First Timer

August 27, 1999

Hi Gail;

I tried e-mailing you AGAIN but it got returned. Did Sue forward my

last e-mail to you, with the picture attachment??

Welcome to the list;

, mom to Nicala & ds (32 months) and (10 months)

>Hello from northern NJ!

>My name is Gail and I'm the proud mother of 4! Bobby is 5 and a half

>starting Kindergarten this fall. Jillain is 3 and starting pre-school

>also for the first time next week! Then I have boy/girl twins born this

>past March{on diff. days!} and Tara. My baby girl Tara was born

>with Down syndrome. We did not know during the pregnancy, which I don't

>regret. But the birth was not the beautiful experience we hoped for!

> was born " naturally " at 7:50pm. Tara had to be turned, never

>progressed after another 4+ hrs., so the stupid dr. waited until after

>midnight to decide to do a section, Tara was born by c-section 1:10am

>the next day, also had some breathing problems, and since they suspected

>DS, she has taken to a more actue care hosp. 50 miles away! I only saw

>her for 5 mins. That whole week while and I were in 1 hosp, and

>Tara in another was horrible for me and my husband who traveled to hold

>Tara every morning, than visited and I in another hosp.! We're glad

>that's behind us now! And ofcourse we were sad for our other two

>children who waited 9 months to come to the hosp. to visit Mommy and the

>twin babies, that never happened! I was an emotional zompie, numb, that

>first week in the hosp. I still get sad and depressed from time to time!

>But Tara is 5+ months now and seems to be holding her own! I'm soo glad

>this list is around, you get to thinking you're the only one who has one

>twin with special needs. I wish I could meet Mom's with my same

>situation, but I guess this is as good as it gets!

>Thanks to Sara for starting this up!!!!!!!!!!!!!1

>bye for now

August 27, 1999

Hi Gail, Welcome to

the list. I have 14 month old boy girl twins. Landon, my little boy,

has DS and Ashton, my little girl, doesn't. My twins were also in two

hospitals and things didn't turn out as planned for us either. I too,

had envisioned the happy homecoming with two babies. Ashton came home

from the NICU first and then Landon came home a month later. When

Landon came home, the NICU nurses let me put Ashton in the bassinet

with him so it did seem a little better. We are from S.C. and I have

only met two families in our state with twins like us. Both of them

live pretty far away. When they were first born, I searched the

internet for a website for multiples with DS and I couldn't find any.

Finally after a few months and some posts on message boards, I met a

few families. I'm really excited about this list that Sara has started

and I can't wait until the website is up and running.Again, welcome to

the list. (

mom to Ashton and Landon(DS) 14 mos

--- GVanHouten <rjvh@...> wrote:

> From: GVanHouten <rjvh@...>

>

> Hello from northern NJ!

> My name is Gail and I'm the proud mother of 4! Bobby

> is 5 and a half

> starting Kindergarten this fall. Jillain is 3 and

> starting pre-school

> also for the first time next week! Then I have

> boy/girl twins born this

> past March{on diff. days!} and Tara. My baby

> girl Tara was born

> with Down syndrome. We did not know during the

> pregnancy, which I don't

> regret. But the birth was not the beautiful

> experience we hoped for!

> was born " naturally " at 7:50pm. Tara had to be

> turned, never

> progressed after another 4+ hrs., so the stupid dr.

> waited until after

> midnight to decide to do a section, Tara was born by

> c-section 1:10am

> the next day, also had some breathing problems, and

> since they suspected

> DS, she has taken to a more actue care hosp. 50

> miles away! I only saw

> her for 5 mins. That whole week while and I

> were in 1 hosp, and

> Tara in another was horrible for me and my husband

> who traveled to hold

> Tara every morning, than visited and I in

> another hosp.! We're glad

> that's behind us now! And ofcourse we were sad for

> our other two

> children who waited 9 months to come to the hosp. to

> visit Mommy and the

> twin babies, that never happened! I was an emotional

> zompie, numb, that

> first week in the hosp. I still get sad and

> depressed from time to time!

> But Tara is 5+ months now and seems to be holding

> her own! I'm soo glad

> this list is around, you get to thinking you're the

> only one who has one

> twin with special needs. I wish I could meet Mom's

> with my same

> situation, but I guess this is as good as it gets!

> Thanks to Sara for starting this up!!!!!!!!!!!!!1

> bye for now

> Gail

> Mom to Bobby-5, Jillian-3, and Tara{DS}5months

>

> ---------------------------

August 28, 1999

Welcome to the list Gail,

My name is and I have 16 month old boy/girl twins.

has DS.Sloan does not.

They also were in separate hospitals. had surgery for Deoduial Astreia

(sp?) when less than 1 day old.He came home at 3 weeks.Sloan came home at 11

days.

