Hi, I am new to this group

[Guest guest]

Hi everyone, I am new here. I don't know if i am supposed to or not,

but I guess I will start with my story..so you can get to know me.

I live in Nj and at the end of November I was bitten by a tick. I

didn't know how to remove ticks and it was in an awkward place, so it

took quite a few yanks to pull it out. The site immediately burned

and throbbed. I went to my gp to have it documented and checked out.

I was sent home saying the reaction is like when a mosquito bites you

and to watch for a rash.

The rash never came, but two weeks later i had a sore throat..didn't

think anything of it. Then i had left side facial numbness..which

scared me so i hopped onto the internet to see what i could find. LD

came up and it made me think. My dog had already been diagnosed and

treated so i know it is in my back yard.

So i went to my gp again. I told the nurse what was going on and what

my thoughts on it. I was admonished for going on the internet< " there

is such a thing as too much information!!! " > She told me she gets

hysterical people. I simply told her i am not hysterical i am telling

you what i think. She then told me lyme does not happen that fast

anyhow and to let the dr's and nurses worry about it. This of course

made me angry..of course I am going to worry about it, it is my

health!

So i saw my gp..told her the same thing i told the nurse plus about

my dog..She went ahead and gave me amoxicillin for 28 days.

Two weeks into the amox, i had an onslaught of symptoms. Back and

neck burning, tingly legs and arms, numb legs that won't work, numb

scalp, tingly jaw, travelling pain, had a fog episode, i couldn't

talk on some mornings becuz i would forget what i was saying, total

body pain, depression etc. You all know the drill.

I believe this was me herxing. Meanwhile i went to see a LLMD that

someone had emailed me. What i found out is this person only treats

if you pull a positive pcr and only treats with iv. The told me from

the size of the tick i described<i said it was bigger than a

period<.>> there was no way it could be lyme and not to take anymore

antibiotics after the amox..i shouldn't do that to myself..I had two

pcrs which were of course negative. They probably told me no meds so

they could try and get a pos pcr...for a doctor that thinks there is

no way i have lyme, he wanted me to come back every two weeks to get

tested.

Anyhow, toward the end of the amox , i was feeling great. Two weeks

after the amox was done, all the symptoms came rushing back. I talked

to my gp who would not give me anymore meds. She wanted me to come in

and have a urine test done becuz my back was my chief complaint.

So went through a couple weeks feeling horrible..and got to the point

where i couldn't even drive. Luckily i got sick on top of it with

some kind of chest cold<don't think it was related but maybe> I

called my gp told her my symptoms and she called in biaxin without

even seeing me ...10 days. I also called my allergist thinking i

could get him to prescribe if he thought was a sinus infection..which

it could have been. He called in 10 days of augmentin without seeing

me. I started the biaxin<have taken it before and tolerated it> On my

second pill, three hours later, i started shaking uncontrollably, my

legs went numb and i had a buring sensation in my back. It scared me

and i didn't think herx. I called my doc who told me to stop taking .

He said he didn't know what was going on becuz that wasn't an

allergic reaction. So i realized what it was.

I started taking it again. The third pill i had a little one 4 hours

later, my back burned and my jaw went tingly as did my scalp. Then it

was over..I am still taking it now, and seem to be doing well with

it.

I have a wonderful online contact who has helped me through this with

her education about lyme. I am in the process of finding an LLMD,

becuz i am not sure if twenty days of meds plus the 28 i already took

will be enough. I have had problems in the past, some similar

symptoms, so the more i learn the more i wonder if i already had ld

and this bite sent into haywire. I have taken quite a few antibiotics

in my life, so maybe it helped if i had it before so it never got

this bad. I am having trouble finding someone to help me. I do want

to try to stay in my insurance, tho i know finding a doc that will

treat who takes insurance is hard. I cannot afford to pay out of

pocket right now..

So that is where i am now , i am looking forward to becoming a part

of this group. Support is a wonderful thing..

