Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 HI Madeleine, I have that suffocation problem when my asthma gets bad, it will also happen if your yeast is out of control. It gathers in your lungs and gives you a run for your money or should I say Diflucan or Lamisil. I finaly went back to using my nebulizer for asthma and I feel a bit better. hang in there, hugs, Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 I think these feelings are pretty common and may be why Dr. B recommends doing Cordyceps. I do know that cordyceps helps lungs...but they are expensive. Maybe instead of breathing harder you could try to breath deeper, that way fluid won't build up on your lungs and make your matters worse. I was sorry to hear you have to go to battle with your folks over all this...Have you been able to see a dr recently and tell them about this-I can't remember if you are seeing a llmd or not? Yes I totally hate it when I lose stuff I spent so long to type in. I never remember what all I wanted to say until 3 am or something. please take care peace deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 I can always tell when i am fixin to get a yeast problem by a hard, dry non-productive cough. 1 or 2 doses of Diflucan and the cough is gone. As for the breathing problem, well, mine is related to my cardiac problems. Seems that after I have a rather bad arrythmia or 2 or more LOL I will have a hard time breathing. No , hard times not the right word, I can breath, but it hurts and I would rather hold my breath. If that makes any sense at all. I have heard others talk about something with their ribs, chodroisis? no, dang lost the word. Pepi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2001 Report Share Posted January 20, 2001 Medeleine- Since one of the symptoms of lyme is " shortness of breath, cough " , yes, breathing problems are part of lyme. I had the asthma/sinus infections/bronchitis previous to being treated and also since I have had lyme have become extremely claustrophobic; feel like I can never get enough air. This is very common with lymies from the thousands that I have communicated with-- the same symptoms keep coming up, like a common thread. When I hear the same 'unusual' symptoms over and over, I have a tendency to believe they are lyme-related. (i.e. cysts, TMJ, asthma/bronchitis, sweating, nightmares, pain right where your heart is, lower abdomen pain (feeling like your uterus fell out-sorry guys), food seems tasteless, forget how to swollow/choke on water, severe itching on your back that cannot be satisfied, a stabbing pain in a forearm, etc.) I had all these and more, some I still do. I have found time and time again, with LONG-TERM treatment, most of these symptoms go away. As far as people, family, friends, etc not believing the WHOLE scope of lyme, neurological, psychological, physical, etc., BEEN THERE and am still there. What I would suggest is to get an article from someone like Dr. Bransfield, leading psychiatrist in the lyme field, and give a copy to whomever. Also you could print a few testimonials of people's actual cases of what they are going through or have been through. If you need reference material, let me know sue in nj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2001 Report Share Posted January 20, 2001 Madeleine- Here is a suggestion to PRINT. I think Columbia University has some credibility. http://www.stamfordadvocate.com/Advocate/release/01-18-2001/article2.html sue in nj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2001 Report Share Posted January 20, 2001 Pepi do you mean costocondritis? I just went through a living ##$$%% with it! My doc says if you have that rub some peanut oil in to the area-and don't get around anyone with an allergy to peanuts ok! deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2001 Report Share Posted January 20, 2001 > Pepi do you mean costocondritis? I just went through a living ##$$%% with > it! My doc says if you have that rub some peanut oil in to the area-and > don't get around anyone with an allergy to peanuts ok! deb Thats it!! I was having a lyme-brainfart and couldnt recall it for the life of me *-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2001 Report Share Posted January 20, 2001 Madeline, i suspect my exercise induced asthma was one of my firast symptoms of lyme. i know when i really started gettinig treated last may, my doc had to prescribe a couplle of inhalers cause the asthma was so bad, laying down made it worse too. but it passed, i think that was part orf my first herx. so keep on the antibiotics. also my suggestion is the chiropractor. cause your ribs are connected to your spinal column andk when you havae a subaxation (vert. out of whack) to one that is connected to an;y part of your rib cage, that can cause your rib to dig into your lungs and make asthma worse. ive definately felt a huge differenct before and after my chiro visits (by the way i go liike3 timesw a week to keep moving well!). its great though. great medicine! as for the neurotoxins site. i sent that to my lyme doc in beantown (boston) and he told me to watch what i read, that he was the one who first suggested the neurotoxin theory and that cholesteral.... may not really be what its all cracked up to be. but i do know someone in cali whos doing that treatment and i guess its hellping a littl bit. good nijght! monica ----Original Message Follows---- From: egroups Reply- egroups egroups Subject: [ ] Digest Number 1636 Date: 20 Jan 2001 08:47:12 -0000 HAPPY NEW YEAR!!! Easy Reference: Send a blank email message to: -Unsubscribeegroups - Unsubscribe from the list -Digestegroups - Switch your subscription to a digest format -Normalegroups - Switch your subscription to normal Please send messages not related to Lyme disease (this includes humor and information about other diseases) to -Offtopicegroups Archives can be accessed at lyme-aid Please visit the sister site at http://clubs./clubs/lymeaid This is the primary chat site for . ------------------------------------------------------------------------ There are 20 messages in this issue. Topics in this digest: 1. Re: www.ChronicNeurotoxins.com Registration From: kmakransky@... 