Re: e-anyone with neuro lyme

[Guest guest]

Sally-

Here are some websites.....

http://www.geocities.com/HotSprings/Oasis/6455/encephalopathy-links.html

" " " " "

/encephalitis-links.html

This also works with many others, i.e.

/myelitis-links.html, neuropothy, radiculitis, arteritis, etc.

YES< basically, anyone with chronic lyme could show 'white matter' in an MRI,

spect scan, etc. I have personally found that with treatment, this does

improve. The secret is getting the CORRECT info about lyme and to educate

yourself, then apply it~~~~

Leg pain? try magnesium for cramps/leg pain. It does help. I had these but

with treatment, 99% of my symptoms have disappeared. Have you been tested for

the co-infections of babesia and ehrlichia??

sue in nj

[Guest guest]

Hi Sally,

I had neurolyme from the beginning, 7 years ago this past Sept. The leg

pains were horrific, I nearly jumped out of the car on the freeway. A change

of abx helped me a lot. I have been on 600 mgs of Zithromax for 4 years or

so. Everytime I go off the pains are unbearable.

The Zithromax works on me, It doesn't work for everyone, you may want to

give it a try. My leg pains started easing the very first day, until the

herx's started. Now they are much less and I can tolerate them.

Do you keep a log? That is most important, If you would like I will

snail mail you one. You can really keep track of herx's, rate your pain, ect.

Hugs and hang in there,

Connie, Michigan

[Guest guest]

Sally,

My SPECT was what I needed to give me a dx of early dementia.

Rita B

atthelake@...

[Guest guest]

>Could someone describe the leg pains--I am having horrible leg pains--they

>were periodic, now they are seemingly constant--the pain is unbearable and

>Aleve, Advil, etc do not seem to touch them!

Thanks

Kelty

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[Guest guest]

My wife finally was dx with lyme after 3 years of running around. She has a

significant amt of white matter an the brain and has excrutiating pains in

her legs that wke her up at nit even w/ 5mg of valium. trazadone and

oxcycontin for the pain on bad nights. Dr. put her on Nerotin (spelling)

400/day and this seems to help a little. Good luck!