Re: Not everything is lyme/differences

[Guest guest]

There are differences.................many have overlapping

symptoms............and you can without a doubt have all three. Lyme can

cause the other two, as can other things.

There are plenty of sites for all three, including organizations, and

newsgroups. I have been on all three newsgroups. I consider myself

lucky, lyme disease caused my fibro and cfids.........and because I have

been currently cured of Lyme...............and have done a lot of

alternative medicine, I was able to rebuild my immune system..........and

the fibromyalgia and cfids.......have disappeared............thank

goodness...............most are not so lucky.

I know of people who have fibromyalgia from other auto-immune diseases, like

sclerderma and srjodgens (sp on both of those).......some people develop fms

and cfs, and an undelying cause can't be found...........

They are different.............and there is

criteria.............check out the sites on the web for fibromyalgia and

cfids..

You can however have all three, and Lyme can cause the other two without a

doubt, but you can also have the others without having Lyme.

connienwj

Leave no stone unturned.......and ask questions!

[Guest guest]

Connie-

Can you write me privately and tell me which alternative dr/wellness center

helped you?

I am searching for a great referral in NJ. I have others out of state but not

in NJ.

(and I am assuming you saw someone/some place in NJ)

thanks

sue in nj

sue massie

[Guest guest]

Connie,

You say you are cured of Lyme? How? I mean how long did you have it and what

exactly worked for you in the way of antibiotics atc? I am still dealing

with some issues of Lyme and have been dxs with fibro now. The doc is

treating the pain and am much better but still worry there are bacteria

still partying in my system. How would one know they are cured with no tests

available to prove it? Can you feel the difference? Sorry for so many

questions but your post really stood out and I am curious. Thanks

Jeri in IN USA We can do it together!

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[Guest guest]

Hi Jeri,

I am using the word cured, because I want people to believe that they can

return to normal...........I do know, that bugs can hide.........and it only

takes one...........to become active again, either by stress, illness,

medications like steriods, etc.to reactivate things.

I am working real hard to rebuild my immune system, by taking certain

vitamins and minerals, as well as a liquid of a mixture of different herbs,

specifically formulated for me to help rebuild my immune system......and

eating well, exercising, getting restorative sleep, and doing daily

meditation and yoga, to relieve myself of STRESS!.....so it can stay strong

and never again allow lyme to take over my body again.!!

How do I know I'm CURED!....................I feel normal!!..........like I

felt before the summer of 1995!!

I'm back to teaching, and enjoying life again...........that's how I

know............I have some problems with my back, that has caused me some

great pain lately, but when I think of the years with Lyme..............I

realize, my back isn't that bad.

I was very sick, during my years with lyme disease, hospitalized for being

suicidal, and in such a fog........was dx with severe depression. I spent

several years with the dx of depression, fibromyalgia, severe insominia, and

CFS........it wasn't until I was dx with Lyme............and treated for

several years..........both through alternative and traditional

medicine.............that I started to improve........I have tried

everything from acupuncture, vitamin drips, chiropractic care, massage,

aroma therapy, hydrogen peroxide drips, B-12 shots, colonics, special diets,

plenty of drugs, including sedating anti-depressants, sleeping pills,

anti-anxiety meds..........and of course many different abx, from pills

doxycycline, doryx, flagil, zithromax, etc.........to bicillin injections,

to IV Zithromax, to IV Rocephin.........it was the 8 months of IV

Rocephin..........that finally killed off what was left of the bad bacteria

in my body.......unfortunately everything was killed off in my

body..............and I mean everything........there wasn't a good or bad

bacteria in my body............I had absolutely no immune system

left...........and it has taken a good year to rebuild my body.

I was afraid at first to go off the abx........because during the first 3

months of being off abx...............I was having every symptom I had

before.........returning.............but as my system began to

rebuild...........those symptoms disappeared......I really

believe............some of our symptoms are no longer lyme, but instead

complications from the lyme as well as withdrawal symptoms from the years of

drugs and abx..............withdrawal symptoms feel much like herxing.

Horrible...............I am so glad I didn't quickly go back on abx, my LLMD

is so good................today, I am myself again.

I'm so happy to be without lyme..................how do you know?? Trust

me you don't need a test to tell you..........

Connieknwnj

Leave no stone unturned.......and ask questions!

[Guest guest]

Connie,

Your story is like so many but your success is wonderful! I am glad to hear

people do find the rainbow at the end of this stuff. I am currently off abx

and doing pretty good at times and others well lets just focus on the good

times. Good Luck and thanks for staying on here even after your no longer

sick it gives others hope. Thanks

Jeri in IN USA We can do it together!

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[Guest guest]

Does anyone have terrific jaw pain while on rocephin...I am experiencing this

and wonder how many others of you have had this or currently have it. It

feels like it is deep inside the jaw bone...not dental. But I will have my

dentist check it out again.

Best wishes to all,

Donna

[Guest guest]

Don't know as a herx symptom but TMJ (jaw) pain is quite common with

Lyme.

[Guest guest]

In a message dated 3/24/02 10:34:14 PM, alopeztcr@... writes:

<< Does anyone have terrific jaw pain while on rocephin...I am experiencing

this

and wonder how many others of you have had this or currently have it. It

feels like it is deep inside the jaw bone...not dental. But I will have my

dentist check it out >>

Donna-

My husband gets this all the time......also I have heard numerous stories to

the same.

I would not go too crazy looking for the 'root' (pun.....) cause.

If you do have a dental problem or had surgery/accidental injury to that

area...that is another ?

sue in nj

[Guest guest]

Dear Donna,

as you know, I'm not big on the meds, so I am not certain whether

rocephin has effect on ehrlichia.

Have you been tested for ehrlichia? Read that it gets into bone

marrow...

Also, could be lyme in the " big glob " of nerves in TMJ region... Or

perhaps the neuroxoins from herxes affecting these nerves...

HUGS!

> Does anyone have terrific jaw pain while on rocephin...I am

experiencing this

> and wonder how many others of you have had this or currently have

it. It

> feels like it is deep inside the jaw bone...not dental. But I will

have my

> dentist check it out again.

>

> Best wishes to all,

>

> Donna

>

>

>

[Guest guest]

Hi Chris: I am very positive for erlichia but I don't think rocephin kills

it..can't remember what Dr. B said about it..I think doxy is the drug of

choice for it..but not sure. The pain I experience feels like it comes from

deep inside the jaw bone...I wonder if that is the mycoplasma I tested

positive for. Heavens, now so many buggers to wonder about.

Thank you for pondering my dilemma with me.

Hugs,

Donna