....

[Guest guest]

Hi ...

Well it sounds like you are on the right track....I am glad that is looking into what goes on here....even if it is thru you he has to get some of it...

Ty has no interest on getting on here and discussing his problems....but he does hear me talking to his dad about my group friends...and what is going on....

I will be looking forward to hearing more from you....about yourself and ...

Luanne Ty's mom

[Guest guest]

Hey ....

I see that I must have missed some emails...but see that you are having a birthday...just pasted or soon....well just wanted to let you know....

Happy Birthday....to you..

Now to some of the other things you have written about....

Remicade is an infusion...for Rhuematoid Arthritis patients and for Crohns ....Ty had been taking Enbrel which was an injection for RA...and it was really helping him...but back in 99 he had a really bad Crohns flare...lost a lot of weight and was in the hosp...his then RA doctor was wonderful and worked hand in hand with his GI...they decided to change Ty's meds...off the enbrel and to get the Remicade infusions....so he started getting them in Nov of 99...they are usually given every 8-12 weeks...unfortunately Ty needs to get them closer...so he has been getting them every 4 weeks...and they are trying to get it to every 6 weeks...which is what we did last month...but he started having all kinds of symptons in that 5th week...painful joints....fevers....labs were worse when they did them...the day of the infusion...so not sure if we are going to be able to stretch them out....but trying again this time too...he goes on June 7th for the next infusion....hopefully he won't have problems before and be able to get the infusion...not go into shock again....

Ty also takes Celebrex....200mgs.2x's a day....he unfortunatley needs both the infusion and the Celebrex...without it he has problems...he has gone to the ER 3x' for severe pain in his joints...his hip...wrist...and knee...he has had MRIs at the time...and has to be put in a brace to help...the swelling is so bad that the circulation is cut off and his fingers or what ever the part has gone cold....turned blue and gone numb...so that is why he needs so much....

But I would definatley ask about the Celebrex or Enbrel...the Enbrel is an injection...you give yourself...a couple of times a week...Ty didn't like it...but he could do it...

Hope you have a nice weekend....

take care and talk soon

Luanne Ty's mom

[Guest guest]

Hi ...

Prednisone is a very odd med....Some feel the effect right away and others it takes some time....and you also say you are on a very low dose...so they may have to raise that for you to feel any relief.....The doctors probably don't know what dose is best for you until they try different ones....most are put on 20mgs...some on 40.....and others on 60mgs...so it is a shot in the dark.....but they will figure it out...it just takes time...

Ty has other auto-immune diseases...so everything is from his immune system attacking....he has Crohns, Rhuematoid Arthritis, Vasculitis, AIH and PSC which is another liver disease ...effecting the bile ducts....and then there are other things that are causing problems....from either the complications of the diseases or his meds...which he takes alot of....

Right now...he is doing ok....just finished his freshman yr at college and is working full time in at a Theme park here in our state...infact in our town....It is a Six Flags...called Great Adventures....it is his 4th yr there...and he is a manager now....he loves it.....hires , fires,...does the payroll and schedule and basically runs the area....

Well I hope that you begin to feel better....don't forget it takes time...

take care and talk soon

Luanne Ty's mom

[Guest guest]

Hi ...

First I want to tell you how wonderful the get together sounded...it really is nice to meet some of the people that we talk to all the time....

I have been lucky to meet Joan Claffey..her girls and her husband...and they have met Ty and Bob....we see each other every summer...they have a summer home down at the Jersey shore and Bob plays in a band in the summer out there...so we all get together....

and they went to Great Adventures ...an amusement park where Ty works and met up with Ty there too....

she is like my little sis...that I don't have...since they are so much younger than us...but that doesn't stop our friendship...

my garden is going well...still working alot on it...unfortunately the deer like it too....and just ate a couple of my very large hostas.....just stubs now...of well...what are you going to do...

I have old fashioned climbing roses...on 3 different fences...and they are all blooming...although last nights thunderstorms blew alot of them all over the yard...blossoms all over ...kind of pretty...but there are so many buds that there will be more roses soon....

Glad that you were able to make the trip for you get together....sounds like you all had soooo much fun...

take care and talk soon

Luanne Ty's mom

[Guest guest]

Hi ...

