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Hi Lyra

We are on the same medication and the same dosage.

I'm feeling pretty awful, and I'm hoping it is the Ceftin

kicking Lyme butt. This is my 4th week on Ceftin.

You are on the right dosage for Lyme treatment according

to my Lyme doctor. Try to give it some time before switching

to another antibiotic. No one knows for sure if we're having a

" herx " or a Lyme Flare, however my doctor feels that by the

end of the 6th week on Ceftin I should see improvement.

My best advice to you is to try to stick with the Ceftin for at

least 6 weeks, and have faith in your LLMD.

Take care,

Jane

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Hi Jane,

I am now on my 4th week of Ceftin (my 6th week of ABx treatment-was

on doxy for two weeks). I just got another month's worth of Ceftin

and then I will see how I feel. I started getting aches and pains

after I started the medication and then about 10 days ago I was

having head pressure, neck aches, swollen lymph nodes and a fever

(though at that point the aches & pains are gone). After a week the

pressure sometime gets better and sometimes it gets worse...the neck

always hurts and now the aches & pains are back. I am also getting

chest pains and my jaw hurts (may be TMJ). This my be a herx or a

Lyme flare so I guess I will stick out the next 4 weeks on the

Ceftin. Do you remember when you were inefcted?

Thanks for the note!

Lyra

> Hi Lyra

> We are on the same medication and the same dosage.

> I'm feeling pretty awful, and I'm hoping it is the Ceftin

> kicking Lyme butt. This is my 4th week on Ceftin.

>

> You are on the right dosage for Lyme treatment according

> to my Lyme doctor. Try to give it some time before switching

> to another antibiotic. No one knows for sure if we're having a

> " herx " or a Lyme Flare, however my doctor feels that by the

> end of the 6th week on Ceftin I should see improvement.

>

> My best advice to you is to try to stick with the Ceftin for at

> least 6 weeks, and have faith in your LLMD.

> Take care,

> Jane

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On Wed, 1 Aug 2001 jvspl@... wrote:

> Hi Lyra

> We are on the same medication and the same dosage.

> I'm feeling pretty awful, and I'm hoping it is the Ceftin

> kicking Lyme butt. This is my 4th week on Ceftin.

Hi All:

For what it's worth, I have been on CEFTIN as my main antibiotic

during my entire treatment (from Nov., 1999) and also was on Doryx &

Mepron for a period of time. With Ceftin I certainly have the up/down

cycles and the appropriate Herxheimer reactions. In fact each and every

time I take it (500mg 2x/day) I can feel the toxins from the kill off

still even though I am now improving. (That is why I walk 1 hour after

taking it to empty some of the toxins and get some oxygin and heat in my

body).

Just this past Wednesday my LLMD remarked how effective Ceftin was

in his opinion. He suggested that it " may " well cross the blood/brain

barrier though there is as yet no certitude via proof, but through patient

reports he feels it does. He also said he " has gotten patients out of

wheel-chairs with Ceftin " .

I have never had any other dosage than 1000mg/day. (I remember

a couple of times I was a " bad boy " when during really bad Herx.'s I

skipped a dosage!!).

Peace to all;

-Glen from Beautiful Hunterdon County, NJ.

* Spiritual cultivation is composed of one's daily

life activities, such as the way of speaking, the

way of behaving, and all daily movements. All of

these are important of spiritual power development.

THEY ARE THE MOST ELEMENTARY SPIRITUAL CEREMONIES. *

Master Hua-Ching Ni.

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Thanks for the encouraging note Glen! I will stick it out and see

what happens! I am sure it is OK if you are a " bad boy " sometimes :)

Lyra

> Hi All:

>

> For what it's worth, I have been on CEFTIN as my main

antibiotic

> during my entire treatment (from Nov., 1999) and also was on Doryx &

> Mepron for a period of time. With Ceftin I certainly have the

up/down

> cycles and the appropriate Herxheimer reactions. In fact each and

every

> time I take it (500mg 2x/day) I can feel the toxins from the kill

off

> still even though I am now improving. (That is why I walk 1 hour

after

> taking it to empty some of the toxins and get some oxygin and heat

in my

> body).

