Guest guest Posted September 18, 2005 Report Share Posted September 18, 2005 my rhuemy told me not to take tylenol. but some docs are differant. melissa <mvd12720@...> wrote:i have been on mtx for 2 weeks well no change yet but my rummy said that i should take tylenol for the pain (is that safe to take or not) and well that is not working what else can i do i do not have a tub to soak in. melissa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 , I've heard conflicting stories about taking tylenol and mtx. The concern is that both can affect the liver. The sites I've read say it is safe to take them together, but some members have had doctors that say not to take them together. If your blood tests indicate a problem with your liver, your doctor may make changes in your meds. http://www.rheumbook.com/rheum_info/med_info/ METHOTREXATE_INFORMATION_SHEET.HTM a On Sep 18, 2005, at 2:26 PM, melissa wrote: > i have been on mtx for 2 weeks well no change yet but my rummy said > that i should take tylenol for the pain (is that safe to take or not) > and well that is not working what else can i do i do not have a tub to > soak in. > > melissa > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 , I told my RA Dr about all of the things I take including OTC stuff. I was not told to change anything and I take a multi-vitamin as well as extra C, E and calcium. You may want to check with the Dr about it, or others at this website. I hope your headaches get better - some of the side effects get better the longer you take mtx. I have some times when I feel fairly well after mtx and other times I feel pretty lousy. It's weird and I don't know why it is like that. But I'm only 9 weeks into the Rx so... we'll see. > well is it safe to take a multi vitamin why taking mtx?? i am taking > 1mg of folic acid a day(dr. rx)so far i have been on mtx for 3 weeks > i take my mtx at night after i eat dinner (wednesdays) and then i > feel really ran down for the next 3 days. And well no headace this > time so that is good so far last week i got one that was so bad i had > to go to the hospital i was there for about 4 hours last tuesday > afternoon. > > sorry to keep rambling on but my husband is out of town now for the > week and he comes home on fridays about 10pm and then he leaves out > on sunday about 5pm. and i have already put the kids to bed for the > night and i'm bored > > melissa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 , I have never heard that there is a problem taking multi vitamins while on mtx. Hopefully you will adjust to the mtx and not feel so bad. a On Sep 25, 2005, at 9:39 PM, melissa wrote: > well is it safe to take a multi vitamin why taking mtx?? i am taking > 1mg of folic acid a day(dr. rx)so far i have been on mtx for 3 weeks > i take my mtx at night after i eat dinner (wednesdays) and then i > feel really ran down for the next 3 days. And well no headace this > time so that is good so far last week i got one that was so bad i had > to go to the hospital i was there for about 4 hours last tuesday > afternoon. > > sorry to keep rambling on but my husband is out of town now for the > week and he comes home on fridays about 10pm and then he leaves out > on sunday about 5pm. and i have already put the kids to bed for the > night and i'm bored > > melissa > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 , I don't know whether you are on oral MTX or the injections. Switching to injections helps many people. How much folic acid are you taking? You can ask your rheumatologist about increasing the amount folic acid. Several members have suggested taking your MTX at night before bed. Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] question about MTX > > > i know by now i should know what to do about the sixe effects of MTX(only > on > 15 mg... How do you get past the nausea? I also have the shakes too... > kind > of like that feeling after you've thrown up alot... any suggestions > would be > greatly appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 , I am sorry to hear about the Nausea and shakiness with the MTX. I had the same problem except I was actually vomiting. Are you taking Folic acid daily? If you are not taking folic acid I would talk with your doc about adding it. Its suppose to reduce the side effects. There is also another drug called Leukovorin that is a super strong B vitamin that is also used to help with the side effects. When I was on MTX the side effects were so severe that I was on 5 mg folic acid daily along with a once a week dose of Leukovorin. For