Re: Periodic Limb Movement Syndrome - was sleep study

[Guest guest]

In a message dated 1/25/01 4:43:01 PM Eastern Standard Time, conniek@... writes:

the

Connie,

Look up Restless leg Syndrome...It is a clinical diag. This might be your problem. They are medications for this.

Donna

[Guest guest]

My husband suffered tremendously with restless leg syndrome--but we feel very

strongly it was from lyme. Since being treated for over 2yrs., it has finally

stopped. Years ago it was so bad, he would wake me up over and over.

Just my .02 worth.

sue in nj

[Guest guest]

Thanks Rose for understanding my struggle and frustration,

I wish someone had looked beyond the words, and tried to understand what I

was talking about....or at least asked for clarification.

I have been very depressed, due to this dreaded lyme and over five years of

insomnia. I have been suicidal, in the hospital.........out of

work.........etc, etc.

Take away someone's sleep and they go CRAZY!!

I have a very difficult time trying to communicate effectively..........it

is frustrating, and this usually relates to whether I am in a flare of my

lyme or how long I've gone without sleep, (usually they go hand and hand)!!

I was so happy to find out, there may be a way to improve my

sleep...........boy that bubble was quickly burst, when I was told I was

wrong..........Wrong about what? Feeling exhausted from lack of sleep,

since I have had lyme?

You are the only one that replied in a helpful way about the

syndrome...........I wonder if others have been on medication for

it........and now that everyone knows what I am talking about. Do others of

you suffer from Periodic Limb Movement Syndrome? If so did you have it

pre-lyme? and are you on any medication? Thanks, Connie nwnj

Leave no stone unturned.......

[Guest guest]

connie, i too get the periodic limb movement along with a long list of sleep

disorders, all after getting lyme. some nights i feel as though i have

electric currents running through my body, and i tremor and shake in my arms

and legs all night. i fall asleep, only to wake up gasping for air, have

bouts of sleep paralysis, as well as nightmares.

did they prescribe klonopin...i have known that to be helpful for some people.

i can totally relate to the mix-up in words or phrases as well. i barely

manage to utter anything functional some days. and forget about trying to be

descriptive, or intelligent!!! I understand oh so well your frustration in

all this. but you are not alone. hang in there, we are rootong for you. pj

[Guest guest]

I feel mine too is from lyme...........but it wakes ME up.

As much as 12-15 times in one night. My Sleep Dr. has put me on

Klonopin........did your husbands clear up with medication for the restless

leg......or did it clear up as he was treated with abx? I've also read that

people with restless leg have been found to be deficient in folic acid and

iron...........What I wouldn't give for a good nights sleep...........that

might give me my mind back....disturbed sleep makes you not only depressed

but absolutely crazy......Connie nwnj

Leave no stone unturned.......

[Guest guest]

I do have the Restless Leg, I had a sleep study done........and I had 70 episodes in one night.....I'm just curious as to others with lyme that may have it too....and what they are trying to help lessen the episodes... Mine wakes me up through-out the night.......I understand seizure medication is the first type of treatment.......I also understand that the tricyclic antidepressants make the restless leg WORSE.........has anyone tried natural therapies to lessen the number of episodes........I want to so badly to sleep again..........Connie nwnj

Leave no stone unturned.......

[Guest guest]

I have a friend with restless leg syndrome and I believe she took quinine for hers.

The human spirit is stronger than anything that canhappen to it.

C.

[Guest guest]

Connie, I have that problem to and I did not have it before Lyme. I also understand what you mean about not being able to communicate properly, I have that problem to and it can be very frustrating. Sometimes I know what I want to say but a different word comes out. Take care, KIm S.

ConnieK <conniek@...> wrote:

Thanks Rose for understanding my struggle and frustration,I wish someone had looked beyond the words, and tried to understand what Iwas talking about....or at least asked for clarification.I have been very depressed, due to this dreaded lyme and over five years ofinsomnia. I have been suicidal, in the hospital.........out ofwork.........etc, etc.Take away someone's sleep and they go CRAZY!!I have a very difficult time trying to communicate effectively..........itis frustrating, and this usually relates to whether I am in a flare of mylyme or how long I've gone without sleep, (usually they go hand and hand)!!I was so happy to find out, there may be a way to improve mysleep...........boy that bubble was quickly burst, when I was told I waswrong..........Wrong about what? Feeling exhausted from lack of sleep,since I have had lyme?You are the only one that replied in a helpful way about thesyndrome...........I wonder if others have been on medication forit........and now that everyone knows what I am talking about. Do others ofyou suffer from Periodic Limb Movement Syndrome? If so did you have itpre-lyme? and are you on any medication? Thanks, Connie nwnjLeave no stone unturned.......HAPPY NEW YEAR!!!Easy Reference:Send a blank email message to: -Unsubscribeegroups - Unsubscribe from the list -Digestegroups - Switch your subscription to a digest format -Normalegroups - Switch your subscription to normalPlease send messages not related to Lyme disease (this includes humor and information about other diseases) to -OfftopicegroupsArchives can be accessed at lyme-aidPlease visit the sister site athttp://clubs./clubs/lymeaidThis is the primary chat site for .Take care and have a nice day !!! Kim S. kimsak2000@...

[Guest guest]

I also understand what you mean about not being able to communicate properly, I have that problem to and it can be very frustrating. Sometimes I know what I want to say but a different word comes out.

Same here, I had to give up giving riding lessons because of it.

[Guest guest]

Sue: I also have this syndrome. My cpap has helped some mysteriously..maybe

better oxygenation in a lyme infested brain..I don't know. But I have been

taking klonapin for so many years (only 1 mg) and ativan (1 mg) as well as

neurontin...I've been on antibx for lyme well over a year so perhaps after a

few years on antibx I won't have to take all the meds just to get a decent

night of sleep. I tested negative for babesiosis and my LLMD tells me that

the test is pretty accurate (think it was a PCR)...does that sound right?

prayers for all of us,

Donna