I think that sometimes it can be difficult to tell who is sending what here....

I am Tys mom....Debbie did send an email to me ...so maybe that is where the confusion comes in...no problem...

I don't think that a doctor will test kids for auto-immune diseases just because you have one....

it is not genetic...it is familia...meaning that it can run in families...but skips generations....

I know this is all very confusing...just keep reading and learn what you can...

take care and talk soon

Luanne Ty's mom

[Guest guest]

Hi ...

First thing I want to say is try not to be afraid...learn what you can and being well informed will help you with all of this....

Have you had your biopsy yet....if not ...hold tight and wait and see what those results are...that is the only way they can tell if you definately have AIH....

When my son was diagnosed he was diagnosed with 2 different ones at the same time...I did a lot or reading and research here on the computer as soon as they started talking about liver problems.....and that they were going to do a biopsy....so when they did that I was not in the dark...I knew what questions to ask....

at the time my son was only a sophmore in HS....he already had other auto-immune diseases...he has been sick since he was 9 and is now going to be 20 in Oct....

he is going to college...has a good job and is enjoying life alot right now....Ohhhh don't get me wrong....he has had very bad times.....but when he is feeling well....he is like everyone else...

He goes thru alot of trama....mainly because he has a lot of complicating diseases that he is being treated for....he has to go to the hosp once a month for a treatment...which he has a really hard time with....but once we are out of there he is back to being 19 and doing things with his friends....He does have times where he just wants to sleep alot....and so he does....

Today he worked all day...got home about 7...and is out with friends now....

It is a day to day thing....if he gets up feeling well.....it is a great day....and things go normally....we just never know when it will be that he gets up and needs to go to the ER......

luckily it has been awhile for him now....

so what I am trying to say is.....live everyday....to the fullest....don't let this disease get the better of you.....especially if you have not gone thru all the testing to know exactly if this is the case...

I am sure you have heard from others in the group....

this is a great place for lots of info and seeing that many here have really bad times.....and then really good times.....but everyone is still going....

take care and talk soon

Luanne Ty's mom

[Guest guest]

Luanne, you really have said it all...we must live each day to its fullest! Thanks for reminding me!

debby

Re: [ ]....

Hi ... First thing I want to say is try not to be afraid...learn what you can and being well informed will help you with all of this.... Have you had your biopsy yet....if not ...hold tight and wait and see what those results are...that is the only way they can tell if you definately have AIH.... When my son was diagnosed he was diagnosed with 2 different ones at the same time...I did a lot or reading and research here on the computer as soon as they started talking about liver problems.....and that they were going to do a biopsy....so when they did that I was not in the dark...I knew what questions to ask.... at the time my son was only a sophmore in HS....he already had other auto-immune diseases...he has been sick since he was 9 and is now going to be 20 in Oct.... he is going to college...has a good job and is enjoying life alot right now....Ohhhh don't get me wrong....he has had very bad times.....but when he is feeling well....he is like everyone else... He goes thru alot of trama....mainly because he has a lot of complicating diseases that he is being treated for....he has to go to the hosp once a month for a treatment...which he has a really hard time with....but once we are out of there he is back to being 19 and doing things with his friends....He does have times where he just wants to sleep alot....and so he does.... Today he worked all day...got home about 7...and is out with friends now.... It is a day to day thing....if he gets up feeling well.....it is a great day....and things go normally....we just never know when it will be that he gets up and needs to go to the ER...... luckily it has been awhile for him now.... so what I am trying to say is.....live everyday....to the fullest....don't let this disease get the better of you.....especially if you have not gone thru all the testing to know exactly if this is the case... I am sure you have heard from others in the group.... this is a great place for lots of info and seeing that many here have really bad times.....and then really good times.....but everyone is still going.... take care and talk soon Luanne Ty's mom

[Guest guest]

Hi .....

sorry but we are not from Florida...we live in NJ...although I used to live there as a child....well one yr...we lived in Winterhaven....

thanks for all your thoughts last monday...I know by having so many positive thoughts out there that it makes my day easier...don't feel so alone....I have really no family to turn to...well I do have a wonderful husband....but he is just as worried as me...and my other 2 kids live far...one in Atlanta ...son....and my daughter in Chicago....so don't like to worry them.....it is hard enough for them to know that their brother is sick....my daughter really has a tough time being so far away....and my mom is in a nursing home...she knows what is going on...but not the details...which she wouldn't understand anyways....that all the family there is....my husband has no family...well that is untrue...he does have a brother...living in florida...but he is not really interested in what is going on up here....and I have a brother....and he is really not into family very much....so as you can see I really do count on my on line family....