me nothing made the side effects improve so I stopped the MTX. I wish you well! Toni In a message dated 3/30/2006 4:22:29 P.M. Central Standard Time, writes: Date: Thu, 30 Mar 2006 13:36:10 EST From: N2kids@... Subject: question about MTX i know by now i should know what to do about the sixe effects of MTX(only on 15 mg... How do you get past the nausea? I also have the shakes too... kind of like that feeling after you've thrown up alot... any suggestions would be greatly appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2006 Report Share Posted March 31, 2006 In a message dated 3/30/2006 1:01:15 PM Central Standard Time, Matsumura_Clan@... writes: Several members have suggested taking your MTX at night before bed. Thank you , i'm taking the oral Mtx. Yes i do take it at night right before bed. Ever since she increased it i've had those symptoms. Folic acid i believe is 1mg daily. i will ask the rheumy about it later since i need to call her for an update anyway. thanks again HUGS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2006 Report Share Posted March 31, 2006 Leucovorin has helped me a lot with the side effects of the Mtx. It's not completely gone... I'm still very tired for about 36 hours after I take it, but at least the flu-symptoms are gone. > > > , > I am sorry to hear about the Nausea and shakiness with the MTX. I had the > same problem except I was actually vomiting. Are you taking Folic acid daily? > If you are not taking folic acid I would talk with your doc about adding it. > Its suppose to reduce the side effects. There is also another drug called > Leukovorin that is a super strong B vitamin that is also used to help with > the side effects. > > When I was on MTX the side effects were so severe that I was on 5 mg folic > acid daily along with a once a week dose of Leukovorin. For me nothing made > the side effects improve so I stopped the MTX. > > I wish you well! > > Toni > > > In a message dated 3/30/2006 4:22:29 P.M. Central Standard Time, > writes: > > Date: Thu, 30 Mar 2006 13:36:10 EST > From: N2kids@... > Subject: question about MTX > > > > i know by now i should know what to do about the sixe effects of MTX(only > on > 15 mg... How do you get past the nausea? I also have the shakes too... kind > of like that feeling after you've thrown up alot... any suggestions would > be > greatly appreciated. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2006 Report Share Posted July 11, 2006 What is the highest dosage of MTX has anyone been on. I am up to 8 pills a weeks which is 20 mgs. I take this for two more weks, then if the swelling on my ankle and my pain has not gone done, I am to increase to 10 pills a week. I am already wiped out and having a hard time functioning because of the fatigue and the stiffness. I didn't think my stiffness was so bad until my hubby did an immitation of me getting out of bed and going to the bathroom, then crashing on the couch. I literally have to force myself to get up or I would spend as much time in bed as i could. I do as much housework as I can in the morning and end up falling asleep in the afternoon Is the MTX exacerbating my fatigue, making it worse. I feel like I can't go on like this anymore. My hands hurt, my elbows hurt. Now my shoulders are starting to hurt, my knees hurt and my feet hurt ALL the time. I was hoping that the Humira would help but it isn't. I couldn't go to my cousins daughters wedding on Saturday because my body was one big pain. I slept until my hubby and kids came home. My dr is supposed to call tomorrow(Tuesday) about changing drugs and doing an MRI on my foot. I am hoping to try the IV infused drugs. Maybe they will work better. Thanks for listening. Not many people understand what it's really like to have RA. If they don't see that something is wrong, then they think it isn't as bad as we make it sound. My hubby is finally helping out more around the house. He does the laundry because I have a hard time going up and down the stairs. Thanks for reading, Vicki --- USFamily.Net - $8.25/mo! -- Highspeed - $19.99/mo! --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2006 Report Share Posted July 11, 2006 The highest I have been on in 20 mg Methotrexate but I have heard of others being up as high as 25 mg (but not over). I started with Arava, and after a few months with little success my doctor added Methotrexate and I took myself off Arava. A few months later with little success we added Remicade and slowly increased that to 6 mg/kg at which time I was finally able to get off