a

few weeks. cws

> CWS, or anyone, what's the name of the article & how can I get a

hold

> of it? Dave's thyroid tests (had several kinds done) are always

> normal but it's always suspected as being off, so I wonder if

there's

> something new I can show his doc to consider... TIA, Merry :-)

>

> This is now more

> > generally understood since an article was published in The NEW

> > ENGLAND JOURNAL OF MEDICINE to the effect that patients do better

> > cognitively, and in terms of energy and mod

[Guest guest]

-Merry, Please see post #32398 entitled " Article on Replacing Both

Thyroid Hormones " for the information you requested. It is actually

just the abstract, but the full article can be ordered. cws

-- In @y..., cws3333@a... wrote:

>

> Merry, I will try to get the reference for you from the NEJM by

> tomorrow. My other recommendation is to observe how Dave tolerates

> soy products. Thyroid patients are generally supposed to be able

to

> handle one serving a day without interference with thyroid

function,

> but I find that I am extremely sensitive to small amounts. I become

> profoundly fatigued and my thyroid swells sometimes from eating it.

I

> understand that I am not alone in having this reaction. Sometimes

> patients are put on thyroid replacement even when their tests fall

> into normal range. If thyroid antibodies are found, the supposition

> is that the thyroid is being destroyed and eventually replacement

> hormones will have to be used. The question is when to begin. I

> delayed because I had palpitations even with small amounts so I

> assumed that I didn't need to replace at that time. I was also

> concerned about osteoporosis if I became hyperthyroid as a result.

> But I suffered a lot from not beginning the meds until I did. When

I

> did finally start, the palpitations seemed to be just something I

had

> to tolerate until my body adjusted to the med. They lasted at most

a

> few weeks. cws

>

>

> > CWS, or anyone, what's the name of the article & how can I get a

> hold

> > of it? Dave's thyroid tests (had several kinds done) are always

> > normal but it's always suspected as being off, so I wonder if

> there's

> > something new I can show his doc to consider... TIA, Merry :-)

> >

> > This is now more

> > > generally understood since an article was published in The NEW

> > > ENGLAND JOURNAL OF MEDICINE to the effect that patients do

better

> > > cognitively, and in terms of energy and mod

[Guest guest]

I don't want to boast but I just got the results of some blood tests I had

done and my thyroid abs are right down which is really good news. It means

that what looked like an autoimmune reaction that would eventually have

destroyed my thyroid has actually been arrested by treatment (abx, that's

all I do).

I had one test done in Australia 2 years ago and it said my antibodies to

thyroid were 1:1600 when it shouldn't be higher than 1:100 (that's a titer),

and TSH was on the high side.

Then I had the same thing measured in France last year and they did it very

differently: they broke the abs down into anti-thyroglobulin,

anti-thyroperoxydase and TSH anti receptors. They didn't give me proper

values for the anti-thyroglobulin and TSH anti receptors they just stated

that they were OK (ie not high), but I was over the limit for

anti-thyroperoxydase (294U/ml when their stated upper limit was 200), so

about a year ago something was still going on.

Now here are my figure for anti-thyroperoxydase this time: 13U/ml. The range

in this particular lab is different since their upper limit is not 200 but

50, but still it means I am way below the limit!

This is really good as it is yet another confirmation that this seemingly

autoimmune process that was taking place in my thyroid could be arrested

with treating the Lyme. As my T3 and T4 had never dropped dramatically

(although at one point in 97 before dx and tx they were getting to be on the

low side) I think I will pbly get away with not taking any thyroid

supplements.

I just wonder how many people who get a dx of some form of autoimmune

disorder get investigated for our kind of chronic infections? (this is a

rhetorical question, people, no need to count them, except it would most

pbly not take that long!). Why can't doctors ever go beyond the very flawed

functioning of SYMPTOMS => PALLIATIVE TREATMENT TO COVER UP THE SYMPTOM and

only very rarely try and UNDERSTAND what could be going on?

This whole area of autoimmunity is so badly understood, and I am convinced a

great many so called autoimmune illnesses are in fact chronic intracellular

infections. And what do mindless doctors do? Give people steroids to

suppress the symptoms! Doing this without further investigating the CAUSE of

the autoimmune reaction is borderline criminal, IMHO.

Nelly (in France)

[ ] Re: Elevated thyroid antibodies/lyme association?

> -Merry, Please see post #32398 entitled " Article on Replacing Both

> Thyroid Hormones " for the information you requested. It is actually

> just the abstract, but the full article can be ordered. cws

>

>

> -- In @y..., cws3333@a... wrote:

> >

> > Merry, I will try to get the reference for you from the NEJM by

> > tomorrow. My other recommendation is to observe how Dave tolerates

> > soy products. Thyroid patients are generally supposed to be able

> to

> > handle one serving a day without interference with thyroid

> function,

> > but I find that I am extremely sensitive to small amounts. I become

> > profoundly fatigued and my thyroid swells sometimes from eating it.

> I

> > understand that I am not alone in having this reaction. Sometimes

> > patients are put on thyroid replacement even when their tests fall

> > into normal range. If thyroid antibodies are found, the supposition

> > is that the thyroid is being destroyed and eventually replacement

> > hormones will have to be used. The question is when to begin. I

> > delayed because I had palpitations even with small amounts so I

> > assumed that I didn't need to replace at that time. I was also

> > concerned about osteoporosis if I became hyperthyroid as a result.

