Guest guest Posted August 16, 2006 Report Share Posted August 16, 2006 When I think of me, and how I must look. If you were to look at me you would think nothing was wrong with me. I wish there was way to make people understand if once I go in to the store do my shopping by the time I get home unload my grocerys put them away. I am beat. That is all I can accomplish on that day. Being able to park at little closer to the door just gives me that little bit more that I can do for that day. If it makes a difference at all. Becky Watkins <becky.rebecca.watkins1@...> wrote: Hi , We have that problem in the UK as well. Able bodied people parking in disabled places. It is very annoying. I try not to judge at first glance though coz a lot of disabilities are invisible and just because they don't have a mobility aid doesn't mean to say they're not disabled. However, I know of the sort you mean when its obvious they don't have a disability and they are using up a place that a disabled person might really need. Luv Becky xxx ----- Original Message ----- From: Rheumatoid Arthritis Sent: Wednesday, August 16, 2006 7:47 PM Subject: Re: Question about Pain Yes my sister called the Detroit Zoo and they do have the motorized scooters you can rent for $20. I feel kinda silly because this is a disease people cant see and probably will think I'm just fat and lazy. I feel like I need to wear a sign. I HAVE RHEUMATIOD ARTHRITIS !!! Sad but thats how I feel sometimes. I have a handicap parking sign and I feel strange using it too. Sometimes I look at young people pulling up to a handicap parking spot with their music blaring and looking normal and wonder myself why they are parking there when they seem like they are fine. Ardeith <ardeith3oaks> wrote: wrote: Does anybody else get body aches? It almostfeels like when I get the flu. My whole body hurts and aches with hot and cold chills sometimes. Ardeith writes: No, I don't have that sort of pain except when I actually have the flu. I'm assuming your doctor has checked for all sorts of low level infections? Deposits around my joints irritate the tendons and I feel the ache in the muscles attached to the tendons....but it's not a body ache like you've described......... wrote: Please let me know if these are normal symptoms of RA. Ardeith writes: What is "normal" for one person is not for another..... someone on this list has a text about the general symptoms of RA.... maybe it could be posted again? wrote: We have plans to go to the zoo next week and I just dont know if I will beable to do all that walking and standing. Ardeith writes: The zoo nearest to me, in Tampa, has motorized chairs for those who need them.....they charge a small fee to use them, but it's much better than trying to do all that walking and standing. Check it out. Or maybe you could rent one from some rental company for just a couple of days? Stay in the know. Pulse on the new .com. Check it out. No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.11.1/421 - Release Date: 16/08/2006 Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2006 Report Share Posted August 16, 2006 Hi, I have RA, but from far away and actually close up you would not be able to tell! I have handicap parking. I have had people ask me why! So rude!-I hate when I need to go somewhere but can not get parking. i wish the police would be more aware that this is such a problem in the US! -- In Rheumatoid Arthritis , " Becky Watkins " <becky.rebecca.watkins1@...> wrote: > > Hi , > > We have that problem in the UK as well. Able bodied people parking in disabled places. It is very annoying. I try not to judge at first glance though coz a lot of disabilities are invisible and just because they don't have a mobility aid doesn't mean to say they're not disabled. However, I know of the sort you mean when its obvious they don't have a disability and they are using up a place that a disabled person might really need. > > > Luv > > Becky > xxx > ----- Original Message ----- > From: > Rheumatoid Arthritis > Sent: Wednesday, August 16, 2006 7:47 PM > Subject: Re: Question about Pain > > > > Yes my sister called the Detroit Zoo and they do have the motorized scooters you can rent for $20. I feel kinda silly because this is a disease people cant see and probably will think I'm just fat and lazy. I feel like I need to wear a sign. I HAVE RHEUMATIOD ARTHRITIS !!! Sad but thats how I feel sometimes. I have a handicap parking sign and I feel strange using it too. Sometimes I look at young people pulling up to a handicap parking spot with their music blaring and looking normal and wonder myself why they are parking there when they seem like they are fine. > > > Ardeith <ardeith@...