I do have a very good friend...since HS...and she cares alot....most other friends really don't want to hear what is going on....

Thanks.....

Luanne Ty's mom

[Guest guest]

Hi ...

sorry it has taken so long to get back to you....just alot of emails to read...way tooo many...

The NIH is in land...Bethseda....but we had to drive thru Delaware to get there...we live in NJ...

The hosp is very close to DC....and is run by the government...it does mainly studies....

The place is huge....

do you still live in Delaware....

talk soon

Luanne Ty's mom

[Guest guest]

, yes I am ! I have a 4 year old son, Tyler and I got my implants out when her was almost 2. I was severely sick, at the age of 27. I had a lot of issues to deal with and really wanted to get well before trying to get pregnant again. (I had implants for almost 9 years.) When implanted, towards the end-I was found to have thyroid disease and tested positive for Rheumatoid arthritis as well as disturbing ms symptoms and many others! Too scary to go over. So I was a little careful about getting pregnant.

I would say a year is good, if you explant and do some cleaning up. I did some detoxing, changed my diet, went on antibiotic therapy and take some great supps. I no longer have RA and no more MS symptoms. I have my life back and got pregnant right away. Besides some morning sickness, all is well! I also had infections and high metal counts that I needed to address, that I believed as well as my docs- that messed with my immunity. Are you very ill> any auto immnue illnesses? How long have you had implants? Love, ....

I see from your post you are pregnant! Just wondering how long after explant did you become preg? I want to have another baby but am scared of being preg. because I'm only 5months post explant & still having some of my symptoms. I was thinking I would have to wait a yr or 2? Thanks

[Guest guest]

Thanks for responding!

My story is I was 24 with no symptoms before & my little boy just

turned 1yr, I got implants Jan 30,2004 & within 2wks started having

all kinds of symptoms, most being weakness, burning zaps thruout,

alot of MS like symptoms. To make a very long story short, I had

them out Aug 12,2004 & I was better instantly so I didn't do any

detoxing etc. & then in Nov. I started getting some of my symptoms

back. When you say MS symptoms what kind did you have? how long did

they take to go away? I know I don't have MS, but having the same

symptoms is scary.

Thanks

> , yes I am ! I have a 4 year old son, Tyler and I got my

implants out when her was almost 2. I was severely sick, at the age

of 27. I had a lot of issues to deal with and really wanted to get

well before trying to get pregnant again. (I had implants for almost

9 years.) When implanted, towards the end-I was found to have

thyroid disease and tested positive for Rheumatoid arthritis as well

as disturbing ms symptoms and many others! Too scary to go over. So

I was a little careful about getting pregnant.

> I would say a year is good, if you explant and do some cleaning

up. I did some detoxing, changed my diet, went on antibiotic therapy

and take some great supps. I no longer have RA and no more MS

symptoms. I have my life back and got pregnant right away. Besides

some morning sickness, all is well! I also had infections and high

metal counts that I needed to address, that I believed as well as

my docs- that messed with my immunity. Are you very ill> any auto

immnue illnesses? How long have you had implants? Love, -----

Original Message -----

> From: cnjcramer<mailto:cnjcramer@y...>

> To:

<mailto: >

> Sent: Monday, January 17, 2005 5:19 PM

> Subject: ....

>

>

>

>

> I see from your post you are pregnant! Just wondering how long

after

> explant did you become preg? I want to have another baby but am

> scared of being preg. because I'm only 5months post explant &

still

> having some of my symptoms. I was thinking I would have to wait

a yr

> or 2? Thanks

>

>

>

>

>

>

>

[Guest guest]

Hi ,

I think you have a very valid reason for seeking

surgical options. You shouldn't have to hold up your

eyelid with your finger. If your vision is effected

you shouldn't feel bad about getting a second opinion.

And even if you did want to have surgery for cosmetic

reasons - that's YOUR choice.

