Guest guest Posted April 13, 2000 Report Share Posted April 13, 2000 Jim, I did the same thing last year, felt good after 6 months of abx's, then went back to work part time, and too soon. Three weeks after going off abx's and I went downhill fast. I stuck it out at work for almost 3 months, but kept getting worse and had to go back on full time disability. Now I have good days and bad days, but still mostly bad. I wish I could convince my LLMD to try Dr. Shoemaker's new treatment (think that's the Cholestyramine ?) , guess he is waiting for published results. But I'm sure someone else on this list must have tried it, or is now trying it. Keep us informed how you do on it. And, NO apologies necessary for lurking, just glad you still did while you were well so you wouldn't forget us when you needed us. Take care, Vicki, Md BTW - hope you don't mean it literal when you say Crawling - that would be bad, but not unusual for us Lymies. > Hey to all of you Lyme Heads, > > I've been " lurking " out there for a while, not really participating because >I was so close to 100% and trying to figure out a new job. After almost 1 >1/2 years of oral and a little IV therapy I was feeling great. Well, off of >antibiotics for 3 weeks and POW!#%#@, headaches from hell, sounds in my head, >blah, blah, blah. > > I'm on Decadron for brain swelling ( does this mean my brain is getting >bigger, or just more dense?...definitely more dense) and Cholestyramine as a >new treatment. I've read about it, and Doc did a thorough job of running >through its uses and possible new benefits. > > Crawling back to the fold, Jim in Alabama > Quote Link to comment Share on other sites More sharing options...
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