> wrote: > wrote: Does anybody else get body aches? It almostfeels like when I get the flu. My whole body hurts and aches with hot and cold chills sometimes. > > Ardeith writes: No, I don't have that sort of pain except when I actually have the flu. I'm assuming your doctor has checked for all sorts of low level infections? Deposits around my joints irritate the tendons and I feel the ache in the muscles attached to the tendons....but it's not a body ache like you've described......... > > wrote: Please let me know if these are normal symptoms of RA. > > Ardeith writes: What is " normal " for one person is not for another..... someone on this list has a text about the general symptoms of RA.... maybe it could be posted again? > > wrote: We have plans to go to the zoo next week and I just dont know if I will beable to do all that walking and standing. > > Ardeith writes: The zoo nearest to me, in Tampa, has motorized chairs for those who need them.....they charge a small fee to use them, but it's much better than trying to do all that walking and standing. Check it out. Or maybe you could rent one from some rental company for just a couple of days? > > > > > > > ------------------------------------------------------------------- ----------- > Stay in the know. Pulse on the new .com. Check it out. > > > > > ------------------------------------------------------------------- ----------- > > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.1.405 / Virus Database: 268.11.1/421 - Release Date: 16/08/2006 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2006 Report Share Posted August 16, 2006 Hi , Invisible disability can sometimes be the worst. I feel very vulnerable without my walking aids. I'm not using them as an "emotional crutch" as PF my cpn says but they are a great help when feeling so physically rough. I know what you mean about fatigue though. I'm glad you're able to park in disabled spaces so you are nearer to the door. Luv Becky xxx ----- Original Message ----- From: Rheumatoid Arthritis Sent: Wednesday, August 16, 2006 8:48 PM Subject: Re: Disabled parking spaces When I think of me, and how I must look. If you were to look at me you would think nothing was wrong with me. I wish there was way to make people understand if once I go in to the store do my shopping by the time I get home unload my grocerys put them away. I am beat. That is all I can accomplish on that day. Being able to park at little closer to the door just gives me that little bit more that I can do for that day. If it makes a difference at all. Becky Watkins <becky.rebecca.watkins1btinternet> wrote: Hi , We have that problem in the UK as well. Able bodied people parking in diabled places. It is very annoying. I try not to judge at first glance though coz a lot of disabilities are invisible and just because they don't have a mobility aid doesn't mean to say they're not disabled. However, I know of the sort you mean when its obvious they don't have a disability and they are using up a place that a disabled person might really need. Luv Becky xxx ----- Original Message ----- From: Rheumatoid Arthritis Sent: Wednesday, August 16, 2006 7:47 PM Subject: Re: Question about Pain Yes my sister called the Detroit Zoo and they do have the motorized scooters you can rent for $20. I feel kinda silly because this is a disease people cant see and probably will think I'm just fat and lazy. I feel like I need to wear a sign. I HAVE RHEUMATIOD ARTHRITIS !!! Sad but thats how I feel sometimes. I have a handicap parking sign and I feel strange using it too. Sometimes I look at young people pulling up to a handicap parking spot with their music blaring and looking normal and wonder myself why they are parking there when they seem like they are fine. Ardeith <ardeith3oaks> wrote: wrote: Does anybody else get body aches? It almostfeels like when I get the flu. My whole body hurts and aches with hot and cold chills sometimes. Ardeith writes: No, I don't have that sort of pain except when I actually have the flu. I'm assuming your doctor has checked for all sorts of low level infections? Deposits around my joints irritate the tendons and I feel the ache in the muscles attached to the tendons....but it's not a body ache like you've described......... wrote: Please let me know if these are normal symptoms of RA. Ardeith writes: What is "normal" for one person is not for another..... someone on this list has a text about the general symptoms of RA.... maybe it could be posted again? wrote: We have plans to go to the zoo next week and I just dont know if I will beable to do all that walking and standing. Ardeith writes: The zoo nearest to me, in Tampa, has motorized chairs for those who need them.....they charge a small fee to use them, but it's much better than trying to do all that walking and standing. Check it out. Or maybe you could rent one from some rental company for just a couple of days? Stay in the know. Pulse on the new .com. Check it out. No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.11.1/421 - Release Date: 16/08/2006 Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.11.1/421 - Release Date: 16/08/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2006 Report Share Posted August 16, 2006 Hiya, Agreed. I think that with this illness most of it is invisible and people do not realize that. Just coz we look normal doesn't mean to say we don't have problems. People shouldn't judge without first realizing that just coz someone's not in a wheelchair doesn't mean to say they're not disabled. Luv Becky xxx ----- Original Message ----- From: nygnut2004 Rheumatoid Arthritis Sent: Wednesday, August 16, 2006 9:24 PM Subject: Re: Disabled parking spaces Hi,I have RA, but from far away and actually close up you would not be able to tell! I have handicap parking. I have had people ask me why! So rude!