We knew before was born that he had DS.I don't know if it makes it

any easier to deal with or not,but he is the joy of my life!

He is crawling on his hands and knees and pulls up to stand.

He loves watching his sister and trying everything she does.

I'm glad Sara started this list,because it was difficult finding people with

our same situation and now I don't feel so alone...

I enjoy hearing everyones stories! it makes me feel like I'm not going crazy!

Hope everyone has a good weekend!

~

August 28, 1999

TJFONZ@... wrote:

>

> From: TJFONZ@...

>

> Welcome to the list Gail,

> My name is and I have 16 month old boy/girl twins.

> has DS.Sloan does not.

> They also were in separate hospitals. had surgery for Deoduial Astreia

> (sp?) when less than 1 day old.He came home at 3 weeks.Sloan came home at 11

> days.

> We knew before was born that he had DS.I don't know if it makes it

> any easier to deal with or not,but he is the joy of my life!

> He is crawling on his hands and knees and pulls up to stand.

> He loves watching his sister and trying everything she does.

> I'm glad Sara started this list,because it was difficult finding people with

> our same situation and now I don't feel so alone...

> I enjoy hearing everyones stories! it makes me feel like I'm not going crazy!

> Hope everyone has a good weekend!

> ~

>

> ---------------------------

August 14, 2000

Welcome MICHELE!! Sorry to hear about your fall. : (

I've pulled my tendon from rib wall twice. Once each side. I know how bad

that hurt, and how painful it was to breath and sneeze and cough.so I

couldn't imagine what a BROKEN rib must feel like. Hope you recover fully

soon.

By the way I too am named " MICHELE " with one " L "

I bet you too have a hard time finding those refrigerator magnets and any

other personalized items for sale out there that spell MICHELE with 1 L only

huh?

LOL!!

SHEL

January 3, 2002

Hi Jen,

About supplements: I have been cutting back, but will increase after my

next order arrives from . I take garlic for candida, Aromastat for

hot flashes, Deflect and/or Fucus and/or Bladderwrack because it is good for

Os, at least 1200 units of calcium against osteoporosis, 2 Tablespoons of

Flax oil three times a day, some C and a B complex. I also take some stuff

my D'Adamo-friendly chiropractor recommended for the hot flashes but I think

that the Aromastat is doing a better job. I have been trying potassium to

see if it helps my tinnitus, but don't notice much difference. After all of

the talk about Niacin perhaps I should try that.

For breakfast, I usually have one poached egg, a slice or two of roast

beef/veal/lamb, and my homemade vegetable soup featuring orange and green

vegetables.

Hope this helps,

Joan in Chicago, O-nonnie

First Timer

Hi everyone,

I have cc'd my email, so you can email responses to that if you don't want

to send emails to all...

I am new to this so bare with me...I have a few questions for the group.

1. Does anyone have candida?

I do and am on all kinds of supplements from my naturopath, but none are

calcium (well, a multi with some calcium) and of course am allergic to

milk/cheese/eggs/wheat/malt...

Do you all take supplements and what kinds?

I noticed that sesame seeds are a good form of calcium--thanks for that

info.

2. What types of breakfasts do you have?

Thanks so much and happy new year

Jen

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp.

January 3, 2002

Hi Jen,

I'm O-ns. I get bored with breakfasts so I'm always alternating it.

I have eggs; boiled, poached, fried, scrambled and sometimes dropped

on the floor. oops. Leftovers from supper the night before works

well (soups, stirfries, roast etc) - chicken hearts cooked with

savory, curry, and cumin are good too. Other options: rice toast

with macadamian butter and a hamburger patti. Just about anything

thats edible and ok for nonnies. If desperately bored I make a

protein drink from rice protein, homeade canned peaches, handful of

blueberries and occasionally a scoop of kefir. (Kefir/yogurt is an

avoid for O-ns). Oh yeah, and a handful of walnuts.

Happy New Year.

Bonny

> First Timer

>

> Hi everyone,

>

> I have cc'd my email, so you can email responses to that if you

don't want

> to send emails to all...

>

> I am new to this so bare with me...I have a few questions for the

group.

>

> 1. Does anyone have candida?

> I do and am on all kinds of supplements from my naturopath, but

none are

> calcium (well, a multi with some calcium) and of course am allergic

to

> milk/cheese/eggs/wheat/malt...

>

> Do you all take supplements and what kinds?

>

> I noticed that sesame seeds are a good form of calcium--thanks for

that

> info.

>

> 2. What types of breakfasts do you have?

>

> Thanks so much and happy new year

>

> Jen

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at

http://explorer.msn.com/intl.asp.

