Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 Hi Mark I live in the UK and find the damp weather and low pressure makes me very stiff. We went to Italy for our summer holiday this year and found my RA was much easier. Also we've had a reasonablish summer by our standards here and again I found my joints much better. The start of Autumn has also made me a lot achier than I had been. I obviously need to move to Italy!!! BFN Carol (UK) Re: SLE > >Dearest, DEAREST Gunjitk, > >Please don't ever for one minute think that you don't do anything to help >your wife. The fact that you are there for her, that you love and care about >her is VERY important. She is just soooo lucky to have you as there are many >who struggle with these diseases all on their own, without this very vital >support. > >I have always felt enormously for the partners of those who are unwell as it >must be devastating to feel as you do. Helpless to take away the pain, >helpless to do anything to make it better. Especially for men who are >conditioned to believe that they must 'fix' things. <caring hug> > >Believe me when I say that a hug or a kiss can do much more than a pill or >two. So go for it, get in as many as you can. I'm sure you don't need too >much encouraging in that department.<smiling> > >Have you read the stories about the anti biotic protocol on our site and the >info on how it works? If not then do go and have a look, check out the >reading material etc. > >What a neat man you are to search for answers for your wife.<warm hug> >Really sorry you have a need to join us but glad at the same time that you >have. You will find this group very supportive and willing to help. > >Take care, >huggles, >lisbeth > > rheumatic flu shots > > >> I know this topic has been dealt with before, but like anything else, I >find >> if I don't need the information right away, I tend to forget it! What is >> the feeling about getting flu shots when you have RA? >> >> Thanks, >> >> (RA 25+ years, AP since Nov. 97) >> >> >> To unsubscribe, email: rheumatic-unsubscribeegroups >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 Hi , Drinking plenty of water can also speed up weight loss. Drinking Water May Speed Weight Loss http://my.webmd.com/content/Article/79/96070.htm Sharon Re: Digest Number 1479 I would also like to suggest to drink plenty of water. I have suffered from " allergies " for years and I must say since I have been drinking more water, my weight divided by two in ounces per day, my allergies are non-existent! The effect was immediate. I recently read about Dr. B. (can't remember his full name, and how water heals). It makes real sense, especially when coupled with Dr. 's books. I was also remembering when my husband was recently in the hospital (cancer) and they instantly hooked him up to fluids (like they do everyone) and something just dawned on me, Dr.'s KNOW that the majority of us are dehydrated! We really need to make a concious effort to hydrate ourselves so our bodies can do what they were made to do. I also read that for each 10 ozs. of caffienated beverage, we need to hydrate with 12 ozs. of water. Many blessings, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2005 Report Share Posted July 9, 2005 I have been on LDN for about 1.5 years with amazing results. Last month went from 4.5 to 3.5. the last few months I have been nauseated and vomiting flim and bile in the morning. My liver test results show a high belly rubem (sp). They are looking for an obstruction on an ultra sound and if nothing the doc says I should stop LDN. It is so low dose but still this is a side affect. Can anyone please help me? I do not have a gall bladder.f so that is not the problem. I would hate to stop LDN because I have energy and have not progressed. Thanks- low dose naltrexone wrote: > There are 25 messages in this issue. > > Topics in this digest: > > 1. about the script I've been waiting for this > week > From: " Rhonda " > <rhondaleokitty@...> > 2. Generic Naltrexone > From: " Rhonda " > <rhondaleokitty@...> > 3. Hi group... > From: " Joyce F. " <joyce445@...> > 4. RE: about the script I've been waiting for > this week > From: " Bruce Guilmette, Ph.D. " > <bruce@...> > 5. RE: Generic Naltrexone > From: " Bruce Guilmette, Ph.D. " > <bruce@...> > 6. Re: Generic Naltrexone > From: " Rhonda " > <rhondaleokitty@...> > 7. Re: about the script I've been waiting for > this week > From: " Rhonda " > <rhondaleokitty@...> > 8. RE: Re: Generic Naltrexone > From: " Bruce Guilmette, Ph.D. " > <bruce@...> > 9. RE: Doctor in No. Calif. > From: " Family " > <pattersonfamily5@...> > 10. Re: Generic Naltrexone > From: " Rhonda " > <rhondaleokitty@...> > 11. Re: Re:Radio in Ireland this morning on LDN > From: " " <cindyyoung@...> > 12. Re: Generic Naltrexone > From: arlizotte@... > 13. Re: Re: libido far too high on LDN, anyone > else?YES > From: arlizotte@... > 14. Re: Generic Naltrexone > From: " Rhonda " > <rhondaleokitty@...> > 15. Re: libido far too high on LDN, anyone > else? > From: " rtee54 " <xltrt@...> > 16. Fw: [MSViews_Multiple_Sclerosis] you have > to listen to your body my first sym... > From: " tom bayuk " <tbayuk@...> > 17. Re: libido far too high on LDN, anyone > else?YES > From: " Rhonda " > <rhondaleokitty@...> > 18. Re: Fw: [MSViews_Multiple_Sclerosis] you > have to listen to your body my first sym... > From: " Jharbott " <jharbott@...> > 19. Re: Generic Naltrexone > From: " Rhonda " > <rhondaleokitty@...> > 20. interview > From: Kathy Penrose <kathypnrs@...> > 21. Inert Generic Naltrexone Ingredients > From: " Rhonda " > <rhondaleokitty@...