-I hate when I need to go somewhere but can not get parking. i wish the police would be more aware that this is such a problem in the US!-- In Rheumatoid Arthritis , "Becky Watkins" <becky.rebecca.watkins1@...> wrote:>> Hi ,> > We have that problem in the UK as well. Able bodied people parking in disabled places. It is very annoying. I try not to judge at first glance though coz a lot of disabilities are invisible and just because they don't have a mobility aid doesn't mean to say they're not disabled. However, I know of the sort you mean when its obvious they don't have a disability and they are using up a place that a disabled person might really need.> > > Luv> > Becky> xxx> ----- Original Message ----- > From: > Rheumatoid Arthritis > Sent: Wednesday, August 16, 2006 7:47 PM> Subject: Re: Question about Pain> > > > Yes my sister called the Detroit Zoo and they do have the motorized scooters you can rent for $20. I feel kinda silly because this is a disease people cant see and probably will think I'm just fat and lazy. I feel like I need to wear a sign. I HAVE RHEUMATIOD ARTHRITIS !!! Sad but thats how I feel sometimes. I have a handicap parking sign and I feel strange using it too. Sometimes I look at young people pulling up to a handicap parking spot with their music blaring and looking normal and wonder myself why they are parking there when they seem like they are fine. > > > Ardeith <ardeith@...> wrote:> wrote: Does anybody else get body aches? It almostfeels like when I get the flu. My whole body hurts and aches with hot and cold chills sometimes. > > Ardeith writes: No, I don't have that sort of pain except when I actually have the flu. I'm assuming your doctor has checked for all sorts of low level infections? Deposits around my joints irritate the tendons and I feel the ache in the muscles attached to the tendons....but it's not a body ache like you've described.........> > wrote: Please let me know if these are normal symptoms of RA. > > Ardeith writes: What is "normal" for one person is not for another..... someone on this list has a text about the general symptoms of RA.... maybe it could be posted again?> > wrote: We have plans to go to the zoo next week and I just dont know if I will beable to do all that walking and standing.> > Ardeith writes: The zoo nearest to me, in Tampa, has motorized chairs for those who need them.....they charge a small fee to use them, but it's much better than trying to do all that walking and standing. Check it out. Or maybe you could rent one from some rental company for just a couple of days?> > > > > > > ---------------------------------------------------------------------> Stay in the know. Pulse on the new .com. Check it out. > > > > > ---------------------------------------------------------------------> > > No virus found in this incoming message.> Checked by AVG Free Edition.> Version: 7.1.405 / Virus Database: 268.11.1/421 - Release Date: 16/08/2006> No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.11.1/421 - Release Date: 16/08/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2006 Report Share Posted August 16, 2006 I understand that I cannont even do that now . john <angelac71@...> wrote: When I think of me, and how I must look. If you were to look at me you would think nothing was wrong with me. I wish there was way to make people understand if once I go in to the store do my shopping by the time I get home unload my grocerys put them away. I am beat. That is all I can accomplish on that day. Being able to park at little closer to the door just gives me that little bit more that I can do for that day. If it makes a difference at all. Becky Watkins <becky.rebecca.watkins1btinternet> wrote: Hi , We have that problem in the UK as well. Able bodied people parking in disabled places. It is very annoying. I try not to judge at first glance though coz a lot of disabilities are invisible and just because they don't have a mobility aid doesn't mean to say they're not disabled. However, I know of the sort you mean when its obvious they don't have a disability and they are using up a place that a disabled person might really need. Luv Becky xxx ----- Original Message ----- From: Rheumatoid Arthritis Sent: Wednesday, August 16, 2006 7:47 PM Subject: Re: Question about Pain Yes my sister called the Detroit Zoo and they do have the motorized scooters you can rent for $20. I feel kinda silly because this is a disease people cant see and probably will think I'm just fat and lazy. I feel like I need to wear