Prednisone. I’ve been on Remicade over two years and now I’m starting to decrease the amount to see if I’m overmedicated. I hope you are able to find your magic combination of medications. God bless. From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of Vicki Sent: Monday, July 10, 2006 8:22 PM Rheumatoid Arthritis Subject: question about MTX What is the highest dosage of MTX has anyone been on. I am up to 8 pills a weeks which is 20 mgs. I take this for two more weks, then if the swelling on my ankle and my pain has not gone done, I am to increase to 10 pills a week. I am already wiped out and having a hard time functioning because of the fatigue and the stiffness. I didn't think my stiffness was so bad until my hubby did an immitation of me getting out of bed and going to the bathroom, then crashing on the couch. I literally have to force myself to get up or I would spend as much time in bed as i could. I do as much housework as I can in the morning and end up falling asleep in the afternoon Is the MTX exacerbating my fatigue, making it worse. I feel like I can't go on like this anymore. My hands hurt, my elbows hurt. Now my shoulders are starting to hurt, my knees hurt and my feet hurt ALL the time. I was hoping that the Humira would help but it isn't. I couldn't go to my cousins daughters wedding on Saturday because my body was one big pain. I slept until my hubby and kids came home. My dr is supposed to call tomorrow(Tuesday) about changing drugs and doing an MRI on my foot. I am hoping to try the IV infused drugs. Maybe they will work better. Thanks for listening. Not many people understand what it's really like to have RA. If they don't see that something is wrong, then they think it isn't as bad as we make it sound. My hubby is finally helping out more around the house. He does the laundry because I have a hard time going up and down the stairs. Thanks for reading, Vicki --- USFamily.Net - $8.25/mo! -- Highspeed - $19.99/mo! --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2006 Report Share Posted July 11, 2006 Vicky- If humira isnt working, try remicade. Its once every 8 weeks. Some people see help right away, others it does take time. You can take a low dose mtx with it. MTX will make you tired. Whenever there is a body part in a flare, immobilize the area and use ice if there is swelling or a heating pad if stiff. Use an ace bandage and stay off the foot. There are also new b cell drugs available along with others coming all the time. I found taking folate or a multi vitamin helps. I have been on 8 pills max at the highest point but am down to only 2 pills once a week. Has your Doctor suggested low dose prednisone. On 7/11/06, Vicki <hoyt91@...> wrote: What is the highest dosage of MTX has anyone been on. I am up to 8 pills a weeks which is 20 mgs. I take this for two more weks, then if the swelling on my ankle and my pain has not gone done, I am to increase to 10 pills a week. I am already wiped out and having a hard time functioning because of the fatigue and the stiffness. I didn't think my stiffness was so bad until my hubby did an immitation of me getting out of bed and going to the bathroom, then crashing on the couch. I literally have to force myself to get up or I would spend as much time in bed as i could. I do as much housework as I can in the morning and end up falling asleep in the afternoon Is the MTX exacerbating my fatigue, making it worse. I feel like I can't go on like this anymore. My hands hurt, my elbows hurt. Now my shoulders are starting to hurt, my knees hurt and my feet hurt ALL the time. I was hoping that the Humira would help but it isn't. I couldn't go to my cousins daughters wedding on Saturday because my body was one big pain. I slept until my hubby and kids came home. My dr is supposed to call tomorrow(Tuesday) about changing drugs and doing an MRI on my foot. I am hoping to try the IV infused drugs. Maybe they will work better. Thanks for listening. Not many people understand what it's really like to have RA. If they don't see that something is wrong, then they think it isn't as bad as we make it sound. My hubby is finally helping out more around the house. He does the laundry because I have a hard time going up and down the stairs. Thanks for reading, Vicki --- USFamily.Net - $8.25/mo! -- Highspeed - $19.99/mo! --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 Hi Vicki, I see you have alot of the same problems as i do , I've been up to 8 pills a week with not much success but down to 5 now . I've had much trouble with fatigue for years my RA dr told me the fatigue was just part of the diease that it goes along with it . Now the MTX does make me sleepy on the weekend when I take it allso but thats a differant feeling . allso takeing that much MTX it would be a good ideal to split them into smaller doeses like 4 at 1 time and the other 4 another , or you may tose your cookies . I had remicaid for a little over a year and didn't think it was working well untill I had to give it up then I could really tell what it had been doing for me . So the iv meds will be a good step for you . sometimes we have to forse ourselfes to go . johnVicki <hoyt91@...