what do you all think about my life

[Guest guest]

my name is angela i have have had RA sence i was 12 i had the kids RA

The older i got now 37 i been on all these meds every day and night.

perdisone 5mg i pill in the morning.one at night

methtake cemp pills 8 pills on sunday night.2.5mg

folic acid 1mg at every morning then 800 mg at night to keep me from

geting sick from the meth.

i also take clonazpame 4 at night before bed.

one in the day if needed.

i am on remidiced to 200 mg every 8 weeks on tuesday but that realy gets

to me

i take 2 tanorayl in the day and 2 at night 500mg.

for pain but when it fares up from stress its hard to handal you get

weke out at times but the doctor tells me sometimes alot of sleep helps

your body relax so i try to rest he tells me to try to get 8 hours of

sleep and 30 munint nap in the afternoon.

i have been told my nevers got worse sence my arthtitis did and that

depresion is part of the RA.

alot of others think i am lazy when i cant sleep do to my RA Hurts i

still clam from the nevers but i have alot of pain at times

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[Guest guest]

Dear - I am on the same as you but I take darvocet instead. I take six mg of prednisone in am and 1 more in pm. PM is also plaquenil, ibuprofen,darvocet, trazadone,ativan, soma. I take very little of all of these save 1. Ativan. It makes all the difference in your sleep. Remember to use a foam mattress topper to cushion your joints. I have to make foam pillows for my ankles and knees as well as my hip. If my bones touch, I can feel it in the morning when I wind up on the opposite side. I would think about asking your doctor if you can take 4 pills mtx on sunday and 4 on monday. I used to take 8 and thats a truck load. Have you heard about MRA and Rituxan. One works on the B cells in your body and the other interlukin 6. You might ask your dr about those. I found strangely that MTX wipes me out as long as the remicade is effective. Once it has cleared my body (12 weeks now) The MTX actually helps with flares and gives me some energy as the RA gets a stronger hold on me causing fatigue. I can tell that my immune system is attacking me and the MTX slows it down and I can tell the difference. I get my next infusion Monday but dont know how long I will have to wait until I am back to my old self which is better than my 12 weeks off Remicade self. I got my RA at 33 and that was 12 years ago. I dont know how you manage at all. You are a very courageous person. Yours, Deborah

On 3/31/06, angelafromky@... <angelafromky@...> wrote:

my name is angela i have have had RA sence i was 12 i had the kids RAThe older i got now 37 i been on all these meds every day and night.perdisone 5mg i pill in the morning.one at night

methtake cemp pills 8 pills on sunday night.2.5mgfolic acid 1mg at every morning then 800 mg at night to keep me fromgeting sick from the meth.i also take clonazpame 4 at night before bed.one in the day if needed.

i am on remidiced to 200 mg every 8 weeks on tuesday but that realy getsto mei take 2 tanorayl in the day and 2 at night 500mg.for pain but when it fares up from stress its hard to handal you get

weke out at times but the doctor tells me sometimes alot of sleep helpsyour body relax so i try to rest he tells me to try to get 8 hours ofsleep and 30 munint nap in the afternoon.i have been told my nevers got worse sence my arthtitis did and that

depresion is part of the RA.alot of others think i am lazy when i cant sleep do to my RA Hurts istill clam from the nevers but i have alot of pain at times