> > But I suffered a lot from not beginning the meds until I did. When

> I

> > did finally start, the palpitations seemed to be just something I

> had

> > to tolerate until my body adjusted to the med. They lasted at most

> a

> > few weeks. cws

> >

> >

> > > CWS, or anyone, what's the name of the article & how can I get a

> > hold

> > > of it? Dave's thyroid tests (had several kinds done) are always

> > > normal but it's always suspected as being off, so I wonder if

> > there's

> > > something new I can show his doc to consider... TIA, Merry :-)

> > >

> > > This is now more

> > > > generally understood since an article was published in The NEW

> > > > ENGLAND JOURNAL OF MEDICINE to the effect that patients do

> better

> > > > cognitively, and in terms of energy and mod

>

>

>

> Welcome to

>

> Easy Reference:

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> /chat

>

>

[Guest guest]

-

Nelly, This is fascinating. cws

-- In @y..., " Nelly Pointis " <janel@p...> wrote:

> I don't want to boast but I just got the results of some blood

tests I had

> done and my thyroid abs are right down which is really good news.

It means

> that what looked like an autoimmune reaction that would eventually

have

> destroyed my thyroid has actually been arrested by treatment (abx,

that's

> all I do).

>

> I had one test done in Australia 2 years ago and it said my

antibodies to

> thyroid were 1:1600 when it shouldn't be higher than 1:100 (that's

a titer),

> and TSH was on the high side.

> Then I had the same thing measured in France last year and they did

it very

> differently: they broke the abs down into anti-thyroglobulin,

> anti-thyroperoxydase and TSH anti receptors. They didn't give me

proper

> values for the anti-thyroglobulin and TSH anti receptors they just

stated

> that they were OK (ie not high), but I was over the limit for

> anti-thyroperoxydase (294U/ml when their stated upper limit was

200), so

> about a year ago something was still going on.

> Now here are my figure for anti-thyroperoxydase this time: 13U/ml.

The range

> in this particular lab is different since their upper limit is not

200 but

> 50, but still it means I am way below the limit!

> This is really good as it is yet another confirmation that this

seemingly

> autoimmune process that was taking place in my thyroid could be

arrested

> with treating the Lyme. As my T3 and T4 had never dropped

dramatically

> (although at one point in 97 before dx and tx they were getting to

be on the

> low side) I think I will pbly get away with not taking any thyroid

> supplements.

> I just wonder how many people who get a dx of some form of

autoimmune

> disorder get investigated for our kind of chronic infections? (this

is a

> rhetorical question, people, no need to count them, except it would

most

> pbly not take that long!). Why can't doctors ever go beyond the

very flawed

> functioning of SYMPTOMS => PALLIATIVE TREATMENT TO COVER UP THE

SYMPTOM and

> only very rarely try and UNDERSTAND what could be going on?

> This whole area of autoimmunity is so badly understood, and I am

convinced a

> great many so called autoimmune illnesses are in fact chronic

intracellular

> infections. And what do mindless doctors do? Give people steroids to

> suppress the symptoms! Doing this without further investigating the

CAUSE of

> the autoimmune reaction is borderline criminal, IMHO.

>

> Nelly (in France)

>

> [ ] Re: Elevated thyroid antibodies/lyme

association?

>

>

> > -Merry, Please see post #32398 entitled " Article on Replacing

Both

> > Thyroid Hormones " for the information you requested. It is

actually

> > just the abstract, but the full article can be ordered. cws

> >

> >

> > -- In @y..., cws3333@a... wrote:

> > >

> > > Merry, I will try to get the reference for you from the NEJM by

> > > tomorrow. My other recommendation is to observe how Dave

tolerates

> > > soy products. Thyroid patients are generally supposed to be

able

> > to

> > > handle one serving a day without interference with thyroid

> > function,

> > > but I find that I am extremely sensitive to small amounts. I

become

> > > profoundly fatigued and my thyroid swells sometimes from eating

it.

> > I

> > > understand that I am not alone in having this reaction.

Sometimes

> > > patients are put on thyroid replacement even when their tests

fall

> > > into normal range. If thyroid antibodies are found, the

supposition

> > > is that the thyroid is being destroyed and eventually

replacement

> > > hormones will have to be used. The question is when to begin.

I

> > > delayed because I had palpitations even with small amounts so I

> > > assumed that I didn't need to replace at that time. I was also

> > > concerned about osteoporosis if I became hyperthyroid as a

result.

> > > But I suffered a lot from not beginning the meds until I did.

When

> > I

> > > did finally start, the palpitations seemed to be just something

I

> > had

> > > to tolerate until my body adjusted to the med. They lasted at

most

> > a

> > > few weeks. cws

> > >

> > >

> > > > CWS, or anyone, what's the name of the article & how can I

get a

> > > hold

> > > > of it? Dave's thyroid tests (had several kinds done) are

always

> > > > normal but it's always suspected as being off, so I wonder if

> > > there's

> > > > something new I can show his doc to consider... TIA,

Merry :-)

> > > >

> > > > This is now more

> > > > > generally understood since an article was published in The

NEW

> > > > > ENGLAND JOURNAL OF MEDICINE to the effect that patients do

> > better

> > > > > cognitively, and in terms of energy and mod

> >

> >

> >

> > Welcome to

> >

> > Easy Reference:

> > Send a blank email message to:

> >

> > -Unsubscribe@Y... - Unsubscribe from the list

> > -Digest@Y... - Switch your subscription to a digest

> format

> > -Normal@Y... - Switch your subscription to normal

> >

> > Please send messages not related to Lyme disease (this includes

humor and

> information about other diseases) to -Offtopic@Y...

> >

> > The archives can be accessed at

> >

> > The chat room is always open!

> > /chat

> >

> >