Re: wondering about rocephin

December 30, 2001

I just started IV rocephin about a month ago and just finished two weeks of

utter hell from a herxheimer. Last week I started oral Flagyl along with it.

Yesterday I finally felt myself coming out of the herx thankfully... for

now. But I have to say, dealing with the physical suffering of the

herxheimer is not as bad as the emotional suffering/panic I felt when orals

stopped helping me and I started sliding backwards.

I wanted to also tell of a little experience I just dealt with. Last night I

spent 3 hours in the emergency room in order to have my PICC line (midline)

cleared. The blood has clotted inside it. After 3 hours of waiting to see a

doctor, they told me that they have " no protocol " in dealing with PICC

lines. In other words, " we don't wanna get sued (or get sued again). " My

home nurse had no idea the hospital had changed their policy. So, my only

choice now is to get a whole new line put in!! I'm supposed to get a new

line again next week, but I'm annoyed that that is my only option anytime I

get a clot?!?

I was late flushing the line on saturday so I know it's my own fault.... but

this is ridiculous. They tell me that I only have to flush it once a day

(when I do my infusion) but look what happens when I actually do it once a

day! I have been doing it twice a day because the blood backs up into the

tube ALL THE TIME. I don't like pumping that heparin in my body twice a day

no matter how diluted it supposedly is but I have no choice. They say it's

normal for it to back up like that and yet they are perplexed when it clots

because I was late doing a flush.

So, tomorrow they will pull this line out and put in a new one.

Jen

January 1, 2002

WOW, Jen,

I just went to your web site and I am so impressed and please with

all the work you have done.

I did attempt web design before my last relapse and I understand why

you like it, especially the writing and fine arts sides.

You have an amazing story to tell. Keep up the great work!

Living in Faith,

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