[Guest guest]

Jenne-

Have I talked with you before??? I have wonderful info for you and I, too, am

from NJ. I am SURE I can. Plz e-mail me privately though.

sue in nj

[Guest guest]

In a message dated 2/2/2001 10:16:09 AM Eastern Standard Time, jenne3@... writes:

On my second pill, three hours later, i started shaking uncontrollably, my legs went numb and i had a buring sensation in my back. It scared me and i didn't think herx. I called my doc who told me to stop taking . He said he didn't know what was going on becuz that wasn't an allergic reaction. So i realized what it was.

I started taking it again. The third pill i had a little one 4 hours later, my back burned and my jaw went tingly as did my scalp. Then it was over..I am still taking it now, and seem to be doing well with it.

Dear Jenn,

I just wanted to say that what you report was almost exactly what I experienced from my IV antibiotic once.

At the time I didn't realize that the ABX was causing the reaction, had no idea what was happening, for, if I did, I would have stopped the infusion immediately.

I had uncontrollable chills & shaking for hours, plus all the other stuff you described. Plus, in my case, I had Sciatic-like, electric-shock-like, nerve pains running all the way from my pelvis & hips down the back of both legs to the bottoms of my feet. It felt like I kept getting electrocuted & burned.

It was definitely the IV, as when I tried to infuse again, after it subsided, it took only a few seconds of infusing before all these symptoms started again.

Interestingly, altho I thought it was an allergic reaction, it wasn't. I'm not sure what it was, but by taking one Xanax tablet each day, I am able to continue infusing every day, with few side effects.

Hope it helps for you to know that someone else had the same reaction.

Reading what happened to you somehow made me feel better, that I wan't imagining any of it.

Hugs,

a Aida in NJ

[Guest guest]

Thanks a! It absolutely makes me feel better! I knew it

couldn't have been an allergic reaction since i had taken it before

with no probs. Plus i am a veteran of allergies!

I get so excited when someone else says..hey that happened to me

too..you should see me..I would do a jig if i had the energy:)

Thanks again roberta!

Jenn Nj

- In @y..., GOODGIRL95@a... wrote:

> In a message dated 2/2/2001 10:16:09 AM Eastern Standard Time,

> jenne3@g... writes:

>

>

> > On my

> > second pill, three hours later, i started shaking uncontrollably,

my

> > legs went numb and i had a buring sensation in my back. It scared

me

> > and i didn't think herx. I called my doc who told me to stop

taking .

> > He said he didn't know what was going on becuz that wasn't an

> > allergic reaction. So i realized what it was.

> >

> > I started taking it again. The third pill i had a little one 4

hours

> > later, my back burned and my jaw went tingly as did my scalp.

Then it

> > was over..I am still taking it now, and seem to be doing well

with

> > it.

> >

> Dear Jenn,

>

> I just wanted to say that what you report was almost exactly what I

> experienced from my IV antibiotic once.

> At the time I didn't realize that the ABX was causing the reaction,

had no

> idea what was happening, for, if I did, I would have stopped the

infusion

> immediately.

> I had uncontrollable chills & shaking for hours, plus all the other

stuff you

> described. Plus, in my case, I had Sciatic-like, electric-shock-

like, nerve

> pains running all the way from my pelvis & hips down the back of

both legs to

> the bottoms of my feet. It felt like I kept getting electrocuted &

burned.

> It was definitely the IV, as when I tried to infuse again, after it

subsided,

> it took only a few seconds of infusing before all these symptoms

started

> again.

> Interestingly, altho I thought it was an allergic reaction, it

wasn't. I'm

> not sure what it was, but by taking one Xanax tablet each day, I am

able to

> continue infusing every day, with few side effects.

>

> Hope it helps for you to know that someone else had the same

reaction.

> Reading what happened to you somehow made me feel better, that I

wan't

> imagining any of it.

>

> Hugs,

> a Aida in NJ