a sign. I HAVE RHEUMATIOD ARTHRITIS !!! Sad but thats how I feel sometimes. I have a handicap parking sign and I feel strange using it too. Sometimes I look at young people pulling up to a handicap parking spot with their music blaring and looking normal and wonder myself why they are parking there when they seem like they are fine. Ardeith <ardeith3oaks> wrote: wrote: Does anybody else get body aches? It almostfeels like when I get the flu. My whole body hurts and aches with hot and cold chills sometimes. Ardeith writes: No, I don't have that sort of pain except when I actually have the flu. I'm assuming your doctor has checked for all sorts of low level infections? Deposits around my joints irritate the tendons and I feel the ache in the muscles attached to the tendons....but it's not a body ache like you've described......... wrote: Please let me know if these are normal symptoms of RA. Ardeith writes: What is "normal" for one person is not for another..... someone on this list has a text about the general symptoms of RA.... maybe it could be posted again? wrote: We have plans to go to the zoo next week and I just dont know if I will beable to do all that walking and standing. Ardeith writes: The zoo nearest to me, in Tampa, has motorized chairs for those who need them.....they charge a small fee to use them, but it's much better than trying to do all that walking and standing. Check it out. Or maybe you could rent one from some rental company for just a couple of days? Stay in the know. Pulse on the new .com. Check it out. No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.11.1/421 - Release Date: 16/08/2006 Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2006 Report Share Posted August 16, 2006 Spoon Theory – explaining RA to others http://www.butyoudontlooksick.com/spoons.htm Speaking of invisible disability reminded me of the link above that is useful for explaining how RA affects many people. God bless. From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of Becky Watkins Sent: Wednesday, August 16, 2006 1:48 PM Rheumatoid Arthritis Subject: Re: Disabled parking spaces Hi , Invisible disability can sometimes be the worst. I feel very vulnerable without my walking aids. I'm not using them as an " emotional crutch " as PF my cpn says but they are a great help when feeling so physically rough. I know what you mean about fatigue though. I'm glad you're able to park in disabled spaces so you are nearer to the door. Luv Becky xxx _._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2006 Report Share Posted August 17, 2006 Spoon Theory: That was so powerfull! I have RA and totaly understand what see was saying. I feel everything she feels. I think that anyone that knows anyone that has a Chronic Illness should read this! > > Spoon Theory - explaining RA to others > > http://www.butyoudontlooksick.com/spoons.htm > > > > Speaking of invisible disability reminded me of the link above that is > useful for explaining how RA affects many people. God bless. > > _____ > > From: Rheumatoid Arthritis > [mailto:Rheumatoid Arthritis ] On Behalf Of Becky Watkins > Sent: Wednesday, August 16, 2006 1:48 PM > Rheumatoid Arthritis > Subject: Re: Disabled parking spaces > > > > Hi , > > > > Invisible disability can sometimes be the worst. I feel very vulnerable > without my walking aids. I'm not using them as an " emotional crutch " as PF > my cpn says but they are a great help when feeling so physically rough. I > know what you mean about fatigue though. I'm glad you're able to park in > disabled spaces so you are nearer to the door. > > > > > > Luv > > > Becky > > xxx > > > > _._,___ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2006 Report Share Posted August 17, 2006 and this website offers a great tee shirt: Sick and Tired of Being Sick and Tired. I bought one in Pink, and wear it to work on bad days...my co=workers now know not to ask me how I feel, when I am wearing that tee! gentle hugs! Marcia --- Harold Van Tuyl <hvantuyl@...> wrote: > Spoon Theory - explaining RA to others > > http://www.butyoudontlooksick.com/spoons.htm > > > > Speaking of invisible disability reminded me of the link above that > is > useful for explaining how RA affects many people. God bless. > > _____ > > From: Rheumatoid Arthritis > [mailto:Rheumatoid Arthritis ] On Behalf Of Becky > Watkins > Sent: Wednesday, August 16, 2006 1:48 PM > Rheumatoid Arthritis > Subject: Re: Disabled parking spaces > > > > Hi , > > > > Invisible disability can sometimes be the worst. I feel very > vulnerable > without my walking aids. I'm not using them as an " emotional crutch " > as PF > my cpn says but they are a great help when feeling so physically > rough. I > know what you mean about fatigue though. I'm glad you're able to park > in > disabled spaces so you are nearer to the door. > > > > > > Luv > > > Becky > > xxx > > > > _._,___ > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2006 Report Share Posted August 17, 2006 I've seen that website before. I think thats how I found this group. I've sent the spoon theory to my family. I think I am going to get me a tee shirt and bumper sticker!!! Marcia Stoyle <marciastoyle@...