> > 22. RE: Re: Generic Naltrexone > From: " Bruce Guilmette, Ph.D. " > <bruce@...> > 23. Re: Fw: [MSViews_Multiple_Sclerosis] you > have to listen to your body my first sym... > From: " tom bayuk " <tbayuk@...> > 24. Re: Fw: [MSViews_Multiple_Sclerosis] you > have to listen to your body my first sym... > From: " Aletha Wittmann " > <Aletha@...> > 25. Re: Fw: [MSViews_Multiple_Sclerosis] you > have to listen to your body my first sym... > From: " Sue Meier " <meiermom@...> > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 1 > Date: Fri, 08 Jul 2005 13:27:34 -0000 > From: " Rhonda " <rhondaleokitty@...> > Subject: about the script I've been waiting for this > week > > Can you believe he called in just 3 pills b/c he > told them exactly how > I take it at 4.5mgs so that is a month supply. > Damn!! and it was > Generic. I know Revia works so I want Revia. > Walmart didn't have > Revia. Does anyone know what filler is in the > Generic Naltrexone and > who makes it? > > I have a call in and waiting for Dr. F to call back > b/c going thru a > third party isn't working. I'm going to explain > that 30 Revia a month > is $35 and that last 10 months and 3 generic > naltrexone a month is $10 > so that would be $100 for 10 months. He needs to > write the script like > drug addicts take it or Take as Directed. Is there > anything legal > where he can't just say Take as Directed? I think > he will do the 1 > Revia a day knowing that i've been taking Revia for > 6 months on my > own. Boy does he need some training about LDN and > how to write scripts! > > Rhonda > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 2 > Date: Fri, 08 Jul 2005 13:29:40 -0000 > From: " Rhonda " <rhondaleokitty@...> > Subject: Generic Naltrexone > > Is anyone taking this with the same results as Revia > or the compounded > way? > > I haven't experimented opening both the 3mgs and > 1.5mgs and putting in > water to see if it works that way. I don't want to > waste a day and not > feel good. The compounded way is more expensive > also than the $35 for > 30 Revias which last 10 months. > > Rhonda > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 3 > Date: Fri, 08 Jul 2005 08:33:58 -0500 > From: " Joyce F. " <joyce445@...> > Subject: Hi group... > > Oh boy....it was just pointed out to me that my > message to the group did not > display in the daily digest cuz I changed my text > editor to one that will > not display there so I will copy and paste it to > post once more for those > that only receive the digest. Please bear with me if > you have already seen > this message. Here goes: > > Hi Group....just a quick question for a friend. Is > anyone out there taking > LDN for CLL? I know that it's on the list of things > that LDN should help but > someone who is taking it for this particular reason > is quite concerned so I > thought I'd try to see if anyone was taking it that > particular reason and > maybe I can get them connected. I sure wish we could > get all of the answers > that we need but unfortunately, all we have is > experimentation and to see > what others are saying. > I am also requesting anyone that has not written me > with the doc info of > their prescribing LDN doctor to please send me a > quick e-mail to > joyce445@... I have quite a list that I've > been maintaining and > adding to when I find new info but I can always use > more. I get requests > from people all the time and it's not a great > feeling when I have to > say...sorry...I have no one near you. It is my > feeling that everyone who > wants to give this therapy a go should have the > ability to try it. I don't > post the list anywhere but rather, if someone writes > to me or asks about a > general area, I tell them to write to me for > information and I'm happy to > report that I've been able to help more and more as > my list grows.I don't > see it as anything more then a referral from a > friend === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 In a message dated 5/1/2006 1:24:58 P.M. Central Daylight Time, Rheumatoid Arthritis writes: Date: Mon, 01 May 2006 04:52:15 -0000 From: "hookedonpopcorn" <hookedonpopcorn@...>Subject: Nursing and taking meds for RA???Does anyone know if you can nurse (breastfeed) if you are taking Methotrexate? It seems I remember someone on this list who has RA and was able to nurse taking meds. Though, I have a memory of this person maybe changing meds to something that wouldn't harm the baby.Jean Methotrexate is classed as fetal toxic. I think this would be an absolute NO! but I am sure if you want to nurse there are less toxic drugs that can be used that would be ok. Keep in mind that methotrexate is a drug used to help women abort and avoid surgery for tubal pregnancies... Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 I second Toni on that one, NO! My doctor made it very clear that you may breast feed after the drug has been out of your system for a certain amount of time (not sure now, how long she said it was.) But my first rheumy told me that once you had EVER been mtx, you could never breast feed, even if you were off it. I have heard from my new doctor, my sister (doctor) and other proffessionals that he was wrong, and you can certainly breast feed again, just not while the med. is still in your system. --- aclavern33@... wrote: > > In a message dated 5/1/2006 1:24:58 P.M. Central > Daylight Time, > Rheumatoid Arthritis writes: > > Date: Mon, 01 May 2006 04:52:15 -0000 > From: " hookedonpopcorn " <hookedonpopcorn@...