Hugs,

April

--- Harvey <happyappykd@...> wrote:

> Hi all,

> Beth, thanks once again for your thoughts. As

> others have mentioned, it is always so great to read

> your postings. Ok, since you shared some of your

> rants, here is my rant...( from North

> Carolina here).

>

> I recently went to the doctor the see about any

> repair needed for my left eye that seems to be

> drooping as of late (since my sugery was completed

> 25 years ago) and I wanted to make sure there was no

> follow up necessary. The doctor proceeded to tell

> me that he could see the difference in my left eye

> but stated that the invasiveness of the surgery to

> repair it would not be worth it for the improvement

> I would get, if any. I was fine with that, I only

> wanted to make sure. But then he went on to say,

> " Look, you are an attractive woman who probably

> notices a slight assymetry in your eyes and you

> would like to have it corrected, but most people

> wouldn't notice it. " LIKE I WOULD CARE ABOUT MY

> APPEARANCE THAT MUCH NOW AFTER LIVING WITH BPES FOR

> 31 YEARS. It made me so angry that he would think

> that I was seeking his opinion strictly for cosmetic

> reasons and that I would be that vain. ly I am

> tired of holding my eyelid up with my finger at the

> end of the day after my eyebrow

> muscles get too tired to hold it up. If I was that

> concerned about my appearance, I think I would have

> gone in to have additional surgery when I was

> getting teasted EVERY DAY of the first grade!

>

> Anyway, that is my rant. I'm sorry for dumping it

> on all of you. It's just that sometimes it's so

> hard to get people, especially doctors to understand

> that it isn't just cosmetic. The fact is, I can't

> see as well as other people because my eyelids hang

> down, and my eyebrows get tired.

>

> Sorry to go on. HAPPY NEW YEAR!!!!

>

>

>

> bethgordon03 <bethgordon03@...> wrote:

> I am always interested to hear about your family

> and how it was

> formed...

>

> There are kids who have BPES type characteristics

> combined with

> other birth defects. You would think doctors and

> nurses would pay

> more attention to things, but, I don't think they

> all do, when you

> are talking about your basic pediatrics or family

> practice. Every

> time I take Lily to the pediatrician, one of the

> doctors or nurses

> says something like, " can she see or what " or " why

> are her eyes so

> small " . I just say yes well she is like her mama.

> It's a big

> practice but I just can't believe they can't

> remember us, or that

> one of them hasn't been curious enough to Google

> BPES, if there were

> any other peds near my house, believe me, I would

> have switched by

> now.

>

> Sorry for the rant

>

>

>

> >

> > > Yikes friends, i sure didn't mean to offend

> anybody.

> > > My heart hurts, it sounds like i have. I was

> just

> > > sharing what was on my heart and mind. I only

> asked

> > > about ethnicity, due to that fact that i never

> > > noticed any Asian families in photos, I love

> looking

> > > at the photos, i look at them often, we have a

> > > beautiful group. My doctor also mentioned to me

> that

> > > BPES generally, (using his words,not mine) did

> not

> > > effect the Asian population. But again, i am so

> > > sorry if i offended anyone. Know that my heart,

> of

> > > course, is so sensitive to all of your feelings,

> we

> > > are all going through the same trials, and i

> have

> > > always felt " safe " to say or ask just about

> anything

> > > to you all. I consider all of you my friends, i

> > > never would say something rude or insensitive,

> at

> > > least not intentionally. But Boy, i guess i

> have.

> > > hope you all forgive me for any offenses.

> > > kk

> > >

> >

> >

> >

> > __________________________________________

> > DSL – Something to write home about.

> > Just $16.99/mo. or less.

> > dsl.

> >

>

>

>

>

>

=== message truncated ===

__________________________________

for Good - Make a difference this year.

http://brand./cybergivingweek2005/

[Guest guest]

.....

I have to have my coffee...but I take Darvocet with it. Weird but it doesn't make me feel hyper. I think it is because I'm so used to it. Darvocet does make me feel like I have more energy once it kicks in. I know a few people who can't take it because 1) it makes them sleepy or 2) makes them feel hyper. LOL

I'm a coffee drinker also.... have to have it first thing.

Have a good week...

a

[Guest guest]

Hi a,

That is good to know. I think I'm going to try it next time.