> wrote: and this website offers a great tee shirt: Sick and Tired of Being Sickand Tired. I bought one in Pink, and wear it to work on bad days...myco=workers now know not to ask me how I feel, when I am wearing thattee! gentle hugs! Marcia--- Harold Van Tuyl <hvantuylcharter (DOT) net> wrote:> Spoon Theory - explaining RA to others> > http://www.butyoudontlooksick.com/spoons.htm > > > > Speaking of invisible disability reminded me of the link above that> is> useful for explaining how RA affects many people. God bless.> > _____ > > From: Rheumatoid Arthritis > [mailto:Rheumatoid Arthritis ] On Behalf Of Becky> Watkins> Sent: Wednesday, August 16, 2006 1:48 PM> Rheumatoid Arthritis > Subject: Re: Disabled parking spaces> > > > Hi ,> > > > Invisible disability can sometimes be the worst. I feel very> vulnerable> without my walking aids. I'm not using them as an "emotional crutch"> as PF> my cpn says but they are a great help when feeling so physically> rough. I> know what you mean about fatigue though. I'm glad you're able to park> in> disabled spaces so you are nearer to the door.> > > > > > Luv> > > Becky> > xxx> > > > _._,___ > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2006 Report Share Posted August 17, 2006 I also have a disabled parking tag - I try only to use it on really bad days or if it's icy/snowy. Usually if I'm feeling ok going into a store - I'm usually limping on the way out. Toes ache all the time right now and one of the joints in the ball of my foot (corresponding to my 'ringfinger' toe) swells up and causes my foot to go off center. That's mostly in my left foot but I've notice that the right foot, same joint, is starting to do it too. I'm overweight too and people just assume you have the tag because of that. Stooooopid people. Helen <angelac71@...> wrote: When I think of me, and how I must look. If you were to look at me you would think nothing was wrong with me. I wish there was way to make people understand if once I go in to the store do my shopping by the time I get home unload my grocerys put them away. I am beat. That is all I can accomplish on that day. Being able to park at little closer to the door just gives me that little bit more that I can do for that day. If it makes a difference at all. Becky Watkins <becky.rebecca.watkins1btinternet> wrote: Hi , We have that problem in the UK as well. Able bodied people parking in disabled places. It is very annoying. I try not to judge at first glance though coz a lot of disabilities are invisible and just because they don't have a mobility aid doesn't mean to say they're not disabled. However, I know of the sort you mean when its obvious they don't have a disability and they are using up a place that a disabled person might really need. Luv Becky xxx ----- Original Message ----- From: Rheumatoid Arthritis Sent: Wednesday, August 16, 2006 7:47 PM Subject: Re: Question about Pain Yes my sister called the Detroit Zoo and they do have the motorized scooters you can rent for $20. I feel kinda silly because this is a disease people cant see and probably will think I'm just fat and lazy. I feel like I need to wear a sign. I HAVE RHEUMATIOD ARTHRITIS !!! Sad but thats how I feel sometimes. I have a handicap parking sign and I feel strange using it too. Sometimes I look at young people pulling up to a handicap parking spot with their music blaring and looking normal and wonder myself why they are parking there when they seem like they are fine. Ardeith <ardeith3oaks> wrote: wrote: Does anybody else get body aches? It almostfeels like when I get the flu. My whole body hurts and aches with hot and cold chills sometimes. Ardeith writes: No, I don't have that sort of pain except when I actually have the flu. I'm assuming your doctor has checked for all sorts of low level infections? Deposits around my joints irritate the tendons and I feel the ache in the muscles attached to the tendons....but it's not a body ache like you've described......... wrote: Please let me know if these are normal symptoms of RA. Ardeith writes: What is "normal" for one person is not for another..... someone on this list has a text about the general symptoms of RA.... maybe it could be posted again? wrote: We have plans to go to the zoo next week and I just dont know if I will beable to do all that walking and standing. Ardeith writes: The zoo nearest to me, in Tampa, has motorized chairs for those who need them.....they charge a small fee to use them, but it's much better than trying to do all that walking and standing. Check it out. Or maybe you could rent one from some rental company for just a couple of days? Stay in the know. Pulse on the new .com. Check it out. No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.11.1/421 - Release Date: 16/08/2006 Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
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