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Questions about Lyme Brain

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Hi gang-

I know we all suffer from Lyme brain but wanted to ask

everyone if they have ever had something like this

before and if it is possibly from a HERX (Im not on

any abx right now tho) or if this could be more brain

damage occuring. I have been feeling like my head is

just so heavy and I am so confused. I would say it is

just the way someone feels just before they have a

stroke or the way a person with early Ahlzeimers(sp)

feels. Its like I am dissconnected from my body. I

cant think right and cant do easy things. I thought

maybe it was from all the drugs I take for pain but I

havent taken any today and it has gotten worse. I was

like this yesterday for awhile but as the night went

on it got better. Today has been a nightmare.

Any ideas or suggestions??? I had a pretty stressful

week last week so I thought that might play into it

too. Had my ALJ hearing for SSD and I think I won!!!

Just waiting for the official word from the judge.

Maybe Im just getting to excited about Gettysburg and

not only getting Reids autograph but also the kissing

booth...... LOL See what you do to me Reid??? LOL

Anyway thanks for all your help and advise in advance.

L (severely Lyme Brained in MI)

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lisa.....i will be waiting with baited breath.....lyme ladies are such

hotties.....

really . as far as lyme brain my llmd says that we do suffer irreversable

brain damage due to nureo lyme....what all my bad habits did not finish on me

lyme is doing it....some days are worse than others.....but i still really

need to concentrate....even on simple things that use to be second

nature....i get lost even locally real easy....thank god my oldest is going

to gettysburg....she can navigate.....

good about ur ssd....most of us do get it after all the appeals process is

over.....it is just such a long drawn out thing....then it is like a huge

weight lifted......i never had to go before the judge....my congressman

hassled them so much they did what is called an attorney review....which my

lawyer had never heard of...but i recieved it.....

spend wisely and save some of it for my kissing and dollar a dance booth.....

lol

Reid

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,

Just before I was put on IV I felt exactly as you described - almost demented - very, very confused and very heavy headed. It was very frightening. My doc reassured me that this would reverse and it did w/ abx. treatment.

Hope it passes soon. Are you planning on going back on abx's or any other treatment?

Hugs,

beth

Hi gang-I know we all suffer from Lyme brain but wanted to askeveryone if they have ever had something like thisbefore and if it is possibly from a HERX (Im not onany abx right now tho) or if this could be more braindamage occuring. I have been feeling like my head isjust so heavy and I am so confused. I would say it is

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Dear ,

I have had the " heavy head " feeling prior to diagnosis and of course a

worsening

with herxes. I feel like my head is the only part of my body because it's so

heavy and

hurts so much. Can't function much at all during those times. I think it just

goes along

with neurological LD.

Hope you feel better soon,

Eileen

N. Caldwell, NJ

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