Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 Hello Group, I will tell you a little about me: I am 45 with 3 kids (all who I believe have lymes, am in the process of having them tested), happily married. I live in California and work full time/plus for an online drug and alcohol treatment program <A HREF= " egetgoing.com " >egetgoing.com</A> I have been sick most of my life. I had my first (now I remember) rash when I was 12 years old. So I have had this for over 30 years. I used to work at Stanford until I got too sick. I was " misdiagnosed " with ...........(drum roll please)............fibromyalgia, rheumatoid arthritis, CFS, ALS, myasthenia gravis, thyroid disease, and some others as well as psychosomatic disorder. Along with trying to find why I was so sick I found out, by MRI that I have a rare disorder called " Arnold chiari malformation " . It is a disorder where the back part of the brain falls down into the spinal canal and obstructs the flow of spinal fluid. (basically) My website, regarding this (still needs work) is at: <A HREF= " aaacm.com " >aaacm.com</A> I thought this was the reason I was so sick and then my new doc found lymes. So now I am afflicted with not one but two controversially treated conditions. Since starting my doxy 2 weeks ago, I am getting sicker everyday. I called my doc today and he said there's nothing he can help me with. I can only walk with great difficulty, because of profound weakness, I have muscles twitching all over. I can hardly type as I can't even think properly. I had to call work today because I can't function. No work, no money...my rent just went up to $1900 month, and we live in a dump. What can I do? Just sit here and fade away? Just sit here and die? It would be a blessing for me........I am just to tired to go on struugling like this. No doctor will help. I did start a Northern California Support group. I need others to join, I need help in finding a local doctor who knows how to treat this. If you think it may help others please direct them to my new Northern California Lymes support group at: <A HREF= " NorCaLymers " >NorCaLymers</A> Darcie in California sorry so down, just very frustrated............ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 Welcome ! I am amazed at other peoples life experiences, and what path brought them to BFL. I look forward to sharing this journey with you. Cherita -- " You must be the change you wish to see in the world. " ~Mahatma Gandhi My web sites: http://www.cheritaaxel.net (Personal) http://www.axelnetdesigns.com (Business/Web Design) http://www.axelunlimited.com (Business/Hosting) Quote Link to comment Share on other sites More sharing options...
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