IGENE-X Labs for Lyme Testing - Very Good

[Guest guest]

Playpup: I know that IGENE-X is an excellent lab for finding lyme. I had

been tested 8 times in ten years and always came back " undetected " and the

Lab was supposed to be one of the two best labs in the nation. When I found

my wonderful LLMD, he did the ELISA, LUAT (urine test that IGENE-X does not

use anymore, there is a newer one that is more accurate that is a urine

test, though), IgG, IgM and a combined IgG & IgM . He also sent the very

same blood and urine to the " other " lab that my doctors had used in the

past. IGENE-X found that I was full of Lyme (I was bit in 1978 in TX - so I

have had lyme laying dormant in my body for over 30 years!). The test

results came back from the " other lab " and every test showed the lyme was

" undetected " ! I had so many other symptoms and problems that are all lyme

related at the time of this recent testing and then when I was started on

oral abx, I immediately had horrible Herxing and still do (over 8 months

now). I have been getting more abx orally slowly, but with great caution on

the tissue and organ damage so that I am still unable to do much but go from

the bed to the couch, maybe take a bath 1/5 days with the help of husband

when he is home from his work where he has to travel alot..

My LLMD also just ran a Central Nervous System (CNS) and a Peripheral

I think, but I do know that it refers to the brain) Nervous System (PNS)

test through the AAL lab and it show the amount of damage that has been done

by the lyme to your brain (PNS) and to your body (CNS). I wonder if the

Clinic (A) would be willing to do this testing also for further proof of

damage from the lyme?

Also remember that like Deborah said, " what happened to the clinical

diagnosis " , based on tests, physical and neuropsychological symptoms and

especially if you do have a Herxheimer Reaction to the abx! If anyone is

interested in the name of the " other lab " you can write to me directly, but

I will not post it and slam anyone, but I sure have been frustrated by the

fact that I could have been treated over 10 years ago if the lyme had been

detected!

Would the Clinic ( be able to verify why they used the tests that they

did and why they believe that the tests are valid and should be taken into

consideration? That might help your case further down the line.

Also, you might be looking into some research studies that will do the

testing, treatment and follow ups at no cost to you (like in NY city at

Columbia University with Dr. Fallon in Neuropsychology. He is giving

patients longer doses of IV abx to see if it shows better improvement in

their health and cognitive or neuropsychological abilities. Remember though,

that if you are in a research study and it is " double blind " , then you will

not know if you are getting the drug until the end of the testing. Dr.

Fallon does guarantee that if you are in the group without the IV abx, then

when the study is over, you will receive the drug for the same duration as

those who actually received the drug during the trials. Just a thought. They

also help pay for travel and other expenses and all testing during this

study if you qualify for the study.

Can you qualify for Medicare/Medicaid, SSI through the Social Security

Department, call Mental Health Mental Retardation (MHMR) and ask for a

social worker to be assigned to your case to help you find any and all of

the assistance available to you! Hope this helps! Write to me if you need

anything else. They did not post your email address. KC in TX

> -- In @y..., playpup@a... wrote:

> > Has there been anything written up or posted about " Good " Labs that

> > test for Lymes? " Good " being defined as a Lab that has an

> excellent reputation, and has a low occurrance of false/negatives and

> > false/positives? Or are they all a crap shoot?> >

> > Context of Question>

> > Clinic (A) ordered - Result:(negative)- Lab Used: Unknown

> > Clinic ( ordered WB IgG - Result: (negative) by CDC Standards

> > (borderline) by IgenX Standards - Lab Used: IgeneX

> > Clinic ( ordered WB IgM - Result: (Unequivical Positive) by CDC

> and IgeneX standards - Lab Used: IgenX

> > Went back to Clinic (A) with results from Clinic (. Clinic (A)

> will not accept the results from IgeneX Labs. Instead they want another

> > Western Blot IgG and IgM performed by MRL Lab.

> > Meanwhile Clinic ( wants to follow up with a urine PCR (to detect

> > DNA fragments) and a urine antibody ... with IgeneX. I all ready

> > know that Clinic (A) will not accept the findings from this.

> >

> > Dilemma is that Clinic (A) provides low/assisted income (charity),

> > and would not be charging me for treatment, whereas I would not be

> > able to afford the treatment from Clinic (

> >

> > So ... I Want to know if MRL LAB has a " good " testing process in

> > place, or are they notorious for false negatives?

> >

> > Conversely, does IgeneX have a " good " testing process or are they

> > notorious for false positives?

> >

> > Feel free to email me directly at playpup@a...

[Guest guest]

,

Is there an 800 number you are aware of for this organization and are

there specific critera in order to make use of their services?

Thanks.

Living in Faith not Fear,

Can you qualify for Medicare/Medicaid, SSI through the Social Security

Department, call Mental Health Mental Retardation (MHMR) and ask for a

social worker to be assigned to your case to help you find any and

all of the assistance available to you!

[Guest guest]

,

The number for Igenex is 1-800-832-3200. They have a website that explains the

tests also. www.igenex@...

HTH