Re: wondering about Rocephin/Jen

[Guest guest]

Dear Jen,

What a horrible experience, in more ways than one! I can't imagine going to an

emergency room for something so seemingly simple for them to take care of and

them refusing to do anything for fear of getting sued, assumingly, or for any

other reason. They should be more afraid of getting sued for NOT administering

proper care to a person in an emergency situation. That's my way of thinking,

anyway. They were right when they said they had " no protocol. " Only my term for

" protocol " means no common courtesy, etiquette, or ethics.

Can you arrange for a plan of action now (ahead of time) in case this happens

with the new line? Is there another hospital near you? Can you call your home

health nurse to clear the line, if necessary, or go into your doctor's office?

How about one of these " store-front " emergency clinics? Try to make some kind of

alternate emergency arrangements so you don't worry too much about it all the

time.

Love ya,

Rose

===========

Jen wrote:

<snip>

I wanted to also tell of a little experience I just dealt with. Last night I

spent 3 hours in the emergency room in order to have my PICC line (midline)

cleared. The blood has clotted inside it. After 3 hours of waiting to see a

doctor, they told me that they have " no protocol " in dealing with PICC

lines. In other words, " we don't wanna get sued (or get sued again). " My

home nurse had no idea the hospital had changed their policy. So, my only

choice now is to get a whole new line put in!! I'm supposed to get a new

line again next week, but I'm annoyed that that is my only option anytime I

get a clot?!?

I was late flushing the line on saturday so I know it's my own fault.... but

this is ridiculous. They tell me that I only have to flush it once a day

(when I do my infusion) but look what happens when I actually do it once a

day! I have been doing it twice a day because the blood backs up into the

tube ALL THE TIME. I don't like pumping that heparin in my body twice a day

no matter how diluted it supposedly is but I have no choice. They say it's

normal for it to back up like that and yet they are perplexed when it clots

because I was late doing a flush.

So, tomorrow they will pull this line out and put in a new one.

Jen

T.O.I.L. for Lyme!

T=Teach tolerance; O=Overcome ignorance; I=Initiate insurance reform; L=Labor

for Lyme literacy

*Websites*

http://www.angelfire.com/tx3/RoseWriter or

http://www.angelfire.com/biz/romarkaraoke/james.html

---------------------------------

[Guest guest]

Unless I am mistaken, it is no longer advisable to use the medication

that used to be used (don't know the name) to clear the line.

He may suggest you clear your line 2xdaily with the heparin to

prevent future problems.

best,

lea

[Guest guest]

----- Original Message -----

From: " meemyo " <bysunrise@...>

> Unless I am mistaken, it is no longer advisable to use the medication

> that used to be used (don't know the name) to clear the line.

> He may suggest you clear your line 2xdaily with the heparin to

> prevent future problems.

>

> best,

> lea

Maybe you're right. My llmd says that if the line doesn't work for some

reason, he doesn't want anyone screwing with it anyway... he said that it

could actually be kinked inside my arm and not actually clogged so it's

better to just pull the line. I got my new line yesterday and all is well.

Jen :-)

jen@... ~*~ http://munn.com/~jmunn/