> wrote: What is the highest dosage of MTX has anyone been on. I am up to 8 pills a weeks which is 20 mgs. I take this for two more weks, then if the swelling on my ankle and my pain has not gone done, I am to increase to 10 pills a week. I am already wiped out and having a hard time functioning because of the fatigue and the stiffness. I didn't think my stiffness was so bad until my hubby did an immitation of me getting out of bed and going to the bathroom, then crashing on the couch. I literally have to force myself to get up or I would spend as much time in bed as i could. I do as much housework as I can in the morning and end up falling asleep in the afternoon Is the MTX exacerbating my fatigue, making it worse. I feel like I can't go on like this anymore. My hands hurt, my elbows hurt. Now my shoulders are starting to hurt, my knees hurt and my feet hurt ALL the time. I was hoping that the Humira would help but it isn't. I couldn't go to my cousins daughters wedding on Saturday because my body was one big pain. I slept until my hubby and kids came home. My dr is supposed to call tomorrow(Tuesday) about changing drugs and doing an MRI on my foot. I am hoping to try the IV infused drugs. Maybe they will work better. Thanks for listening. Not many people understand what it's really like to have RA. If they don't see that something is wrong, then they think it isn't as bad as we make it sound. My hubby is finally helping out more around the house. He does the laundry because I have a hard time going up and down the stairs. Thanks for reading, Vicki --- USFamily.Net - $8.25/mo! -- Highspeed - $19.99/mo! --- Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 I just thought I'd mention that when I was put on mtx I was told it was very important to take all pills in one dose. For me it was 6, and that it's also done the same day each week. I remember it being something about the risk of side effects were greater when not taken properly. I'd just check with your dr. first before splitting your dose into two. > What is the highest dosage of MTX has anyone been on. I am up to 8 pills a weeks which is 20 mgs. I take this for two more weks, then if the swelling on my ankle and my pain has not gone done, I am to increase to 10 pills a week. I am already wiped out and having a hard time functioning because of the fatigue and the stiffness. > > I didn't think my stiffness was so bad until my hubby did an immitation of me getting out of bed and going to the bathroom, then crashing on the couch. > > I literally have to force myself to get up or I would spend as much time in bed as i could. I do as much housework as I can in the morning and end up falling asleep in the afternoon > > Is the MTX exacerbating my fatigue, making it worse. I feel like I can't go on like this anymore. > > My hands hurt, my elbows hurt. Now my shoulders are starting to hurt, my knees hurt and my feet hurt ALL the time. I was hoping that the Humira would help but it isn't. I couldn't go to my cousins daughters wedding on Saturday because my body was one big pain. I slept until my hubby and kids came home. > > My dr is supposed to call tomorrow(Tuesday) about changing drugs and doing an MRI on my foot. > I am hoping to try the IV infused drugs. Maybe they will work better. > > Thanks for listening. Not many people understand what it's really like to have RA. If they don't see that something is wrong, then they think it isn't as bad as we make it sound. > > My hubby is finally helping out more around the house. He does the laundry because I have a hard time going up and down the stairs. > > Thanks for reading, > Vicki > > > --- USFamily.Net - $8.25/mo! -- Highspeed - $19.99/mo! --- > > > > > > > --------------------------------- > Music Unlimited - Access over 1 million songs.Try it free. > Quote Link to comment Share on other sites More sharing options...
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