2. Online Auction for Drs B & H From: lymefightr@... 3. Re: Online Auction for Drs B & H From: Neurochem1@... 4. RE: Re: www.ChronicNeurotoxins.com Registration From: " Tansy " 5. RE: Re: Online Auction for Drs B & H From: " Tansy " 6. Fundraising Action...Horowitz Cont'd From: Neurochem1@... 7. Re: Online Auction for Drs B & H From: Neurochem1@... 8. Lyme Disease Bacteria Craftier Than Thought From: " and/or Robynn " 9. Re: Lyme Disease Bacteria Craftier Than Thought From: " Jim " 10. HELP! Please? From: PrincessKiara70@... 11. Re: HELP! Please? From: " NMcmu6937 " 12. Suffocation From: " Madeleine Schatz " 13. Re: Suffocation From: " Deb Shea " 14. Neuro stuff, meds and work (they don't mix!) From: " Jim " 15. Re: Chronicneurotoxins.com From: " Madeleine Schatz " 16. Re: Suffocation From: " pepi " 17. Re: Steriod From: Cslyme@... 18. Re: Re: Chronicneurotoxins.com From: " NMcmu6937 " 19. Re: Suffocation From: Cslyme@... 20. Re: Re:test to take where?? From: " cindy harrison " ________________________________________________________________________ ________________________________________________________________________ Message: 1 Date: Fri, 19 Jan 2001 15:06:55 -0000 From: kmakransky@... Subject: Re: www.ChronicNeurotoxins.com Registration Hi Jack ! Go to www.chronicneurotoxins.com Read thru the site......I haven't formed an opinion on it.....what do you think??? ~ > Hi , > > Please give me a web location where I can take > the test. > > Thnks, Jack ________________________________________________________________________ ________________________________________________________________________ Message: 2 Date: Fri, 19 Jan 2001 11:28:21 EST From: lymefightr@... Subject: Online Auction for Drs B & H It was brought to my attention what might have caused a delay with a proposed auction that was suggested awhile back. It was suggested using fine art and upscale items. As far as I know, that idea never took off. Well, I remember now that I don't really have much like that to donate. Maybe we could discuss changing it to items that most of us could provide? Seems there are always people on e-bay that are willing to buy things. If you check out the site below at what IS being auctioned on e-bay maybe we could all get some ideas. Maybe we could as individuals, or as a group, donate some items, sell them on e-bay THEN donate the profits to the doctors? With the new PayPal program, anyone can accept credit card payment online. I do have some great, good quality costume jewelry and a few good pieces that I would donate for the cause. If you think this could work, let me know. Marleen http://pages.ebay.aol.com/ [This message contained attachments] ________________________________________________________________________ ________________________________________________________________________ Message: 3 Date: Fri, 19 Jan 2001 16:45:01 -0000 From: Neurochem1@... Subject: Re: Online Auction for Drs B & H Dear Marleen, Please read this post. I'm not sure you've seen it yet, since you mentioned ebay. I put it out yesterday. In addition to the auction, for those who are unable to donalte to HLDF, there are several suggestions below to begin to collect funds for Dr. Horowitz, as his fund has just begun, and the situation is very critical. Thanks, Regina ACTION ALERT For all those who have been wanting to hear of a more coordinated effort for the Horowitz Legal Defense Fund (HLDF), I finally have some news. I spoke again today to regarding some suggestions that many of you had posted. The idea of holding an auction online was brought up about a week ago, and I discussed this with her again today. She does think it is not only feasible, but a good way to engage so many that are not located in one place. Our conversation had to be interrupted, but here are some of the details that were addressed: -Ms. believes she could use her website for the auction (health lobby). She has to find out if the site is capable of handling transparent posts, so that each person who is bidding on an item can view all bids. The items to be auctioned could be photographed, and accompanied by a description. The day that the bidding closes, the winner would express mail a check to the HDLF for the amount. Once the check was received, the item would be sent. She was interrupted at that point, so we did not have the opportunity to discuss everything else, including the delivery. I will update you as soon as I can. I also spoke with a woman that is on the board of an unrelated organization about fundraising. Since I have never done this kind of thing before, I have been asking for suggestions from anyone who has. Because there is little time left to raise this money, I have focused solely on this part of the situation, and this alone is taking much time, so I cannot also address further political action, though I do support it, and will do what I can. I explained the many problems of trying to do fundraising for this issue. Unlike some other groups, we do not have the favor of politics on our side, nor any deep pockets to draw from. Many are unable to do very much, physically and/or financially. The suggestions she gave me have been successful for others, and while it may seem like it wouldn't be enough, the numbers do show that it actually can produce more than one large event. For example, if 1,000 of us can each raise $100.00, that is $100,000.00 (it is estimated that each doctor will need a minimum of $75,000.00 for their defense. How to raise it: First -collect one or two good