Hi... New to World of Lymies

[Guest guest]

.

You need a Lyme Literate attorney. You were denied treatment with a postive

test. As a result your treatment with be longer, more expensive and life

will be more difficult than it would have been had you received proper and

timely treatment. Ira Maurer is a Lyme Literate and very kind attorney in NY

who may be able to point you in the right direction. He's at

lymeatty@...

Rita

[Guest guest]

I lost most of the use in my right arm for 6 months 2 years ago and

then my left arm and shoulder in Oct last year for 5 months. I

brought in my medical history going back to 1995. ALL the classic

symptoms. The doctor at the VA actually laughed at me. But we aren't

alone, you will find here that regular MD's step over the line into

actual verbal abuse when they here the word Lyme. I am glad that you

found a good Doc.

[Guest guest]

, I might have missed it, but who ( LLMD) do you see?

[ ] Hi... New to World of " Lymies "

> My name is and I am a recently diagnosed Lyme patient. I have

> been infected for between 1 year and 8 months, and 3 years. I lived

> in RI and walked in the woods frequently. Unfortunately, nobody in

> RI took my bite seriously and therefore I was never tested.

>

> Upon my transfer to Texas, a doctor tested for Lyme - not sure why

> but greatful. A positive EIA and Equivocal ELISA got me a referral

> to a Rheumatologist. Unfortunately, the VA doesn't work on a quick

> schedule and I would not be seen for 4 1/2 months. TOO long. I

> sought treatment at the local military hospital and got my

> referral... they actually said that I wanted an immediate

> appointment even though they do not consider Lyme an immediate

> nature.... not even 3rd stage Lyme. Needless to say 2 appointments

> and 3 doctors later, they refused to treat me. " There is not

> evidence of Lyme " irregardless of the positive test results. I

> finally found a LLMD and drove 5 hours each way for treatment.

>

> I have had so many problems over the past 3 years that I actually

> believed I was becoming a hypochondriac... fatigue, sleeplessness,

> sweats, eye floaters, opthalmic migraines, standard migraines, knee

> arthritis, back pain, hip pain, skin sensitivity, thumb pain and

> arthritis, neck pain, shoulder pain, urinary problems, hair loss,

> behavioral problems, anger, confusion (I get lost a lot!), memory

> lapses, language problems, taste and smell and hearing changes,

> psychiatric visits... I am so overwhelmed with being sick that life

> is not enjoyable.

>

> When I finally got seen last week by LLMD, I actually cried when I

> left - relief that I was not " sick in the head " , not a

> hypochondriac, the doc knew what I was going through and agreed that

> I was sick. He began Doxy and other preventive meds for side-

> effects until he gets all the blood tests back for other tick borne

> illnesses.

>

> I am so happy to find this sight. I know that there are others out

> there and I am not alone. Thank God for this board and the people

> out there.

>

> Sorry it is long, but I just needed to spout..... a long time of

> pent up anger and illness.

>

>

>

>

>

>

>

[Guest guest]

,

Welcome aboard! Don't worry about the long post many of us do the same when

we first came here too. We know people here will understand and believe so

when we first come here we do the same and introduce ourselves and tell our

story. It feels so good to find others with the same problems that once we

start it is hard to stop typing for there is so much to say about this

complex disease that tries to ruin our lives. Keep an upper chin and type

away, it will make you feel better when you vent. So vent on us. Again

welcome

Jeri in IN USA We can do it together!

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

[Guest guest]

,

Welcome to the world of Lyme. I know your frustration. I'm currently trying

to deal with military docs who are saying the same thing......basically rule

everything out, then send me to mental health. Oh, I'm even going to a

Rheumatologist the end of April. Whatever you do.....do not take prednisone.

Your arthritis is spirocete borne, which means if you take prednisone the

little buggers will wreck more havoc on your system. You need meds. Email

me privately the name of your doc. There are many docs that SAY they're Lyme

literate, but they're not. Be sure he really knows Lyme. Check out

Lymenet.org.....Treatment guidelines by Dr. B.

I found 3 months, then 4 months of doxy 100 mg 2 times a day wasn't enough

for me. (I've heard 200 mg/day isn't even theraputic!!!) I think Dr. B says

at least 600 mg/day to be effective. I'm currently seeking IV Rocephin

through a LLMD in California. Igenex labs are good. Be sure to do your

homework. You have to be your best advocate in spite of how ill you feel.

God bless,

Colleen Nicholson

Alaska

> Message: 19

> Date: Wed, 20 Mar 2002 03:03:36 -0000

> From: " karanngoroo " <karanngoroo@...>

> Subject: Hi... New to World of " Lymies "

[Guest guest]

Hi !

So glad you found your way to the group...lots of great people here,

as I'm sure you've already found out by all the replies. You will

find lots of people who have answers to the questions I'm sure

you'll have as you progress in your treatment.

Hope to meet you when you get back up our way again. We " Texas

Lymies " gotta stick together, dontcha know?

Love ya,

Rose

> <snip>

> Upon my transfer to Texas, a doctor tested for Lyme - not sure why

> but greatful. A positive EIA and Equivocal ELISA got me a referral

> to a Rheumatologist. Unfortunately, the VA doesn't work on a quick

> schedule and I would not be seen for 4 1/2 months. TOO long. I

> sought treatment at the local military hospital and got my

> referral... they actually said that I wanted an immediate

> appointment even though they do not consider Lyme an immediate

> nature.... not even 3rd stage Lyme. Needless to say 2 appointments

> and 3 doctors later, they refused to treat me. " There is not

> evidence of Lyme " irregardless of the positive test results. I

> finally found a LLMD and drove 5 hours each way for treatment.

>

><snip>

> When I finally got seen last week by LLMD, I actually cried when I

> left - relief that I was not " sick in the head " , not a

> hypochondriac, the doc knew what I was going through and agreed

that

> I was sick. He began Doxy and other preventive meds for side-

> effects until he gets all the blood tests back for other tick borne

> illnesses.

>

> I am so happy to find this sight. I know that there are others out

> there and I am not alone. Thank God for this board and the people

> out there.

>

> Sorry it is long, but I just needed to spout..... a long time of

> pent up anger and illness.

>

>

[Guest guest]

welcome karen. sorry for what you have been through, but indeed you are not

alone. many of us have evry similiar stories. stick here for support and lots

of information. pj

[Guest guest]

Welcome I'm so glad you are on the track of recovery! I was

diagnosed with lyme menengitus last August after being extremely sick over

the past month.

f Jody P

Beautiful young people are accidents of nature,

but beautiful old people are works of art

<A HREF= " http://hometown.aol.com/tarabencaitysmom/index.html " >Jeff & Jody's

Family</A> <A

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Happy easter

O