>

> Hi ....

>

> I used to use my thigh all the time. For me, it hurt less than the

stomach.

> I would do the injection about 5 inches down. It was just less

painful

> than the stomach for me.

>

> a

>

[Guest guest]

,

I just wanted to say congratulations on your upcoming

adoption! We have adopted three WONDERFUL kiddos from

South Korea. Including our son, Micah, who has BPES!

We are going in for his yearly eye check this

afternoon. He's the most incredible kid ever. I

can't imagine our lives without him.

Adoption is a wonderful journey. If you get a little

crazy during the wait feel free to email. I know what

it's like.

April Eisele

Colorado, USA

--- Harvey <happyappykd@...> wrote:

> CBJ,

> First, thank you, thank you, thank you, for sharing

> your thoughts with this group and second thank you

> to everyone else for the feedback. Honestly I would

> have no idea where to even begin if it weren't for

> all of you. I was the first in my family to have

> BPES and I had my daughter 3 years ago after trying

> to conceive for two years. Funny thing is that I

> went to the doctor's office for a fertility

> treatment consult (i.e. Clomid) and I walked out of

> the doctor's office having found out that I was

> pregnant - I was shocked!

>

> Anyway, I haven't been able to get pregnant since

> and I didn't even know that I had a genetic syndrome

> until my daughter was born and I realized that I had

> passed my " eyes " along to her. The night I got home

> from the hospital, after having my daughter, I

> searched around on the internet and found out about

> BPES.

>

> I think I would feel differently about having

> children (or rather the inability to have a child)

> if I didn't already have my daughter. The fact that

> I was able to have at least one child biologically,

> BPES and all, is something I can't describe. She is

> such a love. However, I can say that knowing that I

> am the reason she has BPES and that she is already

> getting teased by the neighborhood kids because of

> the syndrome I passed to her is indeed painful. But

> if I had passed along some other cosmetic trait I

> would probably feel the same. The part of the

> syndrome that isn't cosmetic and does make me sad is

> that she may struggle to get pregnant when she is

> older.

>

> However, I will not be defined by BPES and my family

> won't either so we are adopting a baby!!! I feel

> for our family it is the best decision and we cannot

> wait to meet the new little one. We are still in

> the beginning stages of the adoption process but

> when I think about how it will make Paige feel when

> she is older to have an adopted sibling (or

> siblings) it may make her realize that her family

> doesn't have to be biological to be a family. Like

> I said, it is the right decision for our family and

> we are thrilled.

>

> One piece of information that I read that was

> encouraging is that POF doesn't necessarily mean

> that you will not ever be able to get pregnant as it

> is not the same exact thing as menopause. Click the

> following link for more information:

>

http://www.nichd.nih.gov/health/topics/Premature_Ovarian_Failure.cfm

>

> Thanks again for everyone's remarks. I am truly

> grateful for this group.

>

>

> North Carolina, USA

>

>

> blepharophimosis Re: 48hrs to infertility

>

> Hi all,

>

> I just wanted to give you an update on our status

> with the lab

> results. My FSH is indeed elevated and it looks like

> we will pursue

> egg donor. Thanks for all your support on this

> journey this week.

> Though my husband has been very supportive, there is

> nothing like

> having the support of women who understand what I am

> going through.

>

> I will continue to post as we begin the process. I

> am hoping that

> others who live in the US may benefit from some of

> the details

> regarding services, complications, etc. that we

> face.

>

> Thanks again,

> CBJ

>

>

>

>

>

>

>

________________________________________________________________________________\

____

> It's here! Your new message!

> Get new email alerts with the free Toolbar.

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[Guest guest]

As far as I know, Most people post messages to the group because they

know that we have had a lot of experience with pain and surgeries. If you

feel that you already know everything or have your answers, then Im not

sure why you post to the group. As said, she does have a ton of

background, and she has helped many of us over and over. Please dont put

her down to this group. Thank you! April

Big Surgery just 12 days away

> >

> >  

> > Well, hope this finds everyone doing as well as can be. I am

getting ready to have my fusion of L5/S1 and ADR of L4/L5 with the

Pro-disc. My surgeon is Dr. Bertagnoli (http://www.dr- bertagnoli.

com/) one of the leading spinal surgeons in the world. Just checking

in to see what suggestions anyone may have? Dr. Bertagnoli stated

that I would be able to drive within 2 weeks of the surgery and even

go back to work (desk job). I am not one to rush back to work,

however I am not one to just sit around and do nothing if I can help

it. Is this a realistic expectation? He too stated that I will be

wearing a brace for a short period of time, this brace will pretty

much dictate the my limitations as far as bending, I understand that

I will not be picking up heavy items etc...