> > Subject: Nursing and taking meds for RA??? > > Does anyone know if you can nurse (breastfeed) if > you are taking > Methotrexate? It seems I remember someone on this > list who has RA and > was able to nurse taking meds. Though, I have a > memory of this person > maybe changing meds to something that wouldn't harm > the baby. > > Jean > > > > Methotrexate is classed as fetal toxic. I think > this would be an absolute > NO! but I am sure if you want to nurse there are > less toxic drugs that can be > used that would be ok. > > Keep in mind that methotrexate is a drug used to > help women abort and avoid > surgery for tubal pregnancies... > > Toni > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 this is what I found regarding methotrexate with pregnancy and nursing: Methotrexate can cause fetal death or teratogenic effects when administered to a pregnant woman. Methotrexate is contraindicated in pregnant women with psoriasis or rheumatoid arthritis and should be used in the treatment of neoplastic diseases only when the potential benefit outweighs the risk to the fetus. Women of childbearing potential should not be started on methotrexate until pregnancy is excluded and should be fully counseled on the serious risk to the fetus (see PRECAUTIONS) should they become pregnant while undergoing treatment. Pregnancy should be avoided if either partner is receiving methotrexate; during and for a minimum of three months after therapy for male patients, and during and for at least one ovulatory cycle after therapy for female patients. (See WARNINGS.) Because of the potential for serious adverse reactions from methotrexate in breast fed infants, it is contraindicated in nursing mothers. Hope this helps Helen P NW Ohio aclavern33@... wrote: In a message dated 5/1/2006 1:24:58 P.M. Central Daylight Time, Rheumatoid Arthritis writes: Date: Mon, 01 May 2006 04:52:15 -0000 From: "hookedonpopcorn" <hookedonpopcorn@...>Subject: Nursing and taking meds for RA???Does anyone know if you can nurse (breastfeed) if you are taking Methotrexate? It seems I remember someone on this list who has RA and was able to nurse taking meds. Though, I have a memory of this person maybe changing meds to something that wouldn't harm the baby. Methotrexate is classed as fetal toxic. I think this would be an absolute NO! but I am sure if you want to nurse there are less toxic drugs that can be used that would be ok. Keep in mind that methotrexate is a drug used to help women abort and avoid surgery for tubal pregnancies... Toni New Messenger with Voice. Call regular phones from your PC and save big. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 Here’s a link I found to another site that has a discussion about nursing with RA. These are probably not medically trained people so check everything with your doctors and a pharmacist to make sure. God bless. http://www.lalecheleague.org/vbulletin/archive/index.php/t-483.html From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of aclavern33@... Sent: Monday, May 01, 2006 11:45 AM Rheumatoid Arthritis Subject: Re: Digest Number 1479 In a message dated 5/1/2006 1:24:58 P.M. Central Daylight Time, Rheumatoid Arthritis writes: Date: Mon, 01 May 2006 04:52:15 -0000 From: " hookedonpopcorn " <hookedonpopcorn@...> Subject: Nursing and taking meds for RA??? Does anyone know if you can nurse (breastfeed) if you are taking Methotrexate? It seems I remember someone on this list who has RA and was able to nurse taking meds. Though, I have a memory of this person maybe changing meds to something that wouldn't harm the baby. Jean Methotrexate is classed as fetal toxic. I think this would be an absolute NO! but I am sure if you want to nurse there are less toxic drugs that can be used that would be ok. Keep in mind that methotrexate is a drug used to help women abort and avoid surgery for tubal pregnancies... Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 Thanks to everyone for the info. Obviously, it is dangerous to the baby to nurse while taking methotrexate. Using formula or changing meds looks like the way to go. Jean ------------------------------------------------------------- ****Helen <helen050959@...> wrote: can cause fetal death or teratogenic effects when administered to a pregnant woman. Methotrexate is contraindicated in pregnant women with psoriasis or rheumatoid arthritis and should be used in the treatment of neoplastic diseases only when the potential benefit outweighs the risk to the fetus. Women of childbearing potential should not be started on methotrexate until pregnancy is excluded and should be fully counseled on the serious risk to the fetus (see PRECAUTIONS) should they become pregnant while undergoing treatment. Pregnancy should be avoided if either partner is receiving methotrexate; during and for a minimum of three months after therapy for male patients, and during and for at least one ovulatory cycle after therapy for female patients. (See WARNINGS.) Because of the potential for serious adverse reactions from methotrexate in breast fed infants, it is contraindicated in nursing mothers.***** *** aclavern33@... wrote: > Methotrexate is classed as fetal toxic. I think this would be an absolute NO! but I am sure if you want to nurse there are less toxic drugs that can be used that would be ok. Keep in mind that methotrexate is a drug used to help women abort and avoid surgery for tubal pregnancies...*** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 > dose depression come with your illness.' Oh, yes, I get very depressed. Maybe from the illness itself, maybe from the situation it causes... Take care, Quote Link to comment Share on other sites More sharing options...
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