>

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If it helps, my doctor gave me a morphine patch when I was on Ceftin.

Sheryl

[ ] Re: Ceftin

>

> Thanks for the encouraging note Glen! I will stick it out and see

> what happens! I am sure it is OK if you are a " bad boy " sometimes :)

>

> Lyra

>

>

> > Hi All:

> >

> > For what it's worth, I have been on CEFTIN as my main

> antibiotic

> > during my entire treatment (from Nov., 1999) and also was on Doryx &

> > Mepron for a period of time. With Ceftin I certainly have the

> up/down

> > cycles and the appropriate Herxheimer reactions. In fact each and

> every

> > time I take it (500mg 2x/day) I can feel the toxins from the kill

> off

> > still even though I am now improving. (That is why I walk 1 hour

> after

> > taking it to empty some of the toxins and get some oxygin and heat

> in my

> > body).

> >

>

>

>

>

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  • 5 months later...

<< No, I'm not allergic to Rocephin at all. Don't know why I had a bad

reaction to Ceftin, if they have similar properties. >>

Hi

I thought I was allergic to Ceftin when I took it way back in August of 1999.

That was fairly soon after my diagnosis, and I felt awful. As it turns out

I was not allergic to it, I was experiencing a herx from hell. I went back

on Ceftin after a year + of other abx, and low and behold I wasn't allergic.

My LLMD would not have even suggested Rocephen if I was allergic to Ceftin.

Just thought I would share my experience.

Jane

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Thanks for the info, Rose. Where you on the shots or the IV rocephin?

[ ] Re: Ceftin

Hi Toni,

No, I'm not allergic to Rocephin at all. Don't know why I had a bad

reaction to Ceftin, if they have similar properties.

Love ya,

Rose

From: " Toni Gray " <tgray@...>

I was just wondering if those of you who are

allergic to ceftin are allergic

to rocephin? I am just curious because rocephin

is a cephalosporin like

ceftin.

T.O.I.L. for Lyme!

T=Teach tolerance; O=Overcome ignorance; I=Initiate insurance reform;

L=Labor for Lyme literacy

*Websites*

http://www.angelfire.com/tx3/RoseWriter or

http://www.angelfire.com/biz/romarkaraoke/james.html

---------------------------------

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Thanks for the info, Rose. Where you on the shots or the IV rocephin?

[ ] Re: Ceftin

Hi Toni,

No, I'm not allergic to Rocephin at all. Don't know why I had a bad

reaction to Ceftin, if they have similar properties.

Love ya,

Rose

From: " Toni Gray " <tgray@...>

I was just wondering if those of you who are

allergic to ceftin are allergic

to rocephin? I am just curious because rocephin

is a cephalosporin like

ceftin.

T.O.I.L. for Lyme!

T=Teach tolerance; O=Overcome ignorance; I=Initiate insurance reform;

L=Labor for Lyme literacy

*Websites*

http://www.angelfire.com/tx3/RoseWriter or

http://www.angelfire.com/biz/romarkaraoke/james.html

---------------------------------

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Hi Tony,

I've been on both...initially on IV for only 28 days in 1995...the lifetime

maximum my insurance would allow. (' insurance doesn't allow IV at all.)

So, on shots periodically since then when the need arose.

Love ya,

Rose

From: " Toni Gray " <tgray@...>

Thanks for the info, Rose. Where you on the

shots or the IV rocephin?

T.O.I.L. for Lyme!

T=Teach tolerance; O=Overcome ignorance; I=Initiate insurance reform; L=Labor

for Lyme literacy

*Websites*

http://www.angelfire.com/tx3/RoseWriter or

http://www.angelfire.com/biz/romarkaraoke/james.html

---------------------------------

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