>

November 15, 2006

Hi 'Hell'

Welcome to Sydband. You will meet a fantastic bunch of people on this site who are very supportive.

I had my band done in june and need to lose all up about 40 kilos. I am about halfway there at the moment. I wished i had done this sooner!!!

If there is anything i can do to help you, please don't hestitate to ask!

Best wishes,

Libby

On 11/15/06, skinnyhell <skinnyhell@...> wrote:

My first time on this site. Cant believe it too so long. Live in between town and Wollongong Banded on 9th October. I am married with 3 great kids and need to lose about 40 kilos, would love some new friends to talk this through with,

HellXXXX

November 15, 2006

Hi Hell!!

I was banded 16 Aug 2006 and have lost 24kgs...I am in Wollongong and

the band has been such a great tool.

Good luck on your journey and feel free to contact me for a coffee

meet or something!

Cheers

Leah - killerbabe@...

November 15, 2006

Hi Hell...

Welcome to Sydband... better late than never I would say. You oeally

must be skinny Hell having lost 40 kilos. Well done.

Mel

>

> My first time on this site. Cant believe it too so long. Live in

> between town and Wollongong Banded on 9th October. I am

> married with 3 great kids and need to lose about 40 kilos, would

love

> some new friends to talk this through with,

>

> Hell

> XXXX

>

June 9, 2010

My son Gerald is 2 years old he doesnt walk. He is non-verbal. He doesnt point

at things or recognize me or my wife as his parents. I have suspected some type

of PPD or Autism for just a few days. Im just discovering the diets chelation

and many other Biomedical Interventions that can be done. Untill I saw the

videos on Generation Rescues website I thought there was no hope. He is my wife

and I's only child and untill recently we were worried about having to put him

in a home. In the videos one of the dads said whos going to take care of him

when I die and I burst. Im not normally an emotional man but this is killing me.

What do I do. Where do I start. We are seeing a neurologist, opthamologist,

geneticist. We have gotten several MRI's and are scheduled for anohter one soon.

We told the Neurologist today that we want all the blood urine and immunology

tests done to check for heavy metal poisoning. We also asked to be refered to an

allergist and a nutrionalist to talk about the diets and chelation. When we

mentioned a D.A.N. doctor the neurologist's face changed he immediatly ordered a

bunch of tests and asked us if we had appts. to see this doctor and made sure

bluntly to tell us it would come out of our pockets. It seemed strange to me

like he was scared we could fix our son then these 10's of thousands of dollar

tests he runs wouldnt be guranteed anymore. I dont know but it seems to me that

these doctors dont actually care about the children thats like saying a mechanic

cares about the car hes repairing they just want the insurance companies money

and the longer they keep paying the longer they will withold any true diagnosis.

Im sorry if I seem to ramble or I dont use the best grammar & punctuation Im

trying. My son is two years and 4 months old hes had the same symptoms for over

a year. He fixates on toys, doesnt point, no eye contact, (he also has nystagmus

so we thought that was why he had no eye contact) he doesnt recognize us, our

voices, our faces, doesnt talk, walk, crawl, situp on his own, and untill

recently we honestly felt hopeless. It took me telling the Doctors today, Hey

maybe my son has a pdd for them to order an evaluation. I also said hey maybe

this pdd is being caused by a heavy metal toxicicty or an allergy then they

ordered the test's needed to find out. Why is it me a layman who has never even

seen a child before in my life with autism or PDD has to diagnose his own child.

These doctors and specialists see these children on a daily basis they know the

signs what to look for and none of them untill I brought it up suggested it. I

love my son. Im scared for my son. I want to know my son will be ok after I die.

Can anyone give me some hope?

June 9, 2010

My Son lives in a rural county in St Lucie Conty Florida. Every Specialist we

see we have to load up and drive 3 hours or more and most times we drive there 3

hours wait to see them another 1-2 hours then they spend 5-15 mins with him it

so wonderfull (grrrr) and he eats just about anything but we are very intrested

in starting him on the gfcf diet were reading now and seems to be fairly easy to

implment only because he will eat or drink pretty much anything fresh fruit and

vegetables we feed him everyday anyways and he likes soy milk cutting out the

wheat flour crackers and dairy shouldnt be too hard

> > >

> > > My son Gerald is 2 years old he doesnt walk. He is non-verbal. He doesnt

point at things or recognize me or my wife as his parents. I have suspected some

type of PPD or Autism for just a few days. Im just discovering the diets

chelation and many other Biomedical Interventions that can be done. Untill I saw

the videos on Generation Rescues website I thought there was no hope. He is my

wife and I's only child and untill recently we were worried about having to put

him in a home. In the videos one of the dads said whos going to take care of him