> >

> > What are somethings I should expect? I will probably be in the

hospital for 5-7 days (this is the German way). I will journal my

surgery pre-op and post-op so I can share with everyone my expereince

and my recovery so everyone can learn.

> >

> > I look forward to any input.

> >

> > Thanks....

> >

> > (Big day 24 August 2009)

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Now , who is the IGNORANT one, I have not once called you a name, used any

profanity. I notice that many people who are so defensive have something to

hide. So, you dumb FUCK! You are showing how stupid you are. If the FDA approves

something, guess where they approved it do be used. YES, that is right in the

United States of America. So, let me make it more clear....FDA approved = able

to use in the USA. Now, the PRODisc people have made clear rules for training

before any surgeon can use this device. Perhaps you should read their web

sites...

As far as seeing any of the things listed, sure I have seen them...on the

internet, anyone can gain the knowledge you have by reading. You clearly have

some knowledge and like I mentioned in the last email I acknowledge that,

however for you to start name calling, and commenting on intelligence, really

lowers yours and your credibility.

If I have offended you, then so be it, and many SURGEONS DO NOT TRAVEL THE WORLD

TEACHING THE PRODISC technique. Yes, many travel, but not to TEACH....

You do not impress me, and I would hope that anyone that comes to this site DO

NOT use your words as the GOSPEL. This is a good site to share experience, but I

can assure you TRACY you have NO credibility, NO authority, and NO PLACE to tell

people what to do and what not to do. I am not suggesting this is what you do,

but your rant about what you have done, does not qualify you as an EXPERT. I

assure you, that your opinion is not being seeked by surgeons, you would never

be asked to testify in a court of law as an EXPERT. So, don't make it sound like

you are one. Because you suck out blood, and maybe hold something to the side so

that a Surgeon can gain access to something means nothing to me. My wife is in

Medical school, and she has done MORE than you have as far as putting your hands

on anything, and she will always do more than you.

Stop, trying to sound like something you are not.

Good Day!

P.S.

Stop being so defensive, to have someone question your experience should not be

offensive to you. That is very unproffessional. I am wondering how many books

you have written with your EXPERT experience. Now, I know you are going to call

me names cause you never said you were an EXPERT, however based on your

comments, this is what you are trying to imply.

> > >

> >

> > Well, I can tell you that it is FDA approved, so it must be past the

clinical trials. I am in the US Army, and my insurance is paying for it TRI CARE

Europe.

> >

> > My Surgeon is one of the founders of the Pro-disc, he has done over 2500

procedures. The reason for the pro-disc is because once the fusion is completed

there will be added stress on the L4/L5 which is DDD.

> >

> > Perhaps in whatever state and/or hospital you are afiliated with, but I can

tell you that many US Patients come here to Germany as well as my Doctor has

gone to the US for many, many procedures. Many, Many insurance companies pay for

this.

> >

> > If you research it on their web site, you will see.

> >

> >

> > > Who's paying for this? As I last knew, the prodisc was like the others,

still in clinical trials. As such, it is only available here for ONE level, and

no other levels can be fused or even diseased or need surgery.

> > >  --- Babbitt

> > >

> > >

> > >

> > >

> > > ____________ _________ _________ __

> > > From: daniel <cdnlager2001@ ...>

> > > spinedisorderssuppo rtgroup@gro ups.com

> > > Sent: Wednesday, August 12, 2009 11:38:52 AM

> > > Subject: Big Surgery just 12 days away

> > >

> > >  

> > > Well, hope this finds everyone doing as well as can be. I am getting ready

to have my fusion of L5/S1 and ADR of L4/L5 with the Pro-disc. My surgeon is Dr.

Bertagnoli (http://www.dr- bertagnoli. com/) one of the leading spinal surgeons

in the world. Just checking in to see what suggestions anyone may have? Dr.

