Re: Quality of Life Poll? / LYRA

[Guest guest]

Robyn,

Thanks for the note..I showed it to my husband. I think he has been

dealing with it OK so far. I am taking him to counseling so her will

learn how to deal with it. He is so loving and I am hoping we will

make it through the long haul. Even though I don't feel well a lot of

the time I have been able to go out socially so far.

Lyra

>

> I was also a newleywed in 1993 when this disease REALLY hit

me. I had

> gotten married in Sept of that year and flat on my back by Nov. Lyra

do

> yourself and your husband a favor.. GET COUNSELING on how to deal

with this

> situation. I will not lie to you... This is and will affect your

marriage

> especially since you're just starting out... I was in the SAME

position you

> are...Unfortunately at the time my husband did not feel counseling

would help

> HIM understand or handle the situation better because he thought he

was doing

> just fine. Well 3 1/2 yrs after we were married we were divorced

because he

> was doing so well at handeling things.. I have since then remarried

and made

> SURE my current husband new FULLY what he was getting into.. I took

him to

> ALL my doctor and had them sit him down and tell him EXACTLY what

the deal

> was and I gave him more than ample opportunity to leave me and find

someone

> healthy he could be with. Allthough I didn't want him to go I loved

him and

> do love him enough to let him go so he could and can be happy... So

PLEASE be

> sure to GET COUNSELING.. this isn't a lil thing and it will and does

affect

> everyone you're involved with.. Good Luck..

> Robyn In NJ

> " It is not important how much the soul loves,

> but

> Rather how much the Soul IS Loved. "

>

>

>

>