articles (Dr. B., Dr. L., Dr. H., etc.) that explain in the easiest terms what Lyme Disease Really is and what it does; a copy of the current GAO investigation with the background (like the one from the LDF), and finally one copy of any of the announcements of the Horowitz Legal Defense Fund. All are online with no cost. With this packet prepared, you can do any or all of the following things according to your means: -Family/Friends/E-Buddies Send this packet via email, regular mail, or hand it to everyone you know or have contact with. Many organizations do blind mailings, and find great success even with those they don't know. If just a few people from each one of us send something, this can actually add up more quickly, and without cost (except if you need stamps, of course) -Small Local Fundraising This is also used by other groups and larger organizations. With the material mentioned above in hand: 1) An awareness party- invite your neighbors and friend to a Lyme Awareness Fundraiser in the form of a wine and cheese party, coffee/cake party, pasta party- whatever, where each person donates $10.00 or whatever amount you think in order to attend. Give each person the package you've printed, so that they have the opportunity to read about what Lyme really is, and the GAO investigation. Keep it as simple as you can, so that the cost isn't high. If you can't afford to donate the cost of the party, recoup it from what you've collected, and send the balance to the HLDF 2) Are you in a lyme support group? A Church group? Do you have a group of people around you that you can get together. How about some kind of cooperative activity, like a bake sale, indoor garage sale, etc., under the title of Lyme Awarness Fundraiser. Again, hand out the information to each person. With any of the above, you will be accomplishing several things at once. You'll be collecting money that is desperately needed, letting people know what Lyme Disease really is, and educating them about the ongoing politics. These kind of effort can actually accomplish much more than you might expect. I am sure there are many of you who have great ideas that can be accomplished without costing too much time or money. I hope you'll share them with all of us. I'll get further information on the auction idea and post it as soon as possible. Thanks for taking the time to read this. Sincerely, Regina Horowitz Legal Defense Fund (HLDF) > c/o > PO Box 410 > Kinderhook, NY 12106 ________________________________________________________________________ ________________________________________________________________________ Message: 4 Date: Fri, 19 Jan 2001 12:25:13 -0500 From: " Tansy " Subject: RE: Re: www.ChronicNeurotoxins.com Registration For what it's worth...I took the test, and, suprise, suprise, my results were positive. Unfortunately, the bad news is I know several people who have taken chloestyramine, and it does not seem to have helped any of them. I am going to talk to my LLMD about it again on Monday. > Hi Jack ! > > Go to www.chronicneurotoxins.com > Read thru the site......I haven't formed an opinion on it.....what do > you think??? > > ~ > > ________________________________________________________________________ ________________________________________________________________________ Message: 5 Date: Fri, 19 Jan 2001 14:32:23 -0500 From: " Tansy " Subject: RE: Re: Online Auction for Drs B & H > Re: [ ] Re: www.ChronicNeurotoxins.com Registration Date: Thu, 18 Jan 2001 14:45:06 +0000 kmakransky@... wrote: > > Pepi (and Fellow Lymies) - > Has anyone checked out this VCS test? You can do it on-line.....am > wondering if anyone has tried this yet.........I am considered to be > in remission......but wonder what this test is all about. > > Any thoughts? Hi , Please give me a web location where I can take the test. Thnks, Jack _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com ________________________________________________________________________ ________________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 Oh, another new symptom I am having are night sweats...every night and awaking middle of the night...before I had no sweats and pretty much slept with my nighttime meds but now nighttime has become a misery. What a disease... Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 Anyone with night sweats should definitely be tested for Babesia. I thought I was going through menopause a couple of years ago but it was the Lyme, Ehrlichia and Babesia. I have just been going through my mail. I don't have much time lately with all the hours I have to put into work but wanted to comment on the restless leg thing as well. I didn't even know I had that problem but I was waking up to leg and hip cramps every morning. During my last trip with my boyfriend (we are currently living in different States) he said he sat up watching me sleep because he felt so bad for me the way I had been feeling. He said not only was I breaking into a sweat several times through the night but my right leg would constantly "jerk" and move in a steady rhythm.. like every minute or so. One night he told me this went on for at least 2 hours while he watched television and I didn't even wake up. No wonder we are so tired and achy in the mornings! Now this was all while I was on flagyll. I have since changed medications because I couldn't take all the symptoms anymore. I am taking a break right now on Suprax. I usually feel a little better on that. I keep hoping I am nearing the end of this, but it still seems to cycle. I do get good days here and there and overall I am MUCH better than 2 years ago. It just seems endless though sometimes. Thanks for listening and I wish everyone better days ahead. Blessings, Lorraine Quote Link to comment Share on other sites More sharing options...
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