Bertagnoli stated that I would be able to drive within 2 weeks of the surgery

and even go back to work (desk job). I am not one to rush back to work, however

I am not one to just sit around and do nothing if I can help it. Is this a

realistic expectation? He too stated that I will be wearing a brace for a short

period of time, this brace will pretty much dictate the my limitations as far as

bending, I understand that I will not be picking up heavy items etc...

> > >

> > > What are somethings I should expect? I will probably be in the hospital

for 5-7 days (this is the German way). I will journal my surgery pre-op and

post-op so I can share with everyone my expereince and my recovery so everyone

can learn.

> > >

> > > I look forward to any input.

> > >

> > > Thanks....

> > >

> > > (Big day 24 August 2009)

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

You Sir, Absolutely need lessons in how to talk to people

or maybe you should look the word RUDE up!

In a message dated 8/14/09 2:07:14 AM Eastern Daylight Time,

cdnlager2001@... writes:

> Now , who is the IGNORANT one, I have not once called you a name,

> used any profanity. I notice that many people who are so defensive have

> something to hide. So, you dumb FUCK! You are showing how stupid you are. If

the

> FDA approves something, guess where they approved it do be used. YES, that

> is right in the United States of America. So, let me make it more

> clear....FDA approved = able to use in the USA. Now, the PRODisc people have

made

> clear rules for training before any surgeon can use this device. Perhaps you

> should read their web sites...

>

> As far as seeing any of the things listed, sure I have seen them...on the

> internet, anyone can gain the knowledge you have by reading. You clearly

> have some knowledge and like I mentioned in the last email I acknowledge

> that, however for you to start name calling, and commenting on intelligence,

> really lowers yours and your credibility.

>

> If I have offended you, then so be it, and many SURGEONS DO NOT TRAVEL THE

> WORLD TEACHING THE PRODISC technique. Yes, many travel, but not to

> TEACH....

>

> You do not impress me, and I would hope that anyone that comes to this

> site DO NOT use your words as the GOSPEL. This is a good site to share

> experience, but I can assure you TRACY you have NO credibility, NO authority,

and

> NO PLACE to tell people what to do and what not to do. I am not suggesting

> this is what you do, but your rant about what you have done, does not

> qualify you as an EXPERT. I assure you, that your opinion is not being seeked

by

> surgeons, you would never be asked to testify in a court of law as an

> EXPERT. So, don't make it sound like you are one. Because you suck out blood,

> and maybe hold something to the side so that a Surgeon can gain access to

> something means nothing to me. My wife is in Medical school, and she has done

> MORE than you have as far as putting your hands on anything, and she will

> always do more than you.

>

> Stop, trying to sound like something you are not.

>

> Good Day!

>

> P.S.

>

> Stop being so defensive, to have someone question your experience should

> not be offensive to you. That is very unproffessional. I am wondering how

> many books you have written with your EXPERT experience. Now, I know you are

> going to call me names cause you never said you were an EXPERT, however

> based on your comments, this is what you are trying to imply.

>

>

> >

>

>

>

>

>

>

[Guest guest]

I sure hope that doesn't listen to all this babble. I have

learned a lot from 's emails (and checked up on what she said

only to find out that she was right!) and I'm sure a lot of others in

this group have too.

This email from was absolutely uncalled for. The 4-letter word

he uses is extremely offensive - and he sent it to the whole group.

That is not what this group is about. I believe he needs to be banned

from the group.

Hang in there, , and keep the emails coming!!! Thank you for all

your insights!!

Dawn

On Aug 14, 2009, at 2:06 AM, daniel wrote:

> Now , who is the IGNORANT one, I have not once called you a

> name, used any profanity. I notice that many people who are so

> defensive have something to hide. So, you dumb FUCK! You are showing

> how stupid you are. If the FDA approves something, guess where they

> approved it do be used. YES, that is right in the United States of

> America. So, let me make it more clear....FDA approved = able to use

> in the USA. Now, the PRODisc people have made clear rules for

> training before any surgeon can use this device. Perhaps you should

> read their web sites...

