Should I still see a rheumatologist?

[Guest guest]

I've been told by several rheumatologists that they can't give me the

TNF drugs because of the Hidradenitis Suppurativa. I have tried to

explain to them that although it may look like an infection that it is

not an infection it is a disease. They still will not treat me with

the TNF drugs. What is funny is before I told them about the HS (the

only reason I did was because I had trouble sitting that day) the

Remicade worked wonders for the HS, but did very little for the RA.

All they give me are nsaids and all I get from those are major gastro

problems. What do you think?

Teah

[Guest guest]

Have you PcP or whomever is treating you other condition contact the

rheymmy and explain your disease. I would also note the improvement

while you were on rhemicaide.

Toni

>

> I've been told by several rheumatologists that they can't give me the

> TNF drugs because of the Hidradenitis Suppurativa. I have tried to

> explain to them that although it may look like an infection that it

is

> not an infection it is a disease. They still will not treat me with

> the TNF drugs. What is funny is before I told them about the HS (the

> only reason I did was because I had trouble sitting that day) the

> Remicade worked wonders for the HS, but did very little for the RA.

>

> All they give me are nsaids and all I get from those are major gastro

> problems. What do you think?

>

> Teah

>

[Guest guest]

I found this article as I was not familier with your disease.

Apparently it is related to many auti-immune diseases. Here is the

link i was reading from:

http://www.emedicine.com/emerg/topic259.htm

Toni

>

> I've been told by several rheumatologists that they can't give me the

> TNF drugs because of the Hidradenitis Suppurativa. I have tried to

> explain to them that although it may look like an infection that it

is

> not an infection it is a disease. They still will not treat me with

> the TNF drugs. What is funny is before I told them about the HS (the

> only reason I did was because I had trouble sitting that day) the

> Remicade worked wonders for the HS, but did very little for the RA.

>

> All they give me are nsaids and all I get from those are major gastro

> problems. What do you think?

>

> Teah

>

[Guest guest]

Perhaps MRA would work for you. They are coming out with a B cell drug for RA and its in trials. Even more exciting, they are beginning trials on a kind of blood exchange therapy similar to bone marrow to reverse RA all together. Hang in there- There are drugs coming. Yours, Deborah

On 3/7/06, teahmayben <teahmayben@...> wrote:

I've been told by several rheumatologists that they can't give me theTNF drugs because of the Hidradenitis Suppurativa. I have tried to

explain to them that although it may look like an infection that it isnot an infection it is a disease. They still will not treat me withthe TNF drugs. What is funny is before I told them about the HS (the

only reason I did was because I had trouble sitting that day) theRemicade worked wonders for the HS, but did very little for the RA.All they give me are nsaids and all I get from those are major gastroproblems. What do you think?

Teah

[Guest guest]

You should maybe see if you could take the nsaids while on a gastro

med like nexium. I couldn't take them without it, but as long as I

take my nexium daily, Im fine.

T.

>

> I've been told by several rheumatologists that they can't give me

the

> TNF drugs because of the Hidradenitis Suppurativa. I have tried to

> explain to them that although it may look like an infection that

it is

> not an infection it is a disease. They still will not treat me

with

> the TNF drugs. What is funny is before I told them about the HS

(the

> only reason I did was because I had trouble sitting that day) the

> Remicade worked wonders for the HS, but did very little for the RA.

>

> All they give me are nsaids and all I get from those are major

gastro

> problems. What do you think?

>

> Teah

>

[Guest guest]

Hello Teah, I'm not sure how to answer that maybe it would be wise to find another Rheumy and see how or what he thinks ? as for me when I was on Remicaicaid I allso got more releife for my oter problems than my R/A but after I had to leave work and could no longer afford it I allso came back to reality . teahmayben <teahmayben@...> wrote: I've been told by several rheumatologists that they can't give me the TNF drugs because of the Hidradenitis Suppurativa. I have tried to explain to them that although it may look like an infection that it is not an infection it is a disease. They still will not treat me with the TNF drugs. What is funny is before I told them about the HS (the only reason I did was because I had trouble sitting that day) the Remicade worked wonders for the HS, but did very little for the RA.All they give me are nsaids and all I get from those are major gastro problems. What do you think?Teah

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