Re: Dr. D Visit

[Guest guest]

In a message dated 02/01/2002 1:15:12 AM Eastern Standard Time,

henson2@... writes:

>

> Dr. D. has published research on tetracycline being especially useful for

> chronic Lyme. But it won't help you if you can't keep it down.

>

> Dr. D. said a lumbar puncture wouldn't do me any good, either. And I have

> also heard that the twitching gets worse before it gets better.

>

> You poor thing! Hang in there. Let him know you can't take the stuff!

>

> Wishing you wellness,

>

Thanks Marie, you too Where would I find this published research from Dr.

D, do you know???

He also told me that i would gain weight from it, kind of hard if it doesn't

stay down.....so you have gained? ICK I don't want that, the only way I've

kept my weight off (and actually quite down lol) without exercising is this

lyme, it doesn't make me hungry. I can't be getting hungry and eating all the

time without the energy to workout LOL> but if it's good for chronic lyme I

really need to keep this down, any suggestions anybody? I'm drinking it with

the big glass of water, as soon as i get done with the glass it comes right

back up.

YYYY Jody YYYY

To handle yourself, use your head;

to handle others, use your heart.

o <A HREF= " http://hometown.aol.com/tarabencaitysmom/index.html " >Jeff & Jody's

Family</A> <A

HREF= " http://www.picturetrail.com/gallery/view?username=tarabencaitysmom " >Jody's

Photo Albums</A>o

H

[Guest guest]

Dear Jody,

I think you can email Dr. D. and/or Maureen and tell him you're not

tolerating the tetracycline. He had me on tetra, too. I had no

stomach trouble with it, except that I gained weight on it. (That's big

trouble!)( ha ha) My " lay person's " advice would be not to take it

anymore.

Dr. D. has published research on tetracycline being especially useful for

chronic Lyme. But it won't help you if you can't keep it down.

Dr. D. said a lumbar puncture wouldn't do me any good, either. And I have

also heard that the twitching gets worse before it gets better.

You poor thing! Hang in there. Let him know you can't take the stuff!

Wishing you wellness,

Marie

[Guest guest]

Hi, Jody,

I will look for the link for you re. Dr. D's tetracycline research. Might

be tomorrow though.

But I didn't mean to imply that the tetra is the only or the best thing

for chronic Lyme -- just that he's worked on it, so that's why he gives it

to patients. There are other drugs out there. Don't force yourself thru

getting sick over and over! Some people don't tolerate tetra.

I made him take me off it after I gained some weight (hm, maybe 10 lbs).

I keep not letting him put me back on it. LOL I am back on the biaxin

plaquenil combo after doing erithro and doxy and plaquenil (and IVs, which

didn't work for me - I had too intolerable a reaction to IV Claforan).

So, tetra isn't the ONLY drug out there! (I'm actually doing better on

biaxin now).

I'll look for the link. I saw it on Medscape - also try Art Doherty's

site. Anyone have that website address?

I'm off to crash so I might not see a reply until tomorrow.

Peaceful night to you,

Marie

[Guest guest]

Hi....

Here is the link that I have for the tetracycline research...

http://www.journals.uchicago.edu/CID/journal/issues/v25nS1/jy09_52/jy0

9_52.web.pdf

It is in Adobe pdf format (and I think you will have to cut and

paste). I found it very interesting, but have yet to see if it works

for me. Good luck!

:-)

> Hi, Jody,

>

> I will look for the link for you re. Dr. D's tetracycline

research. Might

> be tomorrow though.

>

> But I didn't mean to imply that the tetra is the only or the best

thing

> for chronic Lyme -- just that he's worked on it, so that's why he

gives it

> to patients. There are other drugs out there. Don't force

yourself thru

> getting sick over and over! Some people don't tolerate tetra.

>

> I made him take me off it after I gained some weight (hm, maybe 10

lbs).

> I keep not letting him put me back on it. LOL I am back on the

biaxin

> plaquenil combo after doing erithro and doxy and plaquenil (and

IVs, which

> didn't work for me - I had too intolerable a reaction to IV

Claforan).

>

> So, tetra isn't the ONLY drug out there! (I'm actually doing

better on

> biaxin now).

>

> I'll look for the link. I saw it on Medscape - also try Art

Doherty's

> site. Anyone have that website address?

>

> I'm off to crash so I might not see a reply until tomorrow.

>

> Peaceful night to you,

> Marie

[Guest guest]

Someone suggested drinking a full glass of water or as much water as

you can with each dose.

best,

lea

[Guest guest]

----- Original Message -----

From: <TaraBenCaitysMom@...>

> I went to see Dr. D for my 3 month checkup last Wed. He took me off the

> biaxin/plaquenil combination and put me on the tetracycline (sp?) for 3

> months. He said the spinal tap and IV would do me no good (dr in ct wanted

to

> do this) because it's chronic and into my nerve tissue and not in my

> bloodstream so these methods would not work on me.

The spinal tap might be a waste, but people use IV antibiotics when they

have Lyme deeply embedded, chronic, in the nerve tissue... that's the point.

I had Lyme for 8 years untreated and IV is working fabulously for me while

oral abx helped just a little. Maybe you misunderstood the doctor or he is

giving you the run around on IV treatment. Too scary for some LLMDs to use

it I guess.

Jen

[Guest guest]

In a message dated 02/01/2002 1:15:12 AM Eastern Standard Time,

henson2@... writes:

>

> I think you can email Dr. D. and/or Maureen and tell him you're not

> tolerating the tetracycline. He had me on tetra, too. I had no

> stomach trouble with it, except that I gained weight on it. (That's big

> trouble!)( ha ha) My " lay person's " advice would be not to take it

> anymore.

>

Thanks I did beep Maureen and she told me to take it with a cracker and

only do it once a day for a few days, then twice, then three but that didn't

work either So she told me to email her if I had a problem and then maybe

she'd send a script in for something to help keep it down. So I emailed her,

waited quite a few days NOTHING.......then I emailed her and Dr. D together

about a week ago forwarding my first msg to them and telling them I haven't

had any meds in me in awhile now and it's making me nervous and I've heard

nothing back still They say to use email to contact them and now they

aren't getting back to me, I guess I'll call tomorrow and see if I can get

any answers. My twitching has gotten so much worse lately

YYYY Jody YYYY

To handle yourself, use your head;

to handle others, use your heart.

o <A HREF= " http://hometown.aol.com/tarabencaitysmom/index.html " >Jeff & Jody's

Family</A> <A

HREF= " http://www.picturetrail.com/gallery/view?username=tarabencaitysmom " >Jody's

Photo Albums</A>o

H

[Guest guest]

In a message dated 02/04/2002 12:19:21 AM Eastern Standard Time, jen@...

writes:

> The spinal tap might be a waste, but people use IV antibiotics when they

> have Lyme deeply embedded, chronic, in the nerve tissue... that's the

> point.

> I had Lyme for 8 years untreated and IV is working fabulously for me while

> oral abx helped just a little. Maybe you misunderstood the doctor or he is

> giving you the run around on IV treatment. Too scary for some LLMDs to use

> it I guess.

>

>

See Dr. D said the complete opposite!!!! Now I have an apt coming up with my

Dr in CT and I know he's going to want to put me back on the IV and from what

you said it sounds like a good idea now, EGADS! Whatever works, I don't

really care at this point <sigh> I had the IV for four weeks when I was first

sick with the active lyme meningitus and ehrlichiosis. Maybe it is just what

I need. My skin is sooo splotchy since I stopped the meds, I feel like it's

all coming back

YYYY Jody YYYY

To handle yourself, use your head;

to handle others, use your heart.

o <A HREF= " http://hometown.aol.com/tarabencaitysmom/index.html " >Jeff & Jody's

Family</A> <A

HREF= " http://www.picturetrail.com/gallery/view?username=tarabencaitysmom " >Jody's

Photo Albums</A>o

H