>

> As far as seeing any of the things listed, sure I have seen

> them...on the internet, anyone can gain the knowledge you have by

> reading. You clearly have some knowledge and like I mentioned in the

> last email I acknowledge that, however for you to start name

> calling, and commenting on intelligence, really lowers yours and

> your credibility.

>

> If I have offended you, then so be it, and many SURGEONS DO NOT

> TRAVEL THE WORLD TEACHING THE PRODISC technique. Yes, many travel,

> but not to TEACH....

>

> You do not impress me, and I would hope that anyone that comes to

> this site DO NOT use your words as the GOSPEL. This is a good site

> to share experience, but I can assure you TRACY you have NO

> credibility, NO authority, and NO PLACE to tell people what to do

> and what not to do. I am not suggesting this is what you do, but

> your rant about what you have done, does not qualify you as an

> EXPERT. I assure you, that your opinion is not being seeked by

> surgeons, you would never be asked to testify in a court of law as

> an EXPERT. So, don't make it sound like you are one. Because you

> suck out blood, and maybe hold something to the side so that a

> Surgeon can gain access to something means nothing to me. My wife is

> in Medical school, and she has done MORE than you have as far as

> putting your hands on anything, and she will always do more than you.

>

> Stop, trying to sound like something you are not.

>

>

> Good Day!

>

> P.S.

>

> Stop being so defensive, to have someone question your experience

> should not be offensive to you. That is very unproffessional. I am

> wondering how many books you have written with your EXPERT

> experience. Now, I know you are going to call me names cause you

> never said you were an EXPERT, however based on your comments, this

> is what you are trying to imply.

>

>

>

>>>>

>>>

>>> Well, I can tell you that it is FDA approved, so it must be past

>>> the clinical trials. I am in the US Army, and my insurance is

>>> paying for it TRI CARE Europe.

>>>

>>> My Surgeon is one of the founders of the Pro-disc, he has done

>>> over 2500 procedures. The reason for the pro-disc is because once

>>> the fusion is completed there will be added stress on the L4/L5

>>> which is DDD.

>>>

>>> Perhaps in whatever state and/or hospital you are afiliated with,

>>> but I can tell you that many US Patients come here to Germany as

>>> well as my Doctor has gone to the US for many, many procedures.

>>> Many, Many insurance companies pay for this.

>>>

>>> If you research it on their web site, you will see.

>>>

>>>

>>>> Who's paying for this? As I last knew, the prodisc was like the

>>>> others, still in clinical trials. As such, it is only available

>>>> here for ONE level, and no other levels can be fused or even

>>>> diseased or need surgery.

>>>> --- Babbitt

>>>>

>>>>

>>>>

>>>>

>>>> ____________ _________ _________ __

>>>> From: daniel <cdnlager2001@ ...>

>>>> spinedisorderssuppo rtgroup@gro ups.com

>>>> Sent: Wednesday, August 12, 2009 11:38:52 AM

>>>> Subject: Big Surgery just 12 days away

>>>>

>>>>

>>>> Well, hope this finds everyone doing as well as can be. I am

>>>> getting ready to have my fusion of L5/S1 and ADR of L4/L5 with

>>>> the Pro-disc. My surgeon is Dr. Bertagnoli (http://www.dr-

>>>> bertagnoli. com/) one of the leading spinal surgeons in the

>>>> world. Just checking in to see what suggestions anyone may have?

>>>> Dr. Bertagnoli stated that I would be able to drive within 2

>>>> weeks of the surgery and even go back to work (desk job). I am

>>>> not one to rush back to work, however I am not one to just sit

>>>> around and do nothing if I can help it. Is this a realistic

>>>> expectation? He too stated that I will be wearing a brace for a

>>>> short period of time, this brace will pretty much dictate the my

>>>> limitations as far as bending, I understand that I will not be

>>>> picking up heavy items etc...

>>>>

>>>> What are somethings I should expect? I will probably be in the

>>>> hospital for 5-7 days (this is the German way). I will journal my

>>>> surgery pre-op and post-op so I can share with everyone my

>>>> expereince and my recovery so everyone can learn.

>>>>

>>>> I look forward to any input.

>>>>

>>>> Thanks....

>>>>

>>>> (Big day 24 August 2009)

>>>>

>>>>

>>>>

>>>>

>>>>

>>>>

>>>>

>>>>