Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 Vince & , 1. Have you heard of the study on ALS using multile antimicrobilas? I am not sure if they are still accepting patients. Let me know if u need further info. 2. This is a possible treatment: Unasyn 3G/tid. Monitor bloods closely, if and when this becomes intolerable, decrease to 1.5 Qid. It has anecdotally improved swallowing. To justify= Dr. B's protocls mention Unasyn as a good option in rocehin failures. Do for as long as possible, but a bare minimum 10 weeks. Watch out for yeast infections- yogurts (liquid ith live cultures-find at health food stores, mix with water, deliver via peg), refrigerated probiotics (avoid all with , nystatin (may trouble severe hypoglycemics). Deliver " pasteurized juices via peg-available at health food stores-fresh, refrigerated best, esp. vegetable juices if can be found-most have tomato which is highly acidic and not tolerated by reflux disease. Juicing may be risky since it is not pasteurized, also a multi-gran drink. This covers all most food groups (yogurt, juices, grains). Best enteral food source- Novasource 2.0 has 475 calories per drink. Feed 5 or 6 meals daily, can possibly tolerate about 24 ozs, maybe slightly more total liquids at one feeding- 7am (2 nova), 10am(nova, yogurt), 1pm (nova, juice), 4pm(nova,multi-grain),7pm (nova, juice), 10pm(nova, yogurt). For severe yeast, increase probiotic supplements. Oral antibioitcs should not be taken within 2 hrs of probiotics (or yogurt), or with acidic juices. Also, prayer is tremendous. And Vince, with proper meds- you WILL improve-plenty of ALS patients living on proper treatments and baffling docs. lymeliterate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 & Vince, On the line about probotics I meant to finish- avoid probiotics with enterococcus faecium as it may hypothetically transfer antibiotic resistant genes to another organism. You are in my prayers. lymeliterate > Vince & , > > 1. Have you heard of the study on ALS using multile antimicrobilas? I am not sure if they are still accepting patients. Let me know if u need further info. > > 2. This is a possible treatment: > > Unasyn 3G/tid. Monitor bloods closely, if and when this becomes intolerable, decrease to 1.5 Qid. It has anecdotally improved swallowing. To justify= Dr. B's protocls mention Unasyn as a good option in rocehin failures. Do for as long as possible, but a bare minimum 10 weeks. Watch out for yeast infections- yogurts (liquid ith live cultures-find at health food stores, mix with water, deliver via peg), refrigerated probiotics (avoid all with , nystatin (may trouble severe hypoglycemics). Deliver " pasteurized juices via peg-available at health food stores-fresh, refrigerated best, esp. vegetable juices if can be found-most have tomato which is highly acidic and not tolerated by reflux disease. Juicing may be risky since it is not pasteurized, also a multi-gran drink. This covers all most food groups (yogurt, juices, grains). Best enteral food source- Novasource 2.0 has 475 calories per drink. Feed 5 or 6 meals daily, can possibly tolerate about 24 ozs, maybe slightly more total liquids at one feeding- 7am (2 nova), 10am(nova, yogurt), 1pm (nova, juice), 4pm(nova,multi-grain),7pm (nova, juice), 10pm(nova, yogurt). For severe yeast, increase probiotic supplements. > Oral antibioitcs should not be taken within 2 hrs of probiotics (or yogurt), or with acidic juices. Also, prayer is tremendous. And Vince, with proper meds- you WILL improve-plenty of ALS patients living on proper treatments and baffling docs. > > lymeliterate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 I talk to on the phone all the time. They are doing a great protocol, improvement all the time~~ we are doing alot of alternative therapy as well as traditional. Thanks for the info, I will tell . Whom else do you have as ALS patients?? I am very interested because we are putting together a study. I have 91 people so far